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Diabetic Connect Member dawgs816

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Diabetic Neuropathy

by dawgs816
May 11, 2008 12:32 PM
74 Replies
2094 Views

I have the subject disorder.My endocrinologist tells me that a high percentage of his patients suffer from it.He prescribed Gabapentin for pain.I get limited relief .Does anyone else suffer from diabetic neuropathy?

Tags: please share experiences, lots of pain

From Replies
Diabetic Connect Member Bren62W
Bren62W
Bren62W replied May 12, 2008 7:01 AM 

Hello,

I have neuropathy in my right leg from a back injury/surgery that I had a few years ago, but the numbness and the pain are starting to spread and I am wondering if it is due to the diabetes. I am on neurontin and two types of morphine, fast acting and extended release. I am going to talk to my doctor this month and see what would be causing the spread, and what the difference is between this type of neuropathy and diabetic neuropathy. My mother had diabetic neuropathy in her arms and they had her on the neurontin. Where is your neuropathy?

dawgs816 replied May 12, 2008 1:11 PM 

Brenda,it's in my feet and some time it hurts to put on socks.I use gabapentin which is a generic form of neurontin. I hope some body finds a cure for it.My PP will not give me any morphine or derivativeof it.He tells me that he does not want to get me dependent on these compounds.I hope this helps. Jerry (dawgs816)

chas11 replied May 26, 2008 6:13 PM 

think about getting a new doctor. Your's sounds as if he (or she) has never had that long term grinding burning pain.

auntheidi replied June 30, 2008 8:24 AM 

Ditto the get a new doctor idea. I've been on a fentanyl patch for 5 years and am not addicted - just getting much needed pain relief. I was switched from Neurontin to Lyrica and there are other treatments, too. Find a more experienced doc. Ask your diabetes support group leader or CDE for a referral.

Leigh Marsden replied October 26, 2008 12:31 PM 

Last edited about 1 year ago

Hi there,
If your doctor won't give you the relief from pain that you need then, you should go and see a different doctor until one of them helps you. Staying in pain for the rest of your life needlessly is ludicrous. Good luck in acquiring better health care.
Just my two bits,Your Friend Leigh

jupton1 replied May 26, 2008 8:24 PM 

I use motrin 800mg 1 time a day..My finger and a few toes hurt bad..I totaly understand..John

jupton1 replied May 27, 2008 12:16 AM 

Thought this might help,,,>How are diabetic neuropathies treated?
The first treatment step is to bring blood glucose levels within the normal range to help prevent further nerve damage. Blood glucose monitoring, meal planning, physical activity, and diabetes medicines or insulin will help control blood glucose levels. Symptoms may get worse when blood glucose is first brought under control, but over time, maintaining lower blood glucose levels helps lessen symptoms. Good blood glucose control may also help prevent or delay the onset of further problems. As scientists learn more about the underlying causes of neuropathy, new treatments may become available to help slow, prevent, or even reverse nerve damage

Macdaddy replied May 27, 2008 7:54 AM 

Hi this is my first post..I have Neuropathy in both my feet and in my legs and have pain in between my shoulder blades.really didnt think it was neurophathy. until i read this post.I ride my bike and exercise and take a lot of herbs but still have a lot of pain.at night i rub african shea butter and it helps it takes the burning and tingling away at night..Its nice to meet you all.....Rick

Nana5 replied October 4, 2008 2:38 PM 

I also have diabetic neuropathy and at first took neurotin 2 times daily, it didn't help much. I then switched to Lyrica but had to stop because it caused vision problems. I'm now back on a higher dose of neurotin and it helps some. What is African shea butter and where can you get it?
Diabetic Connect Member azmisty
azmisty
azmisty replied May 12, 2008 2:05 PM 

Jerry:

I get mild neuropathy in my toes but I have had "flashes" of it in other parts of my body. I find that if I keep my sugar in really tight control (85) that I can keep the condition under control. Actually getting the neuropathy pain is what made me get really serious about keeping my sugar low. I am afraid to take neurontin...unfortunately, I have read some side effects that I am not willing to put up with.

I highly recommend reading the book Dr Richard Bernstein's Diet Solution. I got it at the library because it costs about $30.00. But, I am considering buying it because it is such a great refernece and he does cover neuropathy.

Best wishes......Misty

Dianna replied May 14, 2008 5:39 PM 

Jerry:

I have neuropathy in my right leg from a herniated/bulging disc in my back that I had several years ago, but my numbness and pain has moved and spread; now due to the diabetes as well.
Just four months ago, I was also diagonsed with fibermyalgia which is very hard to diagnose on men and women in our situations. I was on neurontin, the maximum of 400 mg 3x daily. My body started to reject this after one year and my neuroligist wanted to put me on the morphine pump, but I would not let him. So I agreed to methdone. I also am taking gabapentin again.
However, that is not the worst of my diabetes....I have been struggling with high blood sugars for over 12 years and even felt sucidal once over it. I have been told that if I could only regulate these and get a low A1C then, even my pain would be easier to tolerate. I turn it over to God everyday and take it a minute at a time ; some days at a time; for the most part Jerry; your not alone with the neuropathy.

Best wishes.....Dianna

Dianna replied May 14, 2008 5:42 PM 

Brenda,

The above reply was meant for you...sorry Jerry. Been along day for me!

Respectfully to you both,
Dianna

Bren62W replied May 17, 2008 2:17 AM 

Dianna,

Your problem sounds similar to mine. That's what I was afraid of that the spreading numbness and pain are from the diabetes. I have an appointment on the 21st with my pain mgmt. doctor and I plan to discuss this with her.

As far as the neurontin, sorry to tell you but 1200mg is not the max. I was on 1800mg a day. It really made a difference from the 1200mg I was on before. They raise it and lower it because of the side effects I have with it but I can sure tell the difference with the higher doses. It doesn't completely eliminate the pain but it sure takes the edge of. Maybe it's because my meds are prescribed by a pain mgmt. specialist that they prescribe higher doses, I don't know. However, I wish you the best with your treatments.

Take care.
Bren

donnalynn209 replied May 14, 2008 9:51 PM 

MY SISTER OS A DIABETIC AND HER FEET AND LEGS SWELL IS THIS BECAUSE OF THE DIABETICE

Dancehawk replied June 13, 2008 9:42 AM 

Donna she needs to see her doctor, it might be from her meds to .
But have her see the doctor, it might be something serious.
I know Avandia does that on some folks and they tell you if your legs and feet swell see the doctor.

