neuropathy of the feet

Rader
By Rader Latest Reply 2010-05-28 23:13:37 -0500
Started 2010-05-12 23:55:24 -0500

Hello folks,
I have had neuropathy of the feet for about a year now. they now constantly feel like they are asleep and I cant stand to touch them because it is so painful and I am loosing feeling in my toes .I know it doesn't make sense to have pain and loosing feeling at the same time but I am ,but I cant explain it I dread washing my feet or trimming my toenails. I am on Neurontin 600mg in the morning and at noon then 1200mg at night. It is doing something because if I miss a dose the pain is unbearable but its just not doing enough. I would love to hear what kind of meds or treatments others receive for their neuropathy or if anyone has any good remedies


50 replies

Two painful feet
Two painful feet 2010-05-27 23:45:46 -0500 Report

Hi! I have neropathy of my feet and right leg up to the knee. I was put on nerontin 3200mg (8 tabs 400mg) four times a day. I have type 2 diabetes and my bs is undercontrol. My neuropathy is caused from post polio. But because it is caused from polio instead of diabetis doesn't make it any different when it comes to the pain, burning and tingling. The one thing that doesn't help me is keeping my bs undercontrol. Because of other medical problems I can't use lyrica. So I wasn't helpful to you but reading all of your posts has been very helpful to me. I will be trying B complex to see if it will help me. I use fentanyl pain patches 50mg for stomach pain. One would think that the fentanyl which is the stronges opioid on the market would stop the pain. But it doesn't do a thing for my feet and right leg. I hope you all will have some response from the medications you try.
Your Friend
JoAnna

Rader
Rader 2010-05-28 23:13:37 -0500 Report

JoAnna, I'm glad this discussion has been helpful to you. I have learned a lot of things from everyone’s responses too. I just started the B complex and I'm hoping it helps because I wont be able to take Lyrica or any kind of pain meds. my options are very limited because I am on so many other meds my kidneys wouldn’t be able to take much more and I have chf.

I wish you all the best
Jim

liz1986
liz1986 2010-05-27 21:30:14 -0500 Report

i was diagnosed with peripheral polyneuropathy in december of 2005. i was also on 1800mg of neurontin a day. they also put me on prednisone but that would make my bs rise. my neurologist did a thing called an ivig…not sure if thats how it is worded, but when that didnt work we did a plasma exchange in the early part of 2006. i haven't had many problems with it since then and no longer require medicine for it. maybe that would be something you could talk to your doctor about.

Rader
Rader 2010-05-27 22:08:06 -0500 Report

Liz, I am looking for a neurologist. I will bring that up when I see one. Thank you for the info

Maat
Maat 2010-05-25 16:21:57 -0500 Report

I am new to this community. I have also had neuropathy in both feet and this past year the numbness has climbed up to my mid-calves. When my blood sugars are under control, the numbness is only in my toes and midway up my feet. I believe the key for me is to take care of my blood sugar by staying on my Insulin and eating a sensible diet low in carbohydrates, sugar and salt. I also have Restless Leg Syndrome which tends to complicate my leg and foot pain. It comes on in the early evening and stays with me until I get to sleep. I keep it in check with Requip and Clonazepam. If that doesn't work, I take additional Requip and Lorazepam. I am on a plethora of medications including a pain management regimen of Fentanyl patches (50 mg every 72 hours) and Methadone 5 mg twice daily. My pain is not only in my feet, but I have had both knees replaced and had back surgery with spinal stenosis. Some days are better than others. What I need right now is support to stay on my Insulin and keep taking my blood sugars. I tend to stop taking my sugars and my insulin because it is frustrating to me that I can not keep everything stable for any length of time.

Rader
Rader 2010-05-25 22:56:51 -0500 Report

Maat
I share your frustrations. I am type 2 diabetic and ignored it for eleven years because I just was frustrated with the life style. The eleven years of neglect to the diabetes damaged my heart causing me to go into congestive heart failure. Its normal to get frustrated we all do. take a little time to regroup and come out swinging again.
I wish you well and God bless

Jim

Donna LR
Donna LR 2010-05-23 13:27:43 -0500 Report

I have neuropathy in my toes, tops of feet, up the legs, and in my hands and arms for 2 years now. My feet and toes are the worst. I tried the neurontin and when I didn't take it, it was unbearable pain. When the doctor told me to take less of it, the burning truly escalated. I went off it cold turkey because the burning was so much more intense with the medication than it was before I tried the medication. It took a few days for the worst of it to calm down after going off the neurontin. I also have fibromyalgia and a few months ago started taking Lyrica for it. I'm not sold that the Lyrica is helping the fibro, but it does seem to calm the neuropathy. When my feet are ice cold which happens alot at night, I wrap them in my fleece pj pants when I go to bed.

