frustrated

smokeboy
By smokeboy Latest Reply 2011-02-17 21:50:03 -0600
Started 2011-01-21 08:34:03 -0600

I have been diabetic for about 8 years. I have struggled with it alot and now more than ever. I am on a long lasting insulin 1 time a day, 3 shots of a fast acting a day, and max doses of 2 oral meds and I still just cant get it even close to being where my numbers should be. Its that time of year where its harder to exercise which dosnt help but the amount of medicine I am on and eating good still just dosnt help. I am very frustrated. I weigh more than I ever have. I just dont know what to do. I feel very unhealthy and have high cholesterol and I am only 31 and I feel that at this rate I will be lucky to live to 50. My doctor and endo dont really help the way they should. Just dont know


13 replies

WendyFR
WendyFR 2011-02-17 21:50:03 -0600 Report

Hi smokeboy, it is frustrating at time, takes a little patience. I've been a diabetic I since I was 12 years old and tell me about frustrations, I've been in your shoes, with taking 4 shots a day, taking three kinds of oral meds, exercising. Stress can also spike the BS. For me I can do everything I need to do, but when I stress out I get high numbers anyway. It's a definite lifestyle change. Everyone is different and you may have to work with your doctor and nutrionist to see what works best for you, but it can happen. I now struggle with hitting lows, it's trying to find the right balance of everything. Oh, also I look on line on how to lower my cholesterol (I had that as well at one time). There are so many resources on line. Sometimes if I'm unable to get it from my doctor I do my own research. This site really has good information as well. I only been here for a couple of days and found out a lot of information. So, stay positive and I know you will make it to 50 and beyond.

Dr Gary
Dr GaryCA 2011-01-24 17:38:49 -0600 Report

Hi!

I am sorry that you are feeling so frustrated right now. I am not a physician and can't give you advice on diabetic self-care, but I see that Gabby and others friends on Diabetic Connect have given you some helpful advice on what you might want to think about. You certainly came to the right people for support.

Bud I did want to just toss out a couple of thoughts in the hope that I can also give you a hand during this hard time.

From reading yoru post, it seems like you are feeling really out of control right now. And if there is one thing that doesn't siit well with us human beings, it is not being in control. Not that we are every really in control, but we like to at least think that we are. And so when we see contrary evidence, like our weight or our numbers not being what we thinkg they should be, then that pushes all of those lack of control buttons.

When we feel out of control, it is only natural to want to strike out at whatever or whomever seems to be getting in the way. From reading your post, it seems that you are really angry at your healthcare team right now. I am wondering if you might also be feeling a little frustrated with yourself, as well.

Again, it's a normal reaction to want to place blame. I am not walking in your shoes, and I don't know your healthcare team, so I am not saying that you are wrong in this.

However, I would encourage you to do a couple of things.

One, sit down and make a list of what you think you are doing right in your diabetic self-care, as well as any quesitons you might have. Make a list of what you think isn't going well, e.g. weight gain.

Ask someone on your healthcare team to sit down with you, review your self-care strategy, and see if there is anything that might be slipping through cracks. Let them know of any challenges you have, e.g. diet or exercise, and ask for suggestions. You might also ask to speak with a CDE or a nurse who can give you some additional coaching.

Here is what I am also suggesting: Shift your perspective on your healthcare team. Right now, they seem kind of incompetent and unhelpful to you, at least that is what you implied. If that is the way you view them, then that is going to affect how you work with them, and how you think about them. You attitude will leak out into your interactions with them. This isn't the most productive attitude.

Instead, assume that they know what they are doing, want to help you, and maybe need some more informatiion and encouragement from you to help them to do their jobs. In other words, envisaion them as helpful professionals who are on YOUR team. Think of yourself and your team as WE -- with every member contributing -- instead of me versus them.

I know this isn't easy when you are feeling disappointed and out of control.. But a little shift in perspective can make a big difference.

I really appreciate your honesty and hope that, in return, I was also helpful.

Please stay in touch with your friends on Diabetic Connect. Keep us posted!

