By vgarrison Latest Reply 2011-01-31 20:20:46 -0600
Started 2011-01-26 00:30:59 -0600

Ok so I have since found out that I have neuropathy, and some days my hands and feet hurt so bad I cry when I walk. I have tried taking Lyrica, but it makes me swell so bad that my skin feels like its gonna burst…

I am wondering what other people take/do to help with their neuropathy?

Blessed Be

20 replies

mas14years 2011-01-31 20:20:46 -0600 Report

i take neurontin and it seems to help me alot. I have it in my lower legs, feet, and stomach. The worst in the stomach i suppose. It also helps me sleep at night

digitaldoorbell 2011-01-29 12:53:42 -0600 Report

I have it too. Was on prednisone and neurontin. I really don't like medications because they ALL have side effects. I started taking alpha lipoic acid 300 mg. twice a day WITH FOOD. I feel better than with the meds and don't have any of the side effects that I was having. I tapered off of the meds and now am on ALA exclusively. It's working very well and I recommend it very highly.

vgarrison 2011-01-29 13:48:50 -0600 Report

I take a vitamin with ALA in it, but I dont think it has 300 mg in it…I will look into a higher dosage…thanks so much!!

GabbyPA 2011-01-30 08:07:42 -0600 Report

I had taken that a long time ago when I was experimenting with a lot of things, but I think I will start again. The dose is much more than I was getting when I combined it, so I will be right there with you Viki to give it a try. The hyper sensitivity in my feet has been lessening, but any thing extra will be a big help. I want normal feet again....I don't know if I will get there, but I would like to try.

chopi 2011-01-27 17:48:29 -0600 Report

I've tried them all Gabapentin, cymbolta and Lyrica. My Dr. just gave me vicodin. That seems to work the best. I take half a pill every 6 hrs. When it's really bad at night I add 25mg of tramadol to the vicodin. It's not the best answer but it works for me. Talk to your Dr. and all you can do is try different options with the help of your Dr. Good luck! I know it's an awful thing to deal with!!

Grammie_K#1 2011-01-27 15:21:10 -0600 Report

I feel your pain, Vicki. I, too, have the same problems. Getting to sleep is the hardest. That's when the pain seems to hit the worst. Also, cold temps make it impossible to enjoy anytime spend outside in the winter. 20 min. outside in anything below 45 and my hands take days to stop throbbing. I think the worst is the pain being so intense it feels as if my feet and hands are being crushed. I've had neuropathy for about 10 yrs., 6 yrs before being diagnosed T2. I have yet to find any medication that helps. OTC meds or prescription pain relievers help a little, but after a couple weeks I seem to need more and more just to notice any relief.
I've found that the more I'm on my feet, the more they hurt at the end of the day.
Sorry to sound so pathetic here. I'm just telling you my experiences.
To fight it, I try to stay active, both physically and mentaly. When trying to sleep I focus on building my dream house, one board at a time. Or teaching my grand daughter to ride a horse. Anything to distract my brain from the pain until I can drift off. Once I get to sleep, I don't hear anything until the next morning and usually sleep 6 to 8 hrs. straight through. I think my brain shuts out the pain to my concious, but my subconcious still feels it.
I wish you the best of luck. I don't think there is any real answer other than the one all the doctors and medical people I've seen have told me - It's something you'll just have to learn to live with.
Talk long and in depth with your doctor to make sure he/she knows how much pain you are in.

Mrs Crist
Mrs Crist 2011-01-27 16:08:33 -0600 Report

I am newly diagnosed and the first night I started having pain in my feet and was shocked to find out about neuropathy. I thought any side effects would take longer, but I may have had elevated levels for almost 2 years. I spoke to a friend that is a horse vet and she said there is a lazer treatment that they use on horses that may help us. I am going to ask my dr about it at my next visit. I am 58 and am trying really hard to eat right and now I need to incorporate exercise into my life. I am active, but still need more weight bearing exercise. I have a cousin that is a holistic dr in Colorado, Michael Gaeta. Check him out online. I haven't contacted him yet about my diabetes, but I'm sure he will have some ideas to help me.

vgarrison 2011-01-26 21:15:45 -0600 Report

I have a DR's appt tomorrow…I'm going to ask her again what to do…it started out with the feeling like when your hands or feet fall asleep and the tingling and pain when the blood flow comes back…it would come and go, but lately it has been coming alot more than going…I still have my good days, but wow this isn't the funest thing I have had to deal with lately!!!

Thanks everyone for your advice!!

Blessed Be

jeffrey9127 2011-01-26 10:33:10 -0600 Report

Hello Vicki. I have neuropathy in my hands and feet. I complained to my Dr. for about six months and finally was sent to a specialist who diagnosed the problem. I was put on Lyrica, but it did'nt work for me. I was then put on Gabapentin twice a day. I took it for about one month before I started getting any relief. Even though it helps a lot, I can still feel the tingling and burning in my hands, but is minimal compared to when I was'nt taking anything. You may want to discuss other options with your Dr. I hope you find relief soon.

kdroberts 2011-01-26 10:02:45 -0600 Report

A lot of people find that alpha lipoic acid helps a lot with mild to moderate neuropathy. It's worth looking into.

GabbyPA 2011-01-26 10:05:24 -0600 Report

The website you listed in another post has a "lesspain" product that contains ALA among other things.

kdroberts 2011-01-26 10:12:54 -0600 Report

I didn't see ALA listed on their ingredient list, I'll have to look again.

GabbyPA 2011-01-26 10:20:58 -0600 Report

Oh, maybe I read it wrong. I thought it was there...It is a big list of ingredients to be sure.

kdroberts 2011-01-26 10:43:46 -0600 Report

The problem with the ingredient list is that they list everything in every product and then use the grid to show which ingredient is in which product. Not the most user friendly thing to read.

GabbyPA 2011-01-27 07:19:40 -0600 Report

Yes I have to agree with that. LOL You are correct though, it doesn't list ALA in anything. I think my eyes were squinting too much.

GabbyPA 2011-01-26 09:55:52 -0600 Report

I only have it in my feet right now and I can relate to the frustration you have. Mine bother me most when I am trying to sleep. I keep them supple with heel balm and that calms them down a good bit. Sometimes I think they are cold, but they are actually hot, so taking my socks off sometimes gives them the relief they need. For the pain, I take OTC things. Tylenol helps me sometimes.

I have found that exercise helps a lot. I don't exactly know why, but it keeps the pain at bay usually.

By the way...good to see you Vicki

vgarrison 2011-01-26 21:13:11 -0600 Report

Thanks Gabby,

I got back into my I'm going to hide away this disease frame of mind again…I so gotta quit that!!! LOl

GabbyPA 2011-01-27 07:22:48 -0600 Report

You do! We miss you and you always have great things to share. Even if it is hard stuff you are going know we are here for you.