not a reaction but a convulsion

By warren Latest Reply 2008-08-23 10:53:29 -0500
Started 2008-08-04 03:04:12 -0500

these occure 99% of the time when at a sound sleep. When awake I have full mental capasity but the body does not react. I become so I was told , very hostile and refuse to let anyone give me any liquids through the mouth. The parametics have to be called so they can strap me down to administer whatever they use. This saturday I had a sugar that started out at 95 and went up to 190. Fell to sleep and 25 minutes laterthe parametics tested my sugar and it was 21. They had to be called again. But such a drop and so quick. WHY When these occure when I am awake my sugar never reacts this way. In 49 yrs. I never had a problem such as this. I was advised by medical professionals to maintain a sugar around 140. Which I do. I average between 7 and 10 blood tests a day, sometimes more, especially at night…I have always been a critical diabetic. does anyone have any imput to this. warren

15 replies

Pauline B
Pauline B 2008-08-16 19:24:12 -0500 Report

Long before I became diabetic and had to learn about my own idiosyncrasies to carbohydrate intake, exercise, etc, I had a gentleman-friend who was Type 1 diabteic who also had epilepsy and saw a neurologist as well as his endocronologist. His seizures only occurred in the middle of the night when his blood glucose levels became too low and he did not wake up in time to eat/drink something. This was before we had testing devices other than BG chem strips. My friend was also very intelligent and knew more about his own body's goings-on which esasperated his doctors as he did not follow their precise orders but did as he logically felt right.

My suggestion is perhaps an EEG might show something that relates the the fluctuating blood sugars. Sometimes we think that diabetes is the total sum of ourselves and that there is not room for anything else to go wrong.

As an example, my diabetes is under really good control, but I have 3 kinds of anemia that have my hemetologist stumped and concerned. I eat to treat the anemia and put the concern for cardiac complications in the left-field bleachers. Life is bunch of trade-offs.

Good luck with finding some answers.

warren 2008-08-23 10:53:29 -0500 Report

Hey pauline B, you too are a very wise and knowledgeable diabetic. Thank you for your points of interest. I see where I can go to get a little input. I thank you. I have a cousin who is an epileptic and once dated a girl who had it. So I know what is involved with that. I was once told by a Diabetic specialists when I first started having my convulsions that I was becoming a epileptic. But you know we as diabetics should know more about ourselves than any Dr. and we should be able to treat ourselves. I have been very fortunate in life to have only those WISE Dr.'s who will agree to the fact of us treating ourselves. I have spent great time in talking with my dr's about it all. They know each one of us are individuals and ahould be treated that way, and not as a group. thank you again Pauline

DiabetesDiva 2008-08-14 05:21:19 -0500 Report

I too just see my regular dr and not a specialist. She takes wonderful care of me. How frightened you must be when this happens to you. Please check back with your doctor and see what can be done to help you. Perhaps keeping a log of sugar levels and diet would be helpful to your dr.

Take care-


morris.js 2008-08-14 04:09:50 -0500 Report

Hi Warren, Everything that has been said to you thus far by the members here is right. I do not go to any specialists, just a general doctor. For quite a few years, he and I had pretty good dissagreements over how my treatment plan should look. I brought him recoerds of my food intake, activity levels, medications and dosages, and so forth. I also documented my test results to compare. He and I now both understand each other and work together to build the right plan for me. He knows I'm taking an active part in controling this disease, and he also knows he is going to back up any of his theories as to why he wants to make any changes, as I am informed. So after a lot of hard work, we are now a very good team. Because of my continuing to stay educated on things, he too is forced to do the same.
Also, like John has said, if you gave some information on what your insulin dosing routine is, we might be able to better guess at what might be happening. Although most of us are not medical doctors, there is a collective knowledge base of information through experience in the members on this site.
I wish you all the best for a quick answer to your problem.

