By cc9 Latest Reply 2013-04-15 19:09:40 -0500
Started 2010-03-05 10:57:18 -0600