Dance

Lisa Ann replied October 26, 2008 12:43 PM 

I take Avandia and my feet and legs started swelling so my dr. put me on Lisinopril/hctz 10/12.5 It's a blood pressure water pill combo and it works great.
Diabetic Connect Member dajudge
dajudge
dajudge replied May 19, 2008 7:32 AM 

i have diabetic neuropathy. i've been on gab.... and it worked for awhile then was switched to lyrica, thats better for me but i continue to have problems so my doctor perscribed some lotion that eventually deadens the nerves. i don't know the name yet because i have to pick it up today, but i'll let you know how it works.
Diabetic Connect Member peruvianpasohi
peruvianpasohi
peruvianpasohi replied May 19, 2008 1:53 PM 

I was on both the Gabapentin and amitriptyline for the peripheral neuropathy. I breezed through a bout of Shingles, since I was alreadyu on both of these when it erupted.

chas11 replied May 26, 2008 6:23 PM 

Did you have chicken pox when you were a kid?
Diabetic Connect Member rlndjs
rlndjs
rlndjs replied May 19, 2008 4:05 PM 

Yeah Isuffer from diabetic neuropathy, and my doctor gave me Lyrica, and it helps a lot!

chas11 replied May 26, 2008 6:21 PM 

Gabapentin is the same thing accocrding to the VA. And it's a lot cheaper. Look up your meds on the net and see what's what's.
Diabetic Connect Member Sunni
Sunni
Sunni replied May 24, 2008 9:41 AM 

I only have Type II diabetes but when I went to the pain clinic they discovered I have neuropathy also and I am on Gabapentin. Since I was going for pain in my hips and lower back this was an added aggravation. I am getting some relief. They first tried Lyrica but it is too expensive even with insurance. Good luck!
Diabetic Connect Member justjan
justjan
justjan replied May 24, 2008 9:51 AM 

I take Neurontin for my Neuropathy.
I take it at bedtime and it does
knock me out for the night.
Diabetic Connect Member TERESA1944
TERESA1944
TERESA1944 replied May 24, 2008 10:36 AM 

MY NAME IS TERESA AND I AM VERY MUCH OVER WEIGHT, AND MY DISABILITIES KEEP ME FROM BEING ABLE TO WALK & EXERCISE.

MY DOCTOR HAS TOLD ME THAT I HAVE TO LOSE WEIGHT OR I AM GOING TO DIE. HE HAS ESPECIALLY WARNED ME OF THE DANGER BECAUSE MY DIABETES IS ALMOST AT THE POINT OF NOT BEING UNDER CONTROL. HE DOES NOT WANT TO START ME ON INSULIN BECAUSE OF THE ADDED WEIGHT GAIN IT CAUSES AND I CAN HARDLY MOVE NOW DUE TO MY WEIGHT AND PHYSICAL PROBLEMS.

I AM 63 AND I AM ONLY 4’11, AND WEIGHED IN AT 275 AT THE DOCTORS OFFICE YESTERDAY. BECAUSE OF A BACK INJURY SEVERAL YEARS AGO AND BECAUSE OF DIABETIC NEUROPATHY IN MY HANDS & FEET AND ARMS & LEGS, I AM ON DISABILITY RETIREMENT. I HAVE MANY THINGS THAT KEEP ME FROM BEING ABLE TO GET AROUND ON MY OWN VERY WELL – BUT THEY ALL PRETTY MUCH STEM FROM BEING OVER WEIGHT.

I HAVE BECOME SO DEPRESSED & DEPENDANT ON OTHERS TO CLEAN MY HOUSE AND DO THE THINGS FOR ME THAT I USED TO ENJOY DOING MYSELF, BUT THE PAIN KEEPS ME FROM DOING THEM NOW. I WANT TO BE ABLE TO PUT ON MY OWN SOCKS AND CUT MY OWN TOENAILS. I WANT TO BE ABLE TO GET DOWN INTO A BATHTUB AND SOAK AND NOT HAVE TO AVOID EVEN TAKING SHOWERS AS OFTEN AS I USED TO BECAUSE IT HURTS SO BAD AND LEAVES ME IN TOTAL EXHAUSTION TO DO SO. I EVEN CRAWL INTO BED WITH MY CLOTHES ON SO I DON’T HAVE TO KEEP GETTING DRESSED AND UNDRESSED BECAUSE IT WEARS ME OUT SO MUCH IF I DO. I WANT TO BE ABLE TO HOLD MY ARMS IN THE AIR LONG ENOUGH TO PUT CURLERS IN MY HAIR; OR EVEN UP LONG ENOUGH TO HOLD A TELEPHONE TO MY EAR AND HAVE MORE THEN A 2 OR 3 MINUTE CONVERSATION WITH MY GRANDKIDS, WITHOUT MY ARMS AND HANDS GOING TO SLEEP & HURTING SO BAD I HAVE TO HANG UP. I WANT TO BE ABLE TO HOLD A BOOK OR A MAGAZINE OR EVEN A NEWSPAPER LONG ENOUGH TO READ MORE THAN A PAGE OR TWO. I WANT TO BE ABLE TO STAND AT THE KITCHEN STOVE TO COOK OUR DINNER OR AT THE SINK TO DO THE DISHES, WITHOUT HAVING SO MUCH PAIN IN MY LOW BACK, HIPS, LEGS, AND FEET THAT TEARS RUN DOWN MY FAT CHEEKS IF I DO. I WANT TO BE ABLE TO GET OUT TO SHOP AND NOT HAVE TO RIDE THE LITTLE SCOOTER AT WALMART IN ORDER TO GET MY GROCERIES. I WANT TO BE ABLE TO GET OUT AND ENJOY A DAY OF GARAGE SALEING WITH A GIRLFRIEND LIKE I USED TO LOVE TO DO. I CAN’T EVEN GET DOWNSTAIRS TO DO OUR LAUNDRY ANYMORE AND MY HUSBAND DOES IT FOR ME. I HATE THAT I CAN’T DO THE THINGS I USED TO LOVE TO DO.

NO WONDER I AM DEPRESSED AND WANT TO JUST SET IN MY CHAIR ALL DAY OR TAKE NAPS SEVERAL TIMES A DAY – I HAVE NO LIFE ANYMORE. MY HUSBAND WORRIES HE IS GOING TO COME HOME AND FIND ME DEAD FROM A FALL OR DOWN ON THE FLOOR AND CAN’T GET UP WHEN I’VE TRIED TO REACH THINGS FROM A LOWER CUPBOARD. WE HAVE EVEN MISSED SEVERAL SUNDAYS OF CHURCH BECAUSE I HURT SO BAD BY THE TIME WE GET BACK HOME.

