What irritates you the most about having diabetes?

Pickle42789
By Pickle42789 Latest Reply 2014-06-25 11:43:51 -0500
Started 2010-04-22 14:34:17 -0500

For me, it is the people that think they are experts on diabetes and want to tell you what you should be doing and how to do it. If they really knew how hard it is dealing with it EVERYDAY of your life and not being able to just live a normal day of life-not having to worry about "Oh, I just ate a candy bar, now what do I have to give myself for insulin?" or any other snack they definitely would think twice before they started telling you how to live your life!


98 replies

funnygirl98
funnygirl98 2014-06-25 11:43:51 -0500 Report

I'm the same way as u r pickle, some ppl think they know it all and try telling u the diabetic how to deal with the disease. It sucks having to watch what u eat make sure u get plenty of protien in ur system every day, etc. Im a type2 hypoglycemic and I really have to watch what I eat so I don't have to ride the stupid rollercoaster day after day because mine my sugars drop real low then they will go real high then I can get it bs to be back into normal range for awhile.

apeape
apeape 2011-02-26 20:24:35 -0600 Report

what irritates me are other people telling me what i should & shouldn't be doing. like a woman at work who sees me eating something on my break & says "you're not supposed to be eating that!" then goes outside to smoke a cigarette or 2. after 30 years i think i know when i can eat a cookie, especially if i'm eating it because my blood sugar is low!!!!

CaliKo
CaliKo 2011-02-22 20:17:01 -0600 Report

Having to always think of my meal plan no matter where I am or what I'm doing. It's inconvenient to say the least. I miss being able to eat or not eat what I want when I want. Or to be out and about and not worry about having to have a snack. I miss many things on the menu when I go out to eat. Instead, I'm trying to figure out what is the correct amount of protein-carbs-fat that I can order. It's not so scary or overwhelming anymore, but irritating is a good word.

bar59567
bar59567 2011-02-22 19:22:53 -0600 Report

What irritates me most is when you tell someone you have diabtes and they look at you like you're going to drop that minute. Or they tell you a sad story of someone they knew had it and died or had to have amputations.

MAYS
MAYS 2011-02-22 18:21:23 -0600 Report

What irritates me the most are the possible complications that are associated with mismanagement of one's diabetes, that alone should awaken one up to reality.

On a broader scale, it's when people refuse to educate themselves concerning diabetes, and for those who do see, and hear, but yet they do not do!
I am (at times) a very judgemental person, I believe that once a person knows something they are now accountable for their actions, no excuses.
Failure to do, or at least to try to manage your diabetes voids your ability to blame others (your doctor, your parents, the medical industry, God).
The ownership falls onto your shoulders because you now have the facts to decide if diabetes will be a disability \ handicap or a life changing motivator.

Me, I choose to conquer, rather than to be conquered by diabetes.
Life itself can be hard at times, so diabetes is simply a bump in the road of life.

~Mays~

misspat2u
misspat2u 2011-02-22 20:41:35 -0600 Report

Amen and AMEN!!! Taking responsibility for YOURSELF, your choices…your whatever is solely on YOU—however, some of us have not reached that stage in our lives. I try not to take what is said to me "personal" regarding my health—I know right from wrong but at times I do make "not so good" choices…I don't keep making unhealthy choices, I get back on track and pray that I can exercise the self-control that exists within me.

Beerlilly
Beerlilly 2011-02-22 18:07:21 -0600 Report

What irritates me is my mother. She has now become one of the Diabetic Police and is always on my case; people that 'think' they know what there talking about (diabetes) and sometimes myself. For not taking better care of my diabetes.

midgetmom3
midgetmom3 2011-02-22 15:29:33 -0600 Report

Hi everyone! I just found this site today. The thing that irritates me the most is that you work your butt off watching what you eat, you exercise, and you take your medications. You're doing everything you need to, you think you're doing great, and out of the blue you get slammed with a new medical problem that is related to the diabetes. There is so much to take care of daily. It really is an exhausting disease.

