By ONeil Latest Reply 2012-03-13 01:01:07 -0500
Started 2010-07-01 04:53:40 -0500

I know I said this before but I am still have pain in my legs and now I am getting swalling in my feet. a long with coolness in my legs , numness to. it is getting very hard for me to walk a lot and that is what my Dr would like for me to do more off. At this pont I just don't know if is my DB or my osterposies. that could be getting worst. I have tryed heat ,Ice, putting my leg up, and they still are killing my. even when I stan it get bad. trying to Drive the car is alos hard but I have to do it. so does any one sudgestion on this.
I thank you for lending me your ears
Hugs Anna

39 replies

cindygal1 2012-03-12 17:08:20 -0500 Report

If you have numbness in your legs you need to go back to your, that can lead to further problems. I am on a water pill and a vitamin every day because of my legs swelling, but I had not numbness in them. That has helped me a lot. I would call my doctor and go see them.

Jewels63 2012-03-12 12:26:00 -0500 Report

I take Gabapentin 900mg in the morning and 900mg at night, it works really well for me. Some say it causes weight gain but I personally haven't had a problem with it. Going for a swim helps me, I try to exercise daily even if it's going up and down my stairs a few times daily. When resting keek your feet above your heart.

MarkieMarkie 2011-06-09 13:14:39 -0500 Report

Sounds exactly like what I have… and my legs swell… hurt to the touch. I have feelings that feel like water running down my leg and sometimes I get a severe pain in the upper part of my foot. When my feet aren't swollen it is almost like a rejoicing moment because I can actually feel the bottom of my feet on the floor or carpet. I normally wear shoes or sandals all the time… so this takes place when getting out of the bath or 1st thing in the morning when I 1st put my feet down. I've resorted to wearing soft fliip flops to work… if I wear noramal shoes it makes the swelling worse. Is there any hope whatsoever for the swelling.

KARE51 2011-06-09 10:48:29 -0500 Report

I have very very bad neuropathy and this souds like the beginning of it to me. I have been given nerotin as a perscription but have resently started taking the nerve support formula. It is a "special" formula to help with nerve damage. I will let you know if I get any response. Go so your doc as soon as possible regarding this problem because it will get worse. I use water therapy for the walking thing. It is fun and give you releif from the discomfort. When I walk I feel like I am walking on wooden legs, up to my knees. Hang in their gal. keep moving and put your legs up as much as possible.
Hugs Kare51 in wyoming

kittenpurr1 2011-06-09 13:34:15 -0500 Report

Nuerotin causes a lot of weight gain, I was on 1,500 mgs. a day. It didn't do any good for me, so my drug store told me to stop taking it. I started out on low dose at 300 mgs. then it worked up to 1,500. I gained 45 pounds and it won't leave, they put me on Predisone and I gained 10 pounds in 3 days. Gabapenton and Neurotin are the same med. one is just the generic.
I hate this feeling, and I have osteoarthritis everywhere, so I have swelling all the time. I hate it.

KARE51 2011-06-09 14:24:34 -0500 Report

I take and have taken gabupentin (nerontin) for 10 plus years and I take 1500 also I really fight my weight. The more I weigh the more problems I have with my oxygen levels so…double wanny. I am starting a new thing off the inteernet and I hope it works. I really need to be able to move better without the oxygen. I am so depressed that I struggle with doing anything at all. I am use to being active and all of a sudden aout 10 years ago it all started to fall apart and now I am just not veery useful. I am ashamed to be seen in public and I don't have a life to speak of. I make myself do grocery shopping in my cart and attend a small group of us who study the costitution but.,…I really struggle to do that. I know the trouble walking is a big thing and my weight is the worst thing for me.

