6 months diagnosed and still don't have a clue

Tlitton
By Tlitton Latest Reply 2013-02-17 08:17:03 -0600
Started 2010-06-21 12:40:18 -0500

Hello. I just found this website and it looks like I'm not the only person out here with questions. I was diagnosed Type 2 Diabetic in January - handed a list of Pills to take (which have increased every time I take another blood test) and buttload of papers that has just been completely overwhelming and told "If it tastes good, don't eat it"…I'm so over whelmed and confused it's not funny. I don't understand all this new terminology - honestly don't know what I'm doing right and wrong. Except I've learned if I don't eat several times a day my sugar drops WAY low and if I eat regular it stay way high (according to my dr)…I think it's running okay cuz' i actually feel a lot better. When I was diagnosed I was over 500 now I'm running 130- 150 range. My dr wants to see it closer to the 70 range…well I get the shakes and lightheaded sickish when it gets under 100 so what's right for me?
Also, I'm seeing a nurse practitioner - should I see a professional diabetic doctor?
I think it's just hitting me that this stuff isn't going away so I better start taking better care of myself and learn more about this disease or it looks like it could really be harmful to me. I was doing really good with weight loss, but now she's added Actos (and incresed it) and now all the weight I lost is back on - depressing to say the least. What can I do?
Thank you for any advice and/or help.

Still lost and confused,
Tina


63 replies

jimLE
jimLE 2013-02-17 08:17:03 -0600 Report

1st of all,welcome to the group.you can diffently learn from the others here..as for your numbers go,i think it might be a good idea to stay with 130- 150 range.at least for the time being anyhow..your body and your mind needs time to readjust..good luck to ya..

JSJB
JSJB 2013-02-17 07:08:59 -0600 Report

It takes time to get adjusted. Over a year for me and still have problems. Read other posts on this site and research will help you. Welcome to DC.

Jim Edwards
Jim Edwards 2013-02-13 10:04:41 -0600 Report

Welcome to the club! We are sad to see you here. The qualifications for joining are not the best. I will look over the replies after I give you this short one. For me, once I get into the low 80's I begin to become non-functional. Once I am in the 70's I am in trouble and my thoughts are mini-thoughts on what I need to do to correct the issue. You will find what is right for you. One time someone on here said they were good until in got into the 40's. Only you can determine what the lowest number you can go. Not your doctor. Until you determine that number carry some candy or food with you. I find if I am real low, 1/2 can of Coke will get me out of trouble within 15 minutes.

moon74
moon74 2013-02-13 08:19:10 -0600 Report

YES YES YES go see a Endo. and dont see the Nurse Pract. They have their place. But not in this situation. When my BS is 70, I am light headed and have a severe headache. 130- 150 is awesome . Still high but good. And no it isnt true if it taste good dont eat it. That is crazy. I felt the way you are feeling for the first few years of being diabetic. Actos is horrible. I gained 30 pounds in one month. Go see an Endo. Start doing the research yourself. Look into everything. And find out what people are saying about the meds. This is a tell tell sign.

Jim Edwards
Jim Edwards 2013-02-13 10:11:41 -0600 Report

I did see an Endo and found he was not much more informed than my doctor. I don't know it seems as if all doctors think they know what is best for each person. I say find a doctor that has diabetes. He or she will realize that you are not like the Type 2 that just left the office. Actos was horrendous for me. 50 pounds in the first year. finally realized the connection and told the doctor I was stopping it. Ask about the different meds you are on and you will find that some people are fine with it and others think it is horrendous. Remember, everyone, even you, are different. This site, your doctor and your own research are good sources. No one, except me, is infallible (I have to be, I am applying for the position of Pope!)

LKeplinger
LKeplinger 2010-07-21 08:35:05 -0500 Report

You should be ECSTATIC that your blood sugar is 130-150. GREAT JOB!!! The 70's is too low—-if your blood sugar drops to the 70's, you should be treating for a low blood sugar. Have you been given guidelines for treating a low blood sugar?? I'll bet your NP's/ Dr's own blood sugar is no where near that number!! Yes, you should have an endocrinologist on board. Yes you will experience symptoms of a low blood sugar when your blood sugar hovers around 100 because your body is accustomed to blood sugar much much higher. My question is…if your blood sugars were consistently (and I mean consistently) between 130-150, why on earth were you placed on Actos??

Jim Edwards
Jim Edwards 2013-02-13 10:13:49 -0600 Report

Amen to that! If my were that consistant I would be so happy I would dance naked on the hood of my truck, except I am embarrassed about the bruising from where I inject my insulin.

