If it's not neuropathy, what is it?

By Danni-the-diabetic Latest Reply 2011-05-16 15:43:39 -0500
Started 2011-01-23 01:34:03 -0600

I have alot of skin sensitivity and I don't think it is all from neuropathy. I have had neuropathy for a little over a year now. I was told that neuropathy only really effects your hands, feet and (lower)legs. My hands and feet get stabbing pains and start burning, my legs get the stabbing pains and are so sensitive that it hurts when my pants rub up against them and shaving - OUCH!! Besides all of that, I have skin sensitivity in my lower back (I don't let anyone rub my back), my outer thighs, the side of my shoulder (right above my armpit, on the crease) & on my stomach it even got too sensitive to touch, but that faded. I had one Dr. tell me that it was fibromyalga (sp?)…which I looked up and that contains every kind of symptom out there. A couple of months ago the pain was so bad that I went to the ER. The Dr. didn't think it was fibromyalga, he didn't really believe in it, he thought it was more of a psychological thing. He told me that it wasn't neuropathy and he didn't think it was in my head, there is something wrong but he didn't know & I had to see a neurologist.
Well, considering that I don't have health insurance and to see a neurologist is $196, I haven't been able to go yet.
So I was wondering if anyone has experienced anything similar or have any idea what this can be?
Please Help!!


41 replies

cavie2 2011-05-16 15:27:28 -0500 Report

I have sharp stabbing pains all over my body daily except my face and neck, when I mentioned this to my doctor she said it was neuropathy and did not just affect the hands and feet as there are nerve ending all over your body but I don't have sensitivity on my skin. lol

mas14years 2011-01-31 20:24:09 -0600 Report

maybe you have fibromyalgia. I know that it hurts your body and it hurts if somebody would even touch you. I do not have this myself but that is what your symptoms sound like. I hope this helps and sorry to hear about your problem

marla50 2011-01-27 11:34:21 -0600 Report

Sorry,I didn't find anything that can help you. My problem is yeast under my arm. Which I just can't believe. Diabetes is un-real. My doctor says it's common with diabetes. I hope you find an answer.

jayabee52 2011-01-27 23:26:43 -0600 Report

The yeast probably causes skin breakdown under the arm? My podiatrist suggested using vics0 vapor rub on my feet, don't know how it would work on red irritated underarms. You might want to try a little dab somewhere. I would hate to see you slather it on under your arm and it further irritate your skin.

swanslake54 2011-01-25 09:44:51 -0600 Report

Hi Danni, sorry to hear you're having such a rough time. I also suffer from neuropathy and PAD (PERIPHERAL ARTERY DISEASE) I had angioplasty done for the my left leg and it's given me relief. I never had the sensitivity that you're describing, I do get the tingling and numbness. your doctor seems very insensitive, I have two very good friends that have fibromyalgia, it's very real. I thought most drs. now realize that this is a disease all by itself. I know its hard not having insurance, my prayers are with yoi.

marla50 2011-01-25 03:37:02 -0600 Report

I haven't experienced that but I itch so bad it's not funny. I'm wondering if maybe it's along the same lines. Instead of itching you have sensativity. I have neuropathy. It's in my feet almost to my knees and in my hands. I take neurontin. It works good as long as I keep taking it. I just re-read your article and I do have sensitivity under one of my arms. If I touch it it burns. I'm going to see my doctor on thursday. I'll let u know what I find out.

cavie2 2011-05-16 15:30:04 -0500 Report

my brother and I suffer from itching I get it on my shin bones we got cream from the doctor and it helps but I haven't suffered it for a while and can't remember what it was called

BandonBob 2011-01-27 11:24:34 -0600 Report

I can relate as I itch everywhere too. I find myself backing up to something and scratching my back like a bear on a log. I have been trying for years to find some relief but so far no luck. I do find vaseline intensive care lotion works to relieve the symptoms for a while. Since my wif died I have no one to rub it on my back and sometimes it almost drives me crazy. If you get an answer be sure and let us know.