Sidehack 2011-06-09 05:22:42 -0500 Report

Sounds like Diabetic feet feel numb and my toes feel like little sausages. My feet and hands have stabbing pains…sharp pains like if you stuck a knife in and twisted. I take Gabapentin to relieve this pain. Check with you doctor!

appealstome 2011-06-09 02:20:15 -0500 Report

You did not mention if you take diabetes or other medication. Diabetes and cholesterol medication lowers CoQ10, which causes pain, etc. Books I am reading
"Diabetes without Drugs and Drug Muggers" by Suzy Cohen states diabetes and cholesterol drugs lower CoQ10, which causes leg pain, etc. She recommends taking 100-150 mg of CoQ10 daily with breakfast or lunch and other supplements

I have same symptoms plus terrible joint pain. I went from walking a mile daily to unable to stand, walk, drive, etc. I was taken off diabetes medication for a month when I stopped urinating and my swelling, pain, etc disappeared. Cholesterol medication causes same symptoms.

marla50 2011-06-09 01:17:45 -0500 Report

A few questions, do u have neuropathy? Have you seen the commercial where they talk about the pain in your legs, i think it is periphrial artery disease? I have had type 1 for 45 years and I can remember my endo asking me when I was young up to when I was in my 20's asking me if I had pain in my legs. I've been told lately, as a diabetic,my nerve endings were pretty much dieing off. I have the neuropathy and my feet burn and are numb. I take neuratin. I hope you get to feeling better soon.

nzingha 2011-06-08 22:48:34 -0500 Report

walk, walk, walk…excercise! run…wak..

nzingha 2011-06-08 22:53:21 -0500 Report

and get ur levels down… i get some weird feelings in my feet now with my high readings… a weakness but its not pain.. it has to do with circulation i am sure!

MoeGig 2011-06-08 18:35:37 -0500 Report

Definitely trouble…sorry for your pain and condition. My doctor continually asked me if I had pain in my legs. This pain, he says, is caused by a lack of circulation through the legs. The solution, he said, is to have a procedure that clears the main arteries into your legs and thighs…similar to what they do if the arteries in your heart clog up and cause chest pains. I've had the angioplasty for my heart and it's not that big a deal…I understand the same can be done to unclog the arteries in your legs. If you are successful in doing this, make sure you immediately get back on a program to control your blood sugar. As a Type 1 diabetic for 46 years, I've worked hard to avoid the pain of these kinds of complications. You are welcome to check out my link to learn more. Good Luck.

chopi 2010-11-13 16:38:59 -0600 Report

I can relate to your pain. At night it's so bad in my legs and feet it makes me nauseous. The only thing that works for me is 100mg of tramadol. Ask your Dr. if it may be right for you?

DELENA64 2010-11-13 16:16:04 -0600 Report

I am new here and just read your post I know exactly what you are going through my legs have hurt for so long I can't sleep I shake them and beat them to actually get a good night's sleep my husband has to take his fist and beat the backs of my legs and I fall off to sleep. but..that makes him nervous he is afraid he is doing more damage in the long run. but there are times I hurt so bad that I feel like I need to take my legs off sounds silly I know but that is how bad they hurt and the dr has given me pain pills it doesnt necessary take the pain away but numbs it for a little bit of comfort they have also given me Gabapentin..not spelling that right. and it has helped a little. At first they just thought I had restless legs meds didnt help, then I thought ok when I was younger I played basket ball and ran track and at first my legs would tighten up and hurt until I got use to it that is the only way I can describe my pain its like a tightening muscle that I cant seem to let go of it or like I need to take out my veins and then the numbness and tingling goes along with that but what has scared me is my toes are feeling weird like when you have been in the snow for too long and are starting to warm up that tingling almost hurting feeling.. But all this crazy stuff being said..I am now seeing a specialist because my blood sugars are very seldom under 319 and my A1C just came back 11.9 I am totally scared but am doing my best and was looking for some friends when I came across your post. Sometimes I just feel like I am in this alone and could use some people to talk too that knows what it's like.I sure hope you start doing better I will check back,and see how you are doing.

