By traceyj Latest Reply 2013-04-14 08:05:03 -0500
Started 2010-03-06 04:57:49 -0600

Hello all.

I must say I'm very happy to have stumbled across this site as we are having great challenges with our 12 year old daughter who was diagnosed last June - while we were on a six week holiday in USA!

In fact, while in New York, she was diagnosed and admitted with a blood sugar reading of 580 (28 in Australian measurements).

Unfortunately for us, her specialist told her she could eat anything as long as she took the right insulin. She has taken that literally and has not been very cooperative at all.

While we accept that she has needed a period of adjustment, that excuse is running pretty thin.

She does silly things like take insulin and then decides not to eat, or doesn't eat enough etc. She skips blood sugar readings and does other dangerous things.

In January, we had to call the paramedics because she had hypo seizures and we couldn't revive her. Fortunately it was a very hot night and she was sleeping on the couch in the kitchen. Had she of been in her bedroom, she would have died.

We went to use her glucogun and it was broken (dog had got it), but she hadn't bothered to tell us.

You would think that a brush with death would make the difference, and it did - for a week.

Her dad and I are really worried about her, but we can't be with her 24/7.

Would love to hear some words of wisdom from anybody that has experienced something similar.

Thanks, Tracey (Melbourne, Australia)

p.s. She won't go to any support groups

28 replies

sNerTs1 2013-04-14 08:05:03 -0500 Report

No matter what age we are when we learn we are diabetic, there is a period of denial. This is no longer denial and as you said, its puberty. When I was 12 I was oblivious to diabetes even though it ran rampant on my dads side. When I found out, I was in my 40s and still denied it for about 3 mos. and I knew very well the effects of the disease on my body. I don't want you to scare her straight with stories of people losing their eye-sight, limbs and even organs from this disease, but try to educate her slowly that those are possibilities. I wonder I'd she could relate more to child athletes that are diabetic and still live a pretty normal life.


Are a couple of links that may help you. Realizing you are getting flooded with reading links, I have always felt that education is first and foremost in life.

I'm going to keep you all in my prayers and thoughts. Hopefully she comes around soon and understands the long term effects this disease can have on her body if she doesn't have better control.

*Hugs* Cheryl

Nana_anna 2012-11-26 11:31:57 -0600 Report

I am glad your daughter is okay though. I find it best to take insulin at meals. Follow the Dr. directions with that is so important. If I take insulin, when I do, I eat right after that. I made the same mistake, of not eating one day. Not thinking that it wouldn't go down. Well, it did, and I paid attention to my body's feelings, when the shakiness came. I stopped what I was doing and went straight to the kitchen to eat. I would have passed out other wise. It's alway a good rule to remember, insulin = eat. No skipping meals.

Khaki 2010-04-17 10:09:24 -0500 Report

I'm an old fellow, but I've tried cheating and taking insulin, and not eating, so I can get hungry and starving, and worst of all shaky, blood sugar reading 0. Then I try eating everything I can get my hands on, and after feel sooooo bad!!!!!!!!!

Richard157 2010-04-19 18:53:49 -0500 Report

Khaki, if your BS was zero you would be unconsious and an ambulance would be needed. What was the actual level when you tested? I used to have terrible lows, many years ago. When I dropped as low as 30 I needed help. I was not able to test or feed myself.

imsuzie2 2010-03-07 22:56:28 -0600 Report


With caring and loving parents such as you, Sabrina will get it together and be ok. You came to the right place, there are many who have been where either you or Sabrina are, and with your support, and theirs, thing will be ok. Best of luck. S2

traceyj 2010-03-06 18:57:57 -0600 Report

Thanks so much all of you for taking the time to reply.

One thing I forgot to add, is that I do empathise with Sabrina because I had gestational diabetes through two pregnancies and was also injecting insulin 3 times a day.

Of course this makes me susceptable to Type II which I've been fortunately to escape so far, but no guarantees.

I will be spending time today going through all your links.

Thanks again.

Melissa Dawn
Melissa Dawn 2010-03-06 22:53:53 -0600 Report


I was diagnosed right around the same age as your daughter — I was 11 years old, almost 12. It wasn't an easy time for my parents and I'm sure I drove them up the wall with fear at times. I was often embarrassed that I couldn't take better care of the disease. I hated going to the doctor because then my parents and doctor would see how badly I was doing. I was put on a diet and that helped — but when everyone around you is eating poorly and you haven't yet learned to carb count well, it wasn't easy.

Finding the right balance of discipline and concern is important. I hate to say using scare tactics is a good idea, but sometimes it takes really seeing what the outcome of bad choices with your diabetes can lead to helps. My doctors told me that if I didn't manage it I'd end up in a program for 7 days of retraining — that was enough to keep me from going too far off course.

If she won't go to support groups, maybe see if you can find an adult with Type 1 diabetes that might come and visit with her. My parents had a good friend who had been diagnosed with diabetes at the age of 18. I knew him well enough to know that I could live a fairly normal life — if I was careful.

Good luck. My heart goes out to you and her. Its not an easy disease at any age — and that time period of life is difficult enough without it.

Hinboyz3 2010-03-06 16:55:05 -0600 Report

Hello Tracey and welcome!! Having diabetes at any age is so difficult to deal with. Im 45 and just found out in Oct 2009 that Im type 2. It threw me for such a big loop, cause I thought I was ok, just having a father who has been type 2 for over 22 years wouldn't effect me or my brothers. But what you know I've got it hereditary, but I have to be the only one to deal with it. You've stumbled across a great site and wonderful new people too. Your 12 year old will get it together soon, she has to come to understand how important it is to daily life. I pray that she starts to understand how important she is to be living this life and to have such a wonderful caring mother as yourself. I too have a mom and Im the only girl of 4 kids and the middle child too. Im a daddys girl but a mommys girl too. So good luck and hang in their with you daughter the road will get easier.

