I'm scared

By KitKatt93 Latest Reply 2010-06-23 11:11:43 -0500
Started 2010-06-02 01:27:31 -0500

Hello, those who don't know my situation well I have a one year old sister, Kylie and I have been struggling to take care of her the best that I can and I have been doing the best that I know how and going to doctors and researching juvenile diabetes and everything that pertains to it but she got sick and I failed her.
I needed a break even though I didn't want to leave my sister but my aunt said that it would be good for me to stay with her for a few days before summer when I am taking care of Kylie 24/7. So I stayed with my aunt for four days and I was even excited about having a few days to do whatever I wanted to do and sleep late and go out with my friends and my boyfriend. I was being selfish because the day before I left Kylie's blood sugars started to spike occasionally and I called the doctor and he said to use a chart and give her a little extra medicine and keep a close eye on her sugars. I told my mom, she said she had days off and would be home with her but she just said that to make me feel better about leaving. She hired a babysitter at nighttime even though Kylie was sick and running a temperature of 100 and her blood sugars were spontaneously spiking. Kylies blood sugar went up in the 400's when my mom took her to the hospital. Kylie was dehydrated and had to have and iv and was even admitted to the hospital and my mom didn't tell me. My grandma called my aunt and she told me. She had ketones and was diagnosed with something called DCA, I think, meaning her diabetes got real bad.

I want to take my sister and run away. I'm scared for her that I will get her sick again. I'm scared that I won't be able to take care of her and keep her healthy.
Her doctor treated Kylie when she was in the hospital and when I came to see her he was in the room. He asked me questions like if she was throwing up before coming to the hospital and I told him I didn't know that my mom would know and he said that she said she didn't think she threw up but was not with her because she had to work. He asked where I was and I didn't know what to say. I lied and told him that my aunt needed my help because I didn't want to say that I was escaping a few days at my aunts. The doctor told me she could have gone into a coma if it got worse.
I hate my myself for this and I hate my mom for not taking care of Kylie.


54 replies

Jerry_Abrams 2010-06-23 02:17:46 -0500 Report

Hey Katt, long time no see, lol. First off, you should, on no way, feel selfish for taking a couple days for yourself. This is your baby sister, not your own child. I know that you are the one that takes care of her the most, but in the end, it is not your responsibility sweetie.

Granted, you make me feel honored to be your friend just by taking the initiative to step up and care for her. However, this is your mother's child, it should be her responsibility to care for her diabetic child. It aggravates me to no end when parents will not raise their children but expect everyone else to do it for them.

I am glad that you were able to talk to your dad about the situation and I pray that things will be better for you and Kylie in the future. You will both be in my prayers. Take care and keep in touch!

KitKatt93 2010-06-23 11:11:43 -0500 Report

Hi Jerry. Things are going better, theyre going great and I hope they stay great. Youre right, I know it is my moms responsibility but she admitted that she didnt want the pressure of taking care of Kylie and thats why she left me to do it. But she gave me and Kylie to my dad to take care of us and he's been so cool.
When we move I wont be able to get on for a few days but I'll keep in touch.


Daskylinegal 2010-06-17 13:02:55 -0500 Report

You will be in my prayers, I have lived with type1 diabetes & god is good! I hope that your parents look into diabetic camps etc. as your sister gets older, she should be in camps where they teach them that they are not the only one's who have diabetes, I don't honestly know much about the camps since I not once attended one, except I hope that they teach young children the proper diets, excerersises & that they are not alone in the world. Being a child diagnois with the illness can be challanging..kids can be cruel.
You will be in my prayers~~ God Speed~~

Danni-the-diabetic 2010-06-17 14:38:48 -0500 Report

I went to a diabetic camp when I was 13, it was pretty cool. It was out of state so I didnt really keep in touch with any of the other kids, but if she can go to one and make some friends that are also diabetic that would be great for her.

Well I hope you and Kylie are both doing good. I'm also keeping the both of you in my prayers.

KitKatt93 2010-06-23 00:31:12 -0500 Report

Wow! That would be so great. My dad would totally love this. I mean she would be in a place with people just like her and I bet she would love that. I am totally going to look up diabtic camps. She's too young now but that sounds so exciting for later on. THanks for telling me about that. God is good!