Kaiyle 2011-01-24 08:42:50 -0600 Report

I wonder if you could be having symptoms of gout. I know that gout affects the joints, but it can spread causing sensitivity to the skin. It can spread from the ankles to the legs and from the elbows to the arms, causing pain, redness, burning, and soreness. So again, it can spread from the joints to other parts of the body where you can't even stand for clothing to touch you. I pray you feel better soon, my friend.

Danni-the-diabetic 2011-01-24 11:10:35 -0600 Report

I have never heard of gout. My joints hurt in my legs, but I've always associated that from running when I use to play soccer. My skin on my thighs get red. . .Thanks for the info, I'll def look it up.

nana2005 2011-01-24 04:53:05 -0600 Report

I have very skin sensitivity and I found that this Moisture Therapy from Avon realy helpes and that even have ti for you hand and your hole body , you should try that if you can get a hold of it, and not that try cedufill bar of soap, that will help to. so if you can find someone that sells Avon try to get some, some time you can some deals on it to.
let me know how you make out on this and if it dose help you out.
I wish you all the best. good luck

Danni-the-diabetic 2011-01-24 11:01:52 -0600 Report

Thank you, I will definately check that out…I'm willing to try anything. I don't know anybody that sells it but I see their books all around. I had tried tried this one lotion that was specifically for diabetics and the burning and tingling feelin, but that didn't work too well. I'll let you know how it works for me. Thanks again.

bobec4 2011-01-23 18:23:47 -0600 Report

I can definately identify with the pain you are going through as I also have Neuropathy which affects my feet, hamstring, hip, shoulders, and oddly enough my hearing. I have a 50% loss of hearing from neuropathy. I am on lyrica and tramidol for the pain which to be honest doesnt do much for me. If you need someone to talk to about this I am not an expert of any sorts but I have huge shoulders for you to lean on if you need it.

cavie2 2011-05-16 15:34:42 -0500 Report

Don't know if you are aware that Tramadol is highly addictive before I retired in April this year I worked as Admin Assistant with The Criminal Justice Drug Treatment Service and a high number of Drug Addicts are drawn to this drug. lol

roccorob 2011-05-16 15:22:46 -0500 Report

Try CYMBALTA it helps but my doctors say pain management is for me but I don't need to be a walking zombie, Rocco

Danni-the-diabetic 2011-01-23 21:09:54 -0600 Report

I appreciate that, thank you.
So neuropathy does effect alot of the body. I was wondering if it does effect your eyes, because my sight started getting bad a few months ago. . .but I would have never guessed that it would effect your hearing. When they say that diabetes can effect your whole body, they weren't exaggerating.
My practitioner told me that when my sugars are under control, the neuropathy should ease up, but my sugars are under control and it still hurts. Does it ease up when your sugar is in good range? She did say that the damage can be too much for it to be fixed…idk, she just didn't make much sense to me, hence, I'm looking for a new Dr.
I'm also on tramidol. I take 100mg in the afternoon and 50mg at night. If I take any more than 50mg at night it will keep me up, however, 40 and 50mg makes me tired. Strange, right!? Do you have any effects from it? And Lyrica is one of the meds that they suggested, but it's too expensive.

bobec4 2011-01-23 22:25:42 -0600 Report

Well in my experience the neuropathy has not eased up when my BG is in normal range. According to my doctor once the damage is done its done. thats not to say keeping your BG in normal ranges wont stop it from spreading further. as far as the lyrica goes I personally think its useless as I havnt seen any effect from it at all. The tramidol has helped a little but the darvocet was great! ( too bad it got pulled off he market for causing heart damage). also the tramidol has been keeping me awake at night I only sleep about 3 hours a day and I am hoping that goes away soon. The effect of the neuropathy that I feel is extreme sensitivity in my feet, and it feels like a torn hip flexor muscle in my hip, and my shoulders ache all the time. but that could be because I am getting older and I havnt taken very good care of myself up until now lol. The best advise I can give you is to keep your head up and dont let it overtake what you need to do. A positive attitude can make all the difference in the world when it comes to your treatment.

