Hello... Newby here

By tkishkape Latest Reply 2013-02-10 17:43:30 -0600
Started 2010-06-21 13:10:22 -0500

I just joined up and hope to learn more about controlling type 2 Diabetes, especially the neuropathy in the feet. My feet are painful, but intensify in pain when I lie down in the bed… to the point of not being able to fall asleep easily.

How do other sufferers cope with the pain?

Please visit my profile to learn more about me.

Thank you.
Albert McBee

50 replies

Debbiejf 2013-02-10 17:43:30 -0600 Report

Hello Al :), well it's sad to say that the feet are the worst affected by neuropathy. And I know for a fact that I was afflicted by it because I had ignored my diabetes for years. Actually, it was because of the neuropathy that I finally woke up (again) to realize that I was such an idiot! Oh I took my meds and insulin as prescribed but didn't change my ways of eating very much :(. I was the moron I complain about others today. I am not able to take anything stonger than Tylenol or aspirin—I can't even take ibuprophen! I am fortunate that the pain doesn't worsen for me at night in bed :). But the pain can intensify greatly at any other given moment. I went into modes on and off about taking care of my diabetes but have been most adamant about it in the last 2 years, I'm still not 100% but at least 90% now :). Just do the best you can at taking care of yourself.

nursepat1 2013-02-10 14:51:44 -0600 Report

I have several patients with peripheral neuropathy and they have been helped immensely with neurontin and/or lyrica—once the dosages are adjusted correctly. Both of these meds target pain that begins in damaged and misfiring nerves. I have also seen several homeopathic (natural) creams that use herbs to deaden the nerves in the feet and hands to allow some measure of relief. I haven't tried any of these because, fortunately, I haven't been plagued by the nerve damage yet.

Gracie40 2011-10-08 23:13:53 -0500 Report

Welcome to the club! This place is a storehouse of information. And it is a gathering of wonderful caring people. My doctor put me on Cymbalta for depression, but it is also used to mitigate the pain of Neuropathy. The neuropathy gets worse if your BG is not under good control. And good control is vital, but if you still have pain, there are other options.
My sis-in-law takes neurontin as prescribed by her MD.Also gabapentin is approved fro relief of neuropathic pain. As for the DMSO, there was a huge controversy around it in the early '60s. From Maya Muir, a quote from her article on DMSO
"In the first flush of enthusiasm over the drug, six pharmaceutical companies embarked on clinical studies. Then, in November 1965, a woman in Ireland died of an allergic reaction after taking DMSO and several other drugs. Although the precise cause of the woman's death was never determined, the press reported it to be DMSO. Two months later, the FDA closed down clinical trials in the United States, citing the woman's death and changes in the lenses of certain laboratory animals that had been given doses of the drug many times higher than would be given humans.

Some 20 years and hundreds of laboratory and human studies later, no other deaths have been reported, nor have changes in the eyes of humans been documented or claimed. Since then, however, the FDA has refused seven applications to conduct clinical studies, and approved only 1, for intersititial cystitis, which subsequently was approved for prescriptive use in 1978." There are many articles on the net on this drug. But remember, the FDA has never approved it. It is often used topically as it is absorbed through the skin. One gets a distinctive "garlic smell" on their breath and body odor.

long island girl
long island girl 2011-10-08 20:28:06 -0500 Report

i know how you feel i get the neuropathy pain also at night is the worst pain i take neurontin i alos take aleve and a friend of mine told me about lavender oil it is soothing and helps you fall asleep my sugar was 111 this morning i am seeing a dietician now it is amazing what food combinations do to your glucose levels i tip i learned is to have yogurt 90 calories or less at night or 1 cup of milk it helps with your blood sugar

Arianne 2011-10-08 17:15:53 -0500 Report

I am a newbie at Diabetes myself. I am in the early stages of neuropathy and my dr has put me on neurontin(gabapentin) it is suppose to help with the nerve pain and has a side affect which causes drowsiness so I can sleep at night. My husband who also has diabetes 2 has severe neuropathy and is on a higher dosage.