chayogarza 2012-03-13 01:01:07 -0500 Report

you sound like me what helped me was biotine 5000 mg and alpha lapoic acid 200 mg the alpha i take 3 a day biotine twice a day . i hope it helps . it has helped me.and you could find them at your local pharmacy,wal-mart they are over the counter

capi 2010-11-13 06:55:33 -0600 Report

I'm sorry, I'm just enter heare today. I have your same problem, someone
told me about, and its very simple and works for me.
I start with Tylenol Extra Strength daily at bed tyime and I have not anymore
clamps and legs pain.
Don't trust in Doctors they only want your money.

tomileigh 2010-11-12 13:13:59 -0600 Report

Hi Anna, Have you tried the med called gabapentin? It helps a lot with my neuropathy. I have a bad foot that has a metal plate and 14 screws holding it together and it causes me lots of problems too, but the gabapentin helps more than anything else I have tried. Talk to your dr. about this! tomileigh

thorolf 2010-11-12 10:12:19 -0600 Report

Have you tried Benfotiamine?
My wife has Diabetic Neuropathy( dead & dying nerves in her legs) and your symptoms sound identical. I found that the neuropathy pain level can be greatly decreased with simple B Vitamines. The problem is that they need to stay in your systen, working for a long time. Ordinary B Vitamines are water soluable and wash out of your system before they have a chance to do much good. Benfotiamine is the same B vitamine ( I THINK its B-2, but might be B-1 )but it is made in a FAT soluable form which takes MUCH longer to break down and flush out of your system. MY wife says the pain has been grealy decreased since we started her on this!! And it is not even expensive! I get ours at Swansons Vitamines on the internet , and it is VERY affordable. In the meantime , you should ask the doctor to have you tested for Neuropathy. They have a test for it which will determine if that is part of your problem. Please feel free to get back with me if you would like to discuss some of the other alternative methods I have found for combatting this problem.

Pamiekae 2010-11-12 09:52:40 -0600 Report

I know the first thing to think is that the numbness and swelling has to do with the diabeties. But I've had this problem since 2000 and at that time blood tests showed that I was not diiabetic. I went to a neurologist and after some test foundthat I have a deteriation on nerves and muscle due to a blockage in my lower back. Unfortunately it's not something that can be corrected. Please don't look at the diabeties as the only cause, seek other medical opinions before it gets to the point like mine and be too late to be able to reverse and fix.

northerngal 2011-06-09 14:17:41 -0500 Report

You are absolutely right. Heart disease is more responsible for legs and feet swelling than D. Your heart can't pump as efficiently as it needs to and fluid collects in the lower extremities. Sorry to hear they can't help with the blockage in your back, but I'm sure you've heard many times..keep the surrounding tissues as healthy and strong as possible. It will help in the long run. I can say that most of the pain I feel is from previous injuries, but I've got arthritis in one shoulder and an ankle I broke several years ago that are now very good bad weather predictors. Another suggestion is to make sure your kidneys are functioning fully. That will also cause fluid to collect in tissues where its not meant to and could cause some swelling in the legs and feet.

runthe 2010-07-01 15:53:07 -0500 Report

I agree with Mays please seek medical help soon it could be a number of things. keep us posted

ONeil 2010-07-02 09:31:06 -0500 Report

Okay, I will do that. and It will be soon I promises. I will Cal the Dr to fine out what it could be.
I thank you lol .
Hugs Anna

Kirla 2010-07-01 12:53:35 -0500 Report

I heard the best thing you can do is get your blood sugar under control. Keeping it below A1C of 6.5-7.0 is supposed to help keeping it from getting worse and some people believe that getting your blood sugar to normal levels will even help reverse it a little.