A LOWER CALORIE DIET WITH NO EXERCISE AND LOTS OF DEPRESSION ISN’T HELPING ME LOSE THE NECESSARY WEIGHT I NEED SO DESPERATELY TO LOSE. I CAN NOT AFFORD TO JOIN A WEIGHT LOSS PROGRAM WITH THE FOOD ORDERS, ETC – I CAN NOT AFFORD TO JOIN A GYM – AND I HAVE BEEN TOLD BY DOCTORS THAT I CAN NOT DRIVE ANYMORE BECAUSE OF MY ARMS AND HANDS GOING TO SLEEP SO QUICKLY WHEN MY HANDS ARE ON THE STEERING WHEEL – AND WE LIVE IN A SMALL TOWN THAT HAS NO LOCAL DIET OR WEIGHT LOSS PROGRAMS. I WOULD HAVE TO TRAVEL 20 – 25 MILES TO THE CLOSEST TOWN THAT HAS EXERCISE GYMS LIKE ‘CURVES’ OR SOMETHING OF THAT SORT – IF I COULD STAND LONG ENOUGH TO DO ANY KIND OF REGIMEN.

THE NECESSARY WEIGHT LOSS WOULD FREE ME FROM SO MANY DEMONS & I NEED TO DO IT BUT I HURT TO BAD TO EVEN START………

I HAVE BEEN ON BOTH GABAPENTIN AND AMITRIPTYLINE FOR THE DIABETIC NEUROPATHY, BUT BOTH CAUSE SUCH HORRIBLE SIDE EFFECTS OF CONFUSION & NON-RESPONSIVENESS THAT PUT ME IN THE HOSPITAL SEVERAL TIMES – SO NOW I HAVE BEEN TAKEN OFF OF THEM AND THEY SAY I CAN NOT EVER TAKE THEM OR SIMILAR MEDICATIONS AGAIN OR IT MAY CAUSE EVEN WORSE RESULTS.

SO I SUFFER WITH THE PAIN & CONTINUE TO GET FURTHER DEPRESSED BECAUSE I CAN’T DO ANY OF THE THINGS I USED TO LOVE TO DO.

Muffet replied May 24, 2008 6:46 PM 

Teresa, I understand how you feel as I have been in and out of depression for a number of years. The diabetes and fibromyalgia does not help the mood. And this is a good place to vent frustrations. However, I have learned through some counseling that it is better not to dwell on all the things that are wrong with our body and the things we cannot do. Try to think of the things you can still do. Some days I have to live by the 5 minute rule. Get up and do something for 5 minutes -- whether it is reading, or picking up a few things in the house or folding clothes etc. It does help. I am fortunate to be working with a yoga instructor, who focuses on working with people with pain. It has been beneficial to me as that is all the exercise I get each day. I too was forced to go on disability from I job I really loved. There is light out there. Just don't give up hope.

Robb replied May 24, 2008 9:42 PM 

Last edited about 1 year ago

Greetings and God bless you Teresa~
I can relate to everything that you expressed in your posting. We really share a lot of the same problems. I am new here and have never met anyone else that has experienced a lot of the same things as I although I know that there are many "out there."

Being limited due to fatique and exhaustion, physical activities are often nill, but there are other things that are possible to do and that I can accomplish, even if just lying on the bed.

A nun once explained to me how some of us are here to suffer and to pray because that's about all we are able to do and because it's so greatly needed. We offer up our sufferings to the Lord and we pray for others that are suffering because of either physical, mental, emotional pain or even all three. We can pray for entire this world and all of the problems such as wars, crimes, poverty, injustice, tragedies, etc.
I have found that through meditation and prayer, I have a new focus and it helps so much to ease my own personal pain.

You wrote that sometimes you aren't able to make it to a church service, well we are so fortunate to live in this day and age with the many, many opportunites to have multiple choices of having our faith refreshed daily!
Television, Radio, Internet, Audio Libraries, MP3's, Podcasts, etc., all provide us with a way to continue to worship without the physical ability to travel to church. Often times it is more of a blessing for me because I am able to listen or to watch in a more comfortable situation at home rather than in severe pain sitting in a pew.
This helps me to concentrate and focus so much better and I now get so much more out of church services than before.

Since I have redirected my focus from my own personal pain to prayer and meditation I have experienced less intense pain, although the pain is still very much there.
The pain is there as a constant reminder that He, that suffered the ultimate pain for me, for you, FOR ALL OF US, needs our prayers!

"Prayer on Healing"
I am a radiating center of God's healing love, energized in mind and body.
God's spirit abides and thrives within me, regardless of what is happening in my life. In sweet moments of meditation, I nurture a growing awareness of God's love for me and within me, and healing is the natural result.
As a radiating center of God's healing love, I focus my thoughts and attention on the idea of wholeness for myself and for others. Whenever a healing challenge appears, I know that wholeness is possible because God's healing love is providing the renewal of our minds and bodies.
God's love is within every cell of my body. Healing energy is flowing throughout my total being. I feel refreshed and energized. With an awareness of ongoing healing activity, I claim wholeness of mind and body.
"It will be a healing for your flesh and a refreshment for your body." -- Proverbs 3:8

Always remember that whatever our cross (or "crosses"), we must bear it in this life so that we can enjoy our next life where there will be no pain, suffering or tears. Love, peace, and overwhelming joy shared with Christ for eternity is our ultimate goal!

We all have crosses to bear. Let us accept them as best as we can as a sign of our faith.

Leigh Marsden replied October 27, 2008 4:11 PM 

This letter is absolutely beautiful. I can feel the spirit of our Lord and the HolySpirit while I read it!!!
Thank you so much for blessing not only her... but me...

I am going to practice this prayer and then put it to use.


Thank you so much, Leigh

bricksee replied June 12, 2008 1:05 PM 

Hello Teresa - yes I can relate to EVERYTHING you say, only moreso. Add a few strokes to the list, a fall 10 years ago that changed my life forever, and the fact that I'm older than you are. Could be your older sister from the way the list reads.

Well, we are both at the right place for help I believe. Lots of people here with suggestion and also in similar circumstances.

