By ston3xc Latest Reply 2014-03-08 15:11:52 -0600
Started 2010-09-03 14:49:27 -0500

There has been two people in my hometown of Portland, IN that have had pancreas transplants.As far as I know, they don't have to take any meds for diabetes. I would like to know more about pancreatic transplants. If someone on the site has had experience with, or knows someone who has had a transplant, please give us some insight, it would be greatly appreciated, I'm sure!

14 replies

msmayaks 2014-03-01 16:16:06 -0600 Report

I had a pancreas transplant February 10th 2014 from a deceased donor. I am still healing and had minor complications. I was type1 diabetic. Diagnosed at 2 years old. I was very very brittle and had hypoglycemic unawareness. I also have necrobiosis lipoidica diabeticorum which has drastically improved. I will be immuno compromised for the rest of my life but prior to this my doctor said I wouldn't make it to 50 years old. My glucose levels have been perfect! IU University Hospital Dr. Fridell is the best in the nation statistically and I am lucky to have received a pancreas.

jayabee52 2014-03-01 18:44:03 -0600 Report

Howdy msmayaks
Congratulations on your new pancreas

Praying it works well for you for quite some time
God's best to you and you and yours

TSasabuchi 2011-09-05 12:30:30 -0500 Report

It works a good part of the time, but you have to remember, you have a pig pancrease in you. if you dont take certain immune system meds, your body will attack the transplant and you'll be at your with yourself+diabetic. This isnt to discourage, but it requires a lot of thought because the immune system meds can also open you up to all kinds of other diseases/sicknesses.

QuakerArtist 2010-12-09 08:58:46 -0600 Report

Has anyone heard or used this guy's medicine? I bought the smallest bottle he offered on his site, and my brother thought I was an idiot. But it looked impressive to me. Of course, I'm just about finished taking the one bottle of supplements, and I don't see a HUGE difference or even a small difference. I can't find the the link to it.

QuakerArtist 2010-12-08 20:54:54 -0600 Report

My father beat pancreatic cancer (I think that was it) by taking lots of Vitamin d3. I was taking it, but when I tested my levels, he said to boost it to 5000. So I take this now, in one pill. Last year, my older brother got diabetes. It runs in our family. When I had my brain injury (a hemmorage or brain bleed) they thought I was diabetic. So I watched my sugar. Now my thyroid keeps me tired a lot. So I hope I stay healthy.

ston3xc 2010-12-09 08:09:11 -0600 Report

I was told by my dr not to exceed the recommended dosage of vitamin D, as it is stored in the liver and the excess is not expelled by the body like vitamin C. I'm so glad your father beat the cancer and hope you stay healthy, too. Tell your brother to keep up the medical with his diabetes, and you keep checking about yours, too. A big factor about diabetes is fatigue. It runs in my family also. Lots of hugs to you!

QuakerArtist 2010-12-09 08:47:32 -0600 Report

Thanks, I'm going to the local health clinic for poor people next week to see a doctor and get tests done.
My Dad sent me all kinds of information about Vitamin D3. He says that doctors don't want you to get better using something that isn't a prescription, they'll lose money. But you check out this data. Its rather impressive.

FROM DAD: "Health News: An valuable diagnostic test and important health supplement that has recently leaped into the news, Harvard U url, the TV, and internet is Vitamin D. It is has been an active hormone in human history for one million years. It is essential for the proper functioning of the liver, the pancrease, every cell nutrition, and the BRAIN.
Any person (like me) or most MDs should understand normal nutrition. Unfortunately many MDs (yours) only understand the nutrition sold by the drug companies - (ignore their vitamin D info)).
If you don't like five 1000U pills, take one 5000U pill (I do).
Here are some long articles on it:
The normal source of Vitamin D has been Sunshine energy on human skin - part of human biological evolution. But now most people live in houses = No Sunshine = No Vitamin D. The average USA blood tests Vitamin D at 20 Units or less. BUT, it is necessary to have Vitamin D in the blood of at least 40 Units.
Accordingly, the industrialized world is suffering an epidemic of Vitamin D deprivation!!
Love DAD
P.S. The MDs have found that part of my health problems have been D deprivation. (Too much time at the computer?!). Now, I get supplements of 5000 IU per day." END DAD'S LETTER.
Another url w/ info. Good website, too, in general.

GabbyPA 2010-09-03 21:54:41 -0500 Report

This is still very experimental and very costly. I found some good info on it for you here:
I don't think we are quite there yet. The anti rejection drugs are rough and they don't always work. I just got news today of a friend with a 2 year old kidney transplant, that they are now failing. It becomes a matter of conscience sometimes as to what is best and that can only be decided by you and your medical team.

ston3xc 2010-09-04 07:21:56 -0500 Report

Thank you, Gabby, for the link! I would probably be a good canidate but I'm doing ok with what I'm doing. A neighbor was pestering me about seeing about it, so now I can tell her to MIND YOUR OWN BUSINESS!!!!:)

GabbyPA 2010-09-04 10:41:54 -0500 Report

LOL! That is interesting that a neighbor would be so involved. Must be something she read and just had to be the first to tell you about it. It is really exciting that it can be done, but it is far from a true fix. As long as you are doing well with what you are doing, then I would just watch it as it progresses. In time, we might find a way to make it work better. Use that time you have to keep as healthy as you can on your own.

kdroberts 2010-09-03 15:03:52 -0500 Report

It's an option, but not done often. Type 1 patients end up needing to go back on insulin eventually because of the autoimmune attack on the pancreas but the major drawbacks are that it's expensive to do, there are not many pancreas' available to transplant and you have to take anti rejection drugs for the rest of your life, the side effects of these can be quite horrific. There is a lot of research into stem cell treatment and pancreatic cell transplants but nothing that works permanently and without drugs right now.

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