Gary

jayabee52
jayabee52 2011-01-25 07:21:46 -0600 Report

I had a very wise therapist say to me more that a couple times "feelings leak" what you said about smokeboys' interaction with his healthcare team reminded me of Dick K telling me that.

fernwood
fernwood 2011-01-24 10:31:05 -0600 Report

Smokeboy:
You sound like you are blaming your doctors for your not controlling your
diabetes. I have been in deniel for many years. I have been reading a book by
Dr. Phill called "Life Strategies" and it is waking me up to the fact that my health
is up to me. I have decided to get as much info as I can on diabetes and start
dealing with my condition. Also let your doctors know what it is you feel you need. Hope this helps.

Gabby
GabbyPA 2011-01-25 08:17:50 -0600 Report

Would you be so kind as to share that book in our book club section? It sounds like a book many of us could benefit from.

tomecom
tomecom 2011-01-22 08:00:25 -0600 Report

smokeboy: Controlling blood sugars does not have to be a big mystery. You can gain control by changing a few things.
Erratic blood sugars are caused by dehydration, vitamin and mineral deficiencies, amino acid deficiencies and largely due to poor diet and little exercise.
High blood sugars cause dehydration which causes management problems. Most diabetics are dehydrated and don't realize it.
High blood sugars, inflammation and bad diet causes vitamin and mineral deficiencies that in turn cause amino acid deficiencies. both cause control problems, depression, low energy and many other problems. The body cannot control insulin or glucose without many essential vitamins and minerals especially chromium, zinc, manganese and magnesium.
Bad diet includes prepared foods, processed flour, caffeine, sodas and colas, high fats, dairy products, alcohol and artificial sweeteners, which causes inflammation,insulin resistance and weight gain. You have to restrict your diet to low glycemic index foods.
I would recommend that you get a copy of the Diabetes Primer from CNET.com. It is a free download that will cover all of this in greater detail. Just type the name of the program into the search box at the top and download it.

Gabby
GabbyPA 2011-01-21 10:23:22 -0600 Report

Some times we just have to shake things up a bit. I know what you mean though. My meds have been on the increase and I exercise more than I ever did and am eating okay. Still my numbers are stuck. It is frustrating. The things that help me out of the rut and frustration is to do something new.

I am trying to eat more alkaline foods right now. It gives me something different to focus on and see what it does. Most of these foods are healthy, good for you even better focused than vegetarians. I am not there yet, but I am noticing some differences in my skin and hair. So I keep playing with it. I usually give myself a set time like 30 days to try something new to see how it does. Take notes and make comments on it as I go. So maybe try giving up something that you know might help or substituting something. Or making your own bread or trying a new supplement.

CaliKo
CaliKo 2011-01-21 10:05:50 -0600 Report

Have you tried working with a CDE? Someone like that could customize a plan to suit your needs and lifestyle. I do much of my exercises, aerobics and weights, at home with exercise cds. That fits into my day any way I want to arrange my schedule. After that, its a matter of getting a good meal plan and figuring out ways to stick to it. Good luck!

Harlen
Harlen 2011-01-21 09:41:07 -0600 Report

Hello
I do feel for you , I know what your going thrue.
For me I had to rite down what I ate how much , how much insulin I gave what my bs was before as well as what it was 2 hr after eating.
I gave up on the long lasting and the shots got a pump that made life much much better for me .
I hope you are able to work it out
best wishes
Harlen

smokeboy
smokeboy 2011-01-22 08:09:23 -0600 Report

how is the pump? I was actually considering it. How do they put it in? Maybe you could tell me a little about it

Harlen
Harlen 2011-01-22 16:03:38 -0600 Report

I love it life is so much better with it
Go to the pump school at medtronic its free and will give you a good ieda of whats involved
Best wishes
Harlen

jayabee52
jayabee52 2011-01-22 10:07:45 -0600 Report

Howdy Smokeboy.

Here is a link to the ADA to a page about pumps. http://www.diabetes.org/living-with-diabetes/...

Here is a link for a website that gives comparisons of the various pumps available: http://www.diabetesnet.com/diabetes_technolog.... (this may not be an exhaustive list)

If you want further information, you might want to do a search engine search for a particular brand of pump or model.

We considered using a pump for my bride who couldn't seem to get her Blood Glucopse numbers ("BG#s") down. We chose not to do it because of some personal reasons on the advice of her Diabetes care team. We worked very intensively with an Endo who came on board, and eventually got it down closer to "normal".

There are many here who DO use pumps and seem to love them. (like Harlen or Amy Tenderich).

Whatever you decide, blessings to you and yours!

James

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