Diabetic Freaks???

By Richard157 Latest Reply 2010-04-22 22:41:50 -0500
Started 2010-04-21 20:11:52 -0500

When I participated in the Joslin Medalist Study in December, 2009, I was told that the goal was to examine 750 long term Type 1 diabetics. They have examined approximately 600 so far. The Study is to conclude in April, 2011.

All the participants have been Type 1 for 50 years, or more. You would think these Type 1's would have had good control to have lived so long and have no serious complications. That is not entirely true. The person in charge of my examination told me that several participants freely admitted they were very careless with their eating habits and rarely tested their BG, but they had no complications after 50+ years. Many of us, like me, knew so little about proper diabetes care during our first 30 years, but have used very good diabetes management in more recent years. My diabetes management was horrible until I found I was supposed to follow a low carb diet in 1988. Even then, I did not know about basal/bolus control with carb counting, but here I am after 64 years with no complications.

I think we Medalists are diabetic "freaks". We should not have lived so long and have such good health. I just hope that the Medalist Study will provide a treatment that can help recently diagnosed and younger Type 1's so they too can avoid complications. That is what Dr King, the man in charge of the Study, hopes will occur. Maybe we freaks have made a significant contribution by participating.

4 replies

John Crowley
John CrowleyCA 2010-04-22 15:51:14 -0500 Report

It is discussions like this one that really "get" me as the parent of a diabetic child. I don't really think that my emotions around diabetes are that close to the surface. But when I read about those, like you Richard, and like Dr. King, who are working together to help young diabetics avoid complications, it really hits me. I'm so grateful for the tools available today. I'm so grateful for a doctor who has kept himself at the cutting edge of this disease to be able to provide the very best care to my son.

Thanks, Richard. I can only hope and pray that someday my son and I can talk about his 64 years of diabetes without complications.

Richard157 2010-04-22 22:41:50 -0500 Report

John, I believe that advancements will continue to be made. New technology and treatments will be devised that will make all the young Type 1 diabetics have an easier, longer and healthier life. Diabetes is currently number seven in the list of causes of death in the USA. In the decades ahead I think it will drop much lower on the list. Even if the Joslin Study produces nothing of consequence, diabetics living a very long time without complications will no longer be unusual. Good care and the right attitude are your son's defence. Good luck to both of you!

MAYS 2010-04-21 20:28:42 -0500 Report

Richard, your contribution to the medical field in the area of diabetes research is unmeasurable as is the contribution of others, without all of you and your longevity, diabetic research would be decades behind where it currently is, your success has made the success of others possible.

My thanks to all of you, although small in words, comes from my heart, without you, this may not have been possible.


GabbyPA 2010-04-21 20:15:51 -0500 Report

Richard, you are our favorite "freak"! Living 64 years healthy is an accomplishment, with diabetes is astounding, specially type 1. I am glad you are helping with this study. You will have to keep us posted as to what the out come is.

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