Don't test, Don't tell

By GabbyPA Latest Reply 2013-08-30 17:03:11 -0500
Started 2010-04-26 15:35:33 -0500

I was talking with a member today and the subject of not wanting to test our levels because we know they are going to be high came up. I know I have had this mentality and I have also paid for it. At times, it just gets so frustrating when you feel like you are doing everything right and your numbers are still high. This kicks me into a denial mode of "don't test, don't tell".

Do you guys struggle with that? What do you do to make yourself face the test you dread?

55 replies

peggy1255 2013-08-30 17:03:11 -0500 Report

Not only do I face the test of fear for my sugar but also for my blood pressure , it can cause a lot of anxiety , trying to work through this. Good to see I'm not the only one with this fear, makes me feel I'm not alone in these feelings , thanks for sharing

silvie mae
silvie mae 2013-08-28 21:27:36 -0500 Report

I test 6-12 times a day. Before meals and after meals, before bed, sometimes at 2am if my cgm shows a low, and of course before and after a hypo episode.

Carla48 2013-08-27 07:26:22 -0500 Report

Gabby, I do struggle with that! If I know it's going to be high, it makes me fearful to test…my doctor is just going to do an A1C, get my daily numbers and fuss at me anyway, lol! I am working really hard at getting my food and management in line right now, and doing pretty well at the moment.

GabbyPA 2013-08-28 20:48:40 -0500 Report

Our A1c is the final say in it all. And you are right, the daily testing can seem frivolous, but I know if I go too long without testing, my numbers will climb. I have to have that reminder in front of me every day.

Thomas508 2011-02-21 19:50:54 -0600 Report

I think we all do that sometimes. I did it a few times to many over the holidays so I was really worried that my A1C would be higher this last time so I was really excited to see that it dropped .4 more! Now I wish I had tested a few of those times to see just how high it went! : )

MewElla 2011-02-21 13:47:49 -0600 Report

The thing I notice when I test and things are looking good, I don't mind sharing with others when asked "what's your numbers?" But when I get stressed, not feeling good and I run higher numbers and even if I basically know where they came from, I sure don't want to tell anyone. Guess it is disappointing thing I do and I don't want to be judged or something along those lines..Who knows..But, I would wager we have all been on top of this one, right?

PetiePal 2011-02-21 13:30:07 -0600 Report

I test but don't tell sometimes :L For instance…I'd been doing super awesome lately…and I know I've been a little lax lately bc my A1c came down so much. I had a Dunkin' Donuts coffee this morning and 2 donuts…which I hadn't done since like last June…I figured just one. I tested and wooo 222 almost 2 hours later.

Not amazing, not proud of myself. I felt a little lightheaded since I knew my sugar had shot up fast. I didn't particularly even enjoy them…so chalk it up to experience.

I still test though bc it IS important to know how badly they affect you which hopefully gives you the willpower to stop eating things that are poorly for you.

HisTxLady 2011-02-21 06:41:28 -0600 Report

I agree with you Gabby I do the don't test, don't tell thing daily. Since my hubby has gotten sick I have had so much stress I can't force my sugars down so I just don't test. Not because my strips cost to much or anything I just walk right by my meter in the morning and look the other way so I don't see it for it to remind me to test lol. Sometimes my hubby asks me and I try to act like I did not hear him ask me, then he walks over and taps my shoulder and asks lol. I have even been forgetting to take my meds right. That is part of why it is high but it is the stress too. He gets so mad at me for skipping tests and meds its not funny. But everything seems off right now.

As far as my Diabetes meds I get mine from the company that makes them. I take Janumet, it is Metformin and Januvia in 1 pill and they have me set up on a year of free meds then I have to reapply. Merck is great there is no hassle at all. To be honest I have not found away to get my sugars down when they are up. Mom just took another one of the evil shots lol, insulin, but I can't take another pill.

