Let's Vent!

Amalia Alonzo
By Amalia Alonzo Latest Reply 2011-08-27 19:33:31 -0500
Started 2010-09-20 13:24:40 -0500

Diabetes you are…

147 replies

dmk 2010-11-19 02:19:47 -0600 Report

I was diagnosed in Jan 2009 with type 2 diabetes…I was pissed off…but I took my meds and lost 34 lbs in about 6 months…I see my dr every 3 months and she says that is I lose 10 more lbs I can go off my meds(metformin) but I am resisting losing the weight…I dont know why though…any thoughts??

dolphins2 2010-10-29 20:20:24 -0500 Report

I have some good news..I was diagnosed in February of 2010 with type 2 diabetes, my blood sugar was 379 and a1c 11.6. I weighed 313 and 6'5. My lipid profile was horrible, cholesterol 311, trig 754. My doctor put me on metformin 100mg twice a day. It did not agree with me and had to change to glipizide 5mg once a day. I went on a 1500 calorie diabetic healthy diet, I have lost 85 pounds,i have in the past 5 days stopped taking any diabetic medicines. I do have asthma and take advair 250/50 twice a day. My blood sugars run 107 on a over night fast.
my lipid panel is , Cholesterol 240, trig 254..they are still high but coming down with out meds. fell better than any time in my 63 years. I walk 2 miles a day. Diabetes saved my life if i would not been diagnosed i would be dead in a very short time my Doctor told me.

MewElla 2011-01-20 08:04:02 -0600 Report

Awesome weight loss…Yes, I agree diabetes saved a lot of us, who just simply did not pay attention to our health like we really should, me included..I am T2 since Feb 20l0, no meds, controlled by diet and exercise. It is a work in progress for me everyday. Good Luck to you, you are doing a great job.

YoliBoli 2010-10-09 17:09:06 -0500 Report

I would like to say that diabetes has taken over my life, but the Christian in me won't allow it. I was diagnosed less than a year ago. I still have difficulties controlling my sugar, like sometimes it gets too low and sometimes too high. I feel like some huge person when I'm irritated because I haven't eaten. When, I'm in a bad mood, I tend to snap or get frustrated with my friends easily and can't explain why. I really feel like sometimes no one understands me or can relate to the difficulties of having this thing because they don't have it personally or know very few people that do. I hate not being in control of my emotions and having to be careful of every little thing I do. I hate always having to ask how many carbs are in that?, or people having to make special dishes or bring special snacks for me because I can't eat what everyone else does, I hate having to prick my finger all the time, I hate how slow my wounds heal, OVERALL I HATE BEING A DIABETIC. But, Jesus said that He would not put more on me than I could bare and promises a better life for me, therefore, I will continue to thank Him for His grace and mercy and trust that He WILL deliver me from this illness.

dmk 2010-11-19 02:22:51 -0600 Report

u need to accept you diagnosis…and that it can be controlled…you have to take control of your diabetes and take the steps to get it under control..only then will u feel in control…just remember..the Lord helps those who help themselves…good luck

Tyrah157 2010-10-11 12:21:09 -0500 Report

I remeber feeling like this in fact i still do. I use to hate leavin my frineds at the food court because i had to go take my insulin. I hate counting carbs and prickin my finger because when it says high or a high number its depressing. sometimes i feel like giving up but i just give it to god and i let him show me the way… im still battleing with it. but i kno i will get thru it.

Grannyn 2010-10-07 12:27:37 -0500 Report

When I was first dxed nearly three years ago w/ t1 at 55.
I had to give up ladies bible study b/c they were taking turns bringing snacks sweets I could not have and had a monthly pot luck and then the birthdays sigh cakes… none of us there needed this!

This week dear daughter said "but mom you can eat in any cafe' in town".
I had to remind her that we've given up two our fav. places b/c of high carbs.

On the flip side I am learning how to cope with going to the movies w/out popcorn, and cook w/out grains at home.
Now if I could just get through turkey day —- sigh—-!