Auntie Donna
Auntie Donna 2010-07-17 14:43:08 -0500 Report

Thanks Tlitton,
You've no idea what your comment about Actos just did for me. I was up to 273 in May. I decided on my own (NOT A RECOMMENDATION!!!) to adjust my meds (not only for diabetes) because I was tatamount to a sleeping zombie. I'd say walking like the joke, but the joke was on me and I spent about 20 hours a day sleeping!! Actos was one of the meds I cancelled. When I returned to the dr in early July I was at 253 — yes, down 20 pounds. As I said I won't recommend this action to anyone - it can be quite dangerour!! But, my "professional diabetes doctor" had never thought to mention to me that the Actos could make me gain weight. As if I don't have enough on me now!!! Well, since I saw the dr, I started taking the Actos again because he threatened to put me on Insulin. I told him NO, but agreed to take the regimine he had set for me. Well, he'll just have to find something else to take the place of the Actos. You're right, that must be what is making my weight blow up even more. I won't do it! Thanks again!!!

carice
carice 2010-07-16 23:27:00 -0500 Report

All very good advice. Another good site to visit is dlife.com. Between the two you will get LOTS of support and information! Hang in there.

LISA-D
LISA-D 2010-07-11 02:23:11 -0500 Report

If you have insurance check to see if it pays for your to see a dietician. When I was diagnosed they didn't have this available but others that I know that have just recently been diagnosed have been sent to a dietician who can help you learn when to take your sugar, how to take it along with the proper nutrition. Unfortunately I have found that losing weight is much harder now. But what I know I learned on my own through trial and error but there are so many resources available now that you should be able to get your insurance involved they are willing to give you the information that you need because in the long run it will save them money.
Good luck and I hope that this information has been helpful!

Lakeland
Lakeland 2010-07-10 07:55:31 -0500 Report

I was at 550 when I got sent home & didn't know if I'd wake up in the morning & like you they didn't give me much training,

So here's what I learned that was really helpful. Go for "Whole grain" not whole wheat!!. try to get some items where the fiber is 4 or higher. These Items make your body work harder to break them down so it can't turn into blood sugar so quickly.

Some specific items that helped me was. Arnolds sandwich thins. whole grain. I eat them as toast, they taste like thin bagels. Fiber one bars for me are like a candy bar & my sugars do ok on them. I like the whole grain gold fish.

I was told to pick my carb first. If I want dessert then skip the bread. Then go for veggies & protein.

snacks for me are carrots, celery, diet jello.

Read labels for the carb count. I was surprised to see some childrens cerials were better for me than the so-called healthy ones. I cook breakfast for my self every day. and egg & light sausage links , for me I find breakfast is so much easier on my system than lunch. Lunch is so much bread & chips, it just doesn't work so I started getting things like quiche.

Do your best to take a daily walk, it really helped my numbers

At the beginning I think the carbohydrate number is the most important, As you get more comfortable, you'll start to add in what else is important. Don't forget the higher fiber on the carbs. & read lables for portion numbers, if you like to eat, I found my self picking wiser because I get to eat more if I choose one food over another food.

Good luck
Diane

salmanda
salmanda 2010-07-03 07:38:58 -0500 Report

Hi Tina,
Check with your doctor or local hospital to see if they have a diabetes education class. These classes are offered all over the country, and I found it very helpful when I was first diagnosed.
Good luck,
Sal :)

Stary777
Stary777 2010-07-02 17:44:16 -0500 Report

Eat many very small meals per day. I just graze on healthy foods. Yes i still feel hungry all the time and cheat alot but Im new at this too and with each others help, we can all get through this together. My weight is still climbing too.

keetoblessed
keetoblessed 2010-07-01 23:56:58 -0500 Report

Try to get a Phd Doctor and see an Endocronoligist. Also ask for a diabetic cook book. You may need to try and eat six small meals a day instead of three big meals.

sc1boy
sc1boy 2010-07-01 16:43:55 -0500 Report

Yu need to talk to them and tell them that the weight came back after you started the meds. Now on the food you just need to add the carbs up everytime you eat and figure out what you need to do from there. Any food that taste good is still good just try not to eat as much of it at a time. Hope this helps. you do need to see and Endocronoligist so find one and a diabetic educator along with a nutrionast and they can help you a lot.

