All Opinions and Feedback will be Greatly Appreciated

By MAYS Latest Reply 2011-03-16 20:20:31 -0500
Started 2011-02-11 15:35:54 -0600

I am curious about something.

I would appreciate any input that members here can give.

I am a single father of four tall (all over six feet tall), handsome young men.
One of my sons is Autistic, autism is so misunderstood , not only socially but also medically.

Does any one here have a family member, or know of someone who has been diagnosed with autism?

I have sent an email to John to inquire about the possibility of having a site dedicated to autism (Autism Connect?).

What do you think?
Any advice, or feedback would be greatly appreciated!


25 replies

whitetigress 2011-03-16 20:20:31 -0500 Report

I think it is a great idea … so many people are affected by autism in one way or another, not to mention it is still such a mysterious condition that the more support, information and connection that can be made and found, the better.

theladyiscrazy 2011-02-13 07:29:07 -0600 Report

My 18 year old son is diagnosed with Aspergers (high end of autism spectrum) and yes very misunderstood dx. It is funny because he is also over 6 feet tall!

realsis77 2011-02-12 14:31:05 -0600 Report

I think a website dedicated to autism is a wonderful idea. It would give familys a chance to connect with one another and support and share. I personally don't know any one with autism but I do know there are many familys out there. What a great idea! I think you should start the site and I'm sure many familys would be greatful!

Pynetree 2011-02-12 09:56:50 -0600 Report

Autism is so misunderstood…because there are so many levels, on the spectrum of diognoses. Broad range of issues and abilities. I think an Autism Connect site would be great! I have an autistic nephew, he's 15 now, and a smart, caring,musically gifted kid. And I've had several in my years of teaching preschool, the 4 yr.old class…each one with different abilities, but each bright and thirsty for knowledge.

mimiof6 2011-02-12 00:23:18 -0600 Report

i dont know of anyone but i think it would be a great idea to open a new community for it.

MAYS 2011-02-12 06:35:57 -0600 Report

Thank you for commenting, I agree with you.
John has informed me that there is such a community in the works, and it will be debuting soon, I hope that you will be both a visitor, and a ccontributor.


roshy 2011-02-12 03:51:04 -0600 Report

I think its a brilliant idea! im am currantly working with young children with ASD! and your right its completely mis-understood.
There are so many new ways to teach autistic children. Im not sure how old your child is. but it is important to provide your child with positive learning activities so he can gain confidence to learn. Positive reinforcement and encouragement are vital tools.
Another useful tool is PEC's ( picture exchange communication system) this consists of flash cards of different basic needs and words, such as food, toilet, toys phone, thiese can be very useful for a child with autism. there are so many little things that can help your child. As you probly know a sturcyured routine is very important as well as appropriate sleep and exercise.

If you have any questions ill be delighted to try mu best to answer them!

Best of luck

MAYS 2011-02-12 06:31:40 -0600 Report

Thank you for commenting.
My son is now 19 years old, and has won multiple education awards here in NJ, both from the state, as well as our local community.

I am very pleased with his development, he has had great educators, doctors and therapist throughout his life, he can function within soiciety with no major issues other than the fear (and ignorance) that others may display due to their lack of knowledge on the subject.

I would like to extend that moral support, and knowledge onto others who may need it.

I appreciate your offer, and I will take you up on it.
I hope that you will be a regular contributor to this community once it is up and running, both your help, and your knowledge will be very beneficial to all.


mo91108 2011-02-11 22:56:33 -0600 Report

I believe that would be amazing. My nephew has been diagnosed with Autism after 2 misdiagnosis 1 of ADD and another of ADHD. I am still not completely sure what it is, and I would love to find out more so when I visit with him I can make it comfortable and also maybe teach him to learn. And thank you very much for suggesting this.

- Monica

I greatly appreciate it.

MAYS 2011-02-11 23:11:42 -0600 Report

Thank you for commenting!
I truly believe that such a site \ community would do so much for the understanding, and awareness of autism, just as this one does for diabetes.
I hope that you will participate in this once it is started up.


melcoujes 2011-02-11 23:33:04 -0600 Report

I also have a nephew with Autism. He is a wonderful kid (11)! He absorbs information like a sponge and is smarter than some of the teachers I knew in High School!
Ask him what he knows on any topic and he will give a lecuture on the topic for hours! I am impressed with his knowledge and ability. My brother and sister in law are angels to have produced such a wonderful individual!

MAYS 2011-02-11 23:42:15 -0600 Report

I know the experience.
Sounds exactly like my son, I agree ith you, they are such wonderful, amazing individuals!

