High blood sugar levels

thomasdiabetic
By thomasdiabetic Latest Reply 2010-05-14 01:22:37 -0500
Started 2010-05-02 19:19:37 -0500

I got diagnosed last year in may with type 1 diabetes i had a blood glucose level of 1182 and had too spend 3 days in intensive care unit. My problem is that i eat right exercise and always my blood glucose is high all the time it seems like the harder you try too control it the worse it gets. Can anyone help me figure out what i am doing wrong it gets discouraging alot. My brother has been on dyalisis for about 3 years now he was diagnosed with type 1 when he was 17. I dont want too end up that way but it seems no matter what you do it just doesnt work out. When i got diabetes i was angry and discouraged but im not the only one that suffers from this disease. I hope everyone does well with there diabetes and i get some helpful feedback.


7 replies

chillwill080
chillwill080 2010-05-14 01:22:37 -0500 Report

i have type 1 and i been had it for 25 years and one thing i found out is that you got to know your body and dont be guess in and another thing is that you could not be taking the right amount of insulin your body need so you should go to your doctor and tell him

LadyDi - 26259Miller
LadyDi - 26259Miller 2010-05-04 01:21:47 -0500 Report

I am Type 2, unlike what you are dealing with, but I really hope that you've done your homework about Type 1, and that you and your doctor are really working together to get you in a better place - QUICKLY. Frankly I didn't know your BS readings could even go that high. Never heard of it previously, anyway. So glad you were placed in ICU and got the help you needed to stay alive. Working with your doctor to learn what you need to know and to get your meds/insulin right will hopefully bring your numbers down very soon. Everyone is different, and it may take some time to get the right drugs and dosages that do the trick, but don't get discouraged. You have to keep trying. Eating right, staying as active as possible and trying to keep your stress level down will be necessary in addition to your medications. Best of luck to you. Do everything you can to avoid having to go on dialysis or losing your eyesight or a limb. God bless you.

LadyDi - 26259Miller
LadyDi - 26259Miller 2010-05-04 01:21:34 -0500 Report

I am Type 2, unlike what you are dealing with, but I really hope that you've done your homework about Type 1, and that you and your doctor are really working together to get you in a better place - QUICKLY. Frankly I didn't know your BS readings could even go that high. Never heard of it previously, anyway. So glad you were placed in ICU and got the help you needed to stay alive. Working with your doctor to learn what you need to know and to get your meds/insulin right will hopefully bring your numbers down very soon. Everyone is different, and it may take some time to get the right drugs and dosages that do the trick, but don't get discouraged. You have to keep trying. Eating right, staying as active as possible and trying to keep your stress level down will be necessary in addition to your medications. Best of luck to you. Do everything you can to avoid having to go on dialysis or losing your eyesight or a limb. God bless you.

Gabby
GabbyPA 2010-05-03 20:57:42 -0500 Report

Hi Thomas and welcome the the community. I cannot even imagine what you and your parents were going thru with levels like that. OUCH.

It may not be that you are doing things wrong, just have not found the right combination. There is a condition called Brittle Diabetes that is generally a very hard to control diabetes. There are several discussions on it listed here: http://www.diabeticconnect.com/discussions?query=brittle+diabetes

I am not saying that is what you have, but it might be worth talking to your doctor about. Many people find relief with a pump. Are you currently using one? If not, maybe that too is a line of discussion to have with your doctor.

I always run high, even with meds, diet and exercise. I am getting better as I learn more about how my body is working with or against me. Taking a diabetes education class helped me a WHOLE lot. It didn't just tell me what, but it explained a lot of the why's. That has helped me make better choices. You have two things going for you already if you are eating right and exercising. Now it just may be the ability to find that magic combination of things.

monkeymama
monkeymama 2010-05-03 13:59:39 -0500 Report

Hello there Thomas! I may not be a type 1 diabetic but in a small way see where you are coming from. I am actually a type 2 diabetic and insulin dependent; with my insulin pump. For me there are the moments that I use to get very angry, discouraged, and frustrated when my numbers would be very high. when I get a very high BG number, I ask myself these questions: 1) am I sick or the meds causing me to be high? 2) did I under carb what I ate? 3) Is there any stress in my life right now? 4) is there something wrong with my site or do I need to change my insulin cartridge. These are just some of the questions I ask myself when I am very high. If there is no clue, I put a call into my doctor for further instructions. Also, there are going to be foods that for you may not agree with your diabetes. It is a trial and error process we go through to know our (your) limits. There is not two people that are alike with their diabetes. No matter what type and the treatment. If you are doing everything right, it may not be what you are doing, It could be your body that is fighting back. Here's a little piece of advice I learned from a wonderful friend of mine and my dad. If we all allowed ourselves to be upset and discouraged. Than we are allowing the diabetes to beat us at its game". We all must stand strong even in the toughest of times and keep fighting back. if we shall have a bad time (rough spot), rise above it, and get back up and keep going. Try to find the positive in a rough situation. Even the diabetic that have had it for a long time. NEVER stop learning or changing. We are all constantly learning and changes things as we go in our fight. When I begin to feel like I want to give up, I tell myself this: I CAN do this, I WILL do this, and I WANT to do this. This is true! Try to hang in there and we are all here for you. Hugs!

John Crowley
John CrowleyCA 2010-05-03 12:25:52 -0500 Report

Welcome, Thomas.

As a type 1, the whole key is learning to match what you eat with your insulin. As you test and monitor your blood sugar, you'll likely find there are some foods that just aren't worth the aggravation and you'll cut those out of your diet.

But if you are running high all the time, it's clear that your current insulin regiment is not matching your eating plan. You should talk to your doctor right away and get some adjustments made.

In the mean time, test your blood sugar frequently, meaning before and after every meal. And also keeping a food journal for a couple of weeks will be a fantastic help.

You can ask your doctor for a referral to meet with a certified diabetes educator (CDE). Meeting with a CDE will help you learn more about the disease and develop a personalized plan for eating and treatment.

I hope that helps.

Petronella1710
Petronella1710 2010-05-07 08:33:17 -0500 Report

Very sage advice, John!

Thomas, I hope and pray that you eventually get to that place in your life where the disease doesn't run your life and you have more joy than pain.

Petra

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