On this week's Twitter chat on April 7, 2015, we discussed the different terms used for PWDs, what preferences people have, how people communicate with their doctor, and how they wish their doctor would communicate with them.
This week’s Twitter chat was hosted by diabetes advocate Jewels Doskicz (@She_Sugar),
and featured our guest Heather Gabel (@HeatherGabel).
We started off with this question:
Some other words and phrases that people offered up were, "pre-diabetes, reversal, complication" from Michael Massing (@T2DRemission) and "complications, higher risk, and diabetes" from Jenn C (@JennMamaBear).
Our next question asked about which term people with diabetes prefer to be referred to by. Some people don't really have a preference, but to others this can be a very important subject.
Ally (@verylightnosuga) pointed out that no matter what people chose to be called, it's important to respect everyone's preferences.
Heather started off the responses by saying, "All three feel like judgments on my effort toward management. I've worked my butt off, and sometimes an A1C doesn't show that."
How do you feel about the term "patient" as an identifier during routine endo/GP office visits?
Heather went on to add, "Patient feels like a word that creates distance, not a relationship." Others didn't seem as bothered by the term.
Heather added her wisdom saying, "If my doc said 'Well Heather, your diabetes has been quite crotchety lately,' I would laugh hysterically and not feel blamed." She also said, "Other alternatives to crotchety diabetes, would be turbulent diabetes, erratic diabetes…something that describes IT, not me."
Our final question asked our Twitter chat participants, "If at all, how would using alternative words aid communication efforts with your medical team?"
Thank you to everyone who joined in on our April 8, 2015 Twitter chat, and a special thanks to our guest Heather Gabel.
Join us next week on Tuesday, April 14 at 9:00 p.m. EST using #DCDE for our next Twitter chat.