Still learning;
got through the depression after the initial dx.
That was a challenge.

niketa 2010-10-02 10:16:24 -0500 Report

I have had this thing since my freshman year in college. Was on regular and NPH for years and my blood sugar was out of control for years. Then switched to a 70/30 mix that was a little better but sugars were still out of control for more years. Now I'm on lantus at night and hemolog before meals that seems to be the best. Now I just need to work on nutrition. If I need to eat I have horrible mood swing is that normal like everything gets on my nerve and I snap at my loved ones. I hate this disease and just hope I can take control of it before I have babies some day.

Theon 2011-08-27 19:33:31 -0500 Report

Hi Niketa, I have had diabetes - Type 1 - for 50 years. I have experienced the various insulins. I too am very difficult to control. I had a lot of difficulty with the Lantus and Humalog. I am now on the insulin pump. I have been on the pump for 8 years. I still fluctuate a lot, but not as severe as before. The pump has been a slight benefit. Blood sugars will be very difficult to control during pregnancy. That was a difficult time for our son and me. Our son was 2 months premature. We were encouraged not to have additional children. I really wanted three children. You can control it, just be consistent and careful. Listen to your healthcare professionals. Good Luck!!!

allrosie1 2011-05-09 16:18:16 -0500 Report

Hi Niketa,
I've had this monster since I was 11 and am now 53, divorced and w/o friends. You need to get control of this and not let the depressin take over you. I have been depressed about the diabetes and being abused as a child. Don't let the depression win!! You are a beautiful young lady and you don't want your babies to suffer as mine have from my depression. When you want the carbs or sweets, just think "IS THIS REALLY WORTH IT??" I'm a great preacher, if I could only follow my own advise. … oh well. Hang in there hon. Control this disease or you might not be able to have babies like me. I adopted and love my angels so much.!! Take care and GOD bless you!

Type1Lou 2010-10-04 12:39:47 -0500 Report

Dear Niketa,
Hang in there. I've been using Lantus (1x at bedtime) and Novolog before each meal for about 6 years. I've loved the flexibility it gave me over the NPH I'd been using before and am no longer tied to the clock for meals. I found that eliminating or SERIOULSY reducing carbs in my diet is the key to lower blood sugars and better control. I've been diabetic for 34 years, since age 27, when I was diagnosed with Type 1. Your body is not quite as experienced as mine (read that a"as old as") but good control is the key to avoiding complications when you get to be as old as I am. Also, if pregnancy is in your future, good control is a must. The moodiness you're experiencing with low blood sugars is not abnormal…your body is "out of balance" and reacting accordingly. No one of us "likes" diabetes but you decide how you will deal with it…what you put in your mouth, how much you exercise (or don't) and when to seek medical advice if you're doing your damndest and still have problems. Yes, it can be frustrating and may seem unfair, but when was life ever "FAIR"???? The "bottom line" is we have this disease and have to deal with it. I hope you find the balance you're seeking.

niketa 2011-05-23 15:42:09 -0500 Report

thank you so much for that. you and my friend are on novolog i am on hemolog is there much of a difference im thinking i should be on novolog because you are the second person who said its doing well with your blood in fact my friend says it works so well sometimes she has hypo states

jake913 2010-09-30 10:01:55 -0500 Report

the worst thing to ever happen to me and my family tho I do not have it..it is my husband who was diagnosed 34 yrs ago right before our wedding…he is so afraid of high sugars that he keeps his constantly low..so low that I have to call EMT 3x a week…then it will stop for awhile and start again…was on vacation out of the country and had to call for help twice..I told him I will not travel anymore with him..my children grew up with constant 911 calls because he refused to lower his insulin dose..takeS lantus and a short acting BEFORE EACH MEAL…,didn;t like the pump…he is happy when his sugar is 40!!!! I am truly AT THE END OF MY ROPE!!!!!
He is never aware when it goes low and its downright dangerous but he does not see it,will not admit to it and thinks I'm crazy!!!!! He gets upset and thinks itshigh when its 100…no doctor has been able to convince him either..he was told to try to keep it at 150 and he refuses..he even gives himself a shot if its 30 because he says he will eat but it only brings it back to 30 or even lower…I have given up all hope. When he is having seizure, I cannot hold him down to give the glucagon shot either.

