My First Irreversible Complication

By Richard157 Latest Reply 2011-01-23 13:59:34 -0600
Started 2011-01-20 20:45:34 -0600

I have posted several times about my problem with dizziness. It started in the fall of 2008. After many tests it was finally decided in the fall of 2010 that it might be caused by my BP med. Taking half doses of that med helped my dizziness to some extent. Finally, my neurologist has diagnosed autonomic neuropathy. I have most of the symptoms that characterize that kind of neuropathy. My neurologist says it is rather common among long term diabetics. The symptom that bothers me most is a big drop in my BP when I change from a seated to a standing position. In the morning, until noon, it can drop 40 or more points when I stand up. It improves in the afternoon. My evenings are best.

My neurologist says there is no medication that has been found that will really help, so this is my first diabetes related complication that is irreversible. I have had other complications that were reversed by tight control, but this one seems to be here to stay. This problem has bothered me for more than two years. I usually stay in my recliner with my laptop in the mornings, when my dizziness is at its worst. Exercising and doing my chores after lunch is OK.

My newest project involves working out at a physical fitness club/gym for about one hour, three afternoons each week. Using many machines that strengthen my muscles is very useful, and fun. My upper body muscles have become weakened in the past few years, and my aim is to strengthen them, so I can stay in good shape. My treadmill is there for me other days each week. How else can I become the first person to live with diabetes for 100 years?

I told my wife that my physical fitness trainer is unattractive and all muscle. Actually, she is a twenty something, and cute as a button. Am I bad, or what?

I have lived with type 1 for 65 years and my health is very good. My autonomic neuropathy is not going to discourage me. I always have a very positive attitude about my diabetes, and life in general. You are stuck with me for another 35 years, when I will celebrate my 100'th anniversary with diabetes.

36 replies

Graylin Bee
Graylin Bee 2011-01-23 00:31:52 -0600 Report

Do you really think your wife is fooled? She is probably glad you are going to the gym no matter the reason.

Richard157 2011-01-23 09:59:06 -0600 Report

That is funny Graylin. I eventually told my wife that my trainer is young enough to be my grand daughter. She laughed very hard about that. I tease her a lot, she laughs a lot.

jayabee52 2011-01-23 10:09:30 -0600 Report

I love it! As long as your wife can take a joke. That's great. Jem & I joked a lot too, back and forth. My ex, well I knew our relationship was in trouble when we didn't laugh together anymore. She got all uppity and growly like a bear.

Cari Lee
Cari Lee 2011-01-21 18:59:17 -0600 Report

Hi Richard,
U have such a wonderful attitude. My bet is that u WILL live to see that 100 mark. Forty six years married. How lovely. My husband and i made it 47 before he died.
Good on ya, my friend!!!

jayabee52 2011-01-21 18:56:03 -0600 Report

Looking forward to your 100th anniversary medal. How old would that make you?

You are an inspiration to most of us here. I point to you when people ask about how long they might be able to live with Diabetes.

Thank you for being who you are!

Blessings to you and yours


Kaiyle 2011-01-21 15:09:37 -0600 Report

I am looking so forward to your 100th anniversary celebration of life. That 100th anniversary will symbolize a lifetime of your celebrating each day of your life. You, dear sir, are BEAUTIFUL!!!!

Dr Gary
Dr GaryCA 2011-01-21 13:11:00 -0600 Report

Hey Richard,

As others have said, your optimistic attitude is an inspiration for all of us.

As for the trainer, it's important to have an incentive. Whatever gets you back to the gym, it's all good!

Have a great weekend!


BandonBob 2011-01-21 12:24:38 -0600 Report

Your attitude inspires to continue fighting for control. I won't be able to match your 100 years as I was diagnosed Type 2 20 years ago but I told my gradndaughter that my goal is to be around to see her graduate from college and have a family of her oen. She is 9 right now So I am looking at enough years to make it to 100!

CaliKo 2011-01-21 11:53:43 -0600 Report

You go, Richard! What a great attitude you have, and example and inspiration for us all.
Your comment about your physical fitness trainer sounds a lot like my husband's comments about the women at his fitness club that play racquetball with the gang of mostly guys that hang out there. hmmmm

Richard157 2011-01-21 13:45:47 -0600 Report

Caliko, my precious wife and I have been married for 46 years. "Til death do us part" will always prevail. Thanks!

MAYS 2011-01-21 11:29:43 -0600 Report

Richard, I love your attitude, and your sense of humor.
I do not believe that any barriers pertaining to diabetes have ever discouraged you, you seem to confront it face to face, and take it in stride with confidence.