warren 2008-08-14 13:15:49 -0500 Report

Hi Morris, When I became a diabetic I had to know everything about it, for I knew that I was going to have to take care of myself and the diabetes becouse it was me that has it. A year after I came down with it I went to the Joslyn Clinic in Boston. In one week I got the best education in my life. They taught me how to live with and how to deal and take care of my diabetes.At that time my own Dr. told me I knew more about it than he did. And thats the way it has been ever since. There is no person or Dr. that will know as much or more than the diabetic themself. For if you are a diabetic you better know more becouse you are the one living with it, and no one else is walking in your shoes, but yourself. If you do not know how to deal with your own diabetes, and have to run to your Dr. to deal with high sugars you better give up. My intake on a daily basis is 16 units of humalin N and 10 units of humalinR depending on what my sugar is. During the day I will most likely take multiple shots of the R again depending on my blood sugars. It also takes into account my activity. I could take 2 shots or I might take 5 shots. It all depends on those sugars. At all times I keep a well controlled blood sugar. Depending on what time it is I will play games and not test my sugar but will wait for an hour and then guess at what it is. I am usually no meor than 20 points off. I could do this most any time of the day. But I can do this becouse I know my diabetes and spent 49 yrs. getting there. This is why a diabetic has to know more about their own disease than any Dr. who is treating them. My Dr. treats me but not for diabetes. I make all my own adjustments when taking insulin, and eating what I want to eat. All foods can be eaten by diabetics. Doesn't matter what it is. If you know how to calculate calories for units of fast acting insulin you can have anything you want. I know a Dr. who is a diabetic and has only diabetics for patients. He treats most all of them with fast acting only. He has taught them how to do the necessary calculations with their food and insulin. That Dr. has one big family of diabetics who are in better control of their diabetes then you will ever see anywhere. He is living proof and so am I of how to eat and live as a diabetic.

John Crowley
John CrowleyCA 2008-08-14 02:52:52 -0500 Report

Your experience is indeed unusual and deserves addressing. Something that would help me to be able to share any kind of useful advice would be to know what you ate and what medications you took the day of and especially immediately before your episode.

What kind of insulin do you use? How do you match what you eat to the dose of your insulin?

That information will help me better understand how something like this could happen.

warren 2008-08-14 09:32:55 -0500 Report

My Chiropracter and my son are the only tqo people who have been able to give me any help. I now only take 4 suppliments but the most important thing is that I have stopped taking Humalog insulin. That seems to be the cause of it all. I have experimented with it and found that the muscle spasims return when I use that insulin. I know very well how to treat myself for my diabetes. The food I consume has nonthing to do with the problem. I have experimented with this for 8 yrs. now and know very well where the cause is arriseing from. My diet and insulin intake are well under control, as they always have been.Through experience I treat my own diabetes and go to only one Docter. I keep my distance from diabetic specialists becouse they know nonthing about diabetes. I needed to know what the cause was, and as usual had to find it myself. Which I did. The medical profession as usual could not give me any salutions what so ever.

John Crowley
John CrowleyCA 2008-08-14 09:38:33 -0500 Report

That makes sense. Humalog is a fast-acting insulin and really the only way I know of that a person could drop from 190 to 21 so fast.

I'm glad you've got it figured out. I hope you stay healthy and happy.

Take care.

warren 2008-08-14 12:21:22 -0500 Report

Thanks John, but read what I said above about the last two weeks. You know the humalog is a good insulin but not in my case. I had better control when using it but I also suffered. If it wasn't for my own experiments the past two weeks I never would have known. I never keep records of my blood tests or what I eat for I always do the same thing. Test my sugar , figure what I want to eat and take enough insulin to cover the food. To me keeping a record is a waste of time and effort. To me it is like living in the past. I am at a point now where I look at a portion of food without measuring and figure that it will take ex amount of units of insulin and with the time factor envolved how many units I will need to take to keep my sugar at 100. I know my diabetes very well and for 30 yrs. plus my sugars are closer to that 100 mark, more so all of the time. I am always testing for thats how you keep control. If my sugar does go up more than expected, then I just shoot up with what is necessary. The important thing is I don't wait. The sooner you get the sugar down the less of a problem it will be later on in life…long term side affects…I would much rather use the Humalog becouse it works 3 hrs. quicker, but such is life, I prefere not to have the cramps.

warren 2008-08-14 12:43:52 -0500 Report

Sorry John I was on the subject of those Muscles cramps. With the convulsions I can except that it might be an overdose of insulin but I am very aware of what could happen, so I tend to be to cautious especially being at night. The fast drop of my blood sugar has got me bewildered. It should have gone in only one direction, and that was up. I am very cautious when shooting up . I watch what my sugar was 1 and 2 hrs. before I would eat. If my sugar is dropping I take less to cover what I will eat. If it is rising I take a little less then what I will need to cover the food, knowing I will have to test again to see where the sugar level is and then I react. If in two hrs. my sugar goes up only 10 or 15 points, I will let it go and test again in 2 hrs. I will react to what ever it is then, but I do not take more insulin if it is 150 or less. By all rights any person dealing with diabetes would agree with the fact that the blood sugar should have gone higher, and not down. Back to my experimentation I guess. I always make sure that if and when I fall to sleep that if anything my blood sugars are rising. I always eat something. With what has been happening I make sure that there are no injections unless my sugar is out of control, which it never is. But I will not inject at night. I would rather deal with a high sugar in the morning, knowing that I will get up. My food intake, insulin, activity,,,,everything is all accounted for.