gogobob 2010-10-14 20:43:41 -0500 Report

do not feel bad I am like you husband except with me I try to keep mine high. I was married for 23 years and the last year was so bad . She had to call 911 51 times in 52 weeks. It was the cause for a divorce and now I have to live in a assisted living home. I know how you must be feeling and I give you kudos for handling it as you do. Living where I do and as I do I can tell you I have gone into seizures to the point that the nurse on duty at the time has quit the next day. This has happened 3 times in the last year. let him read what I have said and he can see what low levels can make people do. hopefully for you it will help you do love him alot and he needs to know that.

allrosie1 2011-05-09 16:28:10 -0500 Report

Jake913 tell your husband that he is going to kill himself if he keeps this up and leave his children as fatherless!! Between my depression and diabetes, I am divorced and tend to let my sugars go high for fear of having a low blood sugar reaction. I live alone and am constantly scared to death but I just check my blood sugar regularly and try to eat responsibly. But I'd rather be a little high then die low!! I have had Type 1 for 42 years now. He MUST get a grip! I commend you on your loyalty to him. My EX did not have the dedication that you do. Even Angels have limits so do what is best for YOU and YOUR children, especially if he is not going to listen to reason! You are a good woman. My prayers are with you!!

vstar 2010-10-09 16:18:36 -0500 Report

You should look into the dexcom unit. I used to have the pump and my sugars were not controlled any better. I have the same problem as your husband. My body has been dealing with lows for so long that I have the most energy when my levels are at 35 to 40. Only problem is that I pass out after. This is a huge deal for the rest of the world who may think we're intoxicated, high, etc… The Dexcom keeps track of your sugar level within 20% range of the actual level. I've only had it for 1 month but it has saved my life since that time.

angelalock 2010-10-16 08:11:46 -0500 Report

i'm the exact opposite. my body has become so accustomed to highs that when i have a low normal reading, such as 80, i experience all the symptoms of low sugar.

Amalia Alonzo
Amalia Alonzo 2010-09-30 17:16:04 -0500 Report

My goodness. Thank God he was Blessed with such a GREAT wife please keep patient, your family is in my prayers:)

jake913 2010-10-01 07:37:31 -0500 Report

Thank you!

lordwilliams 2010-10-06 03:47:59 -0500 Report

I agree with Amalia, thank God for you. Don't give up on him because he needs you as much as he needs to breath. You have to continue working on him. Keep a video camera nearby and record his episodes when having a seizures, along with the family struggle and fright, maybe then he will see its not just his disease, but the family as a whole. If that doesn't work, try hypnosis. You're in my prayers. God Bless, Peace be with you and your family.

type1faye 2010-09-29 11:32:21 -0500 Report

i wish i cold take pills i have type one diabetes i was diagnosed at 36 please if anyone takes junivia be very careful and dont let them tell you there are no side effects that pill almost killed me when i first found out i am diabetic my old doctor told me i needed glasses before i was diagnosed then he checked my sugar and it was almost 400 he gave me a meter that i diddnt even know how to use actos-metformin + and told me good luck he gave me januvia because no matter what i ate or drank i was so scared i ate soup and drank water and my sugar never went under 300 it brought my sugar to 145 but i had the worst headache lost some of my memory and went blind i can see now i switched doctors went to diabetes education classes she tried me on lantus and now im on both novilin cr latus in the morning and night novilin cr with each meal my surgars either stay high no matter how many shots i take or low and i cut one shot of novilin cr i have seizures i cant prove junuvia did it but i am seeing a nerouolgist ,my regular doctor and an edocronoligist and now a pain management doctor i hate this diease

angelalock 2010-09-30 09:42:08 -0500 Report

that's scary!! my mama was diagnosed with type 2 about a year ago and the doc put her on januvia. frankly, her sugars have never been just terrible and i believe if she followed a strict diet, she wouldn't even need meds. i'll have to tell her about these side effects. that's terrible.

Pinoy802 2010-09-29 11:02:03 -0500 Report

Is life long maitenence of your body, it's wanting a cupcake but eating an apple, it's reinventing yourself as someone with diabetes, it's a constant thought when you are putting something in your mouth and sometimes I just want to give up and be sick, but I can't I have people that depend on me.

cashequa01 2010-09-29 09:03:36 -0500 Report

Diabetes is so frustrating. I do not have much of a support system either at home or at work. I have been sick due to an allergic reaction to Victoza and the company I work with is not supportive at all. The reaction I get is that it's my fault that I am diabetic and that I should be punished.

hogrider37 2010-10-07 09:34:54 -0500 Report

You will overcome. You need support at home and work. You can do this on your own but support makes it much easier. If you dont get support at work or they give you a hard time just remember its discrimination against you. Take action if you need to. At home get you family educated on diebetes, get them to understand its not a disibility that you cant live with, its one you can. Mkae sure they know you need their total support.