Oh and Debbees1 have you checked Wal-Mart on your Fortamet it is Metformin and at my Wal-Mart, not sure if you have one near you, But here it is on the $4.00 list. Just thought I would mention it. Also there is a mail order pharmacy that helps cut the cost of meds that I found. No insurance is needed and there are some great prices. My sis-n-law takes Glyburide for her Diabetes and threw them it is $20.00 for a 180 day supply and it does not matter the mg or how many you take a day it is just $20.00 for 180 days of what ever the Dr says to take of it. They don't have all meds but it's better if you can shave some off somewhere. Try it… …there is a min. of income to qualify but I myself think it's pretty fair. There is also no shipping fees with them and they have a free Prodigy meter and cheap strips…$15 for a box of 50 = minimum order 2 boxes for $30… I hope something helps Lord knows people with Diabetes needs a break on supplies.

Any questions or problems just yell and I will do my best to help you.

God Bless :o)

RAYT721 2010-05-09 18:38:38 -0500 Report

Great question!!! I don't test recently as often as when I first bought my meter and received the news that I am diabetic. I suppose the main reason is that I know there's nothing that I can do about it whether I wake at a reading of 90 or 140. I still have to eat breakfast. I still have to exercise. I am still diabetic. Now this answer may be different for someone on insulin but I am not. So, for me, what does it matter what the reading is??? I will probably be more active in the testing after my first A1C level test but for now I may test once or twice daily just to see if (denial) I am no longer diabetic and it was all a dream, or nightmare.

MadCurves 2010-05-05 16:28:21 -0500 Report

i hv been just recently diagnosed but i test 6-10 times per day due to be scared of my numbers and really wanting to know- my levels range from 180-586 new insulin for me now last 5 days so i at least wake up to a level 170-180 :)

GabbyPA 2010-05-05 18:28:05 -0500 Report

Hey MadCurves,
Welcome to the community. Were you diagnosed type 1 or 2? A 586 would scare me too. i am glad that you are getting lower readings. I hope that your new insulin works for you. What do you mean it lasts 5 days? I have never heard of that.

Armourer 2010-05-04 20:27:37 -0500 Report

Okay, must admit haven't been testing a lot lately. In fact a set of 100 strips have lasted me more then four months. I don't eat breakfast. But why test when I eat the same thing every day. Just inject the same as before, right? Wrong! But currently I'm in the mode of "why care anymore." I watched the carbs for over a year, ate 500-1000 calories a day. Walked two miles a day. Even went for awhile at 500-750 cal. a day. I have gained over 40 pounds! It has got to be the insulin, and Doc says yes. I hate this!!!!! But good for you all in hanging in there and getting results!!

Richard157 2010-05-02 15:55:14 -0500 Report

I sit here and read these messages and realize how fortunate I have been. In 1945, when I was diagnosed, I tested my urine each morning and at no other time. I ate anything I wanted and as much as I wanted, as long as it did not have sugar. I took one dose of pork insulin each morning. That was all the doctor told my family, I followed that crude type of diabetes management (can I even call it that) for many years without ever having complications. There was never any frustration with testing, it was almost always high, but I got used to that. It was my state of being. I felt great and did not know there was any potential danger. I did not know about diabetes complications until I was an adult. I avoided the worry I would have now with all the highs because of my ignorance. I went 40 years without finger sticks, without following a low carb diet and without the advantages of modern day basal/bolus insulins. I am well aware that I am lucky to be alive, and without comlications after 64 years of diabetes.

Now I test 12 times per day and I use a pump and a CGM. I eat 130-150 carbs per day and I exercise every day. WOW! What a reversal in my routine. I always wonder if going back to pork insulin and not testing and eating everything I wanted, would still work for me??? Pork insulin can be ordered from other countries, but I am chicken to try it now.

firstflight800 2010-05-02 13:42:32 -0500 Report

I think most of us have gone through the "don't test, don't tell" stage. It can be confusing at first, I think. There are so many little variables that make a difference to the numbers too. Right now, things are fine, but it took awhile to get things figured out. Now I usually test 4 times a day, unless I'm doing something "different" than usual, then I may test more.

