Did You Have A Doctor Who Told You.....

By Richard157 Latest Reply 2011-03-02 14:38:04 -0600
Started 2011-02-23 20:36:06 -0600

All of you are welcome to participate in this discussion. If you were diagnosed with diabetes before 1990, you may give a negative response to some of the following questions. I have even seen people diagnosed since the year 2000 who would give some negative responses.

Did you have a doctor who told you…

1. To limit your carb intake, or follow a low carb diet?

From 1945 to 1988 I did not know carbs had anything to do with diabetes. I found the information in a magazine in 1988.

2. To limit your intake of fast acting carbs?

I did not know how to properly deal with fast acting carbs until I joined online diabetes forums in 2006.

3. To rotate sites to avoid scar tissue (assuming you use insulin)?

I was never told this until I started pumping in 2007, then I heard about it when I called my pump company on the phone. I used injections for almost 62 years without rotating sites, and developed permanent scar tissue without knowing it. My insulin absorption was poor and that caused much high blood sugar.

4. To not use a pump because your control was too poor, or too good?

I had good control in 2007 and my doctor said my control was too good to justify a pump. I went to an endo for a second opinion, and a pump was approved. Some doctors will deny a pump to diabetics who have poor control. It must be proved that the diabetic is capable of getting good control before a pump is justified.

20 replies

BandonBob 2011-02-27 13:56:59 -0600 Report

I was diagnosed in 1987 and can easily answer no to all of your questions. When I was diagnosed my doctor just told me to lose 10-15 pounds. He gave no other instructions so I have had to learn almost everything on my own. I started a low fat diet figuring I could control that but not control the sugar as most foods digest into sugar anyway. After losing 80 pounds and using diet, portion control and exercise have been under control ever since.

Art Loving
Art Loving 2011-02-27 11:58:56 -0600 Report

I was diagnosed a year ago. I was required, with my doctor's insistence, to take a diabetic education class by a certified teacher, and RN, at the clinic. I've learned more online from others and my internet sites. Health care differs so depending upon where you live and who your doctor is.

Richard157 2011-02-27 12:24:46 -0600 Report

I have heard that type of statement so many times Art. It is that way all over our country, and in other countries too. There is still frequent incorrect diagnosing in the US too. That should not happen in the 21'st century.

roshy 2011-03-02 14:32:39 -0600 Report

i find this shocking!! it just goes to show you how diabetes research and education has come over the past 20 years!! i bet if you were told 25 years ago richard that a small bepper like thing would be attached to your body and would regulate your sugars for ya u would of laughed in their faces with disbelief!!

MAYS 2011-02-27 11:18:22 -0600 Report

This is a very interesting article.
It's amazing that what was told to you, and what you did (daily) were conflicting yet you are healthy, and a type 1 diabetes survivor of more than 50 years.
It just makes you wonder about it all …

Richard157 2011-02-27 11:57:57 -0600 Report

There is a man named William Rounds who was diagnosed in 1923. He has been type 1 for 87 years. It is believed that he has lived longer with diabetes than anyone else in history.

realsis77 2011-02-24 11:03:07 -0600 Report

Hi. I actually learned those things from dc. I didn't even know I was supposed to rotate injection sites. My doc didn't teach me these things, this site did. Thank God for diabetic connect! Basically my doc told me I needed insulin gave me an rx told me where I can inject and that was it. I do love my doc don't get me wrong he listens and is a great doc. But when it came to those things no I was not taught. I was so lost and scared before I came to DC! It just goes to show you how wonderful and helpful and informative this site is! I'm soooo greatful I found DC. Id be lost without the things I've learned from here.

Richard157 2011-02-24 11:09:35 -0600 Report

I'm glad you found DC when you did. I was diagnosed in 1945 and did not find an online diabetes site until 2006. that was a very long wait. Lol!

GabbyPA 2011-02-24 05:53:41 -0600 Report

My doctor gave me a packet of photo copies about the general (and very out dated I might add) information about diabetes. He never really discussed it with me, but I had been here for 9 months before I saw him, so I had a lot of my questions already answered. He gives me very little diabetes specific advice unless I ask direct questions. He does give me more advice on my cholesterol and weight...I guess he feels more comfortable with that.

Richard157 2011-02-24 10:59:20 -0600 Report

Gabby, it seems like many doctors are outdated, all over the world. They frequently neglect to give us information, even when they know it. Thanks!

Sweet Survivor
Sweet Survivor 2011-02-23 22:30:02 -0600 Report

Hello! I have been IDDM TYPE-i JUVE since 1961. I used to use various GLASS & steel syringes and needles. They used to say "watch your intake of CONCENTRATED sweets". No mention of fast acting carbs (too modern. Ha!) Have you been taking insulin injections for 62+ years, Richard157??? Welp, ya got me beat. I'm called "Sweet Survivor" maybe that ought to be yours. Ha! PS—for the first 25 years of life as a juvenile diabetic—I used a bunsen burner then clinitest tablets for URINE GLUCOSE TESTS. Of couse, they made Tes-Tape later. . .

Richard157 2011-02-24 10:56:15 -0600 Report

Thanks Sweet Survivor, I'll let you keep your name. Lol! I used injections for 62 years and now I have used a pump for 3 years. I remember boiling water on a stove and using Benedict's solution to test urine. That was before clinitest.

You have been type 1 for 50 years now, so you are eligible for the Joslin medal. Medals are awarded to type 1's who have had diabetes for 50 and 75 years. If you are interested I will give you more information and tell how to apply for the medal. It is a very attractive medal.

packrat2 2011-02-27 10:35:14 -0600 Report

A few more years I will be able to get the 50 yr. medal, I have the hospital record of my diabetes back in 1964…

Kuhn 2011-02-26 16:11:15 -0600 Report

I have had type 1 diabetes since 1957. I had no idea that there was a medal for having this for 59 years. I am interested in finding out more. Thank you.

VickieF 2011-02-23 21:28:22 -0600 Report

Hello Richard157,
I was just given a low carb diet two months ago, Nothing was said about fast acting carbs though. I have known about the site rotation though for 20-30 years.
I was a caregiver for most of 30 years, plus my Mom was on insulin for many years. I know nothing at all about pumps though. Good discussion.