Amalia Alonzo
Amalia Alonzo 2010-09-29 10:17:36 -0500 Report

Well if it helps any your diabetic connect family is here! Please don't allow this disease to get the best of you. When life gives you lemons make sugar free lemonade!:)

sisson 2010-09-28 23:35:12 -0500 Report

Yes I became a diabetic when I was 32 years old at first I got realy mad because my doctor would not give me a machine because I was a type 2 and I was on a HMO so when I got a chance to get back on medical so I could get my machine I did. Then I my doctor had told me that if I had took better care of myself that I still would be an diabetic but when I was much older. I was a young mother I had my first child when I was 17, 19, 23, all my life was detacated to them I never took time for myself valentered in school, doctor appt, park , movies ect went to my children I didn't eat right didn't drink enough water or exercise enough eather. So today I tell young girls and my own neice to take of them sleves and drink plently of water and exercise and get enough Sleep because that is one thing I never did!

monkeymommy5 2010-09-28 23:28:53 -0500 Report

Breaking my heart…a little girl within our community passed today due to complications of her diabetes, please keep her family in your prayers.

jason123 2010-09-28 23:32:42 -0500 Report

really sorry to hear that…what complication did she suffer?

monkeymommy5 2010-09-29 08:40:01 -0500 Report

From what I understand at the moment a low caused a seizure which casued. Swelling of the brain and at some point over the last few days caused brain death.

Graham's mom
Graham's mom 2010-09-28 08:42:33 -0500 Report

invading my family. My 5 year old son was dx 3 weeks ago. His numbers are all over the place. I am either beating myself for not giving enough insulin to cover his carbs or having to feed him snacks to get his numbers back to normal. Last week he had a BS of 34 and he didn't even realize he was low. I keep telling myself that it could be worse, but oh how I wish it was some virus that would go away. I wish he had some kind of sensor with an alarm that would allow us to get some sleep without wondering if he was having lows. On a positive note he has gained 3.5lbs since dx up to 38.5 lbs.

deannadee05 2010-10-06 12:13:10 -0500 Report

I know what you are going through my daughter is 4 she was diagnosed last year right before she turned 3, I was wondering if i would ever get that down my self but it does get better, he will get to were he knows hes not feeling well with the lows my girl did, its a little tougher with the highs, We finally got our daughter pumping about 6 months after she was diagnosed, Love it its so much easier and keeps her under control a lot better, maybe you should look into a pump i thought we would have problems with her wearing it being so little but it was truly a blessing, before the pump i was giving her like 7 shots a day with the icr it was tough and it was so hard to get her under control, shes little and that is all they do all day is eat, I know it seems so overwhealming right now but it will get better i promise

monkeymommy5 2010-09-29 08:54:57 -0500 Report

I don't know if this is helpful but I felt like I wasted so much time on shots when my first daughter was diagnosed after the pump things got so much easier.
When my second daughter was diagnosed I ordered the pump for her the same day of diagnosis. The animas ping will be integrating with the dexcom 7 cgm and they will communicate. Until then the dex has it's own reciever.

Graham's mom
Graham's mom 2010-10-06 09:26:30 -0500 Report

His doctor won't even consider a pump untill 6 mts after dx. I understand that there is alot to learn but feel like we could learn with the pump as well as the injections, but I guess parents don't get to make that decision. I can't imagine mananging 2 kids with diabetes. This is so overwhelming. Kuddos to you!!!

billyelle 2010-09-29 08:33:44 -0500 Report

I am sorry about your son. I know it must be very difficult. I have a continuous glucose monitor that vibrates and beeps when I go too low or too high. I don't think they are used on children, but you could look into it. I think they are only for adults. Mine is a Dexcom and I love it.

