New and struggling

By lettybug Latest Reply 2011-04-20 11:22:27 -0500
Started 2011-02-27 22:16:20 -0600

I recently turned 18 and am in my last semester of high school. Getting ready for Cal State Fullerton this fall and being so stressed about everything is making this diagnose difficult. Especially since I never saw it coming. My mom and I were told that Type One Diabetes was not genetic, for my father had Type One. However, as we soon found out, there was a 6% chance I would get this disease. With all this, it's difficult. Luckily I'm very involved in theater tech and marching band. But still it can get lonely and none of my friends truly understand.

20 replies

northerngal 2011-04-20 11:22:27 -0500 Report

I was diagnosed in 5th grade and made it through high school and college. I'd say just be honest about it and don't act like its some secret or contagious. I think you'll be surprised how many questions people will ask if they are comfortable talking to someone with D. People are very mis-informed about it and if you take the time to explain things, usually they are fine with it. You can do the same as any other college student (except the pizza and beer- be careful about that). As for the food, you'll be aware of carbs and need to choose carefully, but I made the Dean's List and graduated with honors. You can do it.!!!

krystpynen11 2011-03-03 10:06:41 -0600 Report

i was diagnosed in 8th grade nobody understood me either. So i know where u r comming from. My grandmother was adopted and so we don;t know anythin about her side of the family and now i have type 1 diabetes and my mother and everyone else is geetin sick too. but yeah diabetes is genetic and i didn't know that at 1st either.

roshy 2011-03-02 14:23:30 -0600 Report

i was in the same position as you! all ready to start my life in uni and then bam, instead of becoming independant i became insulin dependant!! it was a lonely and hard time but acceptance and understanding are the key to come out the other side successfully! your health is your wealth so the more you learn how to control your sugars and keep on top of things the better you will suceed.

Heres some advice i wish i was given when i was first diadnosed

DO NOT ever feel like diabetes has taken over your life and personality. its only apart of your physical being; there is much much more to you then neeles and glucometers!!

Never look at it like a disease, or a barrier, yes its hard and can be restricting in some minor ways but your just like everyone else only you take needles and do other stuff that thousand of diabetics do.

Accept that yes, you will make mistakes and find it hard at times with highs and lows but so what! mistakes are ment to be made so we learn from them.

Being responsable pays off.

remeber that you are only human, so if you have cravings for chocolate or cake have a piece!! just make sure you account for it when you take your shot.

Learn how to vent and feelings of frustration, anger, saddness and lonelyness in a healthy way. Speak to whoever you are comfortable with and at times when u are feeling like you need help make sure you ask, people will only understand when you speak out and ask for help. and speaking out is important.

Best of luck with everything

kind regards


angelhart0464 2011-03-02 12:15:50 -0600 Report

hi lettybug , let me start by saying you are in the right place for help , because everybody in the dc is very helpful and sweet , if you need to talk anytime just email im a great listerner your friend sheila

AchesAwayEmma 2011-03-02 12:00:52 -0600 Report

I was diagnosed 2 weeks ago at 5.7 - no insulin, just metformin. But I'm type2.
Was worried about my kids more than me, I've just had weight issues. but so far the kiddos are ok and I have it. College was rough for me as a hypoglycemic 18 years ago. the food in the cafeteria was soooo bad for me. I crashed numerous times because of spikes caused by poor eating. Just try not to let stress get to you. Find ways to wind down. and be sure to follow the diet.

cureforjosh 2011-03-02 09:06:01 -0600 Report

Hi Lettybug. First off, Way to Go! for the college acceptance! I have a son your age and with the same passions as you! He is going to pursue college for teaching Music. He is also in his 11th year of acting in Summer Theatre and also does the HS plays. I'm sorry that your friends are not supportive. I agree, they are probably do not know how to approach the subject, and it is such a stressful time in all of your lives as you graduate and become semi-independent. I know that most of "Zach's" band and theatre friends are more like a family. They do support each other in every way. His brother, Josh, who is a freshman is the reason I am a member on this site. He was diagnosed with Type 1 in Nov. Actually a day after Zach's 18th birthday. I admit even as a parent that I am still scared and I worry all of the time. It is information overload and a lifestyle change.
I am a good listener and will always be an ear for you if you need it. Please don't feel like you are alone. I know it's easier said than done, and even adults feel that way. You have a great talent, and channelling that stress into your music or acting would help. It sounds like your parents are very supportive and I promise, they will always be there for you. One day at a time…

Dr Gary
Dr GaryCA 2011-03-01 19:57:52 -0600 Report


It's really important to have a lot of support when you are dealing wth a chronic condition, especially when you are first diagnosed, and going through all the emotions that come with a medical diagnosis. I am not surprised that your friends are not a big help to you right now. I am sure they care about you, but probably just don't know what to say. It might help if you let them know how you are feeling and what you are going through, but also let them know that you just need them to be your friends, that they don't have to do anythng else but stick with you.