Pumpkinpuss
Pumpkinpuss 2010-07-01 11:10:10 -0500 Report

Hey Tina, I know just how you feel, I went through a whole gamett of emotions when I was diagnosed. My attitude was, " What, diabetes, I don't have the time to be sick, I have to raise three boys, two of which were in their early teens, and one just starting school. I had just started college in order to get a better education to get the perfect job so I can support and save money along with my husband and work on accompllishing the American dream. You know!!!!, the house with the white pickett fence, saving for the kids college, and so on and so on. I didn't have any time for this thing called diabetes. But the worse of it all was that I was scared and confused as to what to do. Some doctors just write a script and tells you nothing else. So I took my medicine and gain more weight, although, I thought that the medicine would work miricales while I was eating the same way I was before I was told I was a diabretic. I would go to the clinic and everytime , the dose would increase, never was sent to a nutritionist to be educated about what was to be eaten or not eaten. Then two yrs later all hell broke lose, just as my career was well on it's way to where I would be finacially secure to start my American dream where I could along with my husband could start making plans to start the first phase of that dream, tragedy struck, my middle son was cought in a crossfire shooting. He died three times on the operating table, but he made it. They day I took my son out of the hospital and saw the shadow of a young healthy 16 yr old boy that he use to be, right there and then I knew I had to flee New York. I left everything behind, not giving it a second thought and with the help of a friend came to live to Cape Cod Massachusetts. through all of this my diabetes took to the back burner. I had to save my family. Well let me tell you everything that shines is not always gold, to put it mildly. 21 yrs ago this was and had always been a fishing village, therefore most of the doctors were for the gereatric community that most of them only lived here in the summer, and lived down in Florida in the winter, There was only one Endroconologist. By the way that's who you should be seeing along with your primery care doctor. This doctor closed his practice because he was getting too old to practicde. So I made beleive that I was ok, I had other more inportant things to do, like find a home for my family , we could not keep staying with my friend. I was homeless, and do you want to know the funny part of this? I was a Case Manager for the first transitional homeless shelter in the Nation before all of this happen, and here I was living in a shealter with my youngest son. Again I was not addressing my diabetes the way I needed to, for lack of funds and time. Written avaialable information was not so avaiable, as it is now. When I had the bus accident in 1997, I thought I was going to die. when I regained concioussness, realized that I needed totake better care of myself if wanted to be around for my kids and grandkids. I was fortunate enough to meet a great primery care doctor after the accident. I thank God everyday that she came into my life when she did. You see she was not only a conventional doctor she was also a holistic doctor. Although I've had my ups and more of downs that I care to mention , and the fact that my doctor looked at me as persion and treated as such. She helped to educate me about what diabetes is and what it can do to my body, has helped me so much to take care of myself. I had to accept that what I have is an incurreable desease, for my situation due to my state of health. Many people have been able to get rid of it by learning better eating habits, and have been able to have a good control of thier sugar counts. My advice is run, not walk , to see a Endroconaligist and a Nutritionist in conjuction, and don't be afraid to questions about any method your health providers are addministrating. If it dosen't feel right in your gutt, ask questions, Doctor's are human and they make lots of mistakes. They are working for you, not the other way around. Take a very active roll in your treatment, and PLEASE, PLEASE read all the information on the medicine documents that come with your medications. Thank you for allowing me to share with you a litte bit of my wisdom, we learn through trial and error. There's a lot of infomation on the internet about all kind of positive and addvers reactions to all of these medication. I couldn't take the medication you are on now , metformin because I was on the toilet all day long. Educate yourself. this medication has been black listed and yet the doctors still priscribe it, you know why ? It's all about thre money, doctors profit from giving these medication from the big monopoly the phamasutical companies give them. Stay in touch

Jeannie Holmes
Jeannie Holmes 2010-07-05 17:44:46 -0500 Report

Where did you see this was black listed?

Antique-Dave
Antique-Dave 2010-07-06 08:55:33 -0500 Report

If you are having trouble with met effects add more fiber to your diet, get a can of metamucil or related product, just make sure that it doesn't have added sugar or any carbs at all and do not take it at the same time as your medication, 2 hours before or after.

Met can be a great drug if you can tolerate it but as with all things diabetes related YMMV

LennyDenny
LennyDenny 2010-07-06 09:30:14 -0500 Report

I have been on metformin for quite a while now and have been told by my family dr, cardiologist and pulmonary dr that it's the right med. for me. I've had no problems right from the start. If your having problems I would suggest that you check with one of you dr's, you may need a slight adjustment. Either way it sounds like you've done a lot to take care of your family. Now take care of yourself.

hj1012
hj1012 2010-06-30 19:02:48 -0500 Report

Hi,Tina

Im newly, diagnosed and like you, everthing is confusing to me to as well. I recently lost 20 pounds and want to loose more weight. What is Actos. Right now I only tale Metformin 850mg twice a day and it seems to be working. I started out with 500mg twice daily. last week my doctor checked my glucometer readings and raised my doasage.

