Hi everyone

Debbie T53
By Debbie T53 Latest Reply 2011-06-05 02:50:16 -0500
Started 2010-07-17 20:56:13 -0500

I'm Debbie, and just found this site a few hours ago. I'm T2. about 5 years ago I was told I wasn't borderline anymore. I was put on 2 meds for it, didn't think anything about it, stopped testing after a few weeks and now I've been on steroids for the last 3 months and they are playing havoc on my sugar (and my weight put 15 lbs on and have football shoulders now LOL watch out guys). Now I'm on 2 insulins and 2 pills for it, I also take about 12 other meds along with those. My sugars have been running up to 388 and as low as 49, they're still playing with my doses, just upped my Levemir to 25 mg and I'm on a sliding scale on the other insulin, They just took me off Metformin and put me on Actos 30 mg and I take Glyberide 20 mg, Starting to think can someone be on toooooo many meds? But at least the drug companies love me


40 replies

sisson
sisson 2010-07-23 21:16:05 -0500 Report

Hi Debbie
Nice to meet you. I hope you like it here I do I've meet so many nice people here and have gotten close to a couple. Me personaly I do think that the doctors do put us one to many meds and use us as ginney pigs intill they finds what works but they don't gaine the weight, they don't hurt the kidnneys liver and the lungs and so on. I have been on the Glyberide before but it did nothing for me. Take care Penny

Gabby
GabbyPA 2010-07-19 06:49:47 -0500 Report

Hi Debbie and welcome to the community. I hope that you like it here as much as I do. I could not live without my friends here.

It does sound like you are on a lot of meds. Wow...
What I do is get them all on a list at www.drugs.com and see what the interactions are with each other. Then I take that to my pharmacist and see about timing on the meds to see if they can be taken at different times to help ease the interactions. Then I talk to my doctor about that. He usually is okay with what gets decided along the way.

Steroids are bad on sugar. It will cause them to rise and stay there for a while. So you might want to see if there is another option for those for yourself. Sometimes there isn't, and you just have to know it will last for as long as you are taking those things. Medicating those kinds of highs is rather tricky.

Debbie T53
Debbie T53 2010-07-20 00:50:27 -0500 Report

Hi Gabby and thank you I think I'm going to like it here to. I'm pretty green at this diabetes stuff. I finally got it in my head that I need to learn all I can about it. I spent all afternoon today on the phone with the insurance company and the nurseline they provide, have a few things set up now and talked to the pharmacist. Making a few more phone calls in the morning, the nurse said I need to find a different doctor (endo dr) and gave me a few names. So I'll see where I go from here.

Gabby
GabbyPA 2010-07-20 16:01:26 -0500 Report

If you need any help, don't hesitate to ask us here. We come from all over the world actually, so insights are varied and great.

gregsteele
gregsteele 2010-07-18 16:16:19 -0500 Report

First welcome to DC you have joined a community that has the greatest support network you will find anywhere there are people here that can answer any questions you may have and truly care about you if i can be of any asssistancejust ask love to all GREG

Corynthus
Corynthus 2010-07-18 11:19:18 -0500 Report

I like this comment Roy. Because i have constantly noticed through my ten years of being a diabetic that a doctor has given me either too many types of different meds that make my health problem worse and then they do not know which of the drugs is affecting me or making my health problem worse or change to worse. I used to take Lovastatin for my high colestoral. but the pills were giving more pain in my muscles and making me more weak than I already was at the time. I had to get the encouragement to finally tell her that I was not taking the medicine even though I was still paying for it for 5 or so months. THen told her why I was not taking it and why my colestoral stayed so high. She was a annoyed because i did not tell her I was not taking the meds. But I did constantrly complain that I was in more pain than before she switched and made me start taking more meds for different things that were wrong with me at the time. ( I also had to take Ratinadine because I had bugs in my stomache and I could not eat and kept stomach cramps. Anyway I had read up on line of ALL the drugs that I was currently taking to see if they had any side affects. and on www.gov.com ( something like thaqt for the social security or Government web site) It told me the side affects that Lovastatin does to you. And when i stopped taking the drugs , My pain in my muscles lessened.. So see Doctors do not know everything.