Omar1973 2010-06-16 12:14:46 -0500 Report

hey katt . the last thing u want is run away with a diabetic they need to b close to meds and foods etc, i been diabetic since i was 2 , i been on hospital plenty of time with lows and his sugars , just seat relax and let her know u there for her in his and lows. is fine wanting to take few days off take her w you so she learn not to b scared of leaving do to hi or lows , just carry the insulin and meds and at least she will grow up knowing that her older sis love her and cares for her.. you can go to social security and apply for ssi u will get help via check and explain the situation and u may qualify my girlfriend of 17 years gets a check caused she takes care of me , but im on disability payments , and check with your local social security officces , take care hun and please dont stress over it it will get better wen shes older ,

KitKatt93 2010-06-23 00:27:22 -0500 Report

Hi Omar. I realized I can't run away with her. I tried but I got help taking care of her. I didn't go to social security and anywhere like. A friend on here gave the courage to talk to my dad and finally ask for help. That was the best decision I couldve made. I'm not stressing as much no more, THankyou.


symone-larea 2010-06-14 15:32:20 -0500 Report

listen i have been in kylie's position and yours . its ok to want to get away for a few days. its fine to feel like you need help because nine times out of ten you do. you didnt fail your sister. believe me she will understand when she gets older tht you just needed a break. dont beat yourself up. i commend you for taking care of your sister because most wont. your mom should be taking care of her as well but im pretty sure she only works and does the finacial part of take care. you are so not alone and never feel you have to do it by yourself. get an exta pair of hands to help you. save the money up and you and your sister just move somewhere. your like her primary care giver anyway. you can get your mom to relenqhish custody to you and then if you need help there is public housing and section 8 to start off with. you might have to put pride to the side but it might have to do

KitKatt93 2010-06-15 00:50:57 -0500 Report

Hi Symone. You said what I am thinking. Thanks for the suggestions. I thought about what would happen if I took custody but I'm on 16, too young and my mom wouldnt let me even though she doesnt want us there I dont' think.
I want to move in a place far away from my mom and everybody else. I don't want to be near them because than I have hope that they will come through and we will live happily ever after like in a fairytale. That's never going to happen with them. I have to finish high school and I want to go to college so I can make money and be able to support us. If things are still great like they are than my boyfriend would help and all 3 of us could live happily ever after. My mom gives me $50 a week for taking care of Kylie and the house. I can save a little of that every week. I don't have a job to save real money. Nothings going to work out. My moms ready for us to move with dad and he's moving way far away. If he takes Kylie than I go with him or if Kylie stays here I still have to move out but I will move in with Eric. I feel like Im stuck in quicksand and instead of somebody pulling me out they keep pushing me in further. I just want to go to sleep and dream a happily ever after dream and never wake up.

Call me blabber mouth! I shouldve started this off with 'dear diary,'.


Danni-the-diabetic 2010-06-15 14:08:03 -0500 Report

Hey hon, you have alot going on - too much a 16 year old should ever have on her plate. You know what you want out of your immediate future, so make that happen and don't let anyones slack keep you from succeeding and being happy. I think it's awesome how into your sister you are. You take good care of her and even you know that you need some help, so don't be afraid to ask for it. I know you have alot going on but sometimes its hard for people to recognize how much you struggle unless you voice it. Stay strong Katt, things will fall in place. I promise!


KitKatt93 2010-06-23 00:19:05 -0500 Report

Hi Danni. Things are falling into place. I finally got the guts to voice it out and Sunday I voiced it louuud. I did get help and I am feeling better about everything and Kylie is still doing great getting use to a new place. My dads "girlfriend" has been writing all readings down and they are so great like almost none that are too high or low.

Thanks for the support from you and everyone else

diabetesfree 2010-06-12 09:34:35 -0500 Report


I'm not sure whether you live in a major city or one with possibly a large medical campus, but you might be able to find a program that provides daycare with medical supervision. Where I live, the County and non-profits often will pay for childcare if the parent is working and can not afford it. It's definitely worth looking into and would at least give you a few hours a day to catch your breath.

Other resources you may consider are grants from local organizations, which could help to pay for in-home care. Catholic Charities, The Lion's Club, Rotary, etc. often have grant programs for things like this.