I am trying to cultivate healty breakfast into my diet. I never use to breakfast but the metrormin makes me hungry in the mornings.

Have you experienced that yet.

Pumpkinpuss
Pumpkinpuss 2010-07-01 11:18:47 -0500 Report

yes and it gives you ther runs,depleting you of very needed vitamins and minerals your body needs. Aslk your doctor to check your magnisium levels as well as you B12.

rayrivera2009
rayrivera2009 2010-06-30 16:58:07 -0500 Report

I hope you are reading the warnings on all of the medication before you take it. Also, not sure what types of food you eat, but whatever it is, try to add more fresh fruit and vegetables into your diet. They have a filling effect on your system without adding extra calories and sugar as opposed to "normal" foods. Helps cut down cravings and also helps with weight loss. Try to maintain glucose around 120-130. Keep up to date with the A1C numbers too. Good luck

Pumpkinpuss
Pumpkinpuss 2010-07-01 11:21:19 -0500 Report

You are so very right. Also cut out all these process foods, take time out to read labels . the first three ingredients are the most that are in there. It may sy healhy, but for whom.

Lymy
Lymy 2010-06-30 15:31:41 -0500 Report

Before I was diagnosed as type 2 I used to eat 1 good meal a day and ocassionally a little something around lunch. Once my MD got me started on oral meds she said I HAD to eat at least three meals a day. On my 2nd & 3rd follow-up visits I had lost a couple of pounds and felt pretty good. Not perfect but OK. Now she has been seeing my self test results she still tells me I must try to get the 3+ meals in everyday. I told her I am so uncomfortable, it felt as though I was being force fed. Today when I went for my routine check-up I had gained back everything that I had lost + some more. I just spent one day this week cleaning out my clothes closet and got 4 bags of clothes ready to go to Goodwill. Now I feel that I have to go through them all over again and save out a few of the larger sizes that I had put in the bags. I don't think I look good carrying this extra weight around. My feet and ankles are quite swollen and very painful as is the case with my wrists.

I know exactly where you are coming from. I wish I could wish a magic spell to make you feel better and get a better picture of what your body is telling you.

I thing you said that really concerned me, (I was a Licensed Nurse for 16 years), was the fact that your MD wants your BS level to be down around 70. Normal glucose is 65-110. 70 to me is just too low. I know I didn't go to medical school, but I think I would be looking for a 2nd or even 3rd opimion on that.

Hoping that your days will be much brighter sooner and permanently
Regards,
Lymy

Antique-Dave
Antique-Dave 2010-07-06 09:02:47 -0500 Report

You need to find out what is the best for you, trying to maintain 70 would for me be too much to do and would in my opinion greatly reduce quality of life with the additional stress, effort, and lack of choices of food. If I can keep my A1C below 6.0 I'm happy as a clam.

I tend to graze through the day after breakfast and we eat a later dinner, it works for me now.

Swbtab03
Swbtab03 2010-06-30 08:26:02 -0500 Report

Tina I am with you, very confusing all around, right here this website is by far my greatest resource, just going by other peoples success's and failures I have learned so much and changed so much. I also just bought and read half of it already and it was posted here about a week ago, Overcoming Runaway Blood Sugar by Dennis Pollock. This will give you some great insight, and I just bought it 2 days ago. Great tips and things you can do.
Good Luck, and right here these great folks on Diabetic Connect is the best of resources.

theladyiscrazy
theladyiscrazy 2010-06-29 15:23:00 -0500 Report

First, I would recommend a better group of doctors. Ones that are trained to deal with diabetes.

My doc was ecstatic that my numbers dropped from 10.9 to 7 (A1C). That is about over 300 normal readings to around 180 readings. Doc does want me lower but wants to also give me time to continue to work on diet and for the meds. PLus the body has to adjust.

You feel shaky under 100 because your body does not like being there since it was use to so much higher. Give it time is what I was told.

Now you have to track everything you eat. Increase your protein, decrease carbs. I don't eat more than 45 carbs at a meal and try and keep it lower than 30 (sometimes even lower). Even at 45, my numbers can spike over 200. So, it is a trial to see what I react to and what I don't.

Now the comment of if it tastes good don't eat it, I am not sure why. I have had several things that taste great. There is a recipe section on here as well. Check it out. There are some great ideas. Get a few cookbooks as well.

