Just When You Think You're Doing OK......

By ram63 Latest Reply 2010-12-19 00:53:27 -0600
Started 2010-12-11 19:29:00 -0600

I finally got a real good doctor, got my levels where they need to be and a great A1c (6.0), and felt halfway normal again, I got hurt at work. I have been dealing with an on the job shoulder injury for about 2 years and finally had surgery to correct the problem, or so I thought. The surgeon did arthroscopic sugery on my shoulder and told me that it would take care of the problem I was having. After the surgery and over 2 months of therapy, it was the same as before, only it felt like an impingement in my shoulder. My therapist and I fought to get an arthrogram done to see what the problem was and it was from things he had missed the first time. My surgeon told me that he probably should have opened me up the first time, but didn't want to be aggressive in his treatment. He did a second surgery in August of this year and he actually made it worse that before. I have a clamping feeling in my shoulder all the time now, my skin is numb on my shoulder, I have a tremor in my hand that wasn't there before, my pain and range of motion are worse than before. My pain is a 8-9 all the time on a scale of 1-10. I can't lift my arm up level with my shoulder let alone above my head without it feeling as though my arm is being torn off. My surgeon can't figure out why and has given up on any further treatment. I have until the middle of next month and then I lose my job of over 13 years, along with my medical insurance. I'm only 47 and far from retirement. I have problems sleeping due to the pain and worrying about my future or what's left of it. The worst part of it all is if I lose my job, I will lose my house as well. I also pay child support to my ex and she will probably lose her house as well. Dealing with diabetes and neuropathy pain, along with all of this is really taking it's toll on my sanity. My hands don't work like they used to, my feet go numb or I get pain spikes in them, and going somewhere away from home is really a production. Life just really sucks for me right now.

29 replies

ram63 2010-12-16 04:46:12 -0600 Report

I saw the doctor that my surgeon referred me to today(12/15/2010) and after examining my shoulder he thinks I need another surgery to repair what the first two surgeries screwed up. I can't understand why it takes 3 surgeries to correct a problem that others have only one surgery. Oh wait, those people had a doctor who knew what he was doing, my mistake. After the surgery this time, another 3 months of therapy. Scary part is I'm worth more dead than alive, something to think about isn't it?

Graylin Bee
Graylin Bee 2010-12-18 00:53:52 -0600 Report

Sorry you are having such a difficult time. My husband lost his job and his retirement plan 3 years ago due to an incomplete spinal cord injury, then he was denied his disability,then I lost my job this year due to vascular problem that almost cost me my legs and or my life, and we lost our house this week. So I understand the scary. We have not been able to pay our life insurance so we are worth about the same dead or alive if you only look at the money side of life. However this is not what life is about. It took three surgeries to correct my problem. Without them I would have continued to have problems and lived a very limited life, involving pain and a shortened life span. Instead I've had 10 months of this year mostly confined to bed and or recovering from surgery. I think it is a fair trade off to being able to resume my life.

ram63 2010-12-18 17:11:27 -0600 Report

I really hope things get better for you and your husband.

Graylin Bee
Graylin Bee 2010-12-19 00:53:27 -0600 Report

Thank you, they are. He has begun to regain some feeling and movement in his lower leg and is able to walk better than he has for the last three years. Plus his pain level has dropped. We are waiting for the phone call from his new employer to tell him when he starts work next week and I am able to apply for jobs again.
I hope your third surgery will repair the previous screw ups. I know how much I did not want to go through another recovery period this year for my last surgery, but feeling better right after it for some of the problems was well worth it. Pain can certainly affect your quality of life. If this surgery can help you with that it will be well worth the stress of the recovery time.

CaliKo 2010-12-16 09:07:25 -0600 Report

Squog master said it right. No one is worth more dead than alive. Difficulties are temporary, you will get through this. Good luck with the new surgery.

ELDER GREEN 2010-12-15 11:11:27 -0600 Report

I will definitely be praying for you. Keep doing what you're doing. Thesse are stressful times. God is our only souce of strength in these situations. His grace is sufficient.

ArkieCameo 2010-12-14 00:54:47 -0600 Report

I am so sorry to hear what you are going through. It is a terrible time for you I know. At the same time, with an attorney you might get some results in the future. ALSO check with social services and or Social Security. They might be able to help some in your case. Praying things come out better for you and that your problems are taken care of. May God Bless you and yours ALWAYS

ram63 2010-12-14 02:31:47 -0600 Report

Thank you for the support and the advice. I'm going to contact Social Security and see what I can find out. Thanks again.

Dr Gary
Dr GaryCA 2010-12-12 19:36:18 -0600 Report


I just wanted to chime in here and offer you some support. I am really sorry to hear that you are going through all of this. I am not a physician so I can't address the physical aspects of your situation, though it looks like you have received some useful input from other Diabetic Connect members.

But I counsel clients facing chronic illnesses like diabetes and I just wanted to offer you a couple of suggestions. It sounds like this situation is taking a big toll on you emotionally. As you know, our emotions and physical health go hand in hand, so it's important to address what's going on with you from both perspectives.

I would really encourage you to find a safe place to talk about your feelings. My recommendation would be a counselor who understands the challenges of chronic illness. Counseling would provide an opportunity to express your emotions and hopefully learn some strategies for dealing with the stress that you are facing. Most likely, you have low or no cost mental health resources in your community. This is reallly important. If you can't get into see a counselor, I would recommend finding other support -- caring friends or relatives, or a member of the clergy. Support is power.