Finally, as was mentioned earlier, I would definitely check into the insurance situation and see if any special care is available under her policy. If nothing else, I would think that your Sister would qualify for Disability or SSI, since she is obviously incapable of taking care of herself. Your Doctor may have more information on disability benefits. You could use the money to hopefully find some occasional, qualified help. If your Doctor doesn't know about the process, make an appointment to see someone at your local Social Security office with your Mom.

Hope this helps. Keep the faith!


Anonymous 2010-06-11 23:31:16 -0500 Report

Hi Katt,

I think you are a wonderful sister for taking such good care of Kylie but…you are enabling your mothers behavior by being your sisters caretaker 24/7. While you are learning all of the things about your sisters health management and providing around the clock care your mother is too tired to take on her responsibilities? Are you kidding me!?! I hate to be so negative, but unless you are ready to take on the lifelong responsibility of caring for someone with a chronic health condition, and possibly give up a life of your own, you need to step back and give your mother the responsibility of primary caretaker for HER child.

Worried in WI

KitKatt93 2010-06-13 18:01:55 -0500 Report

Hi, I hear that from other people to, I talked to my mom a couple days ago. And if she is home and awake and the house is clean than I can get out of the house and do whatever I want to do. I don't want to give up my life. I mean I'm going to go to school and have a career and get married and have my own family. I'm working on working with my mom. She knows how to do everything, she showed me in the beginning. I think she forgets Kylie is a diabetic sometimes. A state of heavy denial. But I am really working on my mom, she'll get there. And it's hard for me to talk to her like I'm telling her what to do cause she says Im using my idiot tone.


OkieCowgirl79 2010-06-09 15:13:32 -0500 Report

wow. I don't know what else to say. I am so sorry that you are going through all of this. It sounds to me that you are doing a great job with your sister. I am so sad for her. This is so tough to go through. I think you will do fine. Maybe you can find a mom that you trust and trade off babysitting so that you can get a break.I know how dangerous those blood sugar levels can be. Perhaps someone at church could help?
Please don't blame yourself It sounds like Kylie really needs you. If you ever need to talk, I am always willing to listen.

nancy huffman
nancy huffman 2010-06-08 22:22:21 -0500 Report

Dont be to hard on yourself your mom should be helping also I think your a great sister I wish my sister would have help me like that I no sooner got home from the hospital and I ended right back I had no help.I glad you are there for your sister.

KitKatt93 2010-06-11 13:57:01 -0500 Report

Hi Nancy. Im sorry you had no help and was always in the hospital. That's sad. Do you have support now?

Pamiekae 2010-06-05 16:56:36 -0500 Report

First thing, you are an amazing young lady and Kylie is lucky to have a sister like you.

Second, shame on your mother for making you take this kind of responsibility onto your shoulders. She doesn't deserve to have either of you in her life as she apparently doesn't see how special you both are. Having a job doesn't mean not being able to care properly for your children. As a single mother, I've managed to work full time and take care of my daughter who has a heart problem, take care of two ailing parents with health issues, besides my own health issues. She is using her job as an excuse to not accept her responsibilities and to get away from it all.

Third, shame on the doctor for questioning why you weren't there and giving making you feel as if you were to blame.

Because sweetie, your weren't at fault, nor were you being selfish. You don't state your age, but I'm figuring your only in your teens at the most. You were only trying to behave like the teenager you should be able to be.

Talk with your sisters doctors, and get see if they can get you with some counselors, or even your school counselors to see about what can be done to help you, Kylie and to sit down with your mom to find a way to cope better.

You've done an amazing job and are to be commended for how well you've handled things so far. It will only make you stronger. You've handled things better many people who are older and dealing with diabetes.

Take care of yourself, and keep an eye on Kylie, but let your mom take over the responsibility. You deserve to live your life and there will be a day when you have to leave to go on to college. It's better to get your mom used to dealing with Kylie and her illness now with you still around.

KitKatt93 2010-06-05 22:26:26 -0500 Report

Hello Pamiekae. With a little of what you said or asked I am going to message you if that is okay.
Her doctor realized what is going on so he does tell me stuff, the same that he does my mom.
I am 16 but (not to sound conceited) I think I am mature for my age or I have been told.
My school counselor did help me out a bit before the year ended. She and my doctor that I ran into gave me their numbers and they said that they support me and if that I ever need anything to call them.