For pasta, try the dreamfield or whole wheat. The dreamfield is 5 net carbs for a serving.

I too still have a lot of questions. Post them on here and you can get some great help and advise.

holomage
holomage 2010-06-29 09:42:17 -0500 Report

Tina Been where you are right now. I have seen a PA for the last 6 or 7 yrs and we do just fine. When they found mine I had no clue either. I also get loopy if mine gets under 100. Yours will come down over time. Portion control is a big thing. I was seeing a naturepath at the time. Tried the ADA diet and could not use it. TOO much bread. If you do diet soda or any soda get off of them. The extra weight will go as you get to feeling better. Stress will also make your levels crazy.Try to take things one day at a time or you will drive yourself nuts. Sugar free products have come a long way. If you need a treat try to find some russell stover sugar free candy.Try cottage chesse instead of a bake potatoe. A baked sweet potatoe with real butter and cinnomin is also good. Easy on the bread and pasta. If you need bread try a sprouted grain bread. Try pasta made from vegtables. Spinach pasta is good. Whole wheat is also ok. The big thing is no white flour or refined sugar. Hang in there!!!! Diana

fish17
fish17 2010-06-28 22:33:25 -0500 Report

I'd say Soldiers Wife has it under control! My problem is I haven;r got 27 lbs to spare! I typically weigh about 150-152
in the am and am thin as it is. I ask the group, how can you
limit yourself to 45 carbs oer meal? Seems like everything I
put in my mouth is a carb! She must be Wonder Woman.
Or she has the will power of a Saint. How about some help for us mere mortals?

cubbyone
cubbyone 2010-06-28 17:13:24 -0500 Report

Tina,
I had the same problem. Here is what I did. I started walking everyday, twice or three times a day for approximately 30 minutes at a time. In doing so I lost 40 pounds in 3 months. I watched what I ate but I did eat. My blood sugar which used to run around 450 - 500 constantly dropped to 80 - 145. My a1c went from 12.5 to 6.9 I was removed from all of my insulin and now use Januvia and Actos. I control everything with exercise. When I exercise my sugar will usually drop about 30-40 points each time. When my sugar got below 100 I would get shaky, until I got used to that level. Now when my sugar get to around 80 I start to feel weak and get shaky. Never let the sugar get so low that you start to shake and sweat and get weak. Always carry some type sugar with you just in case. You can beat this it just takes time, courage and motivation. As far as a medical practitioner I see an Endocrinologist. He does have a nurse practitioner with him but he always see's me. Nothing wrong with a nurse practitioner as long as he/she is trained in endocrinology. Hope this helps and good luck…
Steve

Anonymous
Anonymous 2010-06-27 15:09:09 -0500 Report

hi all I just found out I have diabetes and i only found this out from gettint per op work downe to have surgery i have type 2 but my level never has been under 243 thats the lowest up to 558 going to c a

Dusty Beaver
Dusty Beaver 2010-06-27 14:02:29 -0500 Report

Just to let you know after over 20 years it is still confusing. Like you they are always trying out new drugs and insulins because the body is always changing.

As for food. I hate veggies period. So, yes I try to eat salads etc. But I eat too much, use to much dressing etc. It dosn't help to have a partner that is always offering cookies, cakes, breads and chocolate. When you are raised on these things and not on veggies it makes it really hard. Try and find recipies for dinner that don't have veggies! And with no real help try and cut back on the amounts you eat.

Find a diabetic friend near to you and sit down with them and discuss your conserns. Your educator might and might not be able to help. Your doctor usually will give you 10 to 15 minutes on the very high side and they are not ususally a diabetic and really don't understand what you see as a problem. Always write down your questons and always take you meter with you.

Good Luck
Chuck

Anonymous
Anonymous 2010-06-27 13:48:16 -0500 Report

Welcome to insanity! Have had type 2 for about 10 years and there are times that I am Totally confused. I have also had 2 strokes and 2 heart attacks and am on Cumidin. Not allowed to eat any green leaffey veg. So that doesn't leave me much to eat but I am told to loose weight. Wish it was that easy.