Let's see what we can learn from them.

angelalouise replied June 12, 2008 3:56 PM 

teresa, please try to lose the weigt. i just read your story. it made me want to cry. if you have a computer go to the biggest looser web site. it cost 5.oo per week for the diet. as far as exercise join silver sneakers. i belong the exercise is done in a seated position when you can you will stand. i just lost weight following bigest looser diet i am off all meds now except for some insulant. PLEASE TRY.

angelalouise replied June 12, 2008 4:01 PM 

teresa, i forgot to tell you that silver sneakers is free for seniors. angela

Ginetteb replied June 13, 2008 6:43 AM 

Angela, what is the biggest lower's site? I sure could use their help

angelalouise replied June 15, 2008 5:50 AM 

biggest looser is the tv show where people are chosen and exercise and follow a meal plan on the reality show. the show inspired me to search the web for the site and i found i could join on line. so i did. it gives you a day by day meal plan that you can follow. it works. mainly it portion control.
angela

Ginetteb replied June 13, 2008 7:19 AM 

Last edited about 1 year ago

Teresa, I just re-read what I wrote before and I realize that nothing I said was of much help to you.
I am also obese and it's no joke. I can't stand, can't walk, can't cut my own toe nails (if I try, I get cramps in my legs), etc. And to add insult to injury, I'm in a lot of pain. So here's how I deal with all this. I have a chair in my shower, so I don't have to stand up all the time I'm in there and besides it's safer for me, I can't fall. I bought myself a stool that's a little higher than the kitchen chairs so that I can prepare my meals at the counter in a sitting position. I will wash my dishes standing up, but I'm resting on my forearms to do so. I dry them sitting down, I could use the dishwasher, but for 2 plates it's hardly worth it. I am fortunate enough to have a husband who does the housework for me. He also does the washing and I fold the clothes and iron them (in a sitting position). etc, etc, etc.
It's a whole new way of doing things and it's no fun, but it works.
I try to walk as much as I can in the house. At first I used to ask my husband to get me this and get me that, and then I realized that I was acting like a prima donna. So now I get things for myself. Sometimes, it's very hard because the pain in my back is intense, but I do it anyway. When the pain is not too bad, I'll walk at the end of the driveway to get the mail. (my driveway is very long, it can park at least 3 vans, one behind the other). That not only brings my BS down, it's also good for my heart. So don't be discouraged. As for the diet, try the Weight Watchers' point system. It's a very regimented diet, but it does work. I have 2 neighbors who lost over 100 lbs with it, and they never put it back on. The key word is discipline and I don't have much of that, but I keep trying, maybe some day I will be.
There's another and a better way to deal with all this, it's not to think about it. Whenever you start to think of how things used to be, train yourself to start thinking of what is right in your life, like your're breathing, grand-children... Do something new, like a hobby. Hobbies are great because while you do it, you can't think of anything else, so it helps a great deal.
Good luck Teresa and keep your chin up. Better days are ahead, it's not all black, there IS a rainbow after the rain.

DiabetesDiva replied July 4, 2008 10:14 PM 

I am so sorry for for all that you are struggling with. My mother suffered from chronic pain and its hard to have a "normal life". She was bipolar with serious bouts of depression and was on medicare. I too fight depression. I have found a combination of meds and psychotherapy so helpful. Perhaps, your dr could prescribe something and refer you to a therapist. There's a great show on PBS called "Sit & Be Fit" which may work for you. You can do this! Just start slowly & take baby steps. Don't beat yourself up if you're not perfect - adequate is just fine. Depression and pain make everything seem hopeless and overwhelming. Also keeping a "grateful" journal may remind you of the happy and positive things in your life. Would your husband be willing to partner with you on your journey to good health or maybe a friend? It helps to have an advocate. Good luck!

Nana5 replied October 4, 2008 2:51 PM 

My husband is 62, diabetic, had colon cancer, a heart attack, chronic pain due to several ailments and is now up to 19 medications daily. He also weight 385 lbs. He is in the process of qualifying for weight loss surgery because he has been told if he doesn't do something he will not be alive in 5 years. He was also told that after the surgery some of his health problems may be helped such as the diabetes. Also the amount of medications will be reduced. I urge you to speak with a specialist in gastric bypass for an opinion. As my husband is a prime example, dieting doesn't always work. Good Luck and God Bless

Birdie replied October 5, 2008 1:07 PM 

Last edited about 1 year ago

Teresa,
I weighed over 180 and am also short. I am 4 ft. 8 in. I could have laid down and rolled. I started out by doing a little bit of housework during commercials, like straightening magazines, dusting a little, and the sitting back down a watch a little more TV. Next commercial I would do a little more. Each day I would try to do more and I started to lose weight. I then found out I was a diabetic because of my overweight and not sleeping because of restless legs. They put me on 2 carb (15 grams per carb) for each meal and 1 carb for each snack(3). I am now down to 139 and do I feel great. It took me over a year to lose the weight but that was good because I didn't lose to fast. Hope this helps you. Take care and don't give up.
Birdie
Diabetic Connect Member mrsgooch
mrsgooch
mrsgooch replied May 24, 2008 11:08 AM 

ji have diabetic neuropathy and i have taken the generic gabropentin for two years. i could not live without it. the nerves are so bad. i still have pain but withought the meds i would not be able to exist. my feet and legs are the worst. i have had two major back surguries and a neck surgury and the pain is not worth not taking my medicine. good luck to all who have it.
Diabetic Connect Member Aunt Pat
Aunt Pat
Aunt Pat replied May 24, 2008 12:39 PM 

Dear Brenda, I have type 2 Diabetis and neuropathy and have taken Neurotin for about 5 years. I am currently taking 400 mg 3 times a day. My Dr. also prescribed Cymbalta which makes Neurotin work better. I have had no side effects, and my pain is under control.
I also think a very large part of your health is your attitude so I do everything I can to maintain an attitude of gratitude and have a journal that I write in every day the things I am grateful for.
I hope you have success with your medications and attitude.
Love and Light.
Diabetic Connect Member catalinaclair
catalinaclair
catalinaclair replied May 24, 2008 3:52 PM 

Hi, I have horrible neuropathy, mostly in my feet, but sometimes I even have it in my right hip and back between the shoulder blades. For a while I thought the neuropathy in my hip could have been cause by all of the injections that I generally administer to myself surrounding my navel area, but then it can flare up in just about any area of my body. I take Gabapentin 100-200mg. at bedtime, but it can be increased by your doctor up to 600mg. Also, there is a new medication that can be prescribed called Lyrica. Hope you find some relief. I am a nurse by occupation and when talking with another physician the other day, he told me that if I was prescribed 600mg. at bedtime, that I wouldn't experience any neuropathy throughout the day. I'm just afraid that such a large dose would have me walking around dazed all day. Good luck! Kathleen
Diabetic Connect Member gibson1021
gibson1021
gibson1021 replied May 24, 2008 5:01 PM 

I have been on Lyrica 75mg caps for a brain injury. Great side effect, no more arm tingles or leg & foot pain. Safe on my class 4 heart. I have a great Doctor that if he doesn't know he will admit it and send me to someone who can help me.
He put me on Cymbalta 60mg for depression caused by cronic pain. Worked like a champ. Now my Cardo Doctor uses it for people like me. Good Luck and God Bless
Diabetic Connect Member Harry
Harry
Harry replied May 26, 2008 10:52 AM 

I have Diabetic Neuropathy in both of my legs. It is severe enough that I am now on disability. I was on Gab. for one week. I was to take one a day for 14 days and then two a day. I never made it past the one a day as I had an allergic reaction. I spent one week where I didn't know where I was.

I don't envy anyone who is going through Neuropathy. None of the drugs worked so I just tolerate the pain.