jayabee52 2011-01-23 21:41:27 -0600 Report

Regarding TRAMMEDOL: I had been in hospital in CA just before T-giving. I had a bleeding ulcer. I had a very good friend living in Las Vegas who was in the hospital in LV the same week I was in hospital in CA for the same problem. The problem we both had was bleeding ulcers. But she bled out and died (they had to transfuse me with 6 units). When I researched bleeding ulcers I found a frightening thing about Trammedol. It has been implicated in perforating the stomach. Suzanne, my friend had been taking Trammedol for pain and Suzanne's daughter said the ulcer penetrated the stomach wall and perforated her pancreatic artery. They put 2 complete changes of blood through her, but they couldn't stop the bleeding and she bled out. I usually don't take pain killers but I don't think I'll ever take Trammedol after learning about that. That scares me.

Danni-the-diabetic 2011-01-24 00:24:02 -0600 Report

Wow James, that is scary! I'm sorry to hear about your friend. I'm glad you came through okay.
I have had ulcers and bleeding ulcers before I started taking this. I try to stay away from pain killers, the addicting kind anyway, but I've stuck with this one because it works, at least a little bit, and they said it's non-habit forming. Thankyou for that information. I will at least cut my dosage as much as I can handle, until I can find something else.

oldbuttercup 2011-01-23 15:43:01 -0600 Report

To the doctors that say all the pain is in someone's head I would like to show them where it really hurts!
But to try and be more helpful have you tried applying heat to the affected areas?
Another suggestion is local pain patches available at your local pharmacy.
Good luck finding the pain relief that works for you.
Everyone is different.

roshy 2011-01-24 17:22:20 -0600 Report

to the doctors who say all the pain is in someones head i would like to show them where it really hurts!!



Danni-the-diabetic 2011-01-23 21:13:02 -0600 Report

LOL I get tempted sometimes.
I haven't a h pain patch and I haven't tried heat…I tried sitting in a warm bath before but that irritated my thighs much worse.
Thanks for the luck, I seem to be needing all the luck out there.

MAYS 2011-01-23 12:29:29 -0600 Report

I'm sorry to hear about this, I wish for you the best as always.
Since you do not have any health insurance is there a state funded clinic available in your community, if so do you have any objections to using one temporarily?

Click on the link below to find one in your city, or state.


Good luck, do whatever is necessry for your health, and your piece of mind.
Please keep us informed, and remember this, we are all family here!


Danni-the-diabetic 2011-01-23 21:00:50 -0600 Report

Thank you Mays. They have a clinic that I have gone to a couple of times that only cost $10 and the meds are very cheap, but I totaled my car awhile back ago so it's hard to get there. But thanks for the reminder, I actually forgot about that place, it's been a long time since I've been there. And thanks for the link, I'll check it out and see if there is something closer.

jayabee52 2011-01-23 04:02:05 -0600 Report

Howdy Danni. Good to see you back posting, although under these circumstances well, it is the pits for you.

Of course, I have to make the disclaimer that I am not a MD. But from my perspective it COULD very well be Neuropathy. I have the burning in feet & legs. My groin area tingles, as do my hands up to my wrists. (irritating a bit but not painful like my burning feet.) And I have neuropathic IrritableBowelSyndrome. I have to wear a "depends" 24/7 because my bowel and bladder functions can be erratic. My Jem had been dxd with fibro just days before she passed (as I understand not the cause of her death) but I really hadn't researched fibro at all.

So despite the Dr's pronounceemnt that he didn't believe in fibro, there are a lot of MDs who do believe it is a genuine medical condition. (Jem's rhumetologist being one)

I think it is most likely Neuropathy of some kind, but fibro might play a part too.

