Assist living for Diabetics

By v2rocketmom Latest Reply 2010-11-10 18:25:46 -0600
Started 2010-11-06 22:59:17 -0500

My sister also is Diabetic, but she also has MS. The MS doesn't mix will. She has had both for about 27 years and the MS has caused her to need Assisted living or an aid. The American Diabetic Association has dropped the ball and doesn't have a list of centers that would be best for Diabetics, so much for helping us live with the disease.
One center, she was given Humalog insulin(45 min cycle) and not given dinning for an hour and a half, they didn't realize this would cause a reaction. Da. Where is the medical training?

My sister likes the Homassassa, Fl area. When time comes that I will need a Assisted living situation I hope that the Diabetic community have identified and scored Retirement Centers-Assisted living facilities

16 replies

v2rocketmom 2010-11-08 22:16:29 -0600 Report

Yes, there are family members acting as advocates. But she has not made it easy to push when they are dropping the ball. My sister is not willing the push the bar. She could come up to MI and live with my 85 year old mother, not a choice she wants to make. But there is more family up here than in FL.
Winters in MI are hard with the MS. I wouldn't live with my mother for ANYTHING jail sounds much easier to deal with, mom is sweet in many ways but—-

Graylin Bee
Graylin Bee 2010-11-09 13:01:59 -0600 Report

Finding a good assisted living place is tough. I worked in one as a caregiver that was pretty good, but still would not have liked living there. In my state we are required to be trained in the conditions the patients have. However, it is a very limited training. Some of the staff would not care enough to listen and apply what they should have known.
They have places for other specific medical conditions. You would think some would specialize in diabetes or MS. Then the other condition could be treated in conjunction with that.

GabbyPA 2010-11-10 06:35:51 -0600 Report

Well, the more of us that are out there, the more this will have to be addressed. Like most things, when it doesn't apply directly to you, it doesn't seem to matter much. This could be a huge focus group to work on for World Diabetes Day. Maybe talk to you endo and see if they will offer a class to the health care staff? There are things we can do, we just have to ask.

Graylin Bee
Graylin Bee 2010-11-10 18:23:35 -0600 Report

We had a representative of the Alzheimer's Support Group give us training on Alzheimer's. Wish we would have had someone from the ADA do likewise. She was there about a month before the Memory Walk.

GabbyPA 2010-11-10 18:25:46 -0600 Report

See, there you go. Keep looking for a local group. Maybe even a local diabetes support group that might be able to lend a hand in the research or the follow up on it.

jayabee52 2010-11-07 17:41:55 -0600 Report

Could you be an advocate for your sister? Could you go to the facility's Dr and perferably get the facility's Director of Nurses ("D.O.N.") in the same meeting and lay out what your sister needs in the way of medical care?

I worked as a CNA in a "SNiF" for a while. Those residents who had visitors regularly did get better care. (I know it shouldn't be that way, and I myself tried to give the best care I could, but that seems to be the way of the world.)

I pray you are close enough to your sister where it is not a burden for you to look in on her frequently, and raise issues when the staff is not giving adequate care.

If distance is a factor, then enlist other family, or friends, or members of a church to look in on her from time to time.

Blessings to you and yours


GabbyPA 2010-11-07 09:12:07 -0600 Report

It is amazing to me that in a hospital or assisted living situation there is not more knowledge. However, when we who live with it have a hard time figuring things out, it is hard for caretakers to do it for us. Is there a way that you can be more involved in her care? I know it takes a lot, but I was doing that with my mom when she was hospitalized and then put in rehab for a month. They would do a similar stupid dosing based on a schedule that worked for them, not for her condition. Is your sister able to give them verbal instructions on how to dose and treat her? You have to be proactive with it.

Maybe there is a nice out there for an assisted living place that caters specifically to diabetic patients. That would be good. The ADA may not have a list, because I bet there is not a good one out there. This is where we can step in and help teach those facilities the importance of knowing what can happen when they do stupid stuff like that.

CaliKo 2010-11-07 16:38:54 -0600 Report

Maybe if we all take turns writing in to the ADA and asking about this they will decide to take it on. It's a very valid concern. Lots of us have multiple health issues, I also have MS, and this sort of information could be very valuable someday.

v2rocketmom 2010-11-08 22:21:47 -0600 Report

That is what I want to stir up. Get ADA off there butts and step up to bat.

We have to ask if it is what we need. Who wants to call, email, or write next?

Thank you for my self, my sister, and millions of others.

Harlen 2010-11-07 08:36:29 -0600 Report

I will not do the asisted living thing I will go out and rob a bank or three lol
Cost less and you get the same care lol

Pluss if get away with it look at the fun you can have I just got to think of a way to hide the wheel chair may be make it look like a gun lol
Best wishes

jayabee52 2010-11-07 17:24:26 -0600 Report

LoL! If you get caught you get "3 hots & a cot" and healthcare for free! LoL!

Harlen 2010-11-07 19:09:40 -0600 Report

See a good plan lol