Daskylinegal
Daskylinegal 2010-06-27 11:24:11 -0500 Report

Good Morning!
Please take good care of your health, I am a type1 diabetic, brittle diabetic & on the insulin pump.
I believe they increase your medications, your A1C lab results perhaps are high. Living with Diabetes is not easy except it is very important to try to keep our sugar readings at the level they believe is considered managed.
You are in my prayers. Please remember to always ask your doctor questions.
God Speed~~

gregsteele
gregsteele 2010-06-27 09:44:17 -0500 Report

Youve already been given some great advice so all im going to do is reenforce whats already been said ,count your carbs telling you if it tastes good dont it it is way off base you need a new dr. my carb load is 65 grams per meal ,also find a certified diabetic educator my sugars have been down to 24 so i know that feeling when i first got out of hosp. anything below 130 was miserable now if i keep it at 80 -120 i feel good ,im t1 so im a little different but theD is the D follow everyones advice we are all a little different but the concept is the same good luck love to all GREG

dogsrmybuds
dogsrmybuds 2010-06-27 00:30:43 -0500 Report

Hi Tina,
I am recently diagnosed with diabetes 2. My doc handed me a prescription and was going to print out a diet sheet. When I got home the diet sheet was not there. I went to a book store and found a book on diabetes and food. It lists how many calories, fat, cholesterol, sugar and other info for each food. The book also has fast food items and how many calories those types of foods have. I also go a book just on diabetes. It was hard to choose a book because there were so many on diabetes. I think a visit to the library or a book store might be a good idea. I'm new to this website but I plan on reading as much as I can absorb to educate myself about diabetes 2.

sherinek
sherinek 2010-06-26 23:21:26 -0500 Report

I am sorry to see how confused you are. My husband has type 2 since 2002 and I have been taking care of him since. What I feel is, you must go to a professional doctor cos diabetes is not something to toy with. I dont see why you have to bring down your sugar levels to 70, but its not my place to judge. You MUST see a professional doctor. Dont feel depressed. Cheer up. You are just having a condition that you can easily control, with a little help and monitoring. Good luck to you and take care.

soldierswife
soldierswife 2010-06-26 16:31:45 -0500 Report

80 is as low as you should want it. people who are not diabetic run from 80-105. even when they eat cake candy and ice cream theirs stays below 120 most of the time. i can get in the 50's and not shake or have any symptoms. mine is always below the 140 within 2 hours of eating. most times it is back to the 90's never more than 120. i wonder sometimes if A1c's are as acurate as they say because mine went from 6.5 to 5.4 in less than a month.

RC Hodge
RC Hodge 2010-06-26 15:39:11 -0500 Report

Well I must admit that I get the same way when my levels go below 100 but I also must admit that the more I see them go below 100 the easier they are to manage, I mean the symptoms of low sugar that is. It does get easier to manage as time goes by. but you need to realize that low sugars are going to feel ALIEN to you if all you're use to is HIGH sugars, ya know what I mean?

Siddhartha
Siddhartha 2010-06-26 04:49:52 -0500 Report

tina…glad you're hear. i think we have all been where you are. i find that keeping my goals doable and one at a time helps. this is a MAJOR life change. this forum board helps me keep my disease in perspective.

peace

Katsarecool
Katsarecool 2010-06-26 04:16:30 -0500 Report

Hi Tina:
I was recently diagnosed too; like less than a month ago so I understand too how overwhelming this can be. That being said, I found that a program at the local hospital for diabetics was the best thing in the world. It was a one on one meeting with the dietician and she has proved to be more helpful and informative than any of my health care providers. Pharmacists are great for this as well.

Good luck to you!

Nancy Ann

DonnaAnn
DonnaAnn 2010-06-26 01:27:21 -0500 Report

Hello and welcome Tina.

well, trust me…you are not the only one with questions by any means! I have been a diabetic (T2) now for 15 years, and I still do not have a complete grip on the handle. Some times that handle slips out of my hands. So, I pick it back up and try again ! A woman once said, STOP THE MADNESS ! I had to do that. And what I did was read everything I could. Well, heck, if its in a article, it must be true ! aaaaa…not so. Anyone can write a article. Anything you read, pass by your doctor. Even stuff others tell you, pass by your doctor. Everyone is different. This site is wonderful. It has helped me a lot. Good discussions and topics. Good ideas. Concrete things I can bring back to my doctor and talk about. She was so amazed at my questions. I have found that finding a good diabetic nurse/dietician can help too.

Ashhyatt
Ashhyatt 2010-06-24 21:58:16 -0500 Report

I wanted to post and say that I understand that it is very overwhleming after u find out that you have type 2 diabetes. I have now been living with it for 2 years and every day I'm finding this that raise my sugar. If you r not happy with your doctor I would go and see a professional diabetic doctor. With your sugar range I would feel lightheaded until I was down around 100 for awhile.

kap1558
kap1558 2010-06-24 21:07:14 -0500 Report

I agree that you should seek a professional diabetic doctor. You may not need the meds, just loss the extra weight.

