discussions
Type 1
Helpful to
100%
of readers.
Would like to hear more feed back from type I diabetics
by Sue TurnerNovember 6, 2009 4:07 PM
37 Replies
189 Views
Last edited 14 days ago
Tags:
| From | Replies |
|---|---|
Harlen |
Harlen replied November 6, 2009 4:34 PM
Sue when you have ben with some one for a long time you never forget them and if the relationship was a hard one then it is that much harder to let go.I know I have ben there.When my Bs is going up and down so do my feelings and I am EZ to get upset.It is hard to keep the BS in line but if we dont we go thrue a lot of stress and that makes the BS go that much more out of wack lol.
Sue Turner replied November 6, 2009 4:46 PM Thank you Harlen. It is good to know that you are not alone in these types of situations. It is hard, and my relationship lasted for 40 yrs. I hung in there as long as I could trying to keep my family together. I thought when my children were grown, married and had families of their own, it would be easier to leave that situation. However, I think that it has been harder. They just have not accepted it well at all. And, it was a very abusive, and unhealthy relationship. I have got to get over it, and put everything in the past, however, it is not easy. I "am" working on it though. I have a wonderful husband who loves and supports me. He is always there for me. That I can be thankful for. |
Crashnot |
Crashnot replied November 6, 2009 4:39 PM
Sue,
Sue Turner replied November 6, 2009 5:05 PM Thank you for letting me know that I am not the only person who feels this way from time-to-time. This morning when I first checked my bs it was 44; I ate 1/4 of a glucose tab and after an hour it was just up to 59, so I ate another 1/4 tab, and it went up to 135. One of my therapists Rx for me Metanx, which is suppose to be a B-vitamin with some other vitamins in it. I do feel better since I have been taking it. You are right these swings do exhauste you, and I have been swinging for while now. And, not in a good way.LOL I see my endocrinologis this month. I have a lot to discuss with her about how I have been feeling. However, I really dread to see what my A1C levels are going to be this time, because my bs levels have been going from one extreme to another. Well, we will see, huh!!! |
momfeb42009 |
momfeb42009 replied November 6, 2009 6:42 PM
I know exactly what you mean... I have serious emotional roller coasters all of the time. I am type 1 and on insulin, and I have been for 21 years. I often feel like no one understands and I am told that it could be worse. I am also told that stress effects your bs, and I have alot. I'm just letting you know that I can honestly say I know exactly how you feel.
Sue Turner replied November 6, 2009 7:54 PM Last edited 14 days ago Hi Momfeb. Thank you for your sweet reply. Yes, it does seem that we are all alone at times, and that no one understands what we are going through. I too know that things could be a lot worse. My husband and I own our own business, and we have been under a "lot" of stress lately as well; it seems that stress is all we have had for the six years that we have been together. Just a few months after we married, he went through a bout with cancer. That was very stressful, I didn't know if he was going to live or die. Thankfully he is cancer free now,so we made it through that. We have had to deal with my girls, They didn't take it well when I separated from their father, Then here comes this new man into their lives. So we had to deal with that, and are still dealing with it. And, they are grown, married, and have their own families. Then, I was diagnosed with diabetes. And, I know that stress affects my bs and how I feel. Today, I have just wanted to sit down and cry. I am so thankful for all of you out there. It really helps to know that we are not alone, and that others do understand what we are going through. I do a lot of praying for strength, and keep telling myself that everything is going to be alright. Just got to get out of this funk. LOL. We can't give up, can we? We have got to keep on trucking. It's good to know that you appreciate, and understand how I feel.
momfeb42009 replied November 6, 2009 8:57 PM I am on the other side of that fence. I am the step mom of a 13 year old and a 10 year old... I have been married to their father now for 1.5 years and they haven't adapted yet. So again, I can relate... We have alot in common! Welcome, my new friend!
