Ok so this started as a reply to a discussion..but then I realized how long it was lol so I wanted to toss in a new discussion based off of it. (Original discussion: http://www.diabeticconnect.com/discussions/92...)
You know for some people it's easiest to keep your diabetes to yourself. This is what I did early on last summer. My immediate family knew and my gf. I told my best friend a few weeks later but largely kept it quiet from anyone else for about 3-4 months until *I* had a handle on it. I read up ridiculously, took classes and absorbed as much info as I possibly could. I didn't want people telling me all the things they "thought" they knew about diabetes and like snatching something out of my hands I "wasn't supposed to eat."
I never knew until I was diagnosed how many people had so many different misconceptions and how INVOLVED they want to be in your medical care and expertise lol. And it IS easy to feel overwhelmed by the deluge of information thrown at you. It seems like Dr. Oz is on every week touting some new statistic that isn't quite 100% accurate or misleading etc. There are literally thousands of books out there to read…and all say either the same thing but slightly different or offer a RADICALLY different view on treatment/causes etc.
Early on I was worried that I would get complacent at EXACTLY now…almost 6 months after diagnosis. I figured I would have my diet and sugars under control but I didn't expect my A1c to be as low as it just came back. (11.3 last June, 11.1 last August, 6.1 a week ago) I almost kind of dreaded it coming back low (although it really was the last thing I thought, I expected fully to come back in the 8s or 9s since I have not really been exercising a ton yet) because I knew that complacency can set in and I'd be more apt to order out for pizza etc. I was a little weak around Halloween and I would admit I might have 2 or 3 funsize candy bars…but I kept it in moderation and tried to keep the fear that if I DID ignore it I would get complications. I joined an IRC chat room called Diabetic-Talk that I found way back last summer with a GREAT group of people. Some are in very advanced stages of Diabetes…lost limbs, kidney/pancreas failure, retinopathy, neuropathy etc. They were very supportive and listened to my rambles sometimes when I really just needed SOMEONE to talk to who wasn't judgmental or had any prior assumptions and WERE diabetics themselves.
Still now it's a conscious effort EVERY day to make sure I'm trying my best to eat things that won't drop my sugar too low before the next meal, to actually eat ENOUGH carbs and not under consume bc of a fear of too much, or deny myself everything and go into super strict "starvation mode!"
I will admit there have been some nights where I WILL order out for a pizza and have 4-5 slices…not good I know and the low A1c kind of (negative!) but positively reinforces that behavior. I need to work better on having a more steady middle for my sugars than spiking and dropping bc that's only stressing my beta cells.
What I'm getting at here is that diabetes is different for everyone, and no one knows the challenge it poses to you better than *yourself.* You need to figure out what scares you a little but or in a more positive outlook what MOTIVATES you to get healthy and stay healthy. Scared of dying? Ok! Don't want to make your loved ones or s/o suffer bc you brought complications on yourself that are totally avoidable? Ok! Doing it JUST for you? Great. Find your motivation or your deterrent and keep it in mind constantly.
For me it's a combination…My brother is 41 and I don't want him to become a diabetic..it runs in our family so hopefully he'll see my example and make positive changes. I want my children one day (don't have any yet ;P) to have an active father who isn't sick and can go out and play catch and do all the things they deserve out of childhood. My father gave me a great childhood but when he was diagnosed when I was about 8/9 things got more difficult for him to be a part of. That and yeah I'm scared (@#*#@less of the complications… Find yours and stick to it.
Again diabetes is a different disease for everyone with some similarities across the board. You need to find what works for YOU best and sometimes find the strength to ignore the "general consensus" because it may not be 100% right for you. YOU are in control of treating your disease so unfortunately yes you do have to take major charge of it…but this is a great thing in itself! You can pick your treatment team and be an active part of it all instead of just being told what to do and doing it.
Hang in there and make the change today!
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