so freaking frustrating

By bhyson1204 Latest Reply 2014-05-23 08:38:27 -0500
Started 2010-06-09 11:48:57 -0500

Ok so im a type 1 diabetic. I need insulin all the time no matter what. So y is it that when i try to get a prescription filled they act like im trying to get narcotics. I need insulin to live and they are telling me i cant have it untill the insurance company says i can. why does it seem like the people that work there are all idiots! I cant afford to pay out of pocket for my medicine and the insurance acts like i can do without it. How am i supposed to take care of my family when i cant take care of my self. Im at the end of my pregnancy and i have been doing really great with everything but now its like i cant even get my insulin to keep it that way. Im trying to stay calm and figure out what to do because stress is really not good but at the same time i wish i could find the people that r telling me no i cant have insulin and slap some sense into them. just needed to vent off some frustration so thanks for listening.

33 replies

maryh514 2014-05-23 08:38:27 -0500 Report

I was able to get help for my insulin through a company called Prescription Assistance 123. The name of the patient advocate that assisted me was Mark Brown. I am on insulin (lantus and Humalog) He signed me up for the patient assistance program through the manufacture and it was a really simple process. I receive my medications in the mail every three months. I would recommend him and this company to anyone. His number is (888) 507-9123 or his direct number is (561) 288-9044
Thanks Mark and good luck to everyone!

BondedbyBetis 2010-06-23 14:38:48 -0500 Report

I have that problem each time i got to buy syringes from the pharmacy! its a million and one different looks and questions! i wanna say "do i look like I'm going to go do drugs in a alley?" but i keep my cool! insurance companies don't have enough info to properly serve our community in my opinion! My insurance wont let me refill for a entire 30 days even if I'm out! crazy!

AngeLsLuv 2010-06-23 01:26:48 -0500 Report

I know what you are going through.. Sounds like Rite Aid… First you need to get your doctor to write out the perscriptions so that you have plenty of extra insulin.. Like if you use one bottle a month, get your doctor to perscribe 2 bottles a month (case in point- I have ran into insulin bottles that are defective).. Also Don't let your doctor write on the perscription that you test your blood sugars how many times.. For instance- Say you test your blood sugar 4 times a day the drug store will give you only enough sticks for 4 times a day since they are all idiots and don't understand that you can have reactions or high blood sugars causing you to have to test more than the 4 times a day… Make sure you get your doctor to write double the amount daily than the average amount to compensate for the high's and lows..

skalvinek 2010-06-20 18:05:02 -0500 Report

I hear you. I am also a type 1 diabetic without insurance. Supposed to be on pump but I ran out of money for suplies I am disabled so I cant work to get insurance and not disabled 2 full years yet so Medicare wont help. And ohh yea I make like $10 over the minimun on ssdi so no help from state. So I hear ya

Crashnot 2010-06-19 15:04:32 -0500 Report

I was gobsmacked when I visited my folks in the states last summer and, thanks to some rushed packing, realized I needed more insulin.

Ran to Target and they wouldn't sell me any. I need a prescription???

I moved to Canada in 2003, and I'm pretty sure I didn't need prescriptions in the states at that time. But I always bought from the same pharmacy that was linked in to my insurance company, so maybe I did have a prescription.

Canada not only sells over the counter, no questions asked, the price is HALF what it is in the states. I was flabbergasted.

Luckily, I could buy Humalin R with no prescription, and it was similar enough to my Humalog (at the time) that the switch was trouble-free.

No idea what I would have done as it was a Friday night when I ran out, and wouldn't have been able to track down a local doctor for a prescription until Monday. Yikes! ER I guess. Scary wake-up call for me!

Also, I wonder if part of the reason insulin is by prescription now is because it IS abused as a steroid by weight-lifters. No idea how they use it, to lose weight or something? But if you Google "steroid insulin use" you'll get tons of body-building sites and blogs on how they use insulin to get ready for competition.

Lisa, Ontario

ReinaB910 2010-06-19 18:58:12 -0500 Report

I am a nurse practitioner. As long as I have been in the medical field, insulin has been a prescription. The reason that it is a prescription is that it must be given under medical supervision due to the potential for harm if taken in the wrong dose. If you take too much it can kill you.

Sally Thomas
Sally Thomas 2010-06-17 15:17:31 -0500 Report

It is truly ridiculous how true your statement is. They do act as if we are trying to get away with some sort of illegal drug. I don't get it! It's not as if you can "get high" from taking insulin. It is incredibly frustrating! Thank goodness my husband is the pharmacy buyer for the regional medical center here and I get my insulin through the pharmacy there. And I'm blessed because one of the pharmacists is a diabetic too.