Sue Turner replied November 6, 2009 9:36 PM Thank you for welcoming me as your new friend. Let's keep intouch, and compare notes. LOL. I am step mom to 4. However, all of our children are grown. But, my husband's children have been better to me than my own children have been through this marriage. I raised my daughters to be good people, but they have really been very ugly to their mother over these last six yrs. I think they thought that their parents would always be together, and I understand that. I get the fact that we, and I include myself in this, want our parents to be together forever. It really hurt them badly when we separated. But, it was a situation that I needed to get out of.
Crashnot replied November 6, 2009 9:51 PM Last edited 14 days ago I'm not sure children of divorce ever adapt, except in unusual cases. My cousins went through THREE new mom's with my uncle. And their own mother was no role model either unfortunately. Anyhow, they broke up at least two of the other marriages. Remember that you have the luxury now of living YOUR life, your kids have their own. Any bitter feelings will eventually wear off, assuming you've played a supportive role in their lives so far. So be grateful for your marriage, his health, and the ability to face your challenges together. If that won't work, we'll just have to give you a better approach ;-) It will probably take longer than it should, but if your girls have the sense you do, they'll come around in their own time.
Sue Turner replied November 6, 2009 10:16 PM Thank you Crashnot. You always have such good advice. I have got to stop feeling guilty,and as you said, I now have the luxury of living MY life. I don't think that my daughters will ever except my husband, (as being their step father,"friend", maybe) but then that is their problem and something that they are going to have to deal with. I can't continue to blame myself for their unhappiness. Although it breaks my heart. You know how you feel about your children, you don't want to see them hurt or unhappy. However, I do agree with you, I do think that the bitter feelings will eventually go away, and they will come around. It is just taking a very long time. I just hope I can survive. LOL. One of my therapists said, "they have a lot of anger and resentment, but that is not your problem, that is something that they are going to have to work through." You are so funny; I love you so much. Thank you for being here for me. |
|
Nana#1 |
Nana#1 replied November 7, 2009 12:05 AM
I have had type 1 diabetes for 31 years, the lowest A1C I have ever had is 8.2, and not many of them, every endo I see tells me that they will get me under control, but they soon lose interest and just let me come every 3 months and say oh well, I have an insulin pump, everyone tells me that they do very well on it, not me, I do not understand why, but I do know that I am the only one that can do anything about it, any advice would be greatly appreciate.
Sue Turner replied November 7, 2009 1:06 PM Good morning Nana#1. Good to hear from you. I wish I had some good advice to give you. I was just diagnosed with type I about a year and half ago just before my 61st birthday. I am on the pump and I guess I do pretty well. I still have a lot of highs and lows. This morning my bs was 51 so I took a 1/4 of a glucose tablet, that is about all I need to get it up to a normal range. If I eat more than that it gets up too high, it just depends on how low it goes as to how much I need. My A1C level stays around 7.4. I see my endo every three months. The first time I saw her right after I was diagnosed it was 6.6. The second time I saw her it was 7.5, and has been 7.4 ever since then. She wants it below 6.5. Well, I am trying! I know I don't always eat like I should, I can't always eat the foods I should. Sometimes we just have to eat what we have, right! I just try to adjust my carbs to the insulin ratio to what I think it will be and hope for the best. It gets frustrating. But, everyone says that we are all different, and maybe that is normal for you. I don't know, since I am not a doctor. I know the lower it is, the better. I try to take care of myself as best as I know how. You have been diabetic for quiet a while. Have you had any complications? I just keep plugging along and hope for the best, and hope that nothing bad happens. I am still in shock. I was terrified in the beginning. I was afraid to do anything, and I still get scared at times. I let it get me down at times and get all depressed and have panic attacks. I am trying to keep my stress level down as best I can,and it gets hard to do that. My husband and I own our own business and that can be very stressful at times. I worry about the money situation, but I am trying to stop that. I can only do so much. When you have customers you have to wait for them to pay you for your services before you can take care of your finances. Now with the holidays comming up, I am starting to get a little stressed out, but I keep telling myself that I can only do so much and trying to not let things get to me and get me down. The only thing I know to tell you to do is keep shopping around for different endocrinolgists, and just maybe you will get lucky and find one who can get you under control. I have an appointment with mine the 24th of this month, and I shutter to think what my AIC level is going to be because I have had so many highs and lows for the past several weeks. All we can do is keep searching for answers. I do a lot of research looking for someting positive. We can't give up, we have just got to keep on going no matter how discouraged we get at times. I have two daughters, and three beautiful, wonderful grandchildren, and I want to be around to enjoy them for as long as I can. We will just have to hang in here together. I want you to keep intouch, and keep me posted on how you are doing, and I will do the same. If you need to talk to someone, I am here for you. I will keep researching and if I find something that I think will help you, I will let you know. Hugs to you, and have a wonderful day. It is beautiful this morning, the sun is shinning,and the fall colors are beautiful. It always makes me feel better to be able to look out and see the sun! LOL Sue |
Pam S |
Pam S replied November 8, 2009 12:38 AM
I am new to this site but came across your post. I have to say I don't have the same type of problem, but my job is very stressful. I actually left my doctors office in September depressed and then started crying in the car on the way home. I think the ups/downs and stress of life can make us miserable or depressed. Hang in there:)
Sue Turner replied November 8, 2009 1:43 PM Good Morning Pam.