Gabby
GabbyPA 2011-02-22 19:25:16 -0600 Report

I have to agree. I work hard, do my exercise, count my carbs and still have numbers that are not what I want. It does get aggravating.

ValerieluvsPete
ValerieluvsPete 2011-02-22 13:40:39 -0600 Report

I hate how everyone is waiting for me to die from the diabetes. I was 27 when I was diagnosed with type 1 and 10 years later I am still kicking. I try my best but every now and then I cave to temptation.

MewElla
MewElla 2011-02-22 08:04:38 -0600 Report

I think my frusteration comes from the fact that I now have to "think about" everything I do with my life is controlled by the diabetes. I need to stay calm, absolutely have to exercise, check all my food intake an learn what drives my #'s either up, down or normal, listen to folks who do not understand what diabetes is but who are extremely authorative about what I should or should not be doing. I know I am healthier by far for walking on this journey, but, I have human emotions that do surface up now and then. When that frusteration flares up I know I just have to let it go and move forward I will not give up my daily fight..

PetiePal
PetiePal 2011-02-22 07:54:31 -0600 Report

Agreed with poster…it's annoying that it's this "ever-present" thing now that's in my life. I have to read food labels, I can't just eat now think about later. It's part of my life and so deeply entwined that it even can affect intimacy.

I think the worst part or most annoying bit is that if I had to deal with it in my life it's at the age of 28 and on…instead of say in my 40s…I feel very limited (although I know I'm not, the feeling still nags) in what I want to do now…like travel abroad, vacations etc. It's just so much more work that isn't second nature just yet since I'm still acclimating.

Judi62
Judi62 2011-02-22 12:48:36 -0600 Report

I was only 22 when I was diagnosed with type 1 diabetes. Healthy as a horse, you might say. Definitely not the sickly sort. No one in my family had it that I knew of. I thought I had caught some sort of virus because diabetes never entered my mind. That was almost 26 years ago.

I want to tell you it gets easier. Sometimes, it seems so. But… As you get older, the diabetes can contribute to other health problems. I was diagnosed, about 6 months ago, with Diabetic Retinopathy which affects the eyes. The eyes sometimes sends false signals to the brain telling it that more oxygen is needed. So, new vessels get created at the back of the eyes. Sometimes the vessels begin to leak or burst, which can cause permanant loss of some sight or all. This is why it is SO important to pay close attention to the different signals your body will send you. Mine? I started seeing spots in the line of vision. I did not ignore it and called for an appointment right away.

You need to take care of yourself to the best of your ability. In most cases, your body will tell you when something is wrong. You need to see your Endocrinologist regularly and a mediacl doctor, too. With their help, you'll be just fine.
Judi

2010-05-12 20:07:37 -0500 Report

I guess the only thing I find irritating about diabetes is having to spend time reading labels etc etc.. so time consuming. It will probably get easier and faster later on though :))

mzcrowley70
mzcrowley70 2010-05-12 15:48:43 -0500 Report

I can't think of anything that irritates me about having diabetes… and perhaps that is because I grew up with it, taking insulin, since age 2. Its just a normal part of what I do every day in checking my glucose levels, making dosage adjustments, exercising, planning healthy meals and snacks, etc. There isn't anything that diabetes has held me back from so far in life that is of any importance. I travel, I work, I've graduated college, I grow gardens, I spend time with family, cook on the grill, etc… I suppose the frequent doctor visits for check ups could be considered irritating, but again.. to me, that is just normal.

ccritch
ccritch 2010-05-12 11:57:41 -0500 Report

Amen, I know how you feel, I go through that everyday, I know people mean well but they don't understand that it hurts us. This is a disease not something that is like a cold you have it for few days and your better. Your whole lifestyle changes. I wish people were educated before they speak. I hate it when people are talking about their illnesses and you say I am a diabetic and they look at you like you have contagious disease don't touch me, oh I am so sorry for you, thank god I don't have it! too bad, just put salt on the open wound why don't ya! I say. My mom is the first one to start to say you need to do this you need to do that you don't take care of yourself, you're not exercising enough, you this you that! I am sick of it, You need to loose weight if I don't tell you this no one else will. Oh bother! So when she starts I say I gotta go. It is difficult to lose weight being a diabetic, it is not easy changing , and everyone in the household wants something different than you. They want the stuff you can't eat. Learn about my disease and then come and talk to me. It is a daily battle!