Joyceannmarie
Joyceannmarie 2010-06-24 19:32:37 -0500 Report

I just moved from one town to the other only to find that there aren't many doctors that will take my insurance. I have type 1 diabetes and I also have diabetic neuropathy. When my blood sugar gets below 100 I begin to shake also. Sometimes I wake up at night shaking and I have to get to some sugar fast. Most of the time since I have moved, my blood sugars have been 170 - 200 and my previous doctor wants , my blood sugars to be in the range of 125 - 130. But I feel fine also. I don't really know what causes my sugars to elevate. I do know that stress is a big part of my problem, but I try not to stress myself out.

starlight77
starlight77 2010-06-24 19:22:40 -0500 Report

It doesn't always get any clearer. I've found that the doctors I've seen are very unsure, unclear and the usual answer when asked about which foods, etc. was "eat anything you want". Well, you and I both know that that doesn't help at all. There's also another site: pcrm which is excellent and does tell you exactly what's ok and what's not. that, and dean ornish have been excellent help in this "journey". Everyone will tell you portion size, but I've never been great at measuring out a fistful of anything, exp. if I'm hungry, so I try to stick to what won't raise my sugar up. (i.e. any/most things 'animal' in product, anything white, like rice and white bread, etc. and any sodas, juices are really out. water is in. But: when I forget to eat I don't lose weight, and my sugar levels actually rise. Who knows, it's one day at a time. YOur doctor might be key.

Diane987
Diane987 2010-06-24 15:52:14 -0500 Report

It hasn't been that long since your blood sugar was very high. I have a family full of diabetics and everyone's comfort level is different. Basically, the higher the persons blood sugar runs the higher the comfortable low number is. Right now 100 is your level, next month it might be 90, three months from now it might be 75. I have to get in the 60s before I start feeling even slightly shaky. Everyone is different, but I think the point is she wants you to get closer to that 70 area. Getting you numbers down just a little bit more gets you into the normal non-diabetic range and makes it less likely you will suffer from all of the complications of diabetes.

As for whether you should see a nurse practitioner or a doctor. My most favorite and helpful medical professional was my nurse practitioner. Unfortunately, she moved to Florida and it's a bit too far from New Jersey to go for an appointment. Maybe you just need to talk to her and ask why she increased your Actos. Explain that you feel lost and think you need a diabetes education class or something. Perhaps she doesn't realize how confused you are. If you have tried to discuss these things with her and she is not offering any solutions, I would consider finding a new person to help manage your diabetes. But honestly, aside from the not so helpful answers, it seems like she is doing a pretty good job and so are you. It takes some people years to get to where you are now so lighten up on yourself and her. To me it looks like you are just a couple of tweeks away from great diabetes management.

You can lose weight while taking Actos. I have lost 25 lbs in the last 2 months and I take Actos. I eat three meals a day and two snacks. I am on the diabetes management plan on ediets.com. All I can say is when I follow the plan I lose weight. When I don't follow their plan, I don't lose weight. I know there is a lot of free information about dieting out there but nothing worked for me until I found ediets.

Good luck and God Bless,

Diane

Tlitton
Tlitton 2010-06-25 09:18:04 -0500 Report

Thank you so much Diane. I really do like my practitioner and she is helpful…sometimes I just think I'm not getting what she is saying. I had my blood work done this week and she was very pleased with the results. Maybe things are starting to fall into line. I'm going to check out the ediets site. My weight has ALWAYS been an issue for me - ever since I've had my kids. You're right, I do need to get that into control. I go back to see her again on Tuesday - I'm going to talk to her like you said. She is a very nice lady and I do like her alot - she is very good. I just get side tracked by all the "outside" comments I hear…then I start being a "doubting Thomas"…lol

I hope we can keep in touch. You seem very knowledgable about this. Thank you so much for your advice.

God Bless,
Tina

Diane987
Diane987 2010-06-25 14:18:30 -0500 Report

My knowledge comes from too many years of being overweight and diabetic. I would love to keep in touch. You might check with your insurance provider, I know mine (Aetna) had a 30% discount for ediets. My user name is the same over there so feel free to contact me anywhere.

LauraS
LauraS 2010-06-24 11:23:20 -0500 Report

I'm also new to type 2, formally diagnosed May 20th. I agree with Emma, you should change doctors. Maybe you need to see an Endocrinologist who specializes in diabetes. Educating yourself helps a lot too. I'm overwhelmed with meds and feelings of depression and unhappy that I can't eat what I want anymore too but I'm losing weight cause I'm eating better and my food still tastes very good. "If it tastes good don't eat it" is a terrible thing to hear from a healthcare provider, find someone new right away and you'll feel a lot better.