As others have suggested, talking to an attorney and possibly a financial planner would also be helpful. It is better to know your options than to be left guessing. Knowledge is power.

Be an advocate for yourself with the medical establishment. If one doctor can't help you with your pain, talk to another one. Patients experiencing pain often find that they have to connect with the right physician to find a solution. Don't give up.

I'm glad you have found a good doctor for your diabetes treatment. That's a real plus!

Stay close to your friends on Diabetic Connect. We are here for you. Don't go through this alone. Keep me posted!

ram63 2010-12-13 22:44:52 -0600 Report

Thanks, I will take your advice on the counseling. I think it might help to clear up some issues. I have contacted an attorney and we will be going over everything next week. Thank you for your advice and encouragement.

Dr Gary
Dr GaryCA 2010-12-14 13:49:16 -0600 Report

You are welcome! I am holding you in my thoughts and hope that you will stay in touch and keep me posted on how you're doing.

ram63 2010-12-12 16:33:37 -0600 Report

The most frustrating part of all of this is that the surgeon I am seeing isn't a shoulder specialist. I am supposed to have the right to choose a doctor from the approved list and I did that, but was denied from seeing that doctor who in fact was a shoulder specialist. My employer chose my surgeon because it would take 3 weeks to see the one I chose. The problem is he specializes in feet, ankles, and knees. He has done surgery on me twice and has now given up and referred me to someone else because he can't fix me and has no ideas on how to do it.

Dr Gary
Dr GaryCA 2010-12-14 13:51:04 -0600 Report

I am at least glad that your surgeon is willing to admit where he is less comfortable and is referring you to someone who is more focused on your specific body part. It's important to be connected with the best physician possible. Hopefully, this frustration is temporary, and you are on your way to the best doctor for the job.

squog master
squog master 2010-12-13 20:26:31 -0600 Report

I had the same type of problem with "conservative" treatment. I got what I needed when I got a workers' comp lawyer.

realsis77 2010-12-12 12:45:02 -0600 Report

Ram I'm so sorry for what your going through right now! I wish I could help! Have faith and remember sometimes when God closes one door he opens another. I pray things are going to look up for you. I know what failed surgery is like, I have a failed spineal fusion and I'm in pain constantly. Hopefully your surgen can fix your problem! I wish you the very best of luck and please keep us posted on how your doing!

Brenda_B 2010-12-12 09:32:52 -0600 Report

Oh Ram… I'm so sorry for what you are going though. It is not right! There should be an answere. I hope you can find some help on this site. I will say a prayer for you…
I would talk to a lawyer. He/she might be able to help you hold your job. Or get you on SSI. Yes you are young but just because you go on it now doesn't mean you HAVE to stay on it. You could look into another way of improving your shoulder… more therapy, a new doctor. I had tears in both shoulder after a work injury. One shoulder did great after arthroscopic sugery. The other… ugh. I had a lot of therapy for my left shoulder (which was not torn nearly as bad as the right one) It took well ove a year AFTER the last surgery for it to get back to working ok.

squog master
squog master 2010-12-11 23:30:01 -0600 Report

Are you losing your job because of the injury. Yes or no it may be time to talk to a workers' comp lawyer.

squog master
squog master 2010-12-12 13:09:18 -0600 Report

I had to stop working due to emergency surgery. I worked 3 part time jobs at the time. No health insurance. I applied for Social Security Disablity. In the mean time I was able to get General Assistance. This qualified me for Housing Assistance. No income also qualified me for Medicaid. I also was awarded SSI in the interim before the disability started. I'm 54 and not really ready to retire yet also. Although my body maybe telling me otherwise as I also have RA which gets really bad at times. But I would like to get back to work again. Mentally I not ready to give that up. But in the meantime until I can work again I have this to fall back on.

ram63 2010-12-12 03:29:58 -0600 Report

I will be losing my job because of a union policy that limits the number of days you have on injury leave. I have been inquiring with two of them to see if they will accept my case. But when the money dries up I will lose my house and my ex will lose hers. It can take close to 6 months to a year before this would all be settled if it went to court.

pat3 2010-12-14 19:17:44 -0600 Report

Ram I am so sorry to hear of your problems. I just got done with a 5 1/2 year fight over a job injury. I don't know what State you live in, but you do have rights. Perhaps talking to a union rep could get some support from them in some way, especially since your boss decided to take control.

It seems like you are swimming up a waterfall, but you must take physical care of yourself, too.


RAYT721 2010-12-12 05:07:13 -0600 Report

Depending on the size of your company, you may be eligible for 12 weeks of FMLA job protection which is renewable annually. It won't help with the income but could preserve your job at which time you should get any new year paid time off. In the meanwhile you should consider looking into long term disability either with your employer and/or government. If your employer has an employee assistance service, contact them and see if they have options for you in regards to employment, housing, counseling, retraining or anything else.

Harlen 2010-12-11 20:10:11 -0600 Report

Stress will make your BS go nuts pain will do the same thing
I just got my 2nd hand surgery done in the last 4 weeks the stiches come out on monday then it will be two to three weeks then my #s will start to get normal again for now I know they will be nuts till then so I keep a tight wach on me bs till then.
It seems to me that every time I am in pain or have a injury my bs gose a bit nuts
As for money and ins that will be as it will be we will get thrue and deal with what we need too,fretting over it will not fix it
Best wishes frend know we are here for you

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