Diabetic Connect Member Evilannie
Evilannie
Evilannie replied May 26, 2008 1:24 PM 

I too have neuropathy. Please note if you have any balance problems watch the Gabepentim(sp). It can increase the problems with balance.

I have had my neuropathy before I became a diabetic due to chemotherapy. Good luck with your medicine.

Ginetteb replied May 26, 2008 4:59 PM 

Last edited about 1 year ago

I never associated the pains in my legs and feet as neuropathy. I get extremely painful cramps in my legs and feet. I was diagnosed about 4 years ago with spinal stenosis and I always attributed the pain to the stenosis. Could it be from diabetes? Could it be neuropathy?
Or....could it be neuropathy aggravated by the stenosis?

I take 5g of Prednesone along with a Tynelol 4 pill every morning and the combination helps with the pain tremendously. The combination does not eliminate the pain but it makes it manageable.

I went to 2 different pain management clinics, they inserted Cortisone in my spine (I think it was Cortisone) and nothing worked. The pain was still there as bad as ever.

Good luck

morris.js replied May 26, 2008 5:27 PM 

Teresa, Though I do not personaly suffer from the problems you do, I do take care of my mother who does.
It has helped her over these last few years to do little simple exercises while sitting in her chair watching TV. While sitting there, she will try to move her feet back and forth, or wiggle her hands by bending at the wrists. As she got these very easy moves down, she added a bit more strenuous things like lifting her arms over her head. Now, she gets up and walks around the house with her walker, and can fix her own hair, and do many of the things she could not do for a lot of years.
I know it is hard to keep trying, but please know that there are many of us here on this website that are praying for you and supporting you with our thoughts.
Don't try too much at once, just a little at a time. You will see some progress!
One of your many friends here, John
Diabetic Connect Member chas11
chas11
chas11 replied May 26, 2008 6:15 PM 

I take thirty-five hundred milligrams of Gabapentin daily and have been for several months. It's certainly not worth what it costs. I find two tylenol and two aspirin work just as well and sometimes better.

Diabetic Connect Member slsera
slsera
slsera replied May 26, 2008 6:15 PM 

When I went to the DR...he took some test and said that I have PN. He was no help after that. My toes are numb and I live with it. Sometimes, I feel like my soles are burning or freezing. I don't take meds for that.
Diabetic Connect Member CoopJ
CoopJ
CoopJ replied May 26, 2008 8:14 PM 

I have Neuropathy in both feet. It hurts so bad sometimes that I cannot sleep. I was actually diagnosed with Diabetes because of my Neuropathy. To make a long story short. I thought I had Carpotunnel and had 3 opinions on what to do for it. They all suggested surgery. upon getting a 4th opinion, he took a blood test and came back a week later and told me I had diabetes. The Doc stated that I probably had Diabetes for about 7 Years at this point. I actually see a Pain Management Doctor for my Neuropathy. I tried taking some of the Anti Depressants they say work for Neuropathy but, I started freaking out. Seeing things, being aggressive towards my wife and was angry all the time. My Doctor had to switch me Percocet 10 MG. I get relief and am able to sleep. You have to be very careful though, you can get addicted. Hope you get the relief you seek.
Diabetic Connect Member maryann40
maryann40
maryann40 replied May 27, 2008 7:55 AM 

My doctor put me on Elivil 10mg at bedtime. About 2 days after he put me on it I felt relief and haven't had any trouble since.

Diabetic Connect Member ddddsteve69
ddddsteve69
ddddsteve69 replied May 27, 2008 10:29 AM 

I also have diabetic neuropathy. I don't experience much pain, but I do get electric-like shocks every once in a while. My feet feel a little numb & tingly. I was told to avoid diet sodas that are sweetened by aspartame (Nutri-Sweet). Eating cinnamon can be helpful.
Diabetic Connect Member Goddess
Goddess
Goddess replied May 27, 2008 9:48 PM 

I have neurothapy. The worst kind you can have autonumoic. It has destroyed all of the nerves in my throat. The Drs. are talking about putting me on a feeding tube. Does anyone know of anything else? Can they repair it with surgery????????
Diabetic Connect Member DiRaye
DiRaye
DiRaye replied May 30, 2008 7:37 AM 

I am a type 2 diabetic, with neuropathy in my feet, sometimes my r.thumb and index finger.I take lyrica and when I have been without, I fall apart - have been to ER or hospitalized twice because ran out before PA next dose was sent.
I also am on cymbalta (trust me, it doesn't do much for depression!) for my neuoropathy. The combination of the two helps a great deal, and I only have pains when I move wrong, twist,or bump my foot.Oh, that hurts!
I was 1st put on neurontin,but can not take it, does strange things to me. . .
am trying for my disability due to this, ESS,hemiramia continua and as yetunDxbrain disorder, still fighting.
the foot pain and headaches are what 1st sent me to the Dr., and was Dx then with diabetes, so was diabetic for some time ( ex. the footpain) before I was Dx, do not really knowhow long, but tooo long - when you hurt, get it checked1
My s-i-l and grandson ( 5yo) are both diabetic, Phil from childhood, and Devon was just Dx 9 months ago. I have learned muchfrom Phil, and by doing so, know more of how to Tx mine when Dx He has a pump, and Devon is getting his in a few weeks.
Keeping our numbers under control is the 1st thing to do, and watching how and when we eat, keeping carbs ( for me) in line withmy limits have helped me stay fairly pain free.

Diabetic Connect Member MRS. GRANNY
MRS. GRANNY
MRS. GRANNY replied May 30, 2008 9:34 AM 

Yes I have Diabetic Neuropathy, at first it was hard for me, i didn't know what was going on i was always in pain i mean everything was hurting some days my hands others my feet but for the most part i had a bad pain in the middle of my thigh, i talk to my doctor and she sent me to a nerve doctor and yes i have Neuropathy, she said that i will always have some kind of pain (it is your nerves) but the good new is if you keep your diabetes under control and take your meds the pain wont be so bad so i keep my sugar under control and i take my meds and i can truly say that Im in pain maybe once a week, in the beginning it was everyday so that give me hope that maybe they will find a cure.
Diabetic Connect Member sprat12
sprat12
sprat12 replied June 3, 2008 1:25 PM 

yes i have diabetic neuropathy and it's painful ive had it for three years and i take lyrica for it and it does help it doesnt take the pain all the way away but it makes it easyer to live with
Diabetic Connect Member ronda
ronda
ronda replied June 4, 2008 5:35 PM 

yes i do and i take med for the pain also and sometimes it helps but not all thetime.Iwork with home health care and my one client has itr also. ronda
Diabetic Connect Member lamorena
lamorena
lamorena replied June 4, 2008 6:33 PM 

Yes i do. The last two toes on my left foot are now totally numb. I have to be real careful where i walk. Sometimes i walk too fast and end up kicking something by accident. Unless someone points out that i am bleeding i wouldn't know otherwise.
Diabetic Connect Member lily
lily
lily replied June 12, 2008 2:00 PM 

hi, i also have diabetic neuropathy. and when my sugars are high i mean high my feets and hands start to tingle and numbness comes. most of all i have lots of pain so what i do i try to control my sugars. and i wear comfortable booties. cuz if i dont my feet will hurt. and make sure you check ur feets all the time. look for swellin, cuts and any brusing.