Pfc
Pfc 2010-06-24 10:09:27 -0500 Report

This a great question and I hope that you find the info on this site (pro and patient) helps. I am surprised that your primary Nurse Prac. didnot direct you to a diabetic educator and dietary instruction right of the bat. I love my RNC , she looks at everything going on with you ,not like a Primary Doc who 'just treats a problem" You have to open your mouth and speak, write down question for your visit. Good luck and don't feel that you are asking a dumb question. I have said it before"there are no dumb question, only dumb people who don't ask"

monkeymama
monkeymama 2010-06-21 18:29:19 -0500 Report

Hello there Tina! I have been a type 2 for over 6 years and there is not such thing as not being able to have good tasting food. You can enjoy great tasting low carb foods. I had my points where I was feeling the same way. In the past few months, I have realized there is a way I can have my cake and eat it too and not have high BG (figure of speech). It can be hard but we can do it. Hang in there and I hope all gets better and you find the path to great and tasty (and carb friendly) foods. If you ever need some great ideas, I would be more than willing to give you some GREAT low carb and BG friendly recipes and food ideas. If the nurse practitioner feels you should move on to a Endocrinologist, he/she will let you know.

alanbossman
alanbossman 2010-06-21 17:18:39 -0500 Report

Sometimes when your body is used to higher BS numbers and you go lower you will get the shakes your body needs to adjust to the lower BS numbers between 80 and 120. the shakes will go away once your body adjusts. at 70 you will shake 70 in somepeople is to low some not.

sherid623
sherid623 2010-06-26 20:31:32 -0500 Report

Thanks that is what I was going to say! ;) Alot this diabetes World is all about Trial and error and then you find out what makes your BS #'s to spike!

Emma2412
Emma2412 2010-06-21 16:58:11 -0500 Report

Hi, Tina
Welcome to DC and the world of the big D.
I first just would like to point you to Amy Tenderich's columns, blogs and advice here on DC. She's great and has some great "beginner" advice.
Next, I'm wondering about your doctor. I think I'd change doctors because if he wants you to go to 70 and you get the shakes under 100, then 70 is definitely not the right thing for you.
You can switch doctors, you know. There are a lot of doctors out there who don't know anything about diabetes. They think they do, but uh-uh. It's your body. You decide. You're the one who has to happy. If you can go to a diabetes educator and nutritionist that would be great, too, or at least a diabetes class at a local hospital.
Read everything on this site, not just the posts from members. There is some great professional advice here.
Remember, however, that each person is different. What's good for me won't always be good for you. So, don't let a doctor put you in a category.
Also, the only other advice I have for you is to read, read and read some more about diabetes and how to take care of yourself.
Good luck.

soldierswife
soldierswife 2010-06-21 16:19:17 -0500 Report

your sugar should not be 70. Below 80 is low. 80-105 is a good level. It should be below 140 within 2 hours of eating your meal. I am on a 45 carb per meal diet. I have lost 27 pounds in just over a month and have lowered my A1C to 5.3 from 6.5
I went from diabetic to just under pre diabetic on that plan. So far its working and I am on no medicines! Your number should be below 120 when waking up in the morning.

sherid623
sherid623 2010-06-26 20:35:06 -0500 Report

I was wondering what other peoples carb loads were, thank for answering it even tho you did not know! Right now I am trying out #58 seems a little high to me! How tall are you? Just comparing… I dropped from #185 to 135 in the last 6 months because of some bad insulin and a trip to the Hospital in a Coma!

poley
poley 2010-07-05 15:36:52 -0500 Report

Tina, Everybody doesn't react the same so you really just have to test a lot at the beginning to find out what works for you. If I had 45 carbs per meal, my bs would be 180 or higher 2 hours after a meal. I try not to go over 60 carbs in a day. My endocrinologist
is happy with 160 two hours after a meal. There is a lot of good advice on this site but what it comes down to is your own testing and a good diabetic Drs. advice. Start walking or any other kind of exercise that will get your heart pumping on a daily basis and you will be amazed at the difference that makes in your numbers. Sounds to me like you have done amazingly well in a very short time. There is a paperback book called "Diabetes for Dummies". I found it at Wal-Mart I think and it is written in a way that anyone can understand. It is full of good advice and even has it's humorous moments. Give it a try. Good Luck.

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