I go to bed afraid every night that I may not wake up. I thank God every morning that I do see my daughters beautiful face. Why can't everyone else see our dilemma our struggles!

LabRat90
LabRat90 2011-02-26 14:39:07 -0600 Report

I agree. I hate when someone knows less than you about diabetes; but thinks that they should tell you how to manage yours. Especially if that diabetic someone is not doing the same thing that they are telling you to do or not do.

kdroberts
kdroberts 2010-05-12 11:38:24 -0500 Report

Not being able to not think about things. Things like food, working out and going out. It would be nice to be able to go out to eat without having to take a bunch of stuff with me and then ordering what looks like the best thing on the menu rather than the thing that's best for me.

monkeymama
monkeymama 2010-05-11 23:40:09 -0500 Report

What irritates me is when I get BAD cravings and it will be craving that I know I can not indulge in (except my craving for chicken—-I do get some healthy cravings). When I do cave in to a craving I just get so depressed and angry at myself. The other irritation is my husband and lack of support. Despite the lack of support and my husbands thing. I have learned to come to terms with this. I've have to learn to pick and choose my battles carefully.

Rhonda Layman
Rhonda Layman 2010-05-12 10:59:33 -0500 Report

I agree about lack of support from husband and family. The "oh just this once" remarks, or, "I just made this dessert, you have to try it." I get tempted enough without help.

Danni-the-diabetic
Danni-the-diabetic 2010-05-15 15:22:22 -0500 Report

I get that alot, "oh just this once won't hurt!" or my they will say that my niece made it special for me and I will hurt her feelings if I don't try it - that one usually gets me and I'll have a bite and tell her how great it was.

MAYS
MAYS 2010-05-11 09:25:52 -0500 Report

Everything !
But nothing negative associated with diabetes will ever make me stop living or hoping that they continue to do research and find a cure, not for me but for others who are in a much more serious diabetic state than I am.
Especially infants, children and the elderly.

~Mays~

ccritch
ccritch 2010-05-11 08:56:56 -0500 Report

What irritates me the most about being a Diabetic is that it could happen to anyone, not just heavy people, it can happen to thin, very healthy people. For some reason some people think it is because you did not do what you were suppose to do after having children. If it is in your family you will get it no matter how healthy you are.

The other thing that irritates me is the fact that I am a diabetic and I have no support at home, so much junk food is being brought home, cakes, snacks, no healthy fruits, vegetables nothing like that just junk! they know I am a diabetic and they offer me these things. WHY!, I tell them no I stick to my control (most of the time) it does not help me. I need support and I tell them this, I tell my husband to come to my appointments with me so my doctor and give you an earful. I am tired of talking and yelling and screaming saying no more!

How can I stop this! I buy the vegetables, Fruits, healthy snacks but my husband refuses it and now my daughter will say she doesn't like this or that when she does, she loves vegetables , but if dad says no then she says no. How can I get this message across to them how important it is. I am irritated and annoyed and want to run away!

monkeymama
monkeymama 2010-05-11 23:30:35 -0500 Report

Here here!!! I am totally you with you on this one. My husband is not as supportive as I wish I could. I have learned to accept this fact. I've moved on from this and am doing for myself for me. For the food thing, I do the grocery shopping. I made a deal with my family: pick two things (each person) that I will not take away or change within reason. It has been working out GREAT. :)

