Anyone with Islet Cell Transplant experience?

By planoirish Latest Reply 2011-03-27 05:51:00 -0500
Started 2011-02-21 23:31:28 -0600

My husband is considering this option. Can anyone share information?

6 replies

jilly1golf 2011-03-27 05:51:00 -0500 Report

i just had it done at UMC az but for pancreatic problems not taking rejection meds but i am on insulin was not diabetic before

kdroberts 2011-02-22 20:30:21 -0600 Report

Has your husband actually been provisionally accepted for one? If not it might be too soon to be asking those questions since the process of getting accepted is not easy since it's still in clinical trials. That said, it is a promising line of research but with the limitations in the time it lasts and the requirement of imunosupressive drugs it doesn't seem like a great option unless you really, really need it.

Further to the Chicago Diabetes Project, check out the clinical islet transplantation consortium. The Chicago Diabetes Project is part of it but it includes a lot of other institutions around the world that are working together.

*Stephanie* 2011-02-22 20:10:45 -0600 Report

Check out the Chicago Diabetes Project! The website is so informative!

They are currently doing trials.

Unfortunately the islet transplantation procedure doesn't last very long- I think the longest recorded instance was 14 years— when the average is like 5-8 years without having to take insulin or anything.

I definitely want to learn more! It's just crazy amazing that they can do this!!

kathy7 2011-02-22 19:09:09 -0600 Report

I had an islet cell transplant in 2008 at U. of Minnesota. I was able to be insulin free for 2 years and now use only 8 units of insulin and have almost perfect control. I do take immunosuppressive drugs to protect the transplanted cells, but find the side effects of these to be much easier to deal with than insulin. I feel wonderful. I would be happy to answer any questions you might have.

planoirish 2011-02-22 23:05:30 -0600 Report

Thanks, Kathy7! Your experience is so appreciated! We will know in about 6 weeks whether he is accepted into the program. Prayers are appreciated!

jayabee52 2011-02-22 00:07:03 -0600 Report

All I can tell you is what I have read here on DC a while ago. The islet cell transplant is experemental (or was at that time) and one had to take anti rejection meds for the rest of his life. My bride had to take anti rejection meds (for her lupis & RA), and they were tough on her & she had to discontinue them. But he would not have that option. If he would stop those meds or didn't start on a different anti rejection med., he could lose the transplants.

Blessings to you and yours!