I talked to my mom today and told her how I felt and she said she understood and was sorry. I do take care of myself, my school work and Kylie. I am thinking of going to a local college so I can stay home, only if I don't think my mom can handle that but I still have a couple years. I think and hope that she will learn and mature as a grown woman and mother

If I sound short I apologize but it has been a long day and I am waiting 30 minutes until I get in my pj's and chill and go to bed.

If you dont mind can I message you please?


Justin Cowden
Justin Cowden 2010-06-05 13:14:43 -0500 Report

First off, You are an amazing person. This is a medical issue that takes such a specific type of attention and care. Its not untreatable, and its not the end of the world if properly monitored. That being said, I want to give you encouragement, that taking care of a child with this issue is a very different beast. It can be very difficult as children are all over the place with their activity and Eating habits. Not to mention their little immune systems. You are carrying a burden that is not yours to carry. Don't get down on yourself too much. DOn't feel guilty. Too much has been put on you. Yes, Family comes first, and the fact that you ARE helping shows your heart. But you also deserve to have a Life. I hope your sister is doing better. Is she too young for an Omni-pump?

KitKatt93 2010-06-05 22:14:22 -0500 Report

Thankyou Justin, thankyou for the encouragement. She is all over the place and her immune system seems to show no affect. I am trying to look positive and my life is only advancing because I have her to focus on besides school and that is teaching me alot of responsibility that God has planned for me so I can learn and become someone out of all of this.
Her doctor said he doesn't like putting children so young on pumps. When she turns about four or five he will put a fake pump on her and see how she reacts to it and if she does great and doesn't try pulling it out than Kylie and my mom will talk further more into it. Thankyou for your concern.


KarenH 2010-06-05 11:51:56 -0500 Report


You are simply an amazing young lady! Please don't feel guilty about a thing because it was not your fault. I personally think your mom has put too much responsibility on you for the care of your sister. You have every right to have a break and deserve it. I hope Kylie is doing better and that you are too!


KitKatt93 2010-06-05 22:05:42 -0500 Report

Thankyou Karen. Kylie is doing so much better and I am doing great. Maybe my mom is giving me too much responsibility but it is helping me grow up and I love taking care of her. I will have a break again but plan it better.


gregsteele 2010-06-05 09:36:48 -0500 Report

KATT agaiai i am so impressed with you i cant even put it in words like all the others have said you didnt cause kylies spikes i think ray is right on with you becoming a nurse or dr. you are such a caring soul and have a gift that a lot drs. are missing keep doing what youve been doing kylie is such a lucky girl love to allGREG

RAYT721 2010-06-02 18:21:08 -0500 Report

Katt: this is probably my sixth attempt so far to respond to you because I keep erasing what I've said and started over again. I just don't know where to begin because I have so many things to say.

Let's start with the fact that you have alot of responsibility and I (and many of us) respect what you do not only for your sister but what you also do for us. I've told you before that you seriously should consider becoming a nurse (and maybe someday a doctor) because you have a gift and I believe a calling to further your research and continue making each of us better with your words of encouragement and the information that you share with us.

You know that you did not cause your sister's disease nor did you cause the recent body spikes that sent her to the hospital. There would have been nothing that you could have done under the circumstances. That is something that is left to the doctors and whether you were with her or not with her, nobody caused it just like there's no cure. You can't really blame your Mom either. I know you are just hurt, angry and afraid right now and that's understandable. You should tell your Mom how you feel but do it in a calm environment. Take a deep breath. Don't judge. But, let it out in person or in a letter. Nobody can argue when you tell them how you feel but your feelings deserve to be heard… again in a calm atmosphere.

Right now Kylie is too young to take care of herself with medication or calling out for help when she needs it but she will grow up to be a diabetic who has one of the best support systems (you) that a kid could ask for. You have to take time and make time for you and your needs. That's an order!!! :) I am a caretaker at times for my wife. I feel guilt when I want to go somewhere where she can't go. I will sometimes meet up with friends and cut it short because I am nervous, worried, anxious, guilty or for whatever reason. She's fine. I'm the nervous wreck.