Daskylinegal 2010-06-17 13:16:37 -0500 Report

Sad, you should be able to get your insulin, this makes no sense & companies who decline it should be ashamed, if we don't have our insulin this would be our life.
You will be in my prayers!
I remember when I had no insurance coverage, I had to go to the clinics that went by your income, thank god that I was able to get my medication.
You mentioned your a type1 diabetic, I am too, I thank god that they placed me on the insulin pump, no more taking 7-8 shots a day!
God Speed~~

TanyaG 2010-06-15 17:29:50 -0500 Report

I have come across this problem with my son and his asthma. He is on medicaid, and the Big Wigs sitting behind a desk looking at some papers decided that he did not need a certain medication anymore. The doctor called and faxed in requests with additional medical records, but they still said no. I don't understand how you can have people who can scam into all the narcotics they want when all they want to do is get high, but the people who need it have to fight for it.

bhyson1204 2010-06-13 14:39:59 -0500 Report

thanks so much to everyone for trying to help. I think i got it straightened out now tho. the drs office sends prescriptions via e-satelite or something like that and the rite aid and cvs are recieving them rite. I went to my drs office and got a paper prescription and now all should be ok. i double checked everything on the prescription to make sure i wouldnt have this problem no more so hopefully it stays straight. Sometimes i think it would be better if i could everyones job for them so i dont have all the confusion lol.

sc1boy 2010-06-12 11:12:03 -0500 Report

I know what you mean I didn't have any coverage for about a year or two and had to buy out of pocket and it was very hard. I finally got coverage and then the doc told me to go for a pump and it has worked very well. The company I use is minimed. They have a site it is I can down load my pump to my computer and they educator can look at my readings and we can see what needs to be done. So that is a thought and you get all the supplies for a month.

bhyson1204 2010-06-13 11:20:08 -0500 Report

i am on the pump and i use minimed too but its just the insulin i have to get filled at a pharmacy but thank u

Gina_sunshine 2010-06-12 09:20:18 -0500 Report

I ran out of insulin and had forgotten to re order (I do mail order so I can't just go pick it up at a pharmacy). I called my endo and explained what was going on and just asked if they had any sample bottles of novolog in the office that I could have. I have done that before.

Justin Cowden
Justin Cowden 2010-06-10 20:11:08 -0500 Report

Dont even get me started on this girl! I am approved for the insulin, but limited in my coverage of the needles that get the insulin into my body!!! I looked at the pharmacist and was like are you kidding? Its ridiculous!

bhyson1204 2010-06-10 22:03:01 -0500 Report

it wouldnt be so bad if the supplies we needed was cheaper but when you have bills and a family and you are paying for insurance that is saying "no you cant have it" it is like then what am i giving you my money for. you know? honestly i think if we did a uniform insurance thing like canada has (where the taxes pay for everyones insurance) wouldnt be a bad idea. Then it wouldnt be so hard on one person . Maybe diabetics should start an awareness thing for the government. lol maybe they would listen but probably not right

monkeymama 2010-06-09 21:29:01 -0500 Report

Hello there! Here's a little tip that might help you out in this. You might try to see if your doctors office can call the insurance company and find out what is going on and let them explain to them the whole insulin issue. I've had to have my doctors office call on my insulin and pump supplies when they thought they were going to screw around. After my doctors office called my insurance company, never had another issue with the either issue (knock on wood). My heart goes out to you and your unborn little one. Hugs to you!

Harlen 2010-06-09 19:01:17 -0500 Report

If I was in your place what I would do is let my BS go up a bit sey 180 to 190 and go to the ER then the ins comp will sey why didnt you take your insulin and you tell them your out ?
Hope this helps
You can ask your doc for more insulin? a scrip0 for more.
Best wishes

Debi59 2010-06-17 20:30:04 -0500 Report

I don't think it's right to advise someone to do something deceitful.

If it was me, I would contact my doctor. If you are running out of insulin, it sounds like your doctor needs to update your prescription. The prescription should reflect your needs for a month, or whatever period your insurance says. I use my insurance's "by mail" option, so I can get 3 months' worth for the price of two months. Check it out.

bhyson1204 2010-06-09 18:34:43 -0500 Report

ok so i had to pay $107 for 1 bottle of novolog tomorrow its back on the phone with my insurance company and my dr. i had to try a new pharmacy and thank goodness for rite aid they did so much to help me snd told me exactly what to do. so we will see if it works hope it does.

GabbyPA 2010-06-09 19:52:33 -0500 Report

What a messy story! People don't understand that it is not like you can just hold your breath or something. Good Grief! I hope that this last effort works out for you. You do have to be your own advocate and keep making the noise until you get heard.