|
Sally Thomas |
Sally Thomas replied November 10, 2009 5:30 PM
I have been Type 1 for 34 years and I too experience the yo-yo effect with emotions. When I am low my husband and children know it immediately. It would appear I am just a tad bit "grouchy" when I go low. However, just normal every day stuff can give me alot of ups and downs depending on how my blood sugars are. Good luck to you!
Sue Turner replied November 10, 2009 6:28 PM Last edited 10 days ago Hi Sally,
Sally Thomas replied November 11, 2009 7:20 PM I understand the emotional roller coaster as well. I can go quite a while and be pretty steady and ok. And then BAM-I get all shook up. I try very hard to always concentrate on the good-I can still walk, talk, and take care of me. However, that doesn't always work. I really wish you well with all of this. Sounds to me like you maybe need to have a long in depth conversation with your dr. Diabetics are so prone to depression and without treating it it doesn't get better. Once again, good luck!
Sue Turner replied November 11, 2009 7:49 PM Thank you Sally,
Pam S replied November 12, 2009 2:18 AM Sue...you just hang there...you are not alone at all:)
|
|
azrookie |
azrookie replied November 12, 2009 9:16 PM
My husband was diagnosed when he was 65 after a lifetime of sports activity, low weight range, healthy diet. Go figure. He was mis-diagnosed and incorrectly treated as a T2 for over a year until we found a better specialist who immediately confirmed that he is indeed a T1...on a different and better insulin program now. He too is depressed by the jolt to his self image and the management issues....but I remind him when he's feeling sad that it still beats the alternative. Keep smiling, find reasons to laugh and get that 30 minutes minimum of active exercise every day and let me know how you're doing.
Sue Turner replied November 12, 2009 11:22 PM Hi Azrookie,
azrookie replied November 13, 2009 1:13 AM Steve was diagnosed about a year and a half ago, Feb of 08 we went to the hospital after he had suddenly lost almost 20 lbs, was thirsting constantly and measured bg that night about 400....his doc really didn't know what he was doing, and, frankly, the first specialist to whom we were referred was a Nigerian woman doctor who turned out to be in the country illegally and suddenly disappeared....allowing us to get lucky and find a really good diabetes doc. This doc, Dolinar, co-wrote a book called Diabetes 101 which is now out of print but can be acquired through Amazon.com....he writes about using Humalog and Humilin in dynamic balance. Steve has now regained his weight which helps his self image some and we continue to work with using insulin while there are significant factors of stress and asthma and apnea. I guess my main message to him is that none of this is anything he caused....no guilt should be ascribed to having these issues....we are all just trying to do the best we can....it's like a moral imperative.