RAYT721
RAYT721 2010-05-09 13:29:38 -0500 Report

I won't say "irritating" but I will say "frustrating" is that there are no cures for it. I am recently diagnosed so for me it's a whole new lifestyle. I believe that diabetes is a misunderstood disease because, to be honest, I knew a lot of diabetics but never realized the lifestyle changes they had to make. I had heard about insulin and other medications but certainly no idea what it meant. I assumed that you simply wake up, test your sugar, take a shot of insulin or pills … and that you were done for the day. It never dawned on me about the change of diet, the depression, the side effects, or the long-term complications and risks. I've been here on this board and others learning, sharing, asking, and sometimes even answering questions. I regret that I was so uninformed and when it comes to the word "irritating," I would have to say it's that while my doctor was quick to diagnose me, I can't say that I got a lot of support. "You're diabetic… you need to watch diet and ramp up the exercise and I'll see you in three months… have a nice day" was a quick recap of the phone call. Now THAT'S irritating!!!

gimpygardner
gimpygardner 2010-05-02 14:56:41 -0500 Report

Just 1 irritating thing is that I let my mom give me all the sweets left over after a family gathering,even though I know I'll eat it all in a couple days, then not eat much to compensate

WendyFR
WendyFR 2011-02-21 22:38:06 -0600 Report

LOL…my mom does the same thing to me knowing I can't eat it (I'm type I). But, she does it to get rid of it, because both my parents are Type II. My trick is I take it, so they won't eat it, but when I get home I throw it away, so I'm not tempted.

Miminv
Miminv 2010-05-04 18:35:45 -0500 Report

Yep, my mom and ex would start with halloween and not stop till after easter. It was choc. candy all the time except summer. I put a stop to that three years ago and told both to keep it to themselves and that I have my sugar free if I need it. I told them that I do not have self control when candy is around and that I need for them to understand this. My ex left about a year ago and my mom tried to give me her left over candy from halloween. I yelled at her that if she is trying to kill me I will eat it or she can stop now. She didn't do it for thanks giving, christmas, or the last two holidays. She keeps trying though. Thats the feeder in her, trying to feed to make people happy. It is a big problem in the U.S..
Good Luck and more power and strength to stop.

Miminv
Miminv 2011-02-26 13:50:19 -0600 Report

My update from my mother. She has now found the sugar free candy at Walgreen that comes out at the holidays and gives that to me. I think she is just wired to give candy at holidays. I told her that this is OK and thanked her for converting to the sugar free. I am enjoying holidays again not having to fight about having sugar candy in my face. Side note: some sugar free candy can give you "bathroom" problems, so try one and give your body time to make sure it doesn't affect you. Some will only give you gas and other will give you a laxative effect. Just saying.

Pamiekae
Pamiekae 2010-05-02 14:13:12 -0500 Report

To me the most irritating is trying to balance it with other medical problems and medicines the other doctors want to put you on knowing you have the diabetes and not checking to see if the meds can cause problems. I have to constantly check with the pharmacy before they fill prescriptions and have them call the doctor if it isn't a good idea for me to take them. And I agree with Pickle42789, I've kept my condition quiet to most but the few who I did tell instantly started to watch everything and anything I eat and try to give me their "expert" advice and take offense if I tell them the doctor has okayed my eating the item or that I've made it with sugarfree products so that it is okay for me to eat it as if I've insulted them by not taking their advice.

Sinraeyan
Sinraeyan 2010-04-29 11:07:31 -0500 Report

I would have to say watching my friends eat and drink whatever they want. That right there is my biggest pressure. I watch them eat and manage to convince myself that it is ok if I have a little bit. I miss the days that if I wanted something I could just get it and not worry about it.

tabby9146
tabby9146 2010-04-27 17:30:38 -0500 Report

for me, right now since I control it by diet and exercise (used to be on pills) don't hate me for this, but it's having to take a snack with me everywhere, having to have my purse with me cause I need my testing kit with me everywhere. I used to love not having to haul my purse around everywhere. Going on my first big vacation since diagnosis (17 months ago) one stop is an all day amusement park. Got to have that purse, I won't feel free about it. It will be hard to go on rides and things with that. Guess I will have to miss out on some things. Later on, as it progresses I am sure my answer to this question will be different much like most other replies. I miss many things I used to eat, at first it was easier to have small portions of 'bad' sweets but it is getting harder now.