GabbyPA 2008-08-13 15:01:30 -0500 Report

Push, push, push.
I have not gone thru anything like this, but my husband suffers spasams that make him kick and flail for days if it is not managed. Doctors just looked at us like we were nuts to expect a diagnosis. They just filled him with sedatives that made him sick, said "Oh well" and sent us on our way. I almost had to yell at staff to get a neuroligist to look at him. All he did was perscribe a stronger version of the sedative. What good is that?
So after several emergency room visits, we decided to do our own record keeping and observations. Now we have information to feed the doctors and this does a couple of things.
First, it lets the doctor know that you are not going to settle for the status quoe answers. That we are not stupid patients, but involved.
Second, it gives them insight as to things that maybe they didn't think about. It gives them food for thought and hopefully if you find one that you can work with, toghether you guys will find out what is triggering these episodes.
It took us over a year and several more episodes suffered by my husband, but we have found two causes (we believe) and now that we can control the triggers, we have had no episodes for over a year. The doctors still say that we are not right, but you know what...we are episode free, so something we are doing is right, even if the dr's don't think so.
It takes time, but something has changed in your body. It is telling you to look for something. Keeping track of everything from how you feel, what you eat, exercise and even the all makes a difference somewhere. Once you find it, at least you can know, and then maybe get the help you need.

Lanore 2008-08-12 05:57:07 -0500 Report

Hi Warren,
What kind of a Dr are you going too?? I go to a very good Dr that will listen to me when I am having a problem and work with me as well. I have been diabetic for over 20 yrs, type 2 but I also have to use insulin to keep in in check. It sound to me as if you just have not found the right Dr. they are out there. We just have to found the right one for us. I hope you will keep trying. Lanore : )

warren 2008-08-14 12:00:48 -0500 Report

The Dr. I go to is one of the best, for what my needs are. It isn't him it is the rest of the so called medical profession that needs help. Also, it has to do with lack of knowledge with the medical profession. I don't need any kind of help with the control of my diabetes, for I keep and maintain perfect control and have done so for 49 yrs. It is the so called side affects that develope in diabetics who have the disease for many years. But again in the last two weeks I played games with that Humalog insulin. Each week for 3 days I used it and in doing so I developed those severe muscle cramps each day I took it. Than let 4 days go by without using it, and had no problems. I then took it again for 4 days, and each day I had the cramps. THE big question is for all those years I suffered and saught help with the professionals and got none. How is it that My Chiropracter and my son, plus my own experiments I found out that it was the insulin. So much for the medical profession. And as of today when I contacted the manufacturer of the insulin …they still will not give me the time of day.

warren 2008-08-12 04:38:31 -0500 Report

Hi Butterfly, What I think of diabetics cannot be said on this site, but I DO NOT have anything good to say about them. For I went to one and he was trying to convince me I was becoming an Epileptic and the second one was trying to treat me for the conditions of other diabetics. Not one diabetic specialist out of 5 that I went to was able to understand that you can not treat all diabetics the same. For we are all different. The fourth one I went to never asked me a single question but immeadiately started to tell me I was way out of control. That in itself told me he was an A_ _ _ _ _ _ if you get what I am saying. For my diabetes has been under control for 47 yrs. Sorry but there were six of them and the last one specialized in just insulin. Without asking me any questions about what I was taking or how my blood sugars were running, he immeadiately wanted to change the type of insulin I was on. To me he was a complete fool and didn't know what he was doing. Becouse of who I am and my own personal knowledge of my diabetes I did what he suggested. Well for three weeks I could not get my sugars below 275. I followed his advice to the " T " with not one good result. I then put myself back on my own insulin and went back to him and told him he should go back to college and get the right education. My attitude and knowledge comes through experience. And my attitude follows. Sorry but thats me. warren

butterfly_8 2008-08-09 13:46:03 -0500 Report

It sounds as if you need a Diabetic specialist to diagnose you. Maybe if you do not get an understanable answer you will need a second opinion.You will have to insist on this.

Next Discussion: insurance in america »