GabbyPA 2010-05-02 14:36:50 -0500 Report

Yeah, I test 3-5 times a day. My worst ones are my morning ones because I know no matter what I do, they will be high. I go to bed with 130's and wake up with 170's. I hate it and sometimes I just say, why bother. I know it will be high, I try it with a snack, without one, I have been experimenting with cinnamon before bed...nothing seems to help.

bar59567 2011-02-21 19:11:51 -0600 Report

That happened to me. I went to the Dr. and she found out that my bg was going to low in the night so my liver kicks in and sends out insulin. I take medication for it now I wake up every morning with a good number. Usually 114, that same # almost every morning.

icefog 2010-05-02 21:39:21 -0500 Report

thats the problem i am now having, go to bed with a low number and wake up with a high number. I sometimes dont even bother testing any more. I can almost feel what my numbers are going to tell me.

GabbyPA 2010-05-02 21:49:20 -0500 Report

I have that same problem. Another member is suggesting insulin. I cannot afford that, but maybe you can ask your doctor about it? He takes a shot before going to bed and he says it is working great for him. It is worth looking into.

FiberAll 2010-05-05 12:39:52 -0500 Report

I have it both ways, April 30 I went to bed with my last blood sugar of 249, and the next day it started off with 128. That kind of drop don't happen on a regular basis, but it was higher at that time. I have had it both ways, but for the most part, except for the most recent times, it is normally going down overnight and for this I want back since I like my best blood sugar and pressure in the morning. My last doctor only wanted me to check once a day and I got supplies from my sister and I believe my new doctor will want me to check it more since they want me to let them know what it is for me. I like to check it 3-5 times a day two hours after each meal. I found out there is something in the blood which wants to prevent the blood sugar going too low so it increases it overnight although I am not sure exactly about this.

GabbyPA 2010-05-05 12:57:23 -0500 Report

Yes, our livers store glucose and release it in times of need. It is called glycogyn and it is usually released to allow you the energy to wake up. Mine, I found out usually starts dumping into my blood about 2:30 -3:00 in the morning. I know why my numbers are high, I just can't seem to convince my liver that I don't need the wake up call. I tried taking my metformin late at night before bed, but then I also have to eat something, so it kind of ended up counter productive.

debbees1 2010-05-07 06:21:39 -0500 Report

My biggest problem is the cost of the strips. My dr does give me some but it is enough to last maybe 15 days. I have made it a habit to test in the morning and plan my day around that. If my number is above 250 I will try to remember to test later in the day. I guess I just need to educate myself better. I also cannot afford the Fortamet so I take glimeperide twice a day. The dr wants me to lose weight but I cannot seem to get anywhere. At least I have been able to maintain my weight. I would imagine if I took better care of myself and had a hundred billion trillion dollars I may be able to get this under control.

GabbyPA 2010-05-07 07:16:45 -0500 Report

Hey Debbees1, welcome to the community.
I do suppose you could ask for a bailout.

Seriously, cost of strips is a huge issue for many of us. I have one of the cheapest meters so I can get my strips for a better price. A lot of the fancy meters have fancy strip prices. So you might want to see if you could change your meter. I use the TRUE brand. I also purchase my strips off E-bay because I can get them a LOT less expensively. You have to be cautious with whom you deal with, but I have been doing this for over 2 years now and never had a bad experience.

Numbers above 250 are numbers of caution. How long have you been diagnosed? How long on your meds? Your glimperide should be able to pull that number down, when you test later after a high morning, does it get better? Sorry, if I am being nosy, I am just wanting to help out.

There are also a couple of websites that offer assistance to people who need help with meds and supplies. Some are if you have insurance others if you don't.
No insurance:
With Insurance:

Hang in there. Things do get better. It takes time to find our methods of getting around the system's obstacles. Being here, I hope you will find a lot of support.

Edie 2010-05-07 09:39:28 -0500 Report

Good Morning;
I have the Accu-chek compact meter and they have a card they send to those that ask for it where you only pay $15. a month for your Strips. I got a scrip for Bills for 3 months and it was only $15 even then too. Good Luck if you have a different Meter please Call your maker and see if they have something similar for yours.

GabbyPA 2010-05-08 06:40:56 -0500 Report

Do you have to have insurance to get that card? That is the problem I am finding with those offers.

Lakeland 2010-04-29 21:16:09 -0500 Report

call me nuts but I love to test, I'm type 2. It might be a year now that I'm diabetic. My facination with testing started during the diabetes classes. I was at 550 and I really wanted to know what foods spiked my sugars & if whole grain really was different from whole wheat and would reflect in my numbers. I was told to take before eating & 2 hours after.