Sue Turner replied 4 days ago Your husband was diagnosed about the same time as I was diagnosed. I was loosing weight really fast as well. I was loosing about 1 to 2 lbs. a day. It still didn't dawn on me what was going on; I just knew that I felt really badly. I didn't have a clue, and I have been in the medical profession for 40 yrs. Diabetes just didn't enter my mind. It was not something that ran in my family, so I didn't give that a second thought. Just about everyone in my family just died from old age. LOL. I know that isn't funny, but it's true; they were all in their 80s or 90s. I'm glad that your husband is doing better, and has gained his weight back. And, it wasn't anything that he did or did not do that caused this. I have restled with that as well. For a long time I questioned if I was being punished for something, then, I said to myself, "Sue just look at all the people who have this disease; look at the little babies who are born with it, did they do something to be punished for, I don't think so." But, I think we all go through these things to a point. I don't know, maybe, maybe not. I guess we just have to take what life gives us and do the best we can with it. Let me hear from you again, and let me know how your husband is doing. Sincerely, your friend, Sue T. |
|
scarr |
scarr replied November 13, 2009 12:09 AM
Sue,
Sue Turner replied 5 days ago Hi scarr,
Sue Turner replied 5 days ago I just became aware that you just joined the site a couple of days ago. I would like to say, Welcome!!!!!! I hope that it will be of great help to you. |
Richard157 |
Richard157 replied 5 days ago
Hello Sue, I can identify with your need to identify with other Type 1's. I was diagnosed with Type 1 in 1945, when I was 6. The only advice we were given was to not eat sugar. I had very poor control and high blood sugar because we were not advised to follow a low carb diet.
Sue Turner replied 4 days ago Last edited 4 days ago Good evening Richard,
Richard157 replied 4 days ago Sue, I presented a series of blogs many months ago that give my diabetes history and autobiography. Here is a post that I preparedback then. It lists the links for each chapter. That is a lot of reading to do, maybe the first few chapters will give you some idea of how things were for a diabetic in my very early years.
Sue Turner replied 3 days ago Thank you Richard,
|
|
rankearl |
rankearl replied 3 days ago
hi sue im type 1 38 yrs i was dx at age 11 its harder to say no to all that good stuff if you had it for so long diabetes is automatic for me now it will be that way for you too it does get easier i got a csom pump 6yrs ago this best thing i ever did if you can get a pump doooo it im not a perfect diabetic we are human holidays are hard pick one dessaert and taste it or youll sneak more later i too im on my second marriage 3yrs good realtionships are alot of wrok but it is worht it hope i helped hang in there julie
Sue Turner replied 3 days ago Hi Julie,
GiGiB replied 2 days ago Hi Sue!
|
|
Bishop236 |
Bishop236 replied 1 day ago
Hi Sue,
Pam S replied 1 day ago I have a similar issue to your example for the morning. The only difference with me is that my numbers climb in the morning. So many times I try to correct when I just need to wait for the insulin to kick in. Of course then I end up dipping. I'm trying really hard to remember to not try to correct like that. Then I have novolog and Levemir kicking in at the same time (dipping takes place). Trial and error. As they say....the only person that can tell whats going on is the pwd...... |
Hi all, I am having a really hard time lately. I feel like I am on an emotional roller coaster. I don't know if it is the depression caused by all the highs and lows that I have been having with my bs lately. I am just having one of those down days today. I feel like a lost person who doesn't know which way to turn. I don't know if it is because I am type I and on insulin that is affecting me or something else. Just looking for some positive feed back. I know diabetes is diabetes no mater the type, but I would like to hear from more people with type I so that I have something to compare with. Just not feeling well, emotionally or physically, and my family just doesn't seem to understand. My daughters think that I should feel perfectly fine, and that I am just feeling sorry for myself,and am letting this disease control me. They think that I should be in a better frame of mind,(wish that I were) and that I am not doing enough to control my problem, but that is not the case. I am doing the best I know how. I also know that this thing with my ex-husband is not helping the matter. It will soon be six years that I have been married to my new husband, but I am still having a lot of problems letting go of the past. I wake up in mornings at times, and there will be an unpleasant memory that will pop into my head, then it just starts to go down hill from there. Don't know what to do. Help!! Sue