Diabetic Connect Member lily
lily
lily replied June 12, 2008 2:02 PM 

i usd mortrin 800mg. or tylenol pm.

Goddess replied June 12, 2008 3:43 PM 

I'm on the same medicine as you. I think a lot of us are on it. Just make sure you tell your Dr. there are other meds and higher doses. Remember one thing it's your life be strong and assertive!!!

ncnurse1459 replied June 22, 2008 9:43 AM 

I have been on Lyrica 150mg twice daily and Cymbalta 60mg daily for my diabetic neuropathies. I have the feelings of numbness and tingling in my feet and hands. Fibromyalgia is one cause, they say. Even though Cymbalta is an antidepressant, it also helps with the neuropathies. These meds do tend to help most of the time, unless the sugar is elevated more than usual. Talk with your doc about these meds. Angie
Diabetic Connect Member LH1
LH1
LH1 replied June 22, 2008 12:06 PM 

I agree the medication mentioned is also what I take and it does very little for the pain, tingling and numbness associated with the disorder.
Diabetic Connect Member dawgs816
dawgs816
dawgs816 replied June 22, 2008 12:58 PM 

I am also suffering from diabetic neuropathy. I have found that gabapentin is the best prescription medication that you can use to alleviate the pain so far. I have not found any other medication that will eliminate the pain, however gabapentin is not the solution. As you stated, it will only give you temporary relief. I would like to refer you to Toma's site if you do not know about it already. It is www.diabetic-diet-secrets.com. I highly recommend you to get in touch with toma and he could possibly give you some long term recommendations if not solutions. Toma is a diabetic and has a 5.0 on his A1C. He takes no medications and is now devoting his life to help other diabetics.

Helena replied July 19, 2008 11:37 PM 

I thought I was alone with this! I am allergic to aspirin, NSAIDS and other medications but I can take Tylenol and it helps some. I pray for all of you as I know the pain. Everyone, hang in there!

Diabetic Connect Member karenlee
karenlee
karenlee replied July 19, 2008 11:48 PM 

I too have diabetic neuropathy, and was on what you are on, but now my doctor has changed my prescription to Lyrica. I still have occasional pain, but this really works for me.
Diabetic Connect Member 2catty
2catty
2catty replied October 25, 2008 9:33 PM 

I have type 2 diabetes. On alot of meds. and now my Dr. added two more to the bowl. I explained the burning and pins and needles feeling in both feet. He immediately knew it was neurapathy. Straight to Lyrica 75m.g. And he added celexa.
Diabetic Connect Member msann
msann
msann replied October 25, 2008 10:27 PM 

i have diabetic neuropathy, he prescribed diclofenac sod ec, 50 mg tabwat, i take twice aday, really feel better that i have in long time, and have lost weight, take care
Diabetic Connect Member Leigh Marsden
Leigh Marsden
Leigh Marsden replied October 25, 2008 11:21 PM 

I am under the implication that there is a new drug called lyrica that may give you better pain control over your pain. Maybe, you should talk to your doctor about it the next time you go in.
your friend, Leigh

Anonymous replied October 26, 2008 6:34 AM 

i take Lyrica it has really helped, especially at night.
Diabetic Connect Member Bluebutterfly
Bluebutterfly
Bluebutterfly replied October 26, 2008 12:24 PM 

I too have neuropathy. I am on 900mg of gabapentin a day. It seems to work pretty good .I take 2 arthritis tylenol before I go to bed and this works for me.
Diabetic Connect Member Larry D.
Larry D.
Larry D. replied December 30, 2008 2:14 AM 

I also have only partial relief wish there was something better. I'm on the same medicine
Diabetic Connect Member LadyDi
LadyDi
LadyDi replied December 30, 2008 2:45 AM 

Last edited 10 months ago

I am just readng this post, having been a member for only a couple of months or so. Your post, along with others I've read along these lines, really touch me to the core. Those of us who are fortunate enough to not live with this type pain and/or problem with weight that severly limits ones activities and lifestyles rarely stop to consider what so many deal with on a daily basis. There have been some amazing and inspiring responses here. My prayer for each of you going through this is that you personally know the Lord and lean on Him for comfort and support. He is the mightiest "pain killer" of all, and He loves you so much. May your brave stories inspire and encourage all who read them to persevere and do all within their power to do whatever it takes to prevent getting to the place where you now find yourselves. Please take advantage of every source available to you to get the help that you need and deserve. God bless you.

Diane
Diabetic Connect Member mamma4
mamma4
mamma4 replied July 4, 2009 4:53 PM 

I have diabetic neuropathy for over 15 years. My doctor has changed my medicine to Lyrica-doses in morning, noon and night. For break-thru pain, I take methadone, then tylox and lastly morphine. Tjis combination seems to work most of the time.
Diabetic Connect Member JAM
JAM
JAM replied July 4, 2009 10:54 PM 

For diabetic Neuropathy...
You must get your glucose under control through daily exercise, eating the right foods (eat raw fruits and vegetables as much as possible that are low in CARBS, sugars, & fats) Stay away from white bread, rice, potatoes processed foods, and most sugar substitutes. Don’t eat too much at one time, better to eat 5-6 smaller meals a day. Take medication as prescribed and do regular glucose tests. That will help prevent additional damage of nerve cells, however, once the nerve cell damage is done, the body will need help to repair cellular damage.

Diabetic neuropathy is caused by damage to the nerve cells. Some of the damage is reversible and requires the right supplements to help the nerve cells to repair the damaged cells. For diabetic neuropathy you can take the following supplements used by the cells repair themselves.
R-ALA 300 mg & ALA 500 mg
GLA (evening Primrose oil) 500 mg
VANADYL SULFATE 10 mg with dinner
COQ10 100-300mg
ACETYL L-CARNITINE HCI Acetyl 500 mg
VITAMIN B Neuropathy formula, containing soluble (B1) BENFOTIAMINE & (B12) METHYLOCOBALAMIN

Diabetes sometimes causes a whole host of complications that needs addressed and knowing what to take is imperative to improving diabetic neuropathy. You will need to know what is needed as NUTRITIONAL SUPPLEMENTS, DIABETES & NEUROPATHY SUPPLEMENTS, CHOLESTEROL (CIRCULATORY & DIGESTIVE HEALTH, IMFLAMMATION, MUSCLE AND BONE ISSUES, HORMONE DECLINE (INSULIN & TESTOSTRONE), LIVER & PANCREASE SUPPORT, IMMUNE SYSTEM SUPPORT, AND CANCER PROTECTION. AS ALWAYS CHECK WITH YOUR DOCTOR AND TAKE THINGS GRADUALLY TO FIND OUT HOW YOUR BODY RESPONDS TO THE SUPPLEMENT. DO THE RESARCH FOR YOURSELF AND TAKE IN WHEN YOU SEE YOUR DOCTOR.