I wanted to know if I walked once around the block vs twice around the block what happened. I kept a list & I think it has helped me feel like I have more control. My a1c was 10.3 & now is 5.3 So I'm doing good.

after seeing my family members have trouble with feet & kidneys, I'm very determined to get mine under control & keep it there.

the funny thing is I would diet with no success but now that I watch how many carbs, walk, I lost 30 lbs. and all I was doing was watching my numbers.


Roy531 2010-04-29 22:02:52 -0500 Report

Isn't it amazing what a lot of determination and a lot of will power can do to change one's life and to be able to succeed in what you set out to do.

GabbyPA 2010-04-30 10:09:00 -0500 Report

I am a lot like you. I was burning up test strips like nobodies business. That is how I discovered the foods I can eat (ice cream) and the ones I can't (corn!) among others. But it does tell us so very much. I too lost a large amount of weight just watching things other than the scale. It was such a blessing. The most fun is seeing what exercise does. That is so cool to see that work even better for me than foods. It is a great incentive.

Swbtab03 2010-05-08 09:10:08 -0500 Report

As you knnow I'm new and was tryingto get my strips refilled and insurance wont let me get refilled until the 8th, which is today. but I cant test like crazy like i want to. Because the first 2 weeks I was testing 6-8 times a day to see effects before after meals, and mild exercise at work. I,m in same boat you go to bed numbers are low you wake up numbers are higher.

GabbyPA 2010-05-08 14:28:40 -0500 Report

Ask your doctor to increase the prescription on your test strips. My mom did that and they covered more for her. It's worth a try. Tell him you have to learn how things are working and testing is the only way you can do that. Even if it is just for a year or so, it gives you great insight that is helpful in the long run.

BrookeWest0131 2010-04-29 13:03:11 -0500 Report

I am a type one diabetic, I have had diabetes since I was seven years old, and I am twenty now. Yes it gets on my nerves very bad at times but hey you have to learn its part of life and deal with it. It is like my doctor told me when I was first diagnosed, you can either learn to live with it and live and have a healthy life or you can ignore it and die! I choose to live with it and take care of myself the best that I can.

Roy531 2010-04-29 14:07:32 -0500 Report

It is good you chose to listen to your doctor. There are so many kids and adults alike that will not listen to their doctor when he tells them what they need to do to live a normal and healthy life.

Mousey13 2010-04-27 15:11:31 -0500 Report

Most times I know when it's going to be high and I go ahead and do it anyway. Makes me determined to get it down.

irisrose25 2010-04-27 13:40:03 -0500 Report

Yes, I struggle with not wanting to test, but I do it anyway. I know that it is important for my health.

MAYS 2010-04-27 11:27:12 -0500 Report

Just do it !

It may be redundant and frustrating at times but if it is necessary (and for your peace of mind) do it.
Some rituals are worth it, my approach is it's better to know what it is, good or bad, than to wonder and worry about it !

~ Mays ~

OMG-T2 2010-04-27 09:55:31 -0500 Report

I test anyway, but then, I'm a glutton for punishment - LOL! Not really, though I do test at least twice a day no matter what. However, maybe it's because my diabetes is still relatively new to me, but I don't really give in to "indulgences" of the bad variety yet. Or if I do want to eat something "bad" I will have a tiny fraction of whatever it is. Like yesterday, I filched two French fries from a co-worker's lunch. No big deal and it's doubtful that it affected my BS levels much.

Gabby, just remember the main thrust of your situation when you don't want to test - you apparently "pay for it", and it's just not worth not knowing how to remedy things. Plus, your A1C is going to bust you out like nothing else!

Roy531 2010-04-27 10:02:26 -0500 Report

Still proud of you. You inspire me to do better.

OMG-T2 2010-04-27 17:17:25 -0500 Report

Well then Roy531, you should be thrilled to know that my fasting BS is usually under 110 and my post-prandial is almost never over 125 of late! Granted, I am not eating like I probably should be with this accursed gallbladder issue, but I try very hard to make the best choices I can (to make all that I ingest count). I just hope that I will be able to sustain the good numbers after surgery when I will hopefully return to eating like a good diabetic gal!