Miminv
Miminv 2010-05-24 19:12:32 -0500 Report

I had this happen when I started. It took a while for the neurotin/gabapentin to work. I was at the highest level of neurotin when my doctor decided to try me on the lyrica. The lyrica was the worst, it felt like someone stripped my skin off my feet and pour acid on them. I think the lyrica is making your feet burn more. I am back on the gabapentin. And doing more as I decribed below.

Miminv
Miminv 2010-05-21 17:50:44 -0500 Report

I have also had neuropathy in my feet for about two years and now some in my hands. I take the same amount of neurontin 1200mg three times a day. I also use a cream compound that my neurologist perscribed. It consists of gabapentin powder and two other things. It helps my feet from going stiff. I will have to get back with what is all in it I don't have it with me now. I say the nervs in my skin is dying and that is the pain and also how they are numb. I will get back to you on Monday.

Rader
Rader 2010-05-22 06:58:11 -0500 Report

I think I need to see a neurologist as well

Miminv
Miminv 2010-05-24 19:43:07 -0500 Report

Yes you do need to see a neurologist to determin how far up your legs the neuropathy is. I also do not feel the hot and cold on my feet. I also have realized to check water temp with my arm because my hand are starting to tingle too. I have noticed on humid days that is when the pain is at its highest. Ok here is what my neurologist perscribed as a compond that is mixed at my Walgreens pharmacy;
4.5% Gaba(gabapentin powder)/4.5% Lido/0.1%Clonindine Cream.
He said he got this from the University of Minnesota. If you need more info like the doctor name or clinic for your doctor to get this I have no problem with that. I put this on my feet about three or four times a day and it helps alot. It keeps my feet from drying out, it helps reduce the pain from the nervs that are going crazy in my feet. It keeps my feet from going stiff and the burning has stopped. I can tell if it is over six hours from the last time I put it on. It is just like when I have to take my gabapentin. I so understand the pain you are feeling. Another thing I found out in the summer is that my feet are much better in the air conditioning with less humity in the air. I also wear my white socks inside out and buy them two sizes bigger for the swelling. I will check back tuesday.

Rader
Rader 2010-05-24 23:04:14 -0500 Report

Miminv, Thank you for the info. I am looking for a neurologist that is in my insurance network. Thanks for the info : )

Emma2412
Emma2412 2010-05-20 13:14:49 -0500 Report

I am so sorry to hear that and that you are in pain! When I first began having "pins and needles" I happened to mention it once to someone who mentioned that her father (also a diabetic) was experiencing that problem. She had begun several months prior to that giving him 4,000 mg. of Oil of Evening Primose (a natural supplement you can get at health food stores and it had really helped him. I decided what did I have to lose by trying it out. I find that for me it does greatly help.

ginarb37
ginarb37 2010-05-20 00:52:50 -0500 Report

Hey Rader..
I am lucky at this point that I dont have the neuropathy in the feet. I do thou have my two big toes have sometimes tingling/numbness due to the disc in my lower back. Least that is what the docs say. I dont have it everyday but once in a while. Good luck on getting that better under controlled for u not to be in so much pain. :)

Rader
Rader 2010-05-20 10:54:22 -0500 Report

Ginarb37
keep an eye on it. one word of advice. You know your body better than any Dr does. When in doubt get a second opinion. Drs arent always right.

Emma2412
Emma2412 2010-05-20 13:16:52 -0500 Report

I totally agree. A second or even a third opinion is necessary when there's doubt. Like you said, doctors aren't always right — in fact, I'd venture to say they're wrong about as much as they're right.

Miminv
Miminv 2010-05-25 14:39:28 -0500 Report

I agree also, I kept telling my doctor about the tingling starting in 2000, he just said if it gets worse there is a drug that will cure it. 2008 I went on disability because the pain and swelling was too much. He is no longer my doctor. He also never tested my feet. The first time was with the neurologist and he found my neuropathy all the way from my feet to half way up my legs. Doctors are not gods and not all of them care or know what they are doing.

Shortaphrodite
Shortaphrodite 2010-05-18 16:17:33 -0500 Report

Hi Rader

I have multiple neuropathies, the main one in my legs but my feet also are constantly very cold. I have been on Neurontin but find the meds knock me out too much. At one stage I was on Morphine, Neurontin, Nitroderm patches and Zostrix, which is a pepper based cream which fools your brain into thinking tht pain is warmth. It's good but be careful! I put too much on one day and burnt my leg with it! I find that an elecric blanket is a safe and comfortable means of relief but you really have to keep trying things until you find something that works for you. I have had to be real careful with getting into baths because I'm losing the ability to feel the difference between hot n cold. Wear socks turned inside out so that the seams don't hurt your toes. I have had times where I haven't been able to wear shoes either. It's a real dilemna coz u need the support but your toes hurt too much huh.