Rader
Rader 2010-04-27 14:35:26 -0500 Report

I am my biggest irritation. I have had T2 since 95 and I never took it seriously and basically ignored it until a couple years ago when it took a tole on my heart contributing to my CHF and causing me to have neuropathy of the legs and feet with the feet being the worse of the two. I can feel them getting worse and worse by the day. I caught the T2 in the very early stages and if I would have changed my lifestyle ,lost weight and took the medications I was suppose to I would not be in the mess I'm in now. And if I had to choose another irritation it would be how expensive it can be to eat healthy

NewTerry19
NewTerry19 2010-04-27 09:58:49 -0500 Report

For me, it's the "control" part. Doctors say "Don't let it control you, YOU have to control it." But if you really think about it, even if YOU are controlling what when and how you eat the Diabetes is still CONTROLLING you, because we as diabetics have to eat on a schedule, take our meds on schedule, pretty much do EVERYTHING on schedule and in a way the diease is controlling you, yes if done like we a suppose to do everything we control how the diease affects us and the complications, but overall it still controls our lives and how we live, it sucks, but it's also a part of how we have to continue to live.
Thats just my opinion.

scribbles
scribbles 2010-04-25 19:31:00 -0500 Report

The ONLY thing that really irritates me about being diabetic is the "goody two shoes food cops". I offered to feed one his teeth today at church. (After about 10 mins. of BS. His dad (pastor) thought it was funny).
I RARELY get riled enough to do or say anything "unpleasant" but it just flies all over me when somebody who has no earthly idea what they are babbling about is giving me (diabetic since 1995) orders on my diet!
Hang in there, you will be fine (not perfect, fine!)

Anne56
Anne56 2010-04-24 10:29:35 -0500 Report

What irritates me most about having diabetes is in regards to what I can no longer eat (including how, when, and portions). In actuality, though, this is true whether or not I was diagnosed with the condition, but having diabetes causes it to be of more immediate concern and adds frustration.

Up until I turned 40 years old, I was able to eat whatever, whenever, and however much I wanted without gaining weight, feeling sluggish, feeling guilty, or having indigestion or other problems. Not that I totally did; I have always been conscious of good diet. BUT, when I wanted, I could "pig out". Those occasional times of abandon were very, very good! They certainly helped me to stay on track the rest of the time.

Now, it seems that every time I allow a bit of a "cheat", it only opens the door for more, rather than having a satisfying no-big-deal effect.

We're all very different in our life experiences, relationship to certain foods, and eating habits, etc. For me, this challenge is the most frustrating to figure out.

Anne

serenity_of_the_heart
serenity_of_the_heart 2010-04-23 14:33:52 -0500 Report

One of the most annoying things aside from the obvious is being in the middle of…an activity we will call it- with your significant other and bottoming out!!!! when i bottom out my face gets all tingly as well is most of the rest of my body and not in the good way…like the way ur foot feels when it falls asleep only its ur whole body…he never gets upset when this happens but let me tell you i get mad!!! and frustrated…"hold on honey i have to go drink some coke or oj and then ill be back! GRRRRRR

PACO LARA
PACO LARA 2010-04-23 15:40:12 -0500 Report

I HOPE YOU DONT MIND ME SAYING SO BUT I ALMOST APSSED OUT FOR THAT SAME REASON, MY SUGAR WAS 34 WHEN I MADE IT TO MY TESTER. THE OTHER END OF THE SPECTRUM, SOMETIMES I CANT FINISH. THAT FRUSTRATING. THANK YOU FOR LETTING ME CHIME IN.