mo91108 2010-09-29 15:25:42 -0500 Report

Can you give me some info on this please, I would love to know more about it since my honeymoon phase should be over soon.

monkeymommy5 2010-09-29 18:44:25 -0500 Report

We just told our Doc that we wanted CGM'S (continous glucose monitor) for the girls depending on which pump you use is the one that they will order for you. Minimed already has an integrated pump/CGM, we have had animas,minimed and are now on the Omnipod, which is great for not having any tubing to snag. but they are all great pumps (in case you don't have one already!)

bjm1946 2010-09-27 20:47:14 -0500 Report

I,ve decided to take the 2 pills aday .Dont want to do it half way.I took the Metformin twice today and no realy bad side effects that i can see except a bad headace soon after taking the 2nd pill.took some iobufern.Also had 2 shots of sterorids in my hand today. I took my sugar a hour after dinner{low carb} and it was 298 .went up from 180 yesterday.This was the first time taking my blood sugar after dinner.Have just been doing it in the am.Am i suppose to take it everynight? Could the steroids have made my sugar go up?Thanks

jayabee52 2010-09-28 02:08:25 -0500 Report

Howdy Barbara!
Yes, steroids do make your BG#s go up. My bride had to take steroid shots and then follow it with Prednisone (same medication in pill form). We had to take her to ER a couple times cause our meters wouldn't register her BG# over 600. We had to establish her with an endo. It took work with the endo for 4 - 6 mos after she was weaned off the prednisone (don't just quit it) to get her BG#s back toward her "normal".

bjm1946 2010-09-28 06:40:42 -0500 Report

Thanks, i dont take the steroid shots all the time.just having a problem with tendonitis in my hand right now.Took my blood sugar this morning and its 205 fasting.Going to eat breakfast and take a walk.Hopefully it come down some.

jayabee52 2010-09-28 15:44:28 -0500 Report

"Jem" would be on steroids and her BG#s would be through the roof. Glad that yours is not so crazy high. We didn't deal with the shots - could only get shots at Dr office. It might be different from our experience with pred.

bjm1946 2010-09-25 18:06:36 -0500 Report

ok, im new to this but im ok with it and want to do the right thing.Went on meds{pills} a week ago.somebody please tell me that this diarea will stop.Alote of gas too.Is this normal?Thanks

jeffrey9127 2010-09-28 08:52:33 -0500 Report

When I was first put on Metformin I had diarrhea for about 2 weeks and then it went away. 4 months later it came back and the Dr. put me on Glipizde. This did the trick.

Kim5067 2010-09-27 11:34:37 -0500 Report

I found out they have a "quick release" pill (which is round) and a "time release" pill (which is oval)…that will make a difference also.

jayabee52 2010-09-25 23:18:52 -0500 Report

Howdy Bjm!
Without knowing what Rx you are on it's kinda hard to tell you what is "normal" for what you're taking.

But unless I miss my guess (which happens more than I'd like) the Rx the Dr has you on would be Glucophage/Metformin (2 names - same drug). I ran the term "metformin side effects" through the search engine and here is a snippet one of the hits:

"SIDE EFFECTS: The most common side effects with metformin are nausea, vomiting, gas, bloating, diarrhea and loss of appetite. These symptoms occur in one out of every three patients. These side effects may be severe enough to cause therapy to be discontinued in one out of every 20 patients. These side effects are related to the dose of the medication and may decrease if the dose is reduced.

A serious but rare side effect of metformin is lactic acidosis. Lactic acidosis occurs in one out of every 30,000 patients and is fatal in 50% of cases. The symptoms of lactic acidosis are weakness, trouble breathing, abnormal heartbeats, unusual muscle pain, stomach discomfort, light-headedness and feeling cold. Patients at risk for lactic acidosis include those with reduced function of the kidneys or liver, congestive heart failure, severe acute illnesses, and dehydration".

the whole article is here: http://www.medicinenet.com/metformin/article.htm

If it is "met" and you're having those side effects I would recommend letting your Dr know about it. Perhaps he can reduce the strength of the Rx or prescribe an entirely new drug/

BTW Welcome To DC!