Arianne 2011-10-08 17:15:47 -0500 Report

I am a newbie at Diabetes myself. I am in the early stages of neuropathy and my dr has put me on neurontin(gabapentin) it is suppose to help with the nerve pain and has a side affect which causes drowsiness so I can sleep at night. My husband who also has diabetes 2 has severe neuropathy and is on a higher dosage.

lacat87 2011-10-08 16:01:03 -0500 Report

Hi and welcome to this Community! Hope you get a lot of help and will be able to help others! Hugs to you!!

hughsbayou 2011-10-08 13:00:47 -0500 Report

I've been having pain in my feet for over 5 years, finally got it diagnosed as related to diabetes. During that time I gained 30 lbs. I've gotten onto Metformin, changed my diet and have lost the weight, which is great, and my A1c is back to 5.4. However, I still have the pain in my feet which, although reduced is still pretty annoying. And yes, it hurts the most in bed although that has improved. It's really important to get those BG levels down and keep them there. It's hard to switch from a mainly carb diet to low carb, but once you do you'll not want to go back. It took about 3 weeks during which the carbs kept calling me! Now I don't really like the taste of high carb foods. Interesting, but it seems that the body can really run on fat and doing so lowers the cholesterol levels as well. My Triglyceride levels dropped like a stone. DON'T use over the counter pain meds for this, they really don't do any good. They are for muscle related pains and inflammation related pain. Nerve pain will respond a little to asprin but not much. I'm now on a program using electrical stimulation to heal the nerves but it's not a short or cheap program. I'll be posting the results as I go along. Good luck, it is awful but at least you now know the source of your troubles.

TsalagiLenape 2011-10-08 08:02:24 -0500 Report

Well I always have heard from friends with horses that the linament used on them is ok for us. If you have an allergic reaction go to the E.R. with the linament. Also I have found a way to massage the bottoms of my feet. I buy a set of marbles. Take out the Biggest one, aka shooter, and put the others in an old sock. One overhand knot on the opening of the sock and it keeps the marbles in. Then put that sock marbles on the floor and I add the pressure to my own feet. Sometimes I cant stand alot yet other times I can. My podiatrist loves my idea and uses it herself. So hope this helps as it was meant too. Hugs

besther414 2011-10-08 00:18:19 -0500 Report

Hi Albert, welcome to the community!!! You will LOVE it here!!! The people are AWESOME and I'm constantly learning something new everyday!!!

tkishkape 2011-05-16 17:11:23 -0500 Report

I just found a brand new (to me) very old pain medicine that has no side effects, available over the counter, and works in seconds… Yes… seconds!

I was in Tractor Supply the other day looking for gardening tools and ran across a display of DMSO in a gelled compound that helps the 92% pure DMSO to stay where you put it. There is a note on the label that says "For Veteranary Uses Only", required by law since the medical community cannot cram it into a pill bottle or prescription and charge two arms and a leg (they don't want painful feet) for it.

The material has no side effects and best of all… IT WORKS! I bought a pint of it in a screw-top jar for the price of five pills of your favorite statin drug.

I am proud to say that I use horse linament on my feet. Ahhhh… relief is so wonderful.

hughsbayou 2011-10-08 13:02:40 -0500 Report

BTW, I used to shoe horses and the DMSO is a good idea to try. I'll go to the vet supply and get some. I remember when it came out years ago and everybody was using it for various injuries etc. It may have side effects so do some research and be careful.

mebetty 2011-10-08 06:49:59 -0500 Report

wow! I just started looking into this DMSO. Never heard of it! It seems it works great for pain and may even curb the production of cancer cells!!!! I injured my shoulder last year and have developed bursitis from my neck to my forearm and have been hesitant using the pain killers I was prescribed. I don't want to mask the pain I want to heal. So I am definitely going to see where I can get this DMSO. Way to go Albert! Thanks for sharing!!…and WELCOME TO DC.

medic673b 2011-11-09 23:03:51 -0600 Report

DMSO was once used to treat race horses but was banned due to side effects

annamarkp 2011-11-15 02:49:00 -0600 Report

It is 3:30 am hard to get up with pain in bottom of foot, took test and it is 311, went to take novolog flexpen 10 to bring level down. don't know why it shoots up and end up with pain in leg an foot.

Infinity1956 2011-10-07 22:50:33 -0500 Report

Got anythink forr bad legs cramps almost every morning? Please share!

