scared and confused

mary73
By mary73 Latest Reply 2013-03-21 21:04:49 -0500
Started 2010-03-21 19:32:29 -0500

i am new to this site. i have been having alot of issues with my diabetes and i am scared but my doctor doesnot seem concerned. i don't know what to do or where to turn. any advice?


21 replies

liquorish
liquorish 2013-03-21 21:04:49 -0500 Report

Hello Mary 73. I was diagnosed in 1995, so it has been awhile, and I am still learning. All these guys who have replied have wonderful advice. Make sure you test when you are supposed to, and keep a log, because it will show you how you are doing. It will show what foods really raise your sugar, and what ones don't. And exercise, too. That helps to bring sugar down. Keep all your doctor appointments, and ask what the numbers mean. Kidney function and cholesterol are important, along with fasting glucose. Diabetes medicines can affect other things, like your potassium(sp?) and vit. D. So ask your doctor if those numbers are alright. Just read all you can, and these sites are great. Wonderful recipes. Good info. And reading the problems and solutions others have is great too. Good luck. And if you would like to "be my friend", that would be good too. Liquorish

ConnieMarie
ConnieMarie 2013-03-21 13:02:21 -0500 Report

welcome Mary73…your among friends that understand. at first you think "crap now what do i do?" your doctor sends you to an education class, it's just touches on do this and don't do this…but then you discover there are things besides diet that can affect your numbers…this is where DC comes in handy! :)

Miss_Teal
Miss_Teal 2013-03-21 12:45:42 -0500 Report

Mary73 I am right there with you - it's such a shocker at first and all the materials I didn't know which way to turn. I remember a co-worker who I hardly know openly mentioned it to someone Years ago so I approached him about diabetes and the first thing he told me is you need support. I'm so lucky to talk with him daily and join this website.

Just Joyce
Just Joyce 2012-03-01 10:56:49 -0600 Report

Mary, I am pass the point of being scared, shocked or surprised. However, I was a bit upset when I was diagnosed but that didn't happen for about 8 hours. I take things in stride and roll with it.

First and foremost, control your diabetes, don't let it control you. Learn as much as you can from dLife.com, the American Diabetes Association and here on DC. Read and learn and make a list of questions to take to your doctor. I am very vocal and I would tell him you may not be all that concerned but I am.

Call heath centers and area hospitals and see if they are having a health fair specifically one for diabetes. I went and got a wealth of free information and a new meter. Rite Aid is giving out Diabetic Kits that has some useful information and they are free. Diabetic Living offers a great magazine with articles and websites. There is also one from the Mayo Clinic but it is very expensive so I flip through it when I see it for sale which I think is quarterly.

Remember, you are not alone on this site. At some point all of us have been through what you are going through. Good luck to you.

jigsaw
jigsaw 2012-03-01 07:30:20 -0600 Report

Once you are armed with adequate info, your fear will be alleviated.There are many avenues that lead to helpful info. There are many informed members here that have had similar if not the same experience that you are having. You can utilize the (Ask the Expert ) on the home page! These are Doctors, dieticians, and diabetic educators from the Joslin Center for Diabetes that will help you with your questions. One of the toughest things about being diagnosed for many is figuring out where to look and how to get the right info. You are very fortunate because there are thousands of members here that are more than willing to help point you in the right direction.

Set apart
Set apart 2012-03-01 06:17:38 -0600 Report

Welcome, and we all know what it's like to be scared. Iwent to the ER, diagnosed, handed some prescriptions, including a meter and sent home all within an 8 hour period. Thank god you and I both found this site! Best of luck"

JSJB
JSJB 2012-03-01 04:42:51 -0600 Report

I don't know if I was scared or not but I do remember the dr's visit and my first thought was "ohhh geeeez needles" I hate needles but that went away and now 4 months later I check by b/s without hesitation, visit DC daily and get as much info as possible. I said this before that I must be lucky to have a doctor who cares, asks me questions and said "we will get you off meds but it will take time" So if you are not satisfied with you dr. look for another one who cares. They are out there.

diabetesofficevisit.com
diabetesofficevisit.com 2010-10-10 13:46:38 -0500 Report

Visit my web site. diabetesofficevisit.com. I have" the doctor is" in section under discussions and I will do my best to respond to your questions in less than 24 hours. My book Diabetes office visit will help you get the most from your doctors visit. Available paper back from dcalder@diabetesofficevisit.com small and as an ebook and iphone app from diabetesofficevisit.com. Dr. Calder

Danielle B
Danielle B 2010-04-07 14:13:42 -0500 Report

Hi! I will not lie to you about it being scary and confusing but there is a way to ease those things. SUPPORT! I have been on this site for a little over a month and I have found out some really great things and connected with people in various roles in a diabetic's life and all have a point to make that usually helps me with my daily struggles. Doctors are essential in diabetes but you mostly have to rely on yourself to do the things that need to be done but a good support system is also essential to encourage you that you can do what is needed. I have learned through this site that there are really no stupid questions or concerns because at least three other people have had the same thought. We have shared many thoughts about things like diet, A1C results, diabetic cruises, feet, eyes, or just about anything that you can imagine. Look through some of the other discussions and acquaint yourself with some of the other people on the site and some of the types of things brought up. It is a good starting point and we are all here to assist you. Relax and just follow the plan! We believe that you can do anything that you need to take care of yourself. Include others and make them feel important in your care plan. They may suprise you.