Roy531
Roy531 2010-07-18 12:00:34 -0500 Report

My ex use to work for a pharmacy and the would have doctors prescribe meds that would counteract with another that the person was taking, doctor never caught it but the pharmacy did. They had one where it would have been life threating if the person took it with his other meds. I don'y go to a chain type pharmacy so the people there know what I take and if prescribe something else they will always tell me if it will affect my blood sugars any

Roy531
Roy531 2010-07-18 14:06:40 -0500 Report

Also, I don't know about where you are or if it is state law or federal law but the also have to give me a form with my meds that shows possible side affects what it is and such as that.

djewell
djewell 2010-07-23 17:21:28 -0500 Report

Corynthus - I feel the same way. I am taking so many meds, it takes almost an hour to fill up my pill dispenser. When I go to doctor with an issue, I'm given yet another bill. I told her I was too young to be on this much medication. With this many meds one has to be causing another to be ineffective or not do what is was prescribed to do. I can never seem to have a "great" day. I am constantly trying to balance everything to try and have a day where I feel really good or at least decent. I was once a vibrant sexy woman and it seems in the last 2 years, I have gone downhill. I have had this disease since 2002 but the foot pain starting about 2 1/2 to 3 yrs. ago and has escalated. Now if I don't load up on my pain medicine, the pain becomes unbearable sometime to the point of paralyzing me. If I go too long with taking a pain pill, my body almost shuts down. When that happens, I have to take the pain medicine and literally sit still for about an hour before I can function and move around. The pain in my feets is extremely bad. My ankles and legs are so tender and sore, I can't stand to be touched and can't wear anything but houseshoes. I hope that eventually I will find some type of help or relief from being a member of this site. I joined about a month ago and it has been comforting to have a site like this to go to.

Anonymous
Anonymous 2011-06-05 02:50:16 -0500 Report

Hi,
I'm just starting here myself, but noticed so much of the same symptoms I have that are like yours. I, too, wear almost nothing but slippers because everything else hurts like Hell, and can't walk in them anyway.
One thing I might suggest that might help a little bit, but I don't know if U suffer from any swelling in your legs & feet, other than what U said U felt.
If U do…try wearing support stockings. Get a good pair. And put them on before U even get out of bed. That's what my doc told me to do. I use the ones that are open-toed & open heeled. They stop the swelling a lot, tho they aren't very fashionable. They do come in fleshtone tho, so they aren't horrible.
If U can't get yourself to wear this kind, a good pair of pantyhose will help too. Support type only.
My Endo suggested it & it worked right away. Better than getting swollen so bad that I can't move at all. I can even wear a ballerina shoe for a few hours on a "good" day now. But sadly, the stockings have to go back on after that, or I can't walk again.
I know how U feel without your pain meds & with them. I always worry I won't get them & I will be confined to bed forever & still be in excrutiating pain. It's a terrible feeling knowing that your pain cannot be relieved like other types of pain can be. Most hear of your pain & think a foot massage is going to make it feel better. Not. Or they think a soaking will help. Not.
One time I had a 1st date who knew I had foot problems & the dear man showed up with a whole foot massage kit, thinking it would make me feel better. It was sweet of him, but as U know, did no good. Oh well..he meant well.

I realize this pain is not relievable, believable or curable. We have to live with it the best we can. If nothing else, I hope the knowing there are others out there with the same problems & pains helps some. I do empathize greatly. Diabetes has put me on many meds…Blood pressure, cholesterol, water pills, vitamins & supplements of all kinds. And of course Diabetes pills. My pillbox floweth over !! Can't even close it most days until I shift it all around & switch spots with most of them. If I mix just one pill up, I can't close it & have to start from scratch, LOL
Not funny, I know, but we have to find laughter thru all of this sometimes. It helps.

