By KimmyLSch Latest Reply 2010-10-14 13:53:11 -0500
Started 2010-09-27 10:50:04 -0500

The neuropathy pain in my feet are so bad, I worked almost 8 hrs the other day and when I bathed, I couldn't feel my feet in the bath water, the numb pain was so bad I had to get out. I can't get into see a neurologist til next Feb. What can I do?

29 replies

the_nephilim71 2010-10-07 16:36:40 -0500 Report

I have been on every known neuropathy medication and the only one that helped me was Lyrica ( once I got passed the side effects ) The pain still keeps me up at night and wakes me when I'm sleeping, but the Lyrica has helped tremendously.

KimmyLSch 2010-10-07 16:56:42 -0500 Report

what dosage are you on for the lyrica? I'm wondering if I should up the dosage. I think it is helping…

KimmyLSch 2010-10-05 18:48:24 -0500 Report

thanks everyone for the info…I'm on Lyrica 100 mg 3 times a day and Hydrocodone for pain as needed, plus I'm using a cream called Diabet Aid at night. I do have an appt to see an Neurologist next week. Hopefully he can help…

leonmelton 2010-10-05 18:38:30 -0500 Report

i am being put on lyrica and my doctor gave me a topical analgesic cream called contains capsicum olecresin with 0.025% capsaicin. it is a little hot when you apply it but it helps some.i don't know if you can get it otc but it may be worth a try for you.

marla50 2010-10-04 23:19:14 -0500 Report

I take neurontin for mine. I've heard pro's and cons for it. It helps me alot. I hope you can find some help.

Chrissy6341 2010-10-14 03:40:53 -0500 Report

My primary care Dr started me on this last Sat. It does not seem to work all the time. I am on it every 8 hours-300mg. I see her again next week.

Crashnot 2010-09-28 20:55:24 -0500 Report

When I developed neuropathy from undiagosed Celiac Disease, I actually reversed the damage with a vitamin regime by Dr. Julian Whittaker in his book, "Reversing Diabetes." It took a good six months for the pain to go away, but it did not return. The vitamins won't be cheap, but if there's a chance you can funtion again, it has to be worth it. His philosophy is that the nerves die to to lack of nutrition, as the bad circulation prevents nutrients from reaching the extremities. So he fills you up on those nutrients hoping that at least a few of them can get through to start rebuilding damaged cells. No scientific evidence, but it sure worked for me.

Moocow Momma
Moocow Momma 2010-10-02 11:25:55 -0500 Report

I take Lyrica 150 mg 3x/day. Takes the edge off & makes the pain a little more tolerable. I work with a Personal Trainer at a Gym & she has me "posture" on the floor by lying on my back with my legs at a 90degree angle & my feet on the wall. I stay this way for 15-20 minutes. My feet usually feel better afterwards, not perfect, but better.

GabbyPA 2010-10-02 13:16:31 -0500 Report

I am going to have to try that. Do you do it barefooted or with shoes on? Did he say why it helps? I also get cramps in my arches and toes, does it help with that?

GabbyPA 2010-10-14 11:52:27 -0500 Report

I tried it and I don't know why, but it does seem to offer some relief. I wonder why that works. I did it on a sleeper sofa with my feet up on the wall or sofa back.

Moocow Momma
Moocow Momma 2010-10-04 09:37:34 -0500 Report

Jackie (my Pers. Trainer) says that this position "open up" the flow of the nerve endings from the spine all the way down to the toes. I had Gastric By Pass surg. & have lost over 100#'s. I have quite a large "flap of stomache fat" which will have to be surgically removed (soon). If I sit too long, this fat is like a boulder on my upper thighs & cuts off those nerve endings. By opening everything up & doing some walking, I feel better. My neuropathy has improved since working with Jackie for the last 18 mos. I couldn't even walk from my front door to my mailbox before. Now she & I walk a mile-and-a-half outside, 3 days a week. I also walk my dog about a mile a day, in between gym days! On bad weather days, I walk on a treadmill for 30-45 minutes…not very fast, but at least I walk!!