Debbiejf 2013-02-10 17:35:42 -0600 Report

Potassium is great for leg cramps, I used to eat a banana every day and it calmed the leg cramps. That was years ago and now I can only have a banana a few times a week. The difference being that back then I was working and getting regular exercise but now I can no longer work nor do any kind of usual/regular exercising. Bananas affect my bs too much to have everyday. They are cheaper than vitamins/minerals :) good luck

roccorob 2011-05-16 15:00:11 -0500 Report

I have the same thing and it take me two hours to fall asleep for lesser pain during the day my doctor gave me a prescription to 60 mg once daily to CYMBALTA AS for bed it's still the same this problem never gets better I can't walk without pain soon I was put on social security disability and can't do much remember this is all due to diabetes and weight control hope yours isn't is bad as mine see a Neurologist and he will let you know how bad yours is mine is so bad that I need a walking stick to hold me from falling and I have the bruises on my legs, Good luck Rocco

Infinity1956 2011-10-07 22:51:57 -0500 Report

Yall be careful of all these new prescritions because they are pulling a lot of stuff off the market.

mysteria7130 2011-10-08 10:24:15 -0500 Report

tell me about it. I hate taking pills. why won't the insurance companies pay for natural remedies like herbals

jayabee52 2011-10-08 18:25:31 -0500 Report

howdy judith,

I really don't know the answer to your question, but I could hazard a guess. It may have to do with the effectiveness or perceived lack of effectiveness of the herbal in question. I am not saying that that is their opinion, or that their opinion is right, but just that they don't want to be paying out for a treatment which is not working.

Just a guess.


HENNRICK 2010-06-25 20:48:10 -0500 Report

i have same problems but i also suffer from crionic pain i use cold packs and massages about twice a month it seams to help i had so many pills that i was in high stat so i stoped all of them now take advil twice a day try puting a pillow to rase them alittle help me ive been type 2 10yrs now goodluck

Rhonda Layman
Rhonda Layman 2010-06-23 12:29:02 -0500 Report

Welcome. I too have mild neuropathy. Didn't know it was my diabetes for a long time, kept buying new shoes hoping to find that "perfect" pair. I bought a pair of the new "exercise" tennis shoes that are for toning legs, hips, etc. I bought the sketchers brand, others may be just as good, I don't know. LOVE them. They are soft when walking. The sales lady said her friend was a diabetic and liked hers so well she bought two pair.

Infinity1956 2011-10-07 22:53:44 -0500 Report

Can you imagine being on a job interview when your toes began to cramp up in shoes,? That was the most forced smile and pain I ever endured besides childbirth. Fomal interview had to wear hills with the outfit.

bettymachete 2010-06-22 07:38:10 -0500 Report

Welcome Al! I have experienced some symptoms of neuropathy and am hoping to head it off. I do not envy anyone who has been badly effected by it. I use a foot soak to cool my feet at night and that has done wonders for the "hot feet" I get.

long island girl
long island girl 2011-10-08 20:36:17 -0500 Report

betty ther is a shoe company called sas san antonio shoe company they make shoes with a boxed toe inside so there is less pressure on your feet they are not the most attractive but they help

Two painful feet
Two painful feet 2010-06-21 21:44:36 -0500 Report

Welcome Albert to DC. Ask your question here and someone will have the answer. I have neuropathy also. I take nurotin and i really helps me. I wish the best in your new life.
Your Friend

GabbyPA 2010-06-21 18:31:03 -0500 Report

Hi Albert and welcome to the community. Good to have you here with us.
I also have neuropathy in my feet and I think the only reason it drives us nuts at night is because we are trying so hard to get some rest. I have found that if I apply heel balm to my feet it calms them a good bit. Getting control of your BG levels is vital and better control will help the pain lessen as well.
The other thing I will do if they are being really painful is have my hubby massage them and then I take an Advil, or a Tylenol, or melatonin. Not all at the same time, but I choose depending on how much they hurt.

tkishkape 2010-06-21 19:22:52 -0500 Report

Thank you, Gabby. I rub in a scant amount of coco butter and take night time tylenol. Sometimes it works, more often…not.

soldierswife 2010-06-21 13:35:34 -0500 Report

luckily, i have not had any problems with my feet, eyes or kidneys. However at the first hint of the word diabetes i stopped dead in my tracks. I came home cleaned out my cabinets and fridge…got rid of everything i felt was "bad". So, im hoping i never have to endure this and praying you can get through it!

tkishkape 2010-06-21 20:58:35 -0500 Report

if you can head it off early, you'll add many years of good painless health to your life. It's worth it to get this thing early.