I did real good for a while & was able to stop most of meds. I lost 35 pounds. I felt great except for my feet. That never gets lost. Unfortunately, met a man who feeds me all the wrong things & I gained a lot of it back. Hello pills again !!
I'm working on educating him & doing a little better, but it's going to be long haul this time. Weight doesn't like to leave U when your on all these meds. Believe me…I know it well.
Anyway…I write too much. Sorry. Time for me to take some meds & try getting some sleep. Hope your doing okay, & have some hope. Hope is very important. Not that a cure will come in time for us, cause we know it probably won't. But that maybe we'll find something to relieve the awful pain.
God Bless.

Anonymous
Anonymous 2011-06-05 02:49:37 -0500 Report

Hi,
I'm just starting here myself, but noticed so much of the same symptoms I have that are like yours. I, too, wear almost nothing but slippers because everything else hurts like Hell, and can't walk in them anyway.
One thing I might suggest that might help a little bit, but I don't know if U suffer from any swelling in your legs & feet, other than what U said U felt.
If U do…try wearing support stockings. Get a good pair. And put them on before U even get out of bed. That's what my doc told me to do. I use the ones that are open-toed & open heeled. They stop the swelling a lot, tho they aren't very fashionable. They do come in fleshtone tho, so they aren't horrible.
If U can't get yourself to wear this kind, a good pair of pantyhose will help too. Support type only.
My Endo suggested it & it worked right away. Better than getting swollen so bad that I can't move at all. I can even wear a ballerina shoe for a few hours on a "good" day now. But sadly, the stockings have to go back on after that, or I can't walk again.
I know how U feel without your pain meds & with them. I always worry I won't get them & I will be confined to bed forever & still be in excrutiating pain. It's a terrible feeling knowing that your pain cannot be relieved like other types of pain can be. Most hear of your pain & think a foot massage is going to make it feel better. Not. Or they think a soaking will help. Not.
One time I had a 1st date who knew I had foot problems & the dear man showed up with a whole foot massage kit, thinking it would make me feel better. It was sweet of him, but as U know, did no good. Oh well..he meant well.

I realize this pain is not relievable, believable or curable. We have to live with it the best we can. If nothing else, I hope the knowing there are others out there with the same problems & pains helps some. I do empathize greatly. Diabetes has put me on many meds…Blood pressure, cholesterol, water pills, vitamins & supplements of all kinds. And of course Diabetes pills. My pillbox floweth over !! Can't even close it most days until I shift it all around & switch spots with most of them. If I mix just one pill up, I can't close it & have to start from scratch, LOL
Not funny, I know, but we have to find laughter thru all of this sometimes. It helps.

I did real good for a while & was able to stop most of meds. I lost 35 pounds. I felt great except for my feet. That never gets lost. Unfortunately, met a man who feeds me all the wrong things & I gained a lot of it back. Hello pills again !!
I'm working on educating him & doing a little better, but it's going to be long haul this time. Weight doesn't like to leave U when your on all these meds. Believe me…I know it well.
Anyway…I write too much. Sorry. Time for me to take some meds & try getting some sleep. Hope your doing okay, & have some hope. Hope is very important. Not that a cure will come in time for us, cause we know it probably won't. But that maybe we'll find something to relieve the awful pain.
God Bless.

outrigger1945
outrigger1945 2010-07-28 11:47:14 -0500 Report

can you please tell me how they found out that you had bugs in your stomach. I have 2 specialist and they use me us a guiny pick. Since last October. They have no clue. On 7/20 went for an other opinion and all he can come up with is get my self regular. I had no problem with that when it all started just the last 2 weeks. He didn't even look at the files that were send to him. I have a friend and she had a healthfood store and she tells me all the time Dr. don't know anything about meds and don't believe the once from a healthfood store. I don't know what to do anymore. I am asking about a toxic liver no response. I cant do this anymore with no help in side.