Good luck my friend.

Rader
Rader 2010-05-18 19:20:34 -0500 Report

Shortaphrodite,
Yea when it hurts for me to wear shoes the pain is across the tops of feet.
but I also have pain in my toes Its very uncomfortable
what I need the most is something for pain. I am limited to what I can take for pain because my Dr's are concerned all the meds I take are taking a tole on my kidneys

azzura
azzura 2010-05-18 06:59:56 -0500 Report

II am new to the community. My name is Louisa. I take vitamin b complex and that is excellent. vitamin b is good for the nerves. also my foot doctor gave me an herbal medication called NU-REMEDY. If you have a foot doctor, ask him about it. It contains a vitamin called Thiamin. I really don't have a real neuropathy problem, but sometimes I would get itching in my feet and hands it was awful. but i found that taking the vitamin B complex has helped tremendously. May God bless and keep you.

Kenny B
Kenny B 2010-05-16 01:04:59 -0500 Report

I am on Neurontin also. In the beginning the doctors had me taking 600mg. three times a day. That was too much, I was in pain from the meds. I took it apond myself to adjust the meds until I found a comination that was right for me. Now I take 600mgs. in the morning, and if needed, 300mg at night. Most days I do not need the 300mg. Doctors do not know it all.

2010-05-15 18:13:15 -0500 Report

For shoes i love my Z-coils.. They are a bit to get used to walking in them but they feel like you are not even wearing any shoes at all (they are super light weight even though they don't look it). You kinda have to overcome the geek (looking) factor too in exchange for comfort like no other shoe i have tried. You can only get them if you go to be custom fitted for them at the store and I think they are about $180 for a pair. But they have tons of diff styles to choose from like sneakers to sandals for the ladies.. not sure if we are allowed to post links here but just google Z-coil and i am sure you will find a store near you. Good luck!! :)

Gabby
GabbyPA 2010-05-15 20:42:55 -0500 Report

I tried those on at a trade show one time and for as weird as they look, they are really very cool to wear. I was amazed at how comfortable they are. I just couldn't cough up that kind of money for a pair.

2010-05-15 22:29:28 -0500 Report

yeah they are a bit expensive but oh so worth it.. they are so light and comfy its like you don't even have shoes on.

Rader
Rader 2010-05-15 20:56:23 -0500 Report

Kgee, You need to see if your Dr would write you a prescription for fitted shoes with memory foam inserts. they come in a lot of styles and they are great on the feet

MAYS
MAYS 2010-05-15 12:56:49 -0500 Report

To treat peripheral neuropathy, it might be necessary to control the cause. If a person has an illness such as diabetes or MS, the goal is to regulate that illness to minimize the nerve damage.

To relieve the symptoms of neuropathy, a doctor might prescibe any of the following medications: pain relievers, certain antidepressants (which block pain receptors in the brain), anti-seizure meds (they can calm burning, tingling sensations), lidocaine patches to numb pain, or stronger prescription pain meds.

http://neurologicalillness.suite101.com/artic...

~Mays~

azzura
azzura 2010-05-18 07:02:32 -0500 Report

Vitamin B complex is the best and also something i got from my foot doctor called NU-REMEDY. Vitamin B is good for the nervous system. I know the doctor recommends those medications, but i think trying to find a natural remedy is also good. Thiamine is good for the neuropathy also. it is a vitamin complex. the product called Nu REMEDY has thiamine in it. speak to your foot doctor.

Gabby
GabbyPA 2010-05-13 15:10:28 -0500 Report

When I am not in good control, my feet are the first to tell me. They feel cold, even when they are warm to the touch. One thing that I found (besides getting my levels under control) is a heel balm applied to the souls and a warmed rice bag at the foot of the bed. (they bother me most when trying to sleep) This seems to help, but be careful if you use any kind of heat that you are not burning your feet. Test it on an area of your body that detects heat.

Rader
Rader 2010-05-13 19:27:58 -0500 Report

thanks for the advice : ) My feet also bother me the most when I'm trying to go asleep

Jeannie Holmes
Jeannie Holmes 2010-05-13 11:05:04 -0500 Report

I have exactly the same thing. I'm also on Neurtontin. I go once a month to get a pedicure. It hurts, but they message my feet and that helps with the circulation. Shoes are a biggy for me. I have a really hard time finding shoes that don't kill me the minute I put them on. And I need the support. I have tried the ol' granny shoes the doctor whats me to wear, but they hurt. I'm wearing Burkenstocks now. They are the best I've found so far.
Even when my BS was in control for 2 years I had this problem. So I don't know what else to do.