Always Available
Danielle

bluemax
bluemax 2010-03-24 21:15:21 -0500 Report

If you have a medical plan, find Accu-Chek on the internet and they will send you a free testing meter. Testing is a MUST! They will also send you a book to record yur readings and what meds you took. If your blood sugar count is around 110 you are doing fine, if your readings are near 200 … take your book and recordings to your doctor for his advice.

Gabby
GabbyPA 2010-03-22 08:33:35 -0500 Report

You are in a great place now, so take a deep breath. Good.

First, try not be be scared. Use that feeling of uncertainty to push you to research and study your condition. Educate yourself, so when your doctor talks with you, you understand what he is saying and you know what to ask.

Like you, when I was first diagnosed it was from a nurse from, well, we shall say a very warm place. She was so unhelpful, I cried the whole way home. Fortunately, I found great strength here and found my voice to know how to work WITH my doctor. (I told them I would NOT see that particular nurse again) Sometimes it takes knowing what questions to ask, and in the beginning we never know where to start. It is overwhelming. It took me a couple of visits with my doctor to get him to understand that I really did want to be an active part of my treatment. I would go in with all my questions that had come up during the 3 months and have them in a notebook with space below so I could write down his answers in my book. I brought my testing log book and even my food journal. I follow his directions, but am not afraid to ask "Why" or offer differing opinions. We have a good time now, and he knows that I am serious and he is much more helpful.

Now, if you find that your doctor is not being more helpful after you have become more involved, then it is time to move on to another doctor who is going to work with you. You need them to be helpful, and you need to be able to trust that they are looking out for you. After all, you do pay him for his service, not his cold shoulder.

mary73
mary73 2010-03-22 11:07:51 -0500 Report

i have gotten alot of great advice and information from this site. it's been great to have a place to go to talk with others who have or are experiencing some of the same things you are.

mtngal
mtngal 2010-03-22 07:56:11 -0500 Report

When I was first diagnosed I was so scared and knew nothing about diabetes. Everytime I went to the doctor I left feeling very confused and always had an uneasy feeling.

After attending several diabetes classes and hearing about the care that other people were getting from their doctors I decided to switch. That was the smartest thing I have done.

I felt bad about leaving my original doctor…but when it comes to your health you have to take care of yourself.

Wishing you the best!!!

Harlen
Harlen 2010-03-21 20:28:57 -0500 Report

Hello and welcome
Have you tested your blood sugar?
If you have and its high call a difrent Doc
Mary it may help to cut down the carbs your taking in.
The first thig I would do is go to walmart and get a meter there 9 to 12 bucks
and the strips are the cheepest
Test test test right down your # to show your Doc?
Best wishes
Harlen

mary73
mary73 2010-03-21 21:01:26 -0500 Report

i have been keeping records of my blood sugars to show my doctor and he does'nt seem to concerned but i am they have been running in the 40's and low 50's. his only suggestion was to start eating more pasta,bread,potatoes, and rice but after eating i get really sick and an hour later my suars are running low again.

jayabee52
jayabee52 2010-03-22 00:57:57 -0500 Report

That's good you are keeping records, Mary. Being in the 40s and low 50s is DANGEROUS. You could have sweating, shaking, confusion, lose consciousness, go into a coma. Some people on DC have told about seizures they have when their BG is low.

Besides "getting sick" do you have any other symptoms, like shaking, sweating, confusion, hunger? And please describe "get really sick". Do you feel nauseated, do you vomit, get a "sour stomach", heartburn?

What oral medication are you on? (My guess is metformin.) Different meds affect people differently. It may be that whatever you are taking, you are having a bad reaction.

You might want to use the search engine on the DC site to search for your medication, whatever it is, and check to see if someone here has had an adverse reacton to it.

I pray you have a better time managing your BG#s.

Blessings
~James~

mary73
mary73 2010-03-22 11:03:44 -0500 Report

besides getting sick i get sweaty,have shaking,nauseated before and after meals, my doctor took me off the metformin and said that should help but it has'nt so he got me an appointment to see an endocrinologist in two weeks but in the meantime it seems like i am left to fihgt alosing battle.i get so sleepy sometimes and i am afraid to go to sleep because i am afraid i won't wake up.

MAYS
MAYS 2010-03-21 20:25:55 -0500 Report

Welcome to Diabetic Connect !

Let's start by first taking the fear out of diabetes and replace it with knowledge and understanding that you are in control of and can manage your diabetes, there are no quick fixes, magic pills or cures, click on this link for more information :

http://www.diabetes.org/diabetes-basics/

You must know what diabetes is and what it does to the human body if it is not controlled, these videos will give you a general understanding of diabetes and it's complications :

http://www.diabeticconnect.com/videos/877-ani...

http://www.diabeticconnect.com/videos/879-dia...

http://www.diabeticconnect.com/videos/895-vid...

http://www.diabeticconnect.com/videos/884-blo...

http://www.diabeticconnect.com/videos/881-dia...

Do you currently have any books on diabetes and it's complications and \ or Foods and Nutrition ?

" Mays "

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