hi everyone .......

lil okie
By lil okie Latest Reply 2010-11-21 10:09:57 -0600
Started 2010-11-18 23:04:58 -0600

i'm new to the site … my 7 yr old son was just diagnosed with type 1 diabetes a month ago. He seems to be dealing with everything well. Our only problem right now is dealing with his school . They aren't to thrilled with his new diagnose and He's first day back to school they tried to talk me into having go homebound which after their reaction to his situation I was all for it, but his doctor said no to the ideal , she wants him to stay at the school . Last week he had a bg reading of 70 so the school nurse decided that it was to low and did not give him his insulin till his 2 pm snack which was 3 hours after he ate lunch . To my surprise at his snack time she did another reading and it was 285 , come to find out instead of giving him a snack she gave him 3 glasses of water and his insulin using the sliding scale . which is a diffent no. So here lately I've been staying on pins and needles when he's at school . I could understand her making the mistake if she had not been faxed a copy of the dr's orders but she does have a copy of them and looks at them every time he goes to her office . So it makes me wonder if she's just being lazy about her job or if she is even cetified to work as a nurse. We had an appt. with our educator and dietican at the beginning of this week and I let them know how things were going at the school , they are going to discuss it with their supervisor to see what needs to be done , so hopefully they will get the okay to go to the school and educate the nurses and staff that work with them in the office . The sooner the better as for right now I go to the school as often as I can during his lunch hour. Sorry so long.

5 replies

lil okie
lil okie 2010-11-20 01:09:25 -0600 Report

thanks to everyone for your comments…really do appreciate each and every one of them. i'm a stay at home mom but for several years have had behavorial issues with my oldest son. so pretty much on the go being an advocate for his issues also even though he is not at home with us, which seems i have given a challenge in life , but staying strong as possible. My family members support me 100% but they get as dumbfounded as me at times. So I very greatly appreciate the extra support …and glad to have found this site. So for some good news , I talked to my youngest sons dr's nurse this morning , and he's bs readings have been very good all week so no more 4 am checks or having to call his doctor on a daily basis with his readings. So for now going to call it a nite and it's been nice meeting everyone and thanks agian for the comments … hope everyone has a great thanksgiving.

Roulla 2010-11-19 14:05:56 -0600 Report

I really feel your frustration. This is so new and fresh for everyone involved. Its a constant learning process. My son's been diagnosed for a year and a half now and each day is different. School can be a challenge. I don't know if you work or not, but I encourage you to be as involved as you possibly can with what goes on in school. In my experience, I found out I have to be my son's biggest advocate. Its all about educating people about your son's diabetes. I think its wonderful that your school has a nurse that administers insulin (ours does not). But she can't be responsible to know exactly what to do every time. She will make mistakes. Try not to get frustrated. Just because she's a nurse doesn't mean she knows how to treat your son's diabetes. I think the more you talk to her and educate her on how to treat your son's diabetes at school, the more comfortable she'll be and the more peace of mind you'll have. Maybe you could ask her to call you every time he has a low or a high and double check with you on the treatment of that. That way, you'll both be on the same page. She'll get to know your son over time and have a better handle on helping him with his diabetes. One thing that's really helped me is that I've become very friendly with our health aid. I call her all the time and she calls me. She doesn't get annoyed with the calls. I actually think she's relieved because I'll always confirm the treatment or suggest something else to do. I've also made it a point to know everyone that my son comes in contact with during school. From his teacher to the janitor. I made up laminated cards with my son's picture on it, contact phone numbers, signs of a low or high blood sugar, etc. and I handed them out to each person. His teacher, the yard duties, the lunch ladies, principal, office staff, everyone. The more people that know about your son, the better.
What was also really helpful was the school district nurse. I contacted her and met with her. She came out to my son's school and had a meeting with everyone that my son comes in contact with. She had a video presentation on Type 1 Diabetes. Surprisinly, many staff members had no clue what it was. It was a learning process for everyone. She had handouts for them, question and answer session. She even showed them how to use a Glucogon. She comes out every year at the beginning of the school year and re-educates them. This is really helpful. Hopefully you have a resource like this. If not, its up to you to educate people in the school, including the school nurse. I know this is all so new and at times scary. Be patient with yourself and with the nurse. Its a learning process that you'll go through together. Get her on your side, so that she's eager to help your son and not resentful. Take it one day at a time. It does get easier with time and knowledge.

GabbyPA 2010-11-21 10:09:57 -0600 Report

This is wonderful and shows just how important it is for each of us to be our own advocates. You have done a great job and look at all the people who have been touched by this.

Harlen 2010-11-19 12:26:15 -0600 Report

Hello and welcome
Rite out whats what and what needs to be done when and have them sine it .
Then you pop into the school from time to time and that way you know if they are doing it if not then off to court and make them.
Its his life ,you will fight for it ?
Best wishes

GabbyPA 2010-11-19 06:40:25 -0600 Report

Welcome to the community. I know you will find a lot of support here in helping you with your son. I'm sorry that things are so bumpy at school for him, but it does take time to learn how to deal with things. Every person is different and that is one of the hardest things to get health care providers to understand. The nurse needs to follow her directions and call if she feels there needs to be a change in the orders based on what she sees at the time. Sometimes she will need to make a judgment call, and you want to be in that loop.

Not to defend her totally, but she is a school nurse, not a diabetes specialist and it is one of the most fluctuating diseases kids can have. So perhaps learning together might be a great option for both of you? Letting go and letting someone else take care of your baby is hard in any circumstance. This is more so, and you may need to even volunteer to help a couple of days at lunch so you can see what's going on.

You can have the same situation on two different days and have to deal with it differently. You know it's that way at home, and school will be the same, but harder some times. It is tough, and that is why I'm sure they would rather have him home schooled. Less liability. Less fear of making a mistake. There is a lot at stake, and it's a big responsibility for her. She will learn as she learns and builds a relationship with your son as well.

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