It's great that you care so much about others but you do deserve the same kind of care for and of yourself.

Deep breath, my dear friend.

Keep us posted on Kylie's progress. If this place is a big family, I am proud to have you as my kin.

Thank you for all you do … for your sister and for us.

KitKatt93 2010-06-02 20:55:01 -0500 Report

Hello Ray. I had to rewrite my post so many times and I felt so smart when I decided to copy it so if I did it again I could just paste it. Anyways thankyou for being sweet and for understanding what maybe I am feeling.

I do have alot of responsibility but I think it is helping me grow. I have to face it, I am graduating in two years and this is helping me grow up and take responsibility besides school. I say alot and I mean it that it is good to be needed as much as I am. It's scary and stressing but great.

I am going to take your advice. I am going to take a deep breath and tell my mom in a calm voice how I feel and tell her that I need a little more help every once in awhile.

I'm not on here very much but this is like a family. I can tell by what everyone says to me and hopefully one day someone on here can use my help as much as everyone has helped me.


petals 2010-06-02 10:59:59 -0500 Report

Hi Katt,Honey you didn't make your sister sick. That is just part of being a diabetic. You break my heart. I wish that I had a sister like you. Your mom needs to be the one taking care of your sister. She is neglecting her. That is not your fault, it is your moms. You need a break every now and again. You deserve it. And you are not a selfish person. You have a good heart. Take care of yourself.

KitKatt93 2010-06-02 20:41:37 -0500 Report

Hello Petals. I know I didn't make her sick but I feel like I should have been there for her, maybe she couldve avoided the hospital. But she is doing better now. I want to blame my mom so bad and I do want to still be mad at her but I can't because I think there is a reason for her absence, like denial or maybe she is grieving, I don't know but it does not make any sense why she has been like this. My aunt tells me to give her time and she will come through soon. She will. Take care of yourself to.


petals 2010-06-03 09:23:22 -0500 Report

Hi Katt, You are right that it doesn't make any sense about how your mom has been acting. I talked to some people yesterday, they thought that maybe your mom was scared and in denial. Just like your aunt said. But she will have to face it soon, maybe you can help her do that. Ray is right talk to your mom and let her know how you feel, calmly. I know that sometimes that is hard to do, but you can do it. I am rooting for you!!

ccritch 2010-06-02 08:57:08 -0500 Report

Hi Katt,

How are you Katt? How is Kylie? Katt you are an inspiration. Don't beat yourself up. Can your mom get a nurse to watch Kylie when you need downtime for yourself.

KitKatt93 2010-06-02 20:26:48 -0500 Report

Hello ccritch, I am doing good and Kylie is doing better, thankyou for asking. How are you doing?
That's great I can be an inspiration to people here when everyone here is like an inspiration to me.
We don't need a nurse but like I said below, my best friend, boyfriend no almost as much as me and I can teach my aunt and I am sure she would help out if I asked her.


ccritch 2010-06-07 13:15:17 -0500 Report

Hi Katt,

I am glad you are doing well and your sister. Give her hugs from me a friend and ask her to hug you for me you need a hug too. Katt, you are an inspiration you probably heard this all before, but I will say it again, you are doing more than you can to help your sister. It is not fair that you are not doing teenager things and enjoying life before college and career. You need to take care of yourself before you get ill from the stress. I am not saying to stop taking care of your sister but to try to get the adults to chip in more than you. I know your sister loves you and will always love you for what you do.

God Bless you and God Bless your sister!