I still cannot do the following exercise (because my toes will not support my weight), but you can try it: Stand on the bottom step of some stairs, with your heels over the edge. Be sure to hold on to the railing, then let your heels dip down & then bring them back up to even. Do this about 10 times (not too fast); rest a minute & then repeat for a total of 3 sets.

Another exercise she taught me, while on the floor, is to take each foot & point my toes; then bring them back toward my head. Repeat (on each foot) a total of 25 times. Then take each foot & do 10 circles to the left & 10 circles to the right; rest a minute & repeat for a total of 30 circles on each foot. This one really gets the blood moving!!

kdroberts 2010-09-28 08:21:44 -0500 Report

How are your blood sugars? Why can't you see the doc until Feb?

KimmyLSch 2010-09-28 09:09:33 -0500 Report

Blood sugars are good. The DR is full so I'm on a waiting list to see him. I will be talking with my primary DR tomorrow, maybe she can send me somewhere else.

kdroberts 2010-09-28 10:17:58 -0500 Report

Just call every day, people cancel appointments all the time and doctors schedules change and more appointments open up. Start now and you will probably be able to get in by the end of the week. Also, what does "good" mean in terms of blood sugars? Under 100 all the time? Under 140, under 180? Something else?

GabbyPA 2010-09-27 20:49:19 -0500 Report

If you are having that much numbness you need to take special care to keep a very close eye on your feet until you can see the doctor. Make sure you are in shoes that allow your feet to move, no more pinching high heels for you! LOL

When you bathe, check the water temp with your hands and not your feet to prevent burning them. Look at your feet every day for signs of blisters or any redness in the bottoms or around the nails. Since you don't feel the pain, infections can take hold that you are not aware of.

Something that I use to help calm my feet down is Flexitol Heel balm. I put it on the soles of my feet and my heels at night, then put on socks. This helps keep them soft and supple and prevents cracks that can bring about infection.

I also used to be the barefoot queen. Not any more...I have to wear shoes everywhere. It sucks, but that is the best way to protect my tootsies.

Chrissy6341 2010-09-27 20:55:09 -0500 Report

Hi Gabby,
I used to be that way too, barefoot Queen. But this past summer I was not able to walk bare foot, even longer then that. My feet would hurt or every thing just seemed too sensitive. I never even thought about diabetes until I was diagnosed in August. Now I wear socks, sneakers or my flip flops if possible. My feet burn, sting and sometimes I can't feel one or 2 of my toes. Tomorrow I see an endo for the 1st time, I have kept a journal with everything in it from a-z. Foods, moods,emotions,pain, sleep, and my BS of course. I am actually nervous about tomorrow. I don't know what to expect.

GabbyPA 2010-09-27 20:58:23 -0500 Report

With all that ammo (in your notebook) you will do great. Don't let the endo talk over your notes. Share them and expect them to be taken to heart. You are paying him/her to listen to you and help you. You have done a great thing by preparing all that information. Don't let it get wasted.

I can't see an endo, so my foot issues I share with my podiatrist. I have not seen him in a while, but I need to have him check out my toes. I am getting that numb feeling in a few of them now...bummer.

Chrissy6341 2010-09-27 21:06:28 -0500 Report

I know I have to see a foot Dr. also. It's just that darn deductible that makes things difficult, especially when I am not working and have to wait for disability checks.
That feeling is the most uncomfortable thing. Then standing in the shower and the feet go numb or feel like they are on fire. ughhhh

Kelly Preciado
Kelly Preciado 2010-09-28 08:03:55 -0500 Report

I have the neuropathy in my feet. Now I have it in my left leg. I had an emg done…nerve test…on my left leg. The nerves are really bad. The doctor said that if I keep a tight control on my sugar levels it will prevent further damage. But it will be hard to reverse what is done. I have a doctor for everything. I feel that I am seeing too many doctors. I have a family doctor, endo, a neuro, a podiatrist, an ears, nose, and throat surgeon, etc, etc, etc. LOL

Chrissy6341 2010-09-28 08:23:06 -0500 Report

LOL. Sound like me. I see a neurosurgeon, a neurologist, my reg Dr, 3 different orthopedic drs for different parts of my body, was in PT and now the endo, have to add the podiatrist, & eye dr. It sucks. Someday s I don't know if I am coming or going.