Corynthus
Corynthus 2010-07-18 11:09:41 -0500 Report

Hi Debbie ( and every one else )
I am new here also. So far I try to reply and read and get help , hints and tips from all the people in here. It's the best i can see myself doing right now and not able to really help give my own advise on what to do or not to do for our medical problems that we are all facing here , all because of of ONE CULPRIT!! ( Diabetis ). You'd think we already have AIDS or a worse disease. I say this because it is something that is not really curable and that we have to try to deal with for the rest of our life. Anyway Debbie it is good to meet you in here and also hello and good to meet everyone else in here. I hope to get any type of advise from any of you as I continue to through many of the discussions here.

Debbie T53
Debbie T53 2010-07-18 11:59:47 -0500 Report

Hi Corynthus, Welcome aboard LOL funny to say that I haven't even been here 24 hours yet, but anyway cholesterol meds are know to do that I hear, I was on a few before the Crestor I'm on now and couldn't take them because they did the same to me, you couldn't even touch my arms or legs they hurt so bad but I told them a few days into it and got right off them. We went through a few different 1's I was actually on 3 at the same time and then my cardio dr. put me on the Crestor so now only on 1 for that. I take enough pills to choke a horse so don't need 3 for the same thing. Bad enough I'm on 4 things 2 insulins and 2 pills for the diabetes.

jjhnpa
jjhnpa 2010-07-17 22:36:06 -0500 Report

hi debbie, i sit here now in the hospital, i was diagnosed with type 2 in may i take 10mg glipizide usually my sugar is 140ish-160ish. thursday my sugar was 456 and i was rushed to hospital by ambulance, so here i sit now, i was given 6uits of insuin and it brought my sugar down to 276. i am so clueless as to all of this diabetes. dr is to come in the am to discuss further options with me. nurse did say something about metformin and a sliding scale, but she also said she i am going to be set up with a diabetic councelor, so glad i found this site.

Roy531
Roy531 2010-07-17 23:06:19 -0500 Report

Hi jj, Welcome to DC glad to have you on board with us. Sorry to here about having to go to the hospital, but good thing they are hooking you up with a councelor. This sie has taught me a lot, it's a great place to be. Lot of good people here with a lot of knowledge. Again Welcome

Roy

Debbie T53
Debbie T53 2010-07-18 00:14:43 -0500 Report

Hi jj I'm with you I'm clueless right now also, but I'm going to figure it all out soon I hope. The metformin didn't work for me and they took me off it a few weeks ago, one thing it was doing was keeping my sugars lower than they are now but I had another problem with it so trying to get it fixed with different 1's. Calling the insurance company Monday to see what I can do with a program around here somewhere and they have nurses that I'm hoping to talk to also. I'm sorry you're in the hospital (I've been there enough and it sucks). I feel like a pin cushion lately between testing 3 times a day and most days 4 shots LOL along with alot of black and blue marks from the needles.

djewell
djewell 2010-07-23 16:44:13 -0500 Report

Debbie - what was causing you the pain in your arms and legs. I have extreme pain in my hands but really excruciating pain in my feet and legs. They are so tender and sore, I can't stand to be touched and can rarely wear regular shoes. I wear houseshoes most of the time. My legs and feet hurt so bad and it has had a major impact on my quality of life.

bettymachete
bettymachete 2010-07-17 22:02:27 -0500 Report

Hi Debbie nice to meet ya! Welcome to DC :)

Debbie T53
Debbie T53 2010-07-18 08:42:32 -0500 Report

Hi Betty, Thanks nice to meet you to. Was just reading some things you wrote very interesting on the Candida

bettymachete
bettymachete 2010-07-18 11:07:02 -0500 Report

Oh I'm glad you read it, it's not a very pleasent discussion (it has that eww factor that most people don't like to talk about). But since it's hot and many of us are working out, those yeast infections and (not just talking about the vaginal kind) can be a big problem. I read up on them and found they lead to a myriad of yuck for a diabetic, because we are so sweet and prone to infection :).

Debbie T53
Debbie T53 2010-07-18 12:03:09 -0500 Report

No it's not a very pleasant topic, but I'm going to check it out because they said I have IBS but now that they took me off the Metformin a few weeks ago it's better. So maybe I don't have IBS after all