Have you looked into support groups for diabetic teens? You might want to check around to see if you have something like that available in your community.

The university you have chosen to attend has a lot of resources. Once you get settled in, in the fall, you might want to report to the counseling center and let them know what's going on with you, and see what kinds of support resources they have available. You might want to get connected to a support network to help you get adjusted.

Take good care of yourself! And stay in touch with your friends on Diabetic Connect!


lettybug 2011-02-28 20:55:57 -0600 Report

My doctor took me off of insulin today and my A1C is down by .5. It's now 5.4 so today was a better day.

rachaeltype1 2011-03-01 15:04:32 -0600 Report

So your not 100% diabetic I take it? Or type 2? Thank God! Congrats, thats amazing!

jayabee52 2011-03-01 16:32:17 -0600 Report

Her profile says she's t1

rachaeltype1 2011-03-01 23:02:38 -0600 Report

You cannot be a type 1 diabetic and not be on insulin. It is physically impossible. Its possible she is a pre-diabetic, in which case it would only be a matter of time til she is 100% inuslin dependent.

jayabee52 2011-03-03 10:25:05 -0600 Report

all I know is what she put on her profile. Her Dr may have misdiagnosed, or maybe she posted wrong in her profile.
Only Lettybug knows.

realsis77 2011-02-28 13:08:59 -0600 Report

Hi and welcome! You have a whole wonderful diabetic family here on DC and we all understand what your going through! You are not alone! We all understand how your feeling. For me I think the hardest part to get used to was the injections. But now I'm even used to doing that. If you ever need to talk I'll be here for you ok? Take care and please keep us posted on how your doing ok? This is a wonderful site with lots of warm caring and compassionate people and I think you will enjoy being a part of our group! I've learned sooo much here! Take care and God bless!

Harlen 2011-02-28 10:12:20 -0600 Report

Hello and welcome
Stress will make your BS go nuts
Just remember that your taking care of you for the rest of your life just like going to school .Feel free to post and chat with any of the great frends here
Best wishes

lettybug 2011-02-28 09:37:08 -0600 Report

Thanks. I'm kind of over the shock factor mostly because I had to seem like I wasn't "losing it" around my mom since see had to go through this with my dad already. And I did have questions and still do but my number one question that my doctor finally made me feel better about was having kids. Being the only child I always wanted to have a large family, so safe to say that was my first concern (that n my health in order to get to the point of having kids). But now I'm afraid of passing on this dieases to one of my future children. I don't think I would be able to handle that.

jayabee52 2011-02-28 11:39:56 -0600 Report

Well, Letty, since you're t1 you know that there is only a 6% chance any child you have MAY have Diabetes ("DM"). Put another way you have a 94% chance that any child you have will NOT have DM. I have 3 sons. They were all conceived before I was Dx'd with DMt2. But with each pregnncy my wife had gestational DM, although now once we stopped having children her gestational DM resolved. (But she has other problems like heart problems.) Her mom had DMt2 and heart disease. Her dad had CHF.

What I'm trying to say is don't avoid children for fear they'll have some genetically linked disease. We who have DM have to learn to cope as best we can. It builds character. Chances are your children will be faced with opportunities to build character of some kind. It may not be DM, it may be some other "medical challenge". My beloved bride "Jem" (see our pic in my profile) was my 2nd marriage. She had MANY medical challenges: Blindness (total - @ 14 due to retinitis pigmentosa), DMt2, CHF, Lupis, COPD, RA, GERD, hearing problems, female reproductive problems, and a few more. If her parents had known she would have to experience those things, they probably might have not conceived her. But, having known her for several months, I believe that the world would have been poorer had she not been born. I know that I would have been poorer emotionally. She had such a sweet and loving spirit. She had a lot of good humor. She was amazing in that even though she was blind, she had a great mind and she earned her Masters of Social Work degree and became a Licensed Clinical Social Worker.

I believe she was the way she was because of the difficulties she faced. And I was the beneficiary of her personality forged from her struggles.

As a parent I hate to see my child struggle or have difficulty. But that doesn't mean that it is The best thing to swoop in and "fix" it. Sometime the best thing is to let him or her struggle with the problen (whatever it is) and learn how to cope with it and perhaps overcome it.

May God bless you and yours


bobec4 2011-02-28 00:09:47 -0600 Report

Hi and welcome to Diabetic Connect! I am glad you are here but not for this reason of course lol. There are many resources that you can use to learn about type 1 and there are many many people here that have gone through what you are right now. When I was diagnosed with type 2 it wasn't such a shock to me as every single adult in my family has or had diabetes. So when the doctor came in all somber telling me how sorry he was my reaction was" ok where do we go from here?" Also since so many in my family are diabetic I had a ton of support. I was one of the lucky ones even if I was 800 miles from them. Now I have moved back and feel like I am in control of my life. Once you get over the shock factor it becomes a task of figuring out what works best for you and asking lots of questions.

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