Richard157 2010-03-06 09:54:22 -0600 Report

I was diagnosed with Type 1 in 1945, when I was 6. Like one of the other posters, I was young enough that I did not rebel. I followed my mother's advice and I have always taken very good care of myself. I have now been Type 1 for 64 years and I am very healthy. If I was diagnosed at the age of 12 I may have rebelled like your daughter is doing. I hope she will learn from these bad experiences and will start getting on track very soon. The bad complications she can experience with her eyes, kidneys, etc can occur if she continues this way.

Maybe she would join an online group and talk to other young diabetics. there is a diabetes site for teens. Here is the link:


There is also a wonderful site for parents of diabetic children. You should get very good advice here:


Good luck to you and your family!


desertflower 2010-03-20 12:30:31 -0500 Report

Hello Richard I have been type 1 for 51 years now, I was diagnosed at very young age, but now I am dealing with kidney functions at 34%, it sometimes makes me so angry because I have taken such good care of myself, and now this.

rankearl 2010-03-06 09:39:48 -0600 Report

hi iwas diagonsed many years ago when i was 11yrs old the postive thing you have going for you is that technology has greatly improved today for diabetics carb counting is the best thing im still learning 28 yrs later everything in moderation hang in there let me if you need anything prayers and ((HUGS)) julie

Harlen 2010-03-06 09:34:20 -0600 Report

Hello and welcome
I had a hard time dealing with it too and I was 40 years old and I know I had to take care of it.You may have too take her insulin away and let her only have a set amont of carbs.I had to go back to scratch and start all over again get to know what my inulin to carb ratio was what my backgrowned needs where.
then onece I got that down I was able to get my numbers down and keep them down.
You have a hard job to do.Kids are hard to teach things to that they dont wish to know.
Best wishes

traceyj 2010-03-06 18:53:32 -0600 Report

Thanks Harlan.

Actually, Sabrina is keeping her blood sugars down beautifully most of the time. Unfortunately she's doing it be increasing insulin, instead of eating properly.

I take comfort in your words though. Thanks

Sue Turner
Sue Turner 2010-03-06 08:49:56 -0600 Report

Hi Tracey,

I wish I could offer some advice to you…My heart goes out to you… I personally know how terrifying it can be for you…All I can say is just keep researching, and educating yourself…However, there are lots of wonderful people on this site who can offer some very valuable information…I will keep you, and your child in my prayers, and pray that you can find the answers, and support you are searching for… Best of luck to you and your family… ~ Sue

Crashnot 2010-03-06 07:37:42 -0600 Report

I was diagnosed when I was 11 months old, which certainly gave my parents a grace period of time to learn to treat me before I started "treating" myself! When I got older, I certainly remember my rebellious "Why me?" period. One saving grace was taking part in a one-week educational course at my clinic, which fortunately for me was a world leader in diabetes treatment. I don't imagine a second visit to the states is coming soon for you, but if you contact them, they should be able to connect you to a similar service in your country. They teach people on an international level, so should be able to come up with some names easily. Good luck! The tweens are not an easy time for any kids, and having a major disease on your hands would make it doubly challenging!


traceyj 2010-03-06 18:51:02 -0600 Report

Thanks so much. I'll have a look immediately and email them.

Crashnot 2010-03-06 21:07:19 -0600 Report

I can't say I'm too impressed by their website accessibility, but if you can find the Contact info, hopefully whomever you write to will move it along to the right person. Wish they had a better intro to their seminars.

MAYS 2010-03-06 06:54:27 -0600 Report


" Unfortunately for us, her specialist told her she could eat anything as long as she took the right insulin. She has taken that literally and has not been very cooperative at all. "

Many people do this, mainly due to current lack of knowledge about diabetes, and at times as a way of rebelling against diabetes, neither is good for the diabetic or the caregiver, education and explanation are the keys to solving this.





traceyj 2010-03-06 18:48:46 -0600 Report

Thanks so much Mays. I'm going to have a good look at your links.

katrat01 2010-04-19 19:26:55 -0500 Report

Hi Tracy! My son was diagnosed just after his 13th birthday. He is 14 now. So I can truly understand how you feel. He also ended up in the hospital with numbers through the roof and in a coma which is how we found out. When you couple the hormones of the teenage years with the newfound knowledge that they are not like everybody else it is pretty devestating for them. Tragic even. But after a while the calm settles in. Yes my son has eaten things he shouldn't have. And yes, he has done the increase/decrease the insulin thing to compensate.. But it all comes to light in the end. Have you and your daughter met with the nutiotionist at the doctors office? That was a whole new world for us. Your doctor needs to explain what he/she meant by the phrase "you can eat anything you want". The horror stories of what could be are very scary…for YOU. But to them, they are a teenager so therefore invincible and nothing bad can happen to them. My suggestion is give her some time. Monitor very closely eht carb intake and the insulin intake. I just surprise my son every little bit with counting everything out. Kind of wakes him up and lets him know that I am paying attention to him and his condition. I work with these kids every day and their main thing is to fit in. Help her to do this. This is still kinda new to my family, but we are adjusting one day at a time. Learn all you can about it and share what you learn when she lets you. Best of luck with all of this.

traceyj 2011-02-12 15:57:51 -0600 Report

Thanks so much. Unfortunately Sabrina is not doing her bit, but I suspect there may be other behavioural issues interferring. We're following that up as well. Yes, it certainly is the wrong age to be lumbered with something like this, but it has been a year and a half and she refuses to take responsibility in any way, shape or form - very worrying as a parent.
Your words have given me reason to hope, so thank you so much… Tracey