RAYT721 2011-02-11 22:28:52 -0600 Report

I give two thumbs up to your proposal. Forty years ago (yup, I'm old) I was the foster brother of several "special needs" children that my parents had taken in. I don't remember hearing the word "autism" back then but I don't think the word was even created. From my recent reading and understanding of autism and special needs, the symptoms seemed to have fit several of my foster siblings. At that point in my life, I seriously wanted to become a Special Education teacher but life got in the way of those plans. There are many friends, teachers and parents/grandparents of autistic individuals that could use an organized group for coping, learning new treatments and education, and support. I think you will find your situation to be one of many that affects not only the members here but others around the globe. Is there anything that I can do? Let's band together to support a community (online and offline) that separates fact from fiction in regards to conditions such as autism which we are not as familiar with. You have my vote!!!

MAYS 2011-02-11 22:46:13 -0600 Report

Thank you very much for the vote of confidence.
You have been a great friend to everyone here from your very first day.

Autism is so misunderstood, and frightening to those who see it from a distance.
Yes, there is so much that you can do concerning autism, your readings, and knowledge can be very, very helpful, you have my support as I know that I have yours.

Together we can all make this new community just as helpful as the others, and possibly add comfort and understanding to those who are directly involved, and to those who are willing to learn more.
Togetherness is what support is all about!

Guardianstone 2011-02-11 22:43:58 -0600 Report

Ray I always new you were special. Now I now why.
Are you a baritone?
Listening to Anne McCaffrey's Masterharper of Pern. You sound like him. (sing any?)
Guardian stone

Rainerm 2011-02-11 20:13:37 -0600 Report

Hi Mays - I am currently half way through my masters degree in autism and have a bachelors in cognitive impairments. I am the lead teacher in a classroom for 4th and 5th graders who have autism, cognitive impairments, visual impairments, and traumatic brain injury. My life is filled with the love of these children who give without asking for anything in return. I laugh so much everyday and I am truly blessed! I also work closely with the parents, many of whom are still coping.
I have given my own daughter a modified immunization schedule. She is two and I have made sure that her vaccines are spaced apart so that her body is not overloaded. I also believe that there are environmental causes. New research is coming forth everyday!

MAYS 2011-02-11 23:01:37 -0600 Report

You are truly a Godsend!

Your input into a site \ community concerning autism would be priceless to all.
I pray that you will participate in such a site, your input now is just as valuable as the forthcoming research, you could help so many others to understand.
Please give the thought of doing so some consideration!

Thank you, on behalf of the autism population, and their caregivers!


Guardianstone 2011-02-11 18:51:21 -0600 Report

when I was a teen (back with the wolly mamouth), I worked with a few autistic kids and an adult. It was very rewarding. Too many thought autism ment mentally retarded, (not retarted) and treated me like a leper afraid they would 'catch it'.
I wish you luck with the autistic site.
God bless your family.
Guardian stone

MAYS 2011-02-11 19:06:43 -0600 Report

Will you be willing to comment on the community site, once it is up and running?

Guardianstone 2011-02-11 22:37:37 -0600 Report

It might be a good way to continue the fights for their rights.
Thanks for asking.
Guardian stone

Guardianstone 2011-02-12 10:55:40 -0600 Report

Mays, my husband Dave has also worked with children and adults with autism. He would like to throw in his .02ยข worth in. Betcha its more like $50.00. He has a bit of college like me, but he also trained as a paramedic, and worked as an ambulance driver. He is a much bettter writer when it comes to technical. writing. Could he add without being a member?
Guardian stone

MAYS 2011-02-11 19:03:26 -0600 Report

Thank you for responding.

I emailed John, and he assured me that there is already a community dedicated to autism in the works, and it will debut soon.

Autism is truly misunderstood, and often associated with other mental illnesses.
It is very common here in NJ, many people believe so because of all of the chemical factories, and the dumping of both chemicals, and waste products here in the state.

Others believe that it is caused by the multiple immunizations given to children here at one time.
My son's mother believed that wholeheartedly until her death in 2008.


kenziesyaya 2011-02-12 11:54:04 -0600 Report

I think a site like this would be great. I have a 17 year old nephew who has had trouble his whole life. He was diagnosed with one illness after another. Finally it was determined he had Aspbergers. With diagnoses,the right medications,and the right therapy he is now a senior has a girlfriend and doing fine. But it was a struggle. Parents need to learn what to look for, so many of these kids are treated like throw away kids and that is not so. They all have alot of love to give just in their own special way..Keep up the good work.