TJ's Journey - The beginning

ston3xc
By ston3xc Latest Reply 2010-11-29 21:30:09 -0600
Started 2010-11-22 20:32:18 -0600

His foot came off Nov. 20, 2010. I'm his mother and I've been a diabetic since I was 22 yrs old,I am now 54. TJ was diagnosed when he was 12, he is now 32. 20 years ago he was regulated on insulin at Riley''s Children's hospital in Indianapolis, IN. We went through diabetic classes. He stayed at the hospital for a week with other children that were going through the same thing. Before we went home, his dr had a meeting with us. He said that in all likely circumstances, TJ would probably be on dialysis by age 30. Even with proper maintenance, diabetes is a chronic, progressive, disease.
I want to help other people who think that if they don't admit they have this disease, they won't fall prey to the complications that it can entail.
WhenI made a plea a couple of days ago on the website for someone who had experience in amputations, I got no response. Well, I am going to document my son's experiences as he goes through them, in the hope that someone else can benifit.
In the future, TJ will have to learn to walk without his foot, go on dialysis, learn to walk with a prosthesis, go back to living independently on his own.
It is a journey that will take the rest of his life to make and I want to see if I can't get some company for him and anyone else who might want to join him.


13 replies

Gibby68
Gibby68 2010-11-26 16:18:00 -0600 Report

god bless your son and you, And thanks for sharing. My name is Dawn my husband Joel has just recently had a below the knee amputation that we are trying to heal from complications from diabetes so thank you for writing about TJ, i found this site for my husband to et him some company as well and have him talk to people who understand what he is going through, after reading this he knows he's not alone.. Please keep in touch and let us know hows he is doing and when or if he feels like it we can get them to chat to each other and share some feelings that they might not feel comfortable sharing with us..God Bless…Joel and Dawn

ston3xc
ston3xc 2010-11-27 14:07:22 -0600 Report

Thank you so much for replying to my post! My son is having a lot of trouble getting adjusted to the dialysis and I have been driving back and forth for the past week and not having a lot of time to post another installment of the Journey, but rest assured, it will be continued very soon. I'm going to send you a friend request and maybe we can get aquainted,:).

Gibby68
Gibby68 2010-11-29 21:30:09 -0600 Report

im so sorry hes having such problems, i was just at the er myself last night belive i might have a viral infection where my amputation was done. am very worried. but do get online alot nowdue to this is my enjoyment. I really hope everythings starts going well for him and myslef andd all out there with this disease. will look for your friend request…GOD BLESS…ps not liking what you were saying about the probelms just like that i heard back from u…

RAYT721
RAYT721 2010-11-23 17:52:17 -0600 Report

Bravo!!! The title "Journey" is appropriate and we are looking forward to hearing of the emotional and physical side of your experiences. I believe the information that you are sharing will help others who have, are or will go through TJ's medical and mental progressions. You will have many stories to share with us and I am so glad you've chosen to tell them. You are such a positive person and speaker. I am willing to bet that you and TJ are proud of each other. What an awesome support system you have and ARE together. I am proud and honored to have you as a friend. Thank you.

ston3xc
ston3xc 2010-11-23 19:19:45 -0600 Report

Thank you, Ray. You have always been my strongest alli and I really appreciate it.We all go on a journey when we come up against adversity. The question is, do we prepare ourselves or do we do nothing because we think the road ahead is too treacherous?

CaliKo
CaliKo 2010-11-23 09:39:01 -0600 Report

I'm sorry for you both, and have you in my prayers. I read your first post, but since I have no experience in what you are going through, and you were asking for experienced people, I didn't answer. I've come to realize, especially since joining this site and reading so many posts from people suffering from the many complications, just how close those complications are and how we have to resolve to do all we can each and every day. Thanks for sharing your story.

ston3xc
ston3xc 2010-11-23 14:43:18 -0600 Report

There will be more installments on TJ's Journey, he is just beginning. Today he realized that dialysis will be more complicated to begin than both he and I knew. More about that in the next discussion. Thanks for your concerns and prayers!

Jeannie Holmes
Jeannie Holmes 2010-11-22 23:34:39 -0600 Report

Carol, I'm so sorry that you and your son have to go thru this. I will keep you in my prayers. I think it's great you want to share this with us so we'll benefit from your experiences. HUGS

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