StevenColleen 2010-06-15 00:47:00 -0500 Report

I've got a solution for you that may work my girlfriend and I had a previous situation same as yourself. About a year ago I had my girlfriend Colleen move with me from Pennsylvania to Alabama and she had to cancel her insurance up there and we didn't have no money no insurance. most states have non profit organizations that help out with people who dont have insurance and u can get test strips and insulin and syringes everything u might need. all u have to do is they send u to a doctorthey pay for everything almost u might pay like 30 bucks They:churches,nonprofit organizations,
and sometimes the medicine company's themselves. we got 6 months worth of Levamier from the company itself(that's designed to be taken at night to leep the glucose in control while u are asleep) and Humalogue they gave 6 months worth for free and it helped us long anough to get the insurance situation taken care of. It's just a suggestion for you and your family. We went rhough all of this and we are doing better now I hope this helps you or opens some doors up. Hang in there. Colleen has type 1 she is 23 and also has diabetic neuropathy if anyone has any suggestions to reduce pain in anyway without using prescriptions please email me through this site. Thankyou

bhyson1204 2010-06-15 11:08:01 -0500 Report

thanks for the tip. my grandfather had neuropothy and he had to have parts amputated. the only thing i can think of is maybe giving her mesages regularly to keep blood circulating. ive been lucky enough not to have to worry about neuropothy yet so i really dont know but try it and if it helps then its just some extra work for you but it doesnt cost anything and it really shows how much you care. i know from my boyfriend rubbing my feet and legs when i worked all day and now that im pregnant and my feet stay swollen sometimes the only thing you can do it try to relieve the pressure with mesages. I hope it helps her out you will have to let me know if it works.

Kim-islet transplant
Kim-islet transplant 2010-06-09 18:08:59 -0500 Report

That is horrible. Keep going higher up the management levels at the insurance company. Send them letters in writing detailing what not having insulin can do to your health - better yet have your Dr. write the letter. The insurance company should be made aware of the health issues this can cause you and your unborn child. If they still won't budge, talk to a good attorney.

kdroberts 2010-06-09 12:53:59 -0500 Report

It's all about the prescription. Get your doctor to change the prescription so you can get more insulin. What type of insulin do you take? It's usually pretty simple for a doctor to write a prescription give you enough plus extra in case of emergency.

bhyson1204 2010-06-09 15:58:19 -0500 Report

thats what this prescription was for but they wont let me fill it untill the 11th and im completely out. i have had this problem over and over again and my doctor is upset because he has tried to make thhe prescription for extra but the pharmacy says that it should lasts longer than what he says and now the insurance company wont fill it cuz i just had one filled 5 days ago

John Crowley
John Crowley 2010-06-09 16:51:28 -0500 Report

You are really in a tough spot. We've run into the "you can't fill that prescription yet because you should still have enough" problem with our insurance too. In one case, we just had to pay the full cost out of our own pocket to get us by.

If you can get a sample or something from the doctor's office to get you through to the 11th, hopefully then you can get the new prescription filled and avoid this problem in the future.

gregsteele 2010-06-12 05:22:58 -0500 Report

You might try to ask your cde if you dont have one just find one and explain many times they have samples and will give to those in need ive been chasing this problem to try and help others thank GOD my ins . covers most of my costs i get everything ineed for a mo. two types of insulin ,needles ,strips,lancets all of it for $58.00 a mo. good luck keep on the ins. comp. love to all GREG

kdroberts 2010-06-09 19:01:29 -0500 Report

If your prescription isn't like this, ask your doctor to write one that says X number of units for each gram of carb and then however many vials you think you need. That way the pharmacy can put through pretty much as many vials per prescription as needed and avoid the denial if you have a prescription for a set number of units a set number of times a day.

The one question I have is why do you need one so soon? If the insulin was bad or the vial broke or it got too hot/cold then there are procedures for the pharmacy to cancel that prescription out and the insurance company will payout for a replacement, or the manufacturer may overnight you some if you call them.

Emma2412 2010-06-09 12:03:40 -0500 Report

Feel better? Did you call your insurance company? That's what I would do if I were having trouble filling a prescription and if a pharmacy was giving me the run-around.

bhyson1204 2010-06-09 12:15:17 -0500 Report

i tried to get an override so i could get it but they wouldnt budge

meejuju 2010-06-12 01:29:16 -0500 Report

W here do you live i will send you a bottle then ask your dr. to wright prescription for 1 bottle more a month or for 3 months at a time and alway keep extra on hand. some days you will need more and other day not so much depending on what you eat or if y0our sick I get my insulin 3 months at a time this will help with the copay get your dr. to help you they get insulin from the drug comp. aslo call the the number on your box tell them what is going on and you will get a call from someone and they will bring it out to you. I went threw this when i was realy poor with no insurance and they helped me get all my supplys for my punp and my insulin. If it get to bad go to your local rescue mission on the days they have the health clinic and they will be more than happy to help. They are great my mom runs one of the clinics in utah. email me i will get one out to you. small

packrat2 2010-06-13 14:19:25 -0500 Report

meejuju..has the right idea, try and get a bottle put away for back-up…
and keep a little more on hand than you use…insurance and doc. need not
to know how much you have on hand…regards packrat2