Blessings to you and yours


Danni-the-diabetic 2011-01-23 12:12:11 -0600 Report

Thanks James, it's good to be back on here, regardless of what's going on. Thank you for your input and information. Is there like a miracle drug you have found to work best, besides neurotin/gabapentin, I was taking a lot of 1800mg and that still wasn't helping.
I haven't read around here in a very, very long time, since last April or May, but I am sorry to hear about Jem. My heart goes out to you. . .


jayabee52 2011-01-23 18:06:42 -0600 Report

Thank you Danni. I miss her tremendously! She was a special lady & my life is better for having known her. I knew when we met our relationship might well be short, because she had a lot of "medical challenges", & she didn't hide them from me. But though I am grieving she left me in a better place emotionally than when I met her. She just had that way about her.

Have moved back to LV cause rules for the mobile home park prevented me from staying and the rentals for apts were sky-high. Better here, and closer to my son..

Currently I am taking Nortrypteline, a anti psychotic drug, but with no effect noticable. Gabapentin/Neurontin didn't help either. So far I have found no "magic bullet" against Neuro Pain. Sorry for us both, and everyone else suffering from Neuro.

Danni-the-diabetic 2011-01-23 20:49:06 -0600 Report

I love how you are able to look in a positive light from such a situation. After my niece passed, it took me awhile but I had to teach myself to think positive. I admire that.

Does the Nortrypteline work for you…do you take it for the neuro? I know that they prescribe some antidepressants and such for neuropathy, but the ones they suggest are too expensive for me.

jayabee52 2011-01-25 06:14:50 -0600 Report

Yes the nortrypt is supposed to be for neuro pain. No it doesn't seem to work for me. I am about to change Drs so plan to review all my meds then.

That positivity was one of the benefits of having been with her.

AND as she was a Christian believer she is now in a better place. I believe all her pain is GONE, no more crying, her blindness is no longer a handicap for her, all because she put her faith in Jesus' sacrifice of himself on the cross to pay for her faults and wrongdoings. I believe that too for myself, and one day I'll pass from this life and join her in heaven. So while I would LOVE (selfishly) for her to be with me here on earth, the struggle of her life and the pain of her last 2 weeks on earth (Rhumetoid Arthritis, & Fibro) I wouldn't want to bring her back here to suffer that again, no matter how much I miss her. That would be selfish of me. And I have had a LOT of experience with grief previously, so a little grief will not swallow me whole. (it's gonna have to chew on me for awhile - LoL!) Also, we were up front with one another about our medical conditions we both knew our relationship might be rather short (I'm 5'6" she was 4' 10" LoL - sorry couldn't resist) I didn't know how short. Would have loved more time with her but I believed I went into the relationship with eyes wide open, and it definitely was worth it in many ways. She's definitely set a high goal for any other lady to meet.

Blessings to you and yours


Jeannie Holmes
Jeannie Holmes 2011-01-23 10:57:12 -0600 Report

I agree with James. A lot of doctors don't believe in fibro.

Danni-the-diabetic 2011-01-23 12:16:27 -0600 Report

Yeah, I had a Dr. tell me that Dr.'s will diagnose that when they don't know what is causing the pain. I don't know which Dr. is right or wrong, I just want something to treat it with and stop the pain.

rj 2011-01-24 01:04:44 -0600 Report

So sorry about your pain and nerve issues. I sure wish I could tell you of a miracle drug…unfortunately I can't even take some of the drugs that Jayabee52 posted due to the Hemo Chromatosis tht i have been diagonosed with…I know how the sensitivity thing goes…can't take anyone touching my feet period…and my half my hands are doing the numbness thing…starting to find it hard to play the guitar orkeyboard. Controling the BG is suppose to slow down te neuropathy nd maybe it does but it hasn't neccessarily eased the existing symptoms. Know my prayers and thought are with ya…

Danni-the-diabetic 2011-01-24 11:06:21 -0600 Report

Well I guess slowing it down is better than it getting worse and worse faster and faster. Anywho. . .thanks for the thoughts and prayers. I can't imagine not being able to take anything for the pain. A tiny bit of relief in better than none at all. I'll keep you in my thoughts and prayers as well.