Emma2412 2010-06-02 08:21:57 -0500 Report

Hi, Katt
How are you doing, hon? Not your sister? How are YOU doing?
Why aren't your mother or father taking their turn taking care of Kylie on a regular basis? It just seems that you're the sole care provider for her (like you said, 24/7)and I must say that I don't think that's fair to you. You're a young person and should be having time for your friends and your boyfriend, and also time to just get away and rest.
I'm concerned for you, Katt, and for your health. You're still very young, go to school and have a lot of responsibility as far as your school work is concerned, and yet you are up at 3:00 AM worrying. It's just not right.
Have your parents done any investigation as to getting Kylie some help? Have they asked the insurance company what help would be covered?
Now, we all know that you love Kylie beyond even a sister's love. Your love for her is so overwhelming that it brings a tear to my eyes, as I have no doubt it does for a lot of members here. But, my dear girl, you should not feel guilty about taking a break. Everyone needs breaks and you shouldn't feel guilty about taking one. Your aunt is correct that you needed a break. Everybody here wants Kylie to be as well as she can be, but we also want you to hold onto your health, too.
I do think your parents should be taking the bulk of the responsibility for her but instead seem to be leaving it solely to you, and I have to say that's not fair to you.
Please know that we all care about you very much and we don't even know you and will undoubtedly never meet you face to face. But, definitely, Katt, you're a hero to all of us here. But do go out with your boyfriend and your friends. It's what a young girl is supposed to do and don't you "dare" (LOL) feel guilty about having a life of your own. We all know you don't love Kylie any less by wanting some time away from the situation and even Kylie would know that and I believe tell you that..

KitKatt93 2010-06-02 19:24:17 -0500 Report

Hello Emma. I am doing good, thanks for asking. Thankyou for being concerned for me but I am really doing good and my health is great. My grandpa always says that I am "happy-go-lucky" and he is right, nothing really can keep me from feeling too down and I am hardly ever sick. But I will admit that getting to hang out with my friends like that again was awesome. Next time I will bring Kylie with me to my aunts or have my aunt watch Kylie.
You asked about my parents,my mom is still young at 34 and when she is home she is very tired. She pays me 50/week because she feels bad.
Thank you for caring about me and calling me a hero, Ive been hearing that from others on here and I will admit that it makes me feel better.


Emma2412 2010-06-03 20:20:01 -0500 Report

Hi, dearest girl
You say your mother pays you $50.00 because she feels bad? Bad about what, specifically?

Richard157 2010-06-02 08:20:54 -0500 Report

Hi Katt. Your mother is very irresponsible and guilty of child neglect. She should not have left Kylie in the care of a baby sitter when she was so sick. You are much too young to have to take care of your sister like this. You need a life of your own with your friends and boyfriends. You need time to study and make good grades in school. Helping with your sister is great, but there is no excuse for your having to do that 24/7.

"Grandpa" Richard is very proud of you for doing all that you do. Kylie is alive and well because of you. There has to be a solution to all this. I think you should consult some authorities in your area about it. What does your aunt think about all this? Do you have a relative or neighbor, someone you can trust, who can advise you? Maybe Kylie's doctor can suggest how you should proceed.

KitKatt93 2010-06-02 14:22:46 -0500 Report

Hello Richard. I don't want to consult authorities or get them involved, as long as I am with Kylie than she is good and I am learning more everyday. Maybe my mom is still in a state of denial but she will come through, thats what my aunt says. You are right, she shouldnt have left her with a babysitter like that but hopefully she learned her lesson just like I learned mine. I appreciate your concern, if I were in other shoes I would probably say the same thing but I know that I am okay, making good grades and everything and as long as I am okay than so is Kylie.


MAYS 2010-06-02 08:14:40 -0500 Report

Katt, Don't blame yourself.
You are human, you are a very responsible young lady who has taken on a very big responsibility and has done very well.
Diabetes care is a constant learning experience for both the diabetic and the caregiver, you are and were not being selfish.
You have just learned something that you didn't know beforehand, Kylie will be fine and so will you.
Right now, you both need one another, continue doing as you have been doing, growing and moving forward !


KitKatt93 2010-06-02 14:52:43 -0500 Report

Hello Mays. I am learning everyday but not fast enough. I am just stressed out but not because of Kylie. You are right, we will both be fine, thankyou for the confidence.


kdroberts 2010-06-02 07:35:16 -0500 Report

It's called DKA, Diabetic Ketoacidocis, and it can come on very rapidly. Basically when there is not enough insulin in the body the body starts to burn muscle and fat for energy rather than carbohydrate, blood sugar goes up a lot and ketones get into the body. It can be very closely linked to illness because when ill blood sugars are hard to keep under control and insulin needed increased. It could also be that somebody forgot to give her a dose or two of insulin or didn't give enough insulin for what she was eating. The reality is that in her lifetime she will likely have the same thing happen again, possibly multiple times. There are things that can be done to minimize the risk but it's impossible to get things right 100% of the time, especially when she gets sick with the things everyone else is getting sick with.l It can be fatal if not treated in time so it's a good idea to read up on it and have the signs printed out for quick reference. They can come on over a few days or so but they can come on very rapidly. Don't live in fear that it will happen again, know what to look for and how to fix it before it gets bad.


