It's been 3 1/2 months

chopi
By chopi Latest Reply 2011-01-18 15:52:59 -0600
Started 2011-01-17 10:36:53 -0600

Three and a half months aftering being diagnoses I'm wondering how I can live with this disease for the rest of my life?? I'm only 43. It controls every thing!!! I eat pretty much the same food every week, exercise the same amount every week and my numbers can be as low as in the 90s or around 180s fasting or not. The pain in my legs and feet won't go away. I've been on several meds for the pain with no luck. It's expensive, especialy with no insurance. I only get around 2-3 hrs of sleep a night. My wife the other day noticed big dark circles under my eyes. I dont know how anyone does it?? And also knowing it's a progressive disease does not help, possible heart, kidney, eye and on and on problems. And all the different info you get out out there. Different BS levels on different sights. My diabetes expert told me that some say that 2 hrs after meals it should be 140 and others say 180, which is it??
Any way enough of that, I have no choice but to live with it. YEA!


11 replies

Johnben or JB.
Johnben or JB. 2011-01-18 12:45:15 -0600 Report

Last month I completed my 50 years of diabetes type#1. Amazingly I'm still alive!
If you can keep reasonable control of your sugars and remember to keep your eating portions within reason you have nothing to worry about. I have no big problems but have some of course. If you worry too much you make your situation worse. DON'T!
Just live with what you have. Can you see, hear, feel and all the other things? You are doing fine!

JB. Diabetic medallist.

digitaldoorbell
digitaldoorbell 2011-01-17 19:57:22 -0600 Report

I was diagnosed in August of last year. So I have about 5 months of experience but understand exactly what you mean. I was scared and shocked at first (I stilll probably am). I have managed to lose 45 pounds and until recently was doing well. I ended up with neuropathy in my feet. I find it impossible to believe that being diagnosed for this short of time and also having very good blood glucose (usually betwen 90 and 110) would have ended up in this much pain and meds (prednisone and neurontin). But I am coming off of the prednisone in the next few days and beginning to feel a bit better.

I have met lots of people who came off of meds ( I don't take any) and live with "controlled" diabetes. It can be done. Watch closely what you eat. Severely lower carbs and I'm sure you will see benefits too.

Wish you the best

Scott

digitaldoorbell
digitaldoorbell 2011-01-17 19:52:58 -0600 Report

I am right there with you. I am just finishing prednisone. Down to 1/2 pill a day for the next three days. I also am on neurontin for the pain/burning in my feet and thighs. I think I am getting better. Had nerve studies and was told that I have "mild neuropathy". It feels like I am walking on round stones or something like that. It's hard not to get derpesed. Walking hurts at first but then helps.

We're here to support each other. Please don't give up. Try warm showers or foot baths. Even a little bit of relief can be a BIG relief.

I wish you (and all of us) the best.

Scott

PetiePal
PetiePal 2011-01-17 13:17:54 -0600 Report

Believe me brother I hear you. I was diagnosed this year at 28 and one of the first things to go through my head was Oh my God I have to deal with this for THAT long in my life??

The industry standard I've read is for Diabetics you should be 160 or lower 2 hours after eating. Of course until your meds/treatment is really ironed out this may not happen for some time.

I think an important thing to do is evaluate your diet. If you're eating the same things every week and your numbers are fluctuating or not staying constant it's time to vary up your diet and start finding what foods you CAN still eat, which you can have a little more of, which ones are terrible and spike you way too high or take too long to "clear out." I went nuts after being diagnosed and started testing 7-8x a day and sometimes twice after meals to see how high I got and to make sure I was coming down fast enough.

I'm guessing you've got some of the elevated symptoms of diabetes that are causing some more of your distress. Getting a good nights rest is crucial though, there have been lots of studies linking less than 8 hours to pre and post diabetes.

Once you get your sugars better under control you should start to feel better and your sleep cycle should improve too. Work closely with your doctors to get to this point!

Gabby
GabbyPA 2011-01-17 13:06:39 -0600 Report

It does get easier to deal with. I know the first year of my diagnosis I was trying all kinds of things and some worked and some just frustrated the tar out of me. One thing you say is that you do the exact same thing every week. Maybe try to change it up a bit. When it gets boring, it gets hard to comply.

You wife sounds like a great support. When my dad was diagnosed, my mom went all out to take care of him. They did it together and it was a great source of bonding for them. I hope you can have fun together while working on things.

Next, 3 months is still young in it all. Your body is adjusting to the changes and it is hard on it sometimes. Everyone is different, so don't compare to others. Just learn what they have done and try some for yourself.

Not getting enough sleep will affect your numbers too. So seeking a way to find sleep will be key. I have been struggling with sleep myself for a few months and it is making my levels push high. I am getting them lower now and sleep is coming to me every few days in good doses, so press on. Maybe ask your doctor to approach it from the sleep side, not the pain side?

You are right, the choice is to live with it. You will overcome the hurdles. They will teach you the skills to deal with the ones that are down the road. So pay attention, and learn what your body is telling you. It will give you clues along the way. We are all rooting for you. Don't give up, you have just started the journey. You boots are not broken in yet and they are giving you blisters. It will get better.

Two painful feet
Two painful feet 2011-01-17 11:20:00 -0600 Report

Hi! I'm sorry that you are having such a hard time. Sounds like you are doing everything right. As for the pain in your legs I take nuratin 800mg 4 x daily. If I take this med on time I'm pain free. Are you watching your carbs when eating. I'm allowed 45 to 60 carbs per meal. I try to keep it down to 45 carbs. Keeping your blood sugar down will help with leg and foot pain. I'm sure that there will be others who will have better help than what I offer. Also your bs shouldnt be at 180 that is not good. The bs should be 140 or less. You do not want your bs to be to high or to low. Things will get better as time goes on learning to cook different recipes will help with eating the samething day after day. There is a recipes site here on DC will be a big help. You have to watch how many carbs are in each recipe. If you are testing 2 hours after your meal you can see what foods bring your bs up. Please take care of yourself and enjoy each day that you are given.

Your Friend
JoAnna

chopi
chopi 2011-01-17 11:59:43 -0600 Report

I eat about 120-130 carbs a day including snacks. I've tried nuratin , cymbolta , vicodin and tramadol for the pain. My BS is mostly in the 130s but I can't understand when it's 95 0r 180 some times. My wife is very good about trying new foods and recipes also. I'm going on vacation in less than a month, which was booked before I found out that I had this wonderful disease. I don't even want to go now. And if Ido end up going I'm thinking of not even testing while on the cruise. I figure whats 10 days with not worrying about it. I had another thought, who's to say that 130 BS for one person is not their normal number?? everyone is different.

amylouwho
amylouwho 2011-01-18 12:19:52 -0600 Report

Chopi,
I've been diabetic for 10 years now and still haven't got it under control like my doctors would like me to be—there have been good months and not so good months in those 10 years. I do believe your blood sugar levels are very individual. Listen to your doctors and what their guidelines for you are. Especially being newly diagnosed, it might be totally different then the others on this site. Go on the cruise!!! Stress and reduced sleep will play havoc with your numbers no matter how good you are eating and controlling your carbs! This cruise vacation (I just got back from a 9-day one!) might be the rejuvenation you need and the reflection you need to get your life back on track. I know it did for me. I believe in "start where you are". I decided as of the 1st of this year I am going to try to make this the year it all changes for the better for me. You name it, I have it…as of right now I am determined to change it!! Good luck and let me know how you are making out!!

Amy

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