Blessings to you and yours


bjm1946 2010-09-26 04:21:42 -0500 Report

Thanks, and you are right about the meds.That is what i am on.500mg 2x aday.Syptoms seem to be slowing down so i,ll stay with it and see what happens.Went from 247 to 180 as of this morning.in 7 days.So i no its working.Plus changing my diet.Those side effects are scary tho.Thanks for the info

Lina girl
Lina girl 2010-09-26 14:47:46 -0500 Report

Yes, I had the gastro side effects too, and went off for a while. Now I'm taking 500mg 2x also, and I'm feeling much better. Good luck!

Antique-Dave 2010-10-02 09:33:28 -0500 Report

fiber supplements can sometimes elimanate the GI issues with met, worked wonders for me and it helps lower cholesterol win win

AlessiaJAC 2010-09-24 21:05:43 -0500 Report

Diabetes you are… the last thing I wanted to show up on my birthday and yell 'surprise!'. Even though I found out about you through my grandma when I was younger, you are not really a stranger. Because of you showing up the way you did in June I have lost twenty pounds, my blood pressure has gone down and found out through you what foods triggers my migraines. I don't hate you, I just didn't expect you. However grandma did used to say, "Always expect the unexpected, that way you won't be that surprised."

msteud116 2010-09-24 17:29:20 -0500 Report

was donig fine till i hurt my lower back at work then i had those damm shots now my sugar went crazy now on insulin what i just dont get is my readings were higher in the morning then when i go to bed now it seems to be geting right so confused trying real hard to get this right again

jayabee52 2010-09-25 18:16:30 -0500 Report

I suspect that the shots you got were cortisone shots. If they knew you were Dx'd DM and didn't tell you that the shots would raise your BG#s they should have! You might consider adding a Endo to your diabetes fighting team.

please see my answer to starmom below for my reasons for that

starmom4 2010-09-25 16:45:48 -0500 Report

I started Humira for rheumatoid arthritis and now my readings are not controllable in any way, shape or form. The Insulin is ineffective and my blood sugar goes wherever it wants to, but always up!! My primary care wants me to stop the Humira, but there goes the pain relief. I wish these two doctors would face off in the ring and come up with something that seriously works for me!! UGH!

jayabee52 2010-09-25 18:00:49 -0500 Report

Andrea, Sorry to hear that you have that trouble

The pain of RA seems to be enough to shoot your BG#s through the roof. My bride "Jem" had RA, Fibro & Lupis/SLE (and a lot more medical challenges but I won't mention them here) when she was alive.

Unfortunately she was allergic to any of the more modern meds for RA, so we & Drs decided that even though the prednisone screwed with her BG#s (over 600, in one case) it was better to control her pain and deal with the BG#s as we could. She was weaned off Prednisone ASAP and with the guidance of an Endo (I sent him BG readings 2x/week) we got her numbers closer to "normal" (below 199) within approx 4 Mo.

She had another RA flair in July of 2010. We visited her rhumetologist who shot her with cortisone and prescribed prednisone again. We were ready to do it all over again. She passed away in the early morning hours of the next day.

The reason I bring this up Andrea, is this: you and your Drs must decide what is acceptble risk for you. Medically speaking there is not always a good choice, more like choosing the lesser of 2 evils. Do you want the pain which raises BG#s, or a medication which raises your BG#s ? If you can get a endo on your team who is willing to monitor your progress closely, it would be better than just a GP trying to manage your DM.

"Jem's" endo had her on 3 different acting (intermediate short acting and very short acting) insulins, & we were taking her BG readings 4x/day and emailing him the results 2x/wk.

When you mention the "two Drs" I am guessing one is your GP & one is your Rhumy? I would invite you to add an endo to your team!

BTW: WELCOME to DC Andrea!

starmom4 2010-09-27 10:10:33 -0500 Report

I had an endo for a short time, but he seemed indifferent so I dropped him. My husband was just diagnosed with diabetes too, which means now I can prepare meals that are good for me and him! A live in support system!! Everyone reacts differently. I and my rheumy dr love Prednisone and I can tell immediately how good I feel when the dosage is just right. I guess I'm lucky. My primary doesn't like the Prednisone because it thins my skin, the methotrexate because it's increasing the size of some of my red blood cells, but doesn't like the Humira either. Hey pal, I can't live on massive doses of ibuprofen the rest of my life! So I just have to find some middle ground to appease all of it.

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