dietcherry
dietcherry 2010-04-23 14:02:04 -0500 Report

My biggest complaint is always having to schedule life around having diabetes. Always having to have your meds nearby, eating on schedule every single meal, checking your blood sugar; doesn't leave alot of room for spontaneity! :)

LadyDi - 26259Miller
LadyDi - 26259Miller 2010-04-23 16:01:18 -0500 Report

I guess this is not a big complaint for me because I don't do such a good job of making it the priority as I should. I really need to work on it and do better. It definitely is annoying, even for what I actually am doing.

mlmeyers
mlmeyers 2010-04-25 14:54:47 -0500 Report

AMEN!!! Especially when your invited to social events like when people invite you out to dinner and want to go at 7pm which is too late for us to have dinner.

Rhonda Layman
Rhonda Layman 2010-05-12 11:10:42 -0500 Report

My husband works late a lot, he's in sales, so our life is not on schedule. If I want to eat with him, my eating on schedule is messed up. Then I'm hungry and tend to overeat. A snack doesn't help, because then I'm still messed up. It's hard to figure out the "balance."

ken-e
ken-e 2010-04-26 02:18:22 -0500 Report

For me it is a pain sometimes at work, where I work alongside another diabetic. Because we have very different meal schedules and medication schedules, we need different accommodations lunch breaks. He has to eat at a certain time, while I need to eat after a certain number of hours. Two people with the same disease, yet very different needs. How do you explain that to someone with little/no understanding of the disease?

dietcherry
dietcherry 2010-04-26 11:03:42 -0500 Report

Hey Ken-it is very difficult to explain to someone unfamiliar with the diabetic routine how we operate. There are still SO many people without a real understanding of D and back up from me when I tell them I have it! LOL But I've experienced alot of compassion at work, too; my last boss would tell me to do whatever I needed to do, when I needed to do it, and not to worry about letting anyone know, just go do it. She even bought and kept glucose gel in her desk for me because I suffer from low BS way more than high. I think even if I was cured today, I would probably still eat on my schedule, kinda like a lifer in prison! LOL :)

Gabby
GabbyPA 2010-04-23 11:59:26 -0500 Report

The most irritating thing to me is the constant roller coaster ride. One day things are great, the next day it is all down hill without breaks. One day a method works, the next day it won't. One day a med is working great, the next day I can't figure why it isn't working so hot. That is what drives me crazy some days.

Miminv
Miminv 2010-04-23 23:46:44 -0500 Report

I think that female hormones are one of the reasons for the coaster ride.

Gabby
GabbyPA 2010-04-24 08:19:12 -0500 Report

That could very well be. Dang! I can't do anything about that.

Miminv
Miminv 2010-04-25 03:27:06 -0500 Report

You could log everything from food to how your day went and see if some food is better for you to eat at different times of the day,week or month.

ken-e
ken-e 2010-04-26 02:21:37 -0500 Report

It's a roller coaster ride for guys, too. We control what we can, yet sometimes still lose control. :-$

serenity_of_the_heart
serenity_of_the_heart 2010-04-26 07:52:35 -0500 Report

I totally hear u there Gabby!!!! Its like we try so hard to stick to the routine and do the right thing and ur numbers show something totally different!! Frustrating doesnt even begin to describe how that feels!!!! I get downright angry at my disease sometimes, especially if it puts me in the hospital…the rollercoaster ride definitely makes me crazy too!!!

Miminv
Miminv 2010-04-23 10:47:24 -0500 Report

Also I would like someone to invent a way to get BS without sticking my fingers, I only have 10 and its been 15 years of this. They can put a man on the moon and transplant body parts they should have a meter that hovers over your skin and tells you your BS. There I invented, now someone make it.

LabRat90
LabRat90 2011-02-26 14:48:33 -0600 Report

I vote for that too. How about something like those finger Blood Pressure monitors? That should be doable.

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