You shouldn't feel bad about wanting or taking a break. You need to take care of yourself because your no good to anyone if you are burned out. Reach out to her doctors and ask for help, there are services and charities out there who can give you advice and and provide safe environments for your sister to spend some time being looked after.

KitKatt93 2010-06-02 19:53:32 -0500 Report

Hello Kdroberts, I read your response and the link yesterday but forgot to respond to you. I read the link you offered me and printed it and it is now hanging on the inside of the cabinet drawer with other papers I printed like signs of low and high blood sugars. And I went to the pharmacy and picked up ketone strips but omg lol how am I going to test her urine when she pees in a diaper lol oh well.
Everything you said was very informative. Are you a doctor?
My sister and I do live in a safe environment and she is being looked after. But thanks for looking out for her and all of the information.


KitKatt93 2010-06-02 20:29:10 -0500 Report

I was actually walking to the sunflower market and my doctor actually picked me up, I havent seen her some time but she asked me how my family was doing and as soon as she asked that I started crying but I feel so much better now. She gave me her cell and told me if I ever had a question or concern to call her and if it is in the middle of the day she will get back asap. Thats so great, I feel like I can relax.


kdroberts 2010-06-03 09:07:07 -0500 Report

When I said safe environment I mean temporary childcare for times when no one else can look after her. Babysitting by people who know how to handle diabetic babies.

GabbyPA 2010-06-02 07:27:28 -0500 Report

Katt, this story is ripping my heart out. I am so sorry you have had to go through this.

You did NOT make your sister sick. It is NOT your fault.

Caregivers need a chance to get away, it is much needed, especially if the care is intense like yours is. Don't hate your mom, but you do need to tell her how you are feeling. It is a LOT of responsibility for you to take on. You love your sister and want to do it, but you will not be home forever. You will be going to college, getting out on your own. Your mom MUST learn how to take care of her. You can teach your mom. Kylie's doctor needs to be on your mom as well. Maybe an in home nurse could be used on occasions like this when you need to get away, but want to make sure Kylie is going to be okay.

KitKatt93 2010-06-02 14:17:51 -0500 Report

Hello Gabby. I dont hate my mom but I get so aggravated with her, I think my boyfriend and best friend know more about diabetes because of Kylie than my mom does. When I learn something new I will tell her and try to show her, sometimes she seems interested but sometimes she acts like she doesnt have any interest. Kylies doctor knows I do the most part of taking care of Kylie but he doesnt say anything to her that I know about but he knows that I dont mind :) makes me feel important and needed. Thankyou Gabby for the suggestion of an in home nurse, if I do decide to go away for college than ill bring that up to my mom.


Edie 2010-06-02 06:55:04 -0500 Report

kittkatt93; Honey don't feel bad it could have happened even with you at home. Next time you need a break tell the Doctor and then they can Plan how to proceed while your gone. Also that way they can hold your mom accountable for your sisters health. If you need a break during the day get a sitter and also have a day with the sitter with you and your sister before you leave her alone with them so they know what you do for her. If something goes wrong while your gone they have your cell number and can call you and 911 to get the help she needs quickly. Just recently one of my 6 yr old Grandson's had to go to Rileys Children's Hosp. for a blockage in his right ear when they did the surgery it took more time then they thought it would I didn't have the gas to get there but I was with them in spirit and knew some thing wasn't right when they had not called after 3 hours. After ward I found out that the seigurs he was having was from his ear and he almost died because the Dr. had no idea he had a growth in his ear heading toward his brain and his juggler. But he is home and doing real good now.