I know that you are more than capable of being the first person to live to be 100 with type 1 diabetes.

That distinction will be well deserved, but to me you will always be the inspiration that pushed me to continue to help motivate others to take their diabetes seriously.

Joslin will have to both stamp a medal, and cast a bust in your likeness for your next big achievement, "A hero dwells among us!"

Here's to another 35 years of good diabetiic health!


GabbyPA 2011-01-21 10:50:46 -0600 Report

Richard, I am sorry to hear that you are suffering with this. Like everything you face, you take it head on and I know you will work hard to keep it in check. I will take another 35 years of you any day!!

Richard157 2011-01-21 11:56:30 -0600 Report

Thank you Gabby, this aggravation is just another bump on life's highway. It will not deter me. You are very kind!

roshy 2011-01-21 21:40:01 -0600 Report

Heya richard!!!

jaysus ur gona out live us all!! i duno if u remember me but i joined the site a long time ago and have kept you in my heart ever since!! Glad to hear your doing so well, i look up to you as an inspiration!!! ive had type one for nearly 7 years (im oly 23) and have been hit with every complication goin in those short 7 years, including a horrific DKA last year, i almost got taken by the diabetes grim reaper but managed to pull through ( by the skin of my teeth!!) and to put the cherry on the cake i developed coeliac disease straight after it!! ( im now a diatition's nightmare) but if ya can come outta that with a smile on your face nothings gona take you before your time!!!

So keep smiling my friend and sure send me a few more Irish jokes just to make sure im smiling too!!

keep rockn and rollin dude!!


Richard157 2011-01-21 21:57:09 -0600 Report

WOW! Roshy you have been through a lot. Are you getting it together and having better control now? I hope you have a good doctor to guide you through all this.

roshy 2011-01-21 23:30:49 -0600 Report

ah thats the least of it rich!! but the doctor i have now is a really cool guy and sets reasonable expectations for me to follow!!! im now in training for a pump so things are slowly but surely getting better!! ive wanted the pump now for ages and cant wait to change over!! The DKA was a bit of a wake up call, and traumatic to say the least, it took a good full year to recover but now im just hoping for the best!! as for the coeliac disease, well thats another kick in the kidneys , i feel like theres nothing left for me to eat except carrots and bananas!!! but the diabetic team i have at the moment are like family so the support i have is great!! considering how shitty the health system is over here!!

Richard157 2011-01-22 09:47:05 -0600 Report

A good doctor can make such a big difference. I am a member of a UK diabetes site and I have read so much about their disappointments with the NHS. Pumps are becoming more frequent in the UK though, I am happy for you that you are getting one. It seems that the Minimed Veo is the one that is most recommended there. Is that the one you are getting?

roshy 2011-01-22 10:41:54 -0600 Report

well if the NHS is a dissapointment the HSE is a feckin disaster!! our minister just fecked off there during one of the biggest H1N1 out breaks the country has ever seen!!

But your right, the pumps are slowly getting more popular in Ireland!! and the minimed is the most used, esp for pregnant diabetic women and young children not really amoungst people my age!! how ever i have opted fot the accu chek spirit combo!! At the moment there are only 3 different types of pumps available in Ireland. The minimed, the one i opted for and the other one is the animes! which is pretty disapointing!!! id love an omnipod , just to be cool!!!

I ll be waiting quite a while though! firslty you need to be assesed by a diabetic pump nurse, then you have to go on a waiting list! then you have to indure a intensive CHO counting course and then theres the whole getting used to the pump attached to your body and learning how to change sites and refill etc! then i think you start 'pumping live' (as we call it) eventually when the pump arrives 7 or 8 months later!! so when it eventually arrives we arre all gona have a pump party!!!

so i cant even explain how excited i am to switch over, im gona feel like robo-cop!!!!

Richard157 2011-01-22 10:47:47 -0600 Report

That's super Roshy. I love your sense of humor. I remember that very long discussion with so many replies, a couple of years ago when you first introduced yourself. I wondered where you had gone. Glad to see you back!!!

roshy 2011-01-22 10:53:33 -0600 Report

Ah you do remember me!! good stuff!!!

yeah , i was busy picking up other long term illnesses !! glad to hear from you though!!! and to see your still like robo-cop yourself!!! best of luck with all the exercising!! and if your in Dublin any time soon make sure you let me know so i can send u and inventation to the pump party!!