Good luck

ONeil 2010-07-01 13:14:02 -0500 Report

Thank you , I am try the best I can but see the Dr at the ER took my oral meds away do to the lows that I was haveing and kep me in the Insulin,( levemir ) 18 units at night time that is all and their are time where it does not seem to work right. I do not see My DR untill Spet. that is when I will know what my A1c will be at that time , but last month it was 6.8 so I just don't know what to do at this point. that is why I am asking for so Idea.
Thank you lol
Hugs Anna

Kirla 2010-07-01 13:25:01 -0500 Report

You may need more help with the insulin. I don't use it, so maybe some people here that do use it can give some advice. I know there are books that explain how you should use it. It seems you may need more help. I would see my doctor real soon and find out what you should be doing to help get your numbers under control.

kdroberts 2010-07-01 13:34:12 -0500 Report

That dose for the insulin is a little weird and does explain a lot. Usually levemir is a twice a day, background insulin and is used in conjunction with other treatments. It roughly lasts about 16 hours or so and does have a slight peak. It will help a small amount with meals but only by reducing the spike you get a little, it wont cover the spike like a mealtime insulin would. I would recommend changing your doctors appointment to see them sooner if you can because you need to change something.

kdroberts 2010-07-01 11:52:16 -0500 Report

What are your blood sugars like?

ONeil 2010-07-01 12:54:35 -0500 Report

they have been up and down like from 99 to over 300. and I am doing a lot of walking & changed my diet to. I am now on a 1200 Cal diet in stead of 1500. but I have the pain in my legs all the time from the time I wake up to the time I go to bed, and their are time where I wake up in pain with very little sleep.
Thank you.
Hugs Anna

kdroberts 2010-07-01 13:01:01 -0500 Report

The high and fluctuation blood sugars are likely the cause. Calories are one thing but carbs are what raise blood sugar so maybe start by limiting them a lot more than you have.

melanie76 2010-07-01 11:42:20 -0500 Report

Have you asked your doctor about Diabetes Neuropathy? I have all the same feelings in my feet as you and I have had Diabetes Neuropathy for over 11 years. I hope this helps.

ONeil 2010-07-01 12:58:34 -0500 Report

No , I have not but I was thinking on doing that if the pain does not go away after I try something frist I am very stubern on some things.and not only that some time I feel like I am bothering the DR to much so I try not to call him unless I realy have to. I just might have to brack down and do that soon.
Thank you lol
Hugs Anna

Harlen 2010-07-01 09:12:22 -0500 Report

Anna you need to tell your Doc
You mite try a long soke in a hot tub, that helps me with my daly pain.
Best wishes and hope your feelling better soon

ONeil 2010-07-01 12:59:58 -0500 Report

Okay I will try that frist to see if that works. then I will call the Dr. okay lol.
Hugs anna

LennyDenny 2010-07-01 07:42:11 -0500 Report

I agree with Mays - talk to your doctor soon. It could so many different thing, but you need to get it looked as.

ONeil 2010-07-01 13:02:18 -0500 Report

Okay. I will. Thank you lol. I just hope that it is not to bad of news.
but I will call , Thanks you lol.
Hugs Anna

LennyDenny 2010-07-01 13:59:14 -0500 Report

I have always found that not knowing is the worst part, at lease once you know what the cause is then you can get treated for it. Always remember that you need to take care of yourself.

MAYS 2010-07-01 06:50:04 -0500 Report

Please seek medical help from your doctor.

ONeil 2010-07-01 13:03:34 -0500 Report

Okay , I will call the Dr soon to find out what it could be and why this is happening . Thank lol
Hugs Anna

color33 2010-11-13 18:35:48 -0600 Report

hi , my name is brenda and i'm a new member. i 've had diabetes for about 30years. i go to clinics i dont have a doctor but i see a fnp and she is really good, i think. i have the same proplem as u do. it feels like freezer burn and all the time it hurts. some times i think i have socks on and i dont its crazy! but i feel like u must keep ur circulation going, and also sugars under control , i try very hard to. my fnp says it goes along with diabetes ok , but there's got to be a better solution i'm tring anything and everything. thanks for all the infro bren

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