Lift your sister to Jesus daily and he will help you to care for her as needed daily. I beleave daily Prayer gets the help we need to live the best we can daily and also it helps with our jobs too. Ask Jesus to send someone that has gone through what you are facing daily and he will.
I have 3 children with Add and Adhd and then the last 2 years of my working was with Alz. Patients. I beleive if I needed to I could take care of a child with Diabetes too as I have had it for over 37 years. Remember God don't give us any more than he knows we can handle at any given time. Some times we just need breaks. An hour or two a day and maybe one night a week alone. Have some one to stand by for the help you need. Find them your self so you know your sister has the kind of care you give her yourself.
Love and Hugs in Jesus;

KitKatt93 2010-06-02 14:05:08 -0500 Report

Hello Edie. Your grandson, that had to of been scary. It's great that he is doing real great now. I can get a sitter but I would be paying for it and I don't have that much money. And if I were there I hope it wouldnt have happened, I hope I would have noticed before she got that bad and too dehydrated. I pray for my sister everyday and this was a lesson to be learned maybe, I learned some stuff even if it was the hard way and I know not to leave her alone anymore for a long time and I don't want to so taking care of her all the time wont bother me anymore that I need a break.

jayabee52 2010-06-02 04:02:34 -0500 Report


Please don't beat yourself up over being human.
I have said that you are a fantastic young lady for taking on Kylie's care.

I used to be a Certified Nurse Assistant. I took care of people for a living and I needed to take time off to relax. You are caring for Kylie 24/7! I only did it for 12 hours a day and I needed time off from time to time. Please don't beat yourself up for wanting to relax and spend time with friends.

I want you to correct something in your thinking, though, You wrote "I'm scared for her that I will get her sick again."

What was it that you did, or didn't do which GOT Kylie sick? Nothing that you wrote above that you did, or didn't do, got Kylie sick, from what I can determine. (But maybe I missed something.)

Perhaps you feel guilty because you knew something might be wrong with Kylie but since your mom would have it covered (I'm guessing mom works nights -) because she'd be off work. To my mind that's not your fault either. Your mom thought that Kylie would be OK with a babysitter. If Mom instructed the babysitter about what she needed to do and watch with Kylie, then what happened to Kylie is not your fault, Katt,

You are an exceptional young lady, Katt, wanting to do what is best for your sister. Do take time for yourself and your friends. You don't want to burn yourself out taking care of Kylie. That would not be good for you or for Kylie or for your parents.

I'll be giving this some more thought, and talking it over with my bride, "Jem" who is a retired Licensed Clinical Social Worker.

Please keep us posted about how Kylie is doing, and also about how you are doing.

Jem & I will be praying for Kylie and for you and your parents.

From my heart

KitKatt93 2010-06-02 13:55:57 -0500 Report

Hello James, how are you? I didn't do anything but i was not there and I saw that her blood sugars were spiking and I knew something was up with my mom when she said she had all of those four days off. Yea I am feeling guilty. But we will be okay, Kylie, my mom and myself. Thanks for your thoughts and taking the time to read and respond to me.


wenday 2010-06-16 02:20:25 -0500 Report

hey katt i was in your shoes but lot younger my sister daughter got type one at age 2 and i live with them to help out i was 14 at the time it take lots out of you but let me say this your little sister will thank you one day my niece is 21 and because of me i saved he love she would of died she went in to convlshions at the age 2 and i was there and her mom wasnt gave her the hep pen and when i need time out i would ask my mom to watch her you could ask your anttie to look after her you could go spend time the both of you and when you want to go out show ypur anttie what to do and you can still be a kid im also diabetic and have a little girl who is 18 mounth witch she gets teastedever mounth so far no go but think you could get it one day if it runs in your family and you will know what to do and if you gout some were and some one needs your help you can jump in and help your mom sound like she loves you but is in denial my sister hubby is also diabetic and there son just found out he is as well so when you feel bad just look in to your sister eyes and look at the love you have for her she doesnt know whats happening to her ask her to tell you when she feel funny my dught shakes her head when she doesnt feel good watch for if she sleep more than normal and if she want to drink every thing she can and pee lots then you know when some things wrong . there way you can help each other if you need time out or sceard go to your next door neboir and ask if she could watch her for while tell her you can pay her but you could bake some cookies or help out if they need help your sister could even help alittle . and if your mom need time to her self may be you could take her to the park out for walk that helped me make it fun i know its not but it will get better