Oh, and by the way, the French fries weren't even that good. I'd much rather eat some bell pepper slices!

Roy531 2010-04-27 17:25:27 -0500 Report

When will you have surgery, I want to be praying for you and the doctors at that time. You are still good and very proud to be your friend. Roy

spiritwalker 2010-04-26 20:57:43 -0500 Report

I test no matter what. I am the only one responsible for my
numbers. If they turn up over 140 than I take action to correct my errors. I can drink more water, cut carbs at the next meal or skip a snack I don't need that day. I can also adjust my insulin.

Roy531 2010-04-27 09:29:01 -0500 Report

I don't take insulin so can't adjust that, taking a pill. Tried taking an extra pill once because my sugar was well over 200. WOW don't ever want to do that again, talk about bottoming out. So I can't take extra meds for my highs. Scared the crap out of me. Walking is my best effort to bring mine down, and so much water my eyes float.

LadyDi - 26259Miller
LadyDi - 26259Miller 2010-04-26 18:26:54 -0500 Report

Sadly, I have come to that place more than once over the years. I know at the time how idiotic and irresponsible that is, and I get so mad at myself. But sometimes I just want to not think about…just enjoy eating without thinking so hard about what and when, etc. Only hurting myself, of course. And the next A1c surely reminds of that stupid decision to let it slide for a while. In reality I do want to know when it gets out of hand, so that I can do something about it. I try very hard not to allow myself not to give in when tempted to say "to heck with it" for a time.

Roy531 2010-04-26 20:25:04 -0500 Report

I know how hard it is not to enjoy eating, and I do that to myself every once in a while Who doesn't, but I never fail to test because that will remind me why I stopped eating all the delicious stuff. I was the type of person that really enjoyed eating too. But if I want to keep on keeping on I must test so I'll know what I did to myself for indulging when I shouldn't have. It is tough I know but we have to stay on top of it to stay healthy.

GabbyPA 2010-04-27 07:24:31 -0500 Report

Thank you for your honesty....I was beginning to feel like I was alone on this one.

Rhonda Layman
Rhonda Layman 2010-05-12 12:14:11 -0500 Report

NO, you are NOT ALONE on this one. I go in cycles on testing. I know I should, but sometimes it just seems as if that's just one more thing to do that I don't want to do. It gets old, doesn't it?

Roy531 2010-04-26 15:45:28 -0500 Report

Maybe it's just me but I want to know if mine is high or not so I can do something about it to get it back down where it should be. I have tested knowing it is going to be high by the way I feel but want to know just how high it is. It does bother me when it does get too high but not knowing I think would be harder on me than knowing. Wouldn't want it to get so high I might pass out or something worse. At least I know what it is and I can do something about it, walk faster longer something to get it down.

GabbyPA 2010-04-26 17:37:15 -0500 Report

That is true, if you know, you can do something about it. That is a good motivation to test no matter what.

ms rose
ms rose 2010-05-09 16:06:11 -0500 Report

I always fear the numbers. If they are high i have to face the fact im not doing something right. I its good then i just dont keep on testing. I guess im still looking for the answers.

riosgirl 2010-05-09 20:29:44 -0500 Report

I just joined this site today and I'm glad I did! I am diabetic due to the fact that
I was an alcoholic who had 3 bouts of pancreatitis..believe me…you don't want to go through that. I will be 5 years sober and only discovered I was diabetic a year ago by accident. I used to be a dental assistant had had to fill out medical forms for new patients and one of the questions was about excessive thirst. I exerienced it one day and casually mentioned it to my doctor. She did a finger stick and my number was 514. She didn't believe it and I did a urine stick and the number was the same. Initially I bought books, went to ABC classes and often tested 2-4 times a day. My Dr. told me I was obscessing over my numbers. I joined a gym, tried to watch my diet and then became less compliant when I seemed to lose control. I am on Metformin and insulin and have finally found that an extra injection before bed and a plate of scrambled eggs made my numbers in the a.m. dead on. I will be seeing an endocrinologist later this month who, my Dr. thinks, can help me better manage my diabetes. Hopefully, the don't test, don't tell routine will even itself out. I'm so glad I found out about this site. Great read everyone elses stories.

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