Rader
Rader 2010-05-13 12:08:55 -0500 Report

A dear friend of mine told me she had her Dr to write her a prescription for fitted diabetic shoes. So I asked my Dr to do the same and he did. I drove straight to a medical supply store that sold the shoes. I was surprised of all the style shoes they had. Shoes that would appeal to all ages. I picked out a style then They measured my feet and a week later they called me to pick them up. Then they had special inserts that is heated up then you stand on them and they take the shape of your feet. The shoes come with three sets of inserts. they ask you to switch them weekly. The shoes have been a God send for me. I am able to do so much more now that I have them. They are wonderful. I had to pay for 20% of the cost which was $60.00

dookasm
dookasm 2010-05-13 22:49:21 -0500 Report

Ialso take neutron.,but i also take cymbalta, and use a cream with peppers.I would like to find out more about shoes,I cannot bear to wear any,I call neuropathy, my devil attacks and everyone knows that when I say that please leave me alone.

Rader
Rader 2010-05-14 08:40:36 -0500 Report

I use a cream sometimes but it just doesn't do anything for my deep pain. Oh and a word to the wise, don't scratch your eye after applying LOL. The shoes are wider down by the toes so your toes aren't crowded. and the custom inserts are great. I also have gout and my shoes have been a life saver. I have a limit to what meds I can take. I am on 17 meds and have congestive heart failure.My Dr is concerned that my kidneys may not be able to handle it all so there are meds I cant take. I have arthritis in my left hip my Dr told me I would just have to live with the pain because the meds would be to rough on my kidneys. If only I would have taken better care of my self when I was younger I wouldn't be in this mess

azzura
azzura 2010-05-18 07:09:59 -0500 Report

Please and I recommend this to everyone for the neuropathy pain to take Vitamin B Complex. It is awesome. Also ask your foot doctor about an herbal medication called NU-REMEDY. It has an herb called Thiamine in it. You can also get Thiamine in the health food store. Vitamin B complex is awesome. I don't take that doctor medicine. I read the side effects and didn't like it. The Vitamin B complex is awesome.

countrygirl59
countrygirl59 2010-05-19 20:54:45 -0500 Report

Azzura, thank you for the very infomative information I would of never thought about something that makes since. Vitamin B is good for the nervouse system and controlling your blood surgar levels are too but I am going to try the vitamin b complex and the thiamin thanks. Karen

jayabee52
jayabee52 2010-05-20 03:01:09 -0500 Report

Howdy Louisa and WELCOME to DC!

Glad to see you're getting into the discussions.

One thing you might want to check out, is that Thiamine is not a herb. It is one of the B vitamins in the B complex. I did a search for Thiamin and this is only one of the responses I got back: http://www.nlm.nih.gov/medlineplus/ency/artic... This is "Medline Plus" a service of the US national library of Medicine and the National Institutes of Health.

If you take a B vitamin complex you get Thiamin already with it. Of course you can buy Thiamin separately and take it, but since it is a water soluable Vitamin (all the B vits are) all it will do is get flushed through your kidneys and you'll have extra expensive urine.

Blessings to you and yours, Louisa!

~James~

Jeannie Holmes
Jeannie Holmes 2010-05-15 12:34:35 -0500 Report

Boy, I paid $200 for my shoes and I hate them. I might have to try a different store. My Anut who's diabetic uses Earth shoes. I'm going to go try on some next pay day.

Rader
Rader 2010-05-15 20:54:50 -0500 Report

Jeannie…You dont think your Dr would write you a prescription for fitted shoes with memory foam inserts?

MAYS
MAYS 2010-05-13 00:30:07 -0500 Report

Forget the medication and home remedies, the best cure (if there is one) is proper glucose management, everything else has side effects, the meds are either anti depressants which calm your nerves but can possibly induce occasional thoughts of suicide in your mind, possibly damage your liver and kidneys and who knows what else or just over the counter pain reducers !

But if you must, for your peace of mind, read this :

http://www.drugs.com/enc/diabetic-neuropathy....

http://diabetes.webmd.com/tc/diabetic-neuropa...

http://diabetes.niddk.nih.gov/DM/pubs/neuropa...

Medication :

http://www.lyrica.com/

http://diabetes.webmd.com/features/medication...

Talk to your doctor concerning your diabetic neuropathy symptoms and possible treatments.

~Mays~

Niue
Niue 2010-05-15 16:02:10 -0500 Report

Thank you so much for this information…I've gone to the doctors and was told I don't have gout but was given a cortisone shot and given celebrex…I was complex but found out the celebrex didn't work I ended up taking 2 ibuprofen 800 mg helped more…Hmmm I do agree the best cure is proper glucose management..Thank You!

azzura
azzura 2010-05-18 07:11:30 -0500 Report

Vitamin B Complex is the best. Also ask your Foot Doctor for NU REMEDY. It is an herbal medication for neuropathy. It contains Thiamine which you can get at the health food store.