Losing a Kidney Transplant and newly diagnosed with diabetes

Sunny Days
By Sunny Days Latest Reply 2010-10-23 10:49:19 -0500
Started 2010-10-23 00:12:35 -0500

Hello everyone, I am so happy I found out about Diabetic Connect because I looked for a support group in my area (Phoenix AZ) and did not find what I needed. I was diagnosed with diabetes about 2 months ago and because I have a kidney transplant and had such a bad reaction to another medicine for diabetes my doctor put me on Lantus. Well, I found out 3 days ago that my kidney transplant has reached Stage 4 kidney failure, which is prior to going on kidney dialysis. I was on dialysis for almost 7 years before I got my transplant which I have had for 12 years, but now I am afraid because I have diabetes. Is there anyone out there who has diabetes and a kidney transplant or who did have a kidney transplant and had to go on dialysis with diabetes. I would really appreciate some advice, suggestions and support. I am a fighter but now I can't seem to wrap my mind around all this.

4 replies

Harlen 2010-10-23 10:49:19 -0500 Report

Hello and welcome
I am not one thats ben thrue that but I feel for you all the same.
Please keep us posted on how your doing ok
Best wishes

jayabee52 2010-10-23 00:53:50 -0500 Report

Howdy "Sunny"

I was on dialysis from Nov 2006 to July 2007. I did not have a transplant. My kidneys stopped working because of an infection and the infection resolved and began working well enough that I could come off dialysis. I am currently in stage 3 renal disease, and may eventually (I hope it's a long time away) have to use my fistula again. Now I am very careful to follow a renal diet and take good care of my fistula, 'cause I may need it again.

You were asking about dialysis and diabetes, I had both DM (about 10 years at that time) & HBP when undergoing dialysis. In fact, a large proportion of dialysis patients have DM or HBP or both. The Dialysis clinics and renal Drs know about PWDs (patients with DM). But as with everything, it would be good if you were alert and question if someone is doing something which may conflict with your DM.

You state that "I can't seem to wrap my mind around this". Well I had a similar problem when I was first needing Dialysis. My thinking was fuzzy. I felt as though I couldn't think my way out of a wet paper bag. I believe that my bloodstream was poisoned by the waste that should have been filtered out by my kidneys. I was also very weak, physically. It was only after a month or two of Dialysis that I started feeling more like my old self. It took me 3 months or so to get back to the dance class I enjoyed so much,

I was fortunate to be able to come off the dialysis machine. Not many do, without a transplant.

I pray your kidneys start to work better. Or that going back on dialysis clears your head up.

Should you have a specific question, please ask. I may not be able to answer it, but I might be able to research it, or someone else in our DC family may check in.


May God's richest blessings be to you and to yours!


Sunny Days
Sunny Days 2010-10-23 02:50:34 -0500 Report

Thank you for the information and encouragement. What I mean when I say "I can't wrap my mind around this" is this. I don't want to do dialysis again. My mind is not foggy because of a uremia. I'm not ready to make this a part of my life again. I am depressed because I thought I only had to deal with learning about diabetes and now I have to prepare for dialysis. My graft is not working so I have to get prepared with a graft or a fistula. I had a fistula the first time but it kept clotting off, so I had a graft for most of the years I was on dialysis. I guess I just want to have a pity party and I know with the help of the support group I will get it together soon.

jayabee52 2010-10-23 03:54:21 -0500 Report

Howdy again Darlene

Have you seen a CDE or RD about the Renal vs the DM diet? Almost completely contradictory. For instance: DM diet encourages whole grains & proteins, Renal says eat white bread and limit protein intake. It is wild! and confusing.

I know about the pity party because I was living in it big time at first when on Dialysis. I had considered my life to essentially over, that I was basically a dead man walking. I seriously considered, and discussed with the social worker at the clinic about refusing further treatment, and just let the disease take me. But because I didn't want to give my 3 sons a bad example of giving up when things were tough, I hung in and continued.

My life really wasn't over as I had thought. In fact a new part of my life was just beginning. In Nov of '07 I received an initial contact from a lady, "Jem", who eventually would become my bride. (pics of us together in my profile)

Jem was also on dialysis when we met online. She did have kidney problems, but they were mainly trying to pull water off her body without diuretics. Eventually it was determined that it was not having the desired effect,so they dc'd the treatment. Jem had very many what we called "medical challenges" mostly due to her CHF. (Sadly she passed from this life this past July).

Jem also had problems with her fistula. It collapsed before she got to use it, and left a big scar on her arm.

Have your pity party for a while, but don't get "stuck" there. I, and I'm sure others here will support and encourage you to the best of our ability. We are like a family. I really enjoy it with these people who know wat it's REALLY like to go through what we have to go through.

My prayers are with you.

James Baker