Here is a list of what can be taken and some does more than the category they are listed in.

General EXPLAINATION OF VITAMINS AND SUPPLEMENTS

NUTRITIONAL
PROBIOTIC—Good bacteria/ FOS Improves food, nutrients, and supplement absorption.

MULTI-VITAMIN—Contains whole food vitamins, minerals and antioxidants; also should have ingredients such as COQ10, Alpha Lipoic Acid, green tea extract, grape seed extract, Resveratrol, and Lutein. Protection from free radicals, boost immune function, protects the prostate, promote healthy cardiovascular function, vision, bones and cell division.
SPIRULINA--Is a complete all-vegetable protein source. It’s a blue-green algae whole food. It contains all eight essential amino acids, making it a complete protein, plus B-complex vitamins, Beta Carotene, vitamin E, carotenoids, manganese, zinc, copper, iron, Gamma Linoleic Acid (GLA) and calcium.

DIABETE Supplements lowers glucose levels and helps increase insulin production and use. (Constantly check glucose levels for hypoglycemia)

SUGAR BALANCE FORMULA--Maintain and balance healthy insulin levels. Look for these herbal extracts and co-factors that are formulated to counteract nutrient depletion and minimize prescription interactions.
W/B6,Blueberry,B12 Methylcobalamin,Cedar berry, Magnesium, Cinnamon,Zinc,Fenugreek, Chromium, Banaba extract,Alpha Lipoic Acid,Gymnema Sylvestre, Bilberry,Napol cactus
CINNAMON EXTRACT--Maintains healthy blood sugar levels already within the normal range.

BERRYBERRY TEA--Used to control blood sugar levels and as a treatment for retinopathy.


NEUROPATHY Supplements lowers glucose levels and helps increase insulin production and use. (Constantly check glucose levels for hypoglycemia)


R-ALA and ALA--Improves diabetic Neuropathy and insulin sensitivity. Alpha Lipoic Acid is a powerful natural antioxidant. Preliminary and double-blind trials have found that supplementing 600 to 1,200 mg of Lipoic Acid per day improves insulin sensitivity and the symptoms of diabetic neuropathy. While most ALA is 1/2 S-ALA, it is the R-ALA that helps neuropathy. Tested in USA & medically prescribed in Europe.

EVENING PRIMROSE OIL (GLA) (Gamma Lipoic Acid) -- Improves the function of nerves damaged by diabetic neuropathy and reported that it works well with R-ALA. It is a naturally occurring antioxidant.

VANADYL SULFATE --Greater absorption of insulin at the receptor site; activate glucose transports. Reduces pain of Neuropathy.

COQ10--Energy production and cardiovascular health. Is a naturally-occurring enzyme and antioxidant found in cells. The use of Statin drugs, taken to manage cholesterol, is known to deplete levels of CoQ10 in the body. Red yeast rice may also affect levels. COQ10 helps maintain cellular health when attempting to manage cholesterol levels.

ACETYL L-CARNITINE Hci--Carnitine helps to break down fatty acids in the body and is useful to prevent diabetic ketoacidosis. Is required to correctly use body fat in the production of energy. Diabetics that have high levels of fat in the bloodstream (cholesterol and triglycerides) may fall fast.

B-VITAMIN NEUROPATHY SUPPORT--A comprehensive multiple vitamin B formula, containing BENEFOTIAMINE, a lipid soluble form of thiamine (B1) along with vitamins: B2 Riboflavin, B5 Calcium Pantothenate, B6 Pyridoxine Hydochloride, B12 METHYLOCOBALAMIN and Folic Acid, helps body to maintain a healthy nervous system, energy levels and production of good DNA.


CHOLESTEROL (CIRCULATORY & DIGESTIVE HEALTH)


RED YEAST RICE w/BicoCosanol Polisanol--Recommended for cholesterol, circulatory, and digestive health. Contains fiber, rice starch, and fatty acid; as well as compounds known as monacolins which helps provide natural benefits for cholesterol health. Policosanol, supports the maintenance of healthy cholesterol levels. It's believed to work in two ways: by inhibiting the synthesis of cholesterol in the liver and by reducing platelet aggregation, or "stickiness" that may lead to blood clots and cardiovascular issues.

GUGGLESTERONES --Lowers Cholesterol. Guggul contains resin, volatile oils, and gum. The extract isolates ketonic steroid compounds known as guggulsterones contain compounds shown to provide the cholesterol-and triglyceride-lowering actions noted for guggul. Significantly lowers serum triglycerides and cholesterol as well as LDL and VLDL cholesterols (the “bad” cholesterols)… At the same time, it raises levels of HDL cholesterol (the “good” cholesterol)


IMFLAMMATION (BONES, JOINTS, MUSCLES (CRAMPS), & NERVES)


NORWEGIAN COD LIVER OIL--Joint wellness and cardiovascular wellness. Omega-3 EFAs are believed to help maintain healthy cholesterol levels, blood pressure and heartbeat. Provides omega-3 essential fatty acid (EFA) eicosapentaenoic acid (EPA) and docosahexaenoic acid (DHA), vitamin A and vitamin D. Because omega-3 EFA’s can be converted into anti-inflammatory substances (prostaglandins and leukotrines), they’re also provide joint support, promoting flexibility, mobility and potential pain relief. Molecularly distilled to eliminate all traces of mercury and other potential contaminants.

GLUCOSAMINE W/CHODROITIN/MSM JOINT SUPPORT--Glucosamine sulfate, a natural compound, to stimulate cells to create one of the main building blocks of joint cartilage -- proteoglycans. Chondroitin sulfate attracts and holds large amounts of water to the cartilage-building proteoglycan molecules. Since cartilage has no blood supply, this fluid is necessary to nourish and lubricate joints. MSM (methylsulfonylmethane, or dimethyl sulfone) is a sulfur-containing molecule found in various plants and some body tissues. It is a natural and efficient source of the sulfur that is used by many of the body's structural molecules, including joint cartilage.

TART CHERRY EXTRACT(REDUCES SWELLING, CRAMPS, AND PAIN IN JOINTS)--Contains compounds called anthocyanins that are flavonoids known for their antioxidant activity. Anthocyanins have also been found to have strong anti-inflammatory properties. They work to scavenge and destroy altered oxygen molecules in the body called free radicals. Free radicals are associated with aging and the development of health complications

QUERCETIN & BROMELAIN--Synergistically they have antioxidant properties. Also helpful for allergies. Bromelain has digestive enzymes with anti-inflammatory properties.

Curry TURMERIC assist the liver in filtering out wastes and acts as a messenger protein that focuses on LDL (bad) cholesterol. Anti-inflammatory in the arteries and joints. It has antioxidant properties.

BOSWELLIA anti-inflammatory


MUSCLES & BONES


Calcium W/Magnesium/Vit. D--A combination that promotes healthy teeth and bones that works synergistically. Calcium is stored in the nerves, muscles, and tissues and is used in almost every function of the body.
Vitamin K--Complex (K2) helps with the maintenance of healthy bones. It’s necessary for osteoblasts (bone-forming cells) to activate osteocalcin, a protein that binds calcium to bones. It may also inhibit the production of osteoclasts, the cells responsible for resorbing, or breaking down, bone.


HORMONE


DHEA--called "The Mother Hormone, because the body can convert it into whatever it needs". Julian Whitaker, M.D. says, "DHEA is the closest we can come to the fountain of youth", and "The main thing cancer, heart disease, diabetes, osteoporosis and chronic fatigue have in common is low levels of DHEA".


LIVER


MILK THISTLE--Liver protection


COLDS AND FLU


ELDERBERRY (IMMUNE SUPPORT DAILY)--Promotes healthy respiratory function. Inhibition of viral replication, stimulation of general immunity and antibody production, and enhanced production of cytokines (immune system chemicals associated with targeting and eliminating pathogens) round out elderberry’s antiviral activity.


IMMUNE ENHANCEMENT USED FOR ONSET OF INFECTION---(ANTIOXIDANTS & DETOXIFIERS)


MGC-5--Contains four special types of mushroom polysaccharide standardized extracts -- shiitake, maitake, cordyceps and reishi -- which may support a variety of white blood cell functions, such as T-cell function, natural killer cell activity and macrophage function. Beta-1, 3-D glucan, a polysaccharide extract derived from cell walls of baker's yeast, may enhance production, mobilization and killing capacity of macrophages, neutrophils and other immune cells.

N-ACETYL CYSTEINE--L-cysteine is a potent antioxidant that has been used for various viral conditions. The N-Acetyl form is better absorbed. N-Acetyl Cysteine may help protect the liver from certain toxins, and it helps break up pulmonary and bronchial mucus. N-Acetyl Cysteine also boosts the levels of glutathione, a powerful antioxidant and detoxifier.
EPICOR (NEW NEXT WINTER) IMMUNE SUPPORT SEASONAL It has been found to be a high-metabolite immunogen that nourishes the immune system to help strengthen resistance and maintain wellness. 1. Delivers three times the antioxidant power of any known fruit and has an oxygen radical absorbance capacity. 2. Activate natural killer cells. Natural killer (NK) cells are the body's first line of defense against foreign invaders. They destroy harmful cells by producing powerful chemical substances. 3. Activate human B cells. B cells are considered part of the "memory" of the immune system. 4. Strengthen the mucosal immune barrier. Mucous membranes, such as those that line the mouth and stomach, act as a physical barrier that traps foreign invaiders
NOT TO USE IF NOT NEEDED

GRAVIOLA -- has proven to be a potent cancer killer in over 20 independent laboratory tests, yet to date, no double-blind clinical trials. Another study published in the Journal of Natural Products stated that one chemical in Graviola was found to selectively kill colon cancer cells at "10,000 times the potency of the chemotherapy drug Adriamycin...” Graviola was shown to target the cancer cells, leaving healthy cells untouched without the side effects of chemotherapy. Graviola is all natural, so it can’t be patent by the drug companies and consequently there is no reason to do trials or tell the medical community about it.

Diabetic Connect Member JAM
JAM
JAM replied July 4, 2009 11:44 PM 

Hi all,
If you have diabetic neuropathy, it may serve you well to read this for it may help you. I will first emphasize that we are all different and respond differently; however what I discovered works for me and may also work for you.

I have type 2 diabetes as of Nov. 2008. I started on regular insulin two times a day and a fast acting insulin when needed for hypoglycemia.

In January, I was taking a long acting insulin @ 40 MG a day. I was suffering terribly from neuropathy pain (burning cold hands, arms, legs, and feet), and numbness in the toes. I didn't know what to do; I was ready to give up. I had high cholesterol, joint stiffness, testosterone was low. The GP said there was little to help my neuropathy and he would not approve any supplements that I thought possibly could help. I read everything I could find and checked out every possible suggestion. Since I am retired I had the time to spend researching 6 to 8 hours a day.

6 months ago, I changed my GP doctor (to an Endo), changed my diet, exercised daily plus weights 3 times a week and started a plan to gradually add specific supplements where I found enough evidence to make me consider they were a better choice. The Endo doctor double checked my research and approved most everything I wanted to take. My last A1C in March was 6.1. I am looking forward to next Friday's blood test.

Today, I am down to taking 2mg of Glimeperide, and YES I still have some neuropathy issues, but not anything I can't deal with. However, I am working to eliminate all symptoms of neuropathy. I started taking each one gradually ALA was first, then GLA, ACETYL L-CARNITINE, & COQ10, then R-ALA, a B supplement designed for neuropathy. I increased the dosage of each gradually and yesterday started taking VANADYL SULFATE. Each supplement and increase in dosage gave me some improvement or I would have stopped. What I am taking that helps with my neuropathy is as follows:

R-ALA 300 mg & ALA 500 mg

GLA (evening Primrose oil) 500 mg

VANADYL SULFATE 10 mg with dinner (THIS IS A NEW ITEM I'M NOT SO SURE OF THAT I STARTED THIS WEEK, AND I WILL HAVE TO MEASURE THE RESULTS CAREFULLY.

COQ10 100 to 300mg

ACETYL L-CARNITINE HCI Acetyl 500 mg

VITAMIN B Neuropathy formula, containing soluble (B1) BENFOTIAMINE & (B12) METHYLOCOBALAMIN

I trust that my research may be of help to someone else also?

You can read my previous posts which is more detailed for supplements that may help with other diabetic issues.

Diabetic Connect Member Rick_W55
Rick_W55
Rick_W55 replied July 5, 2009 6:00 AM 

I too have Neuropathy and was on gabepentin which did not help me now on Lyrica which is giving me some relief. I am on my feet at work the whole shift. The Lyrica is a higher copay with my insurance"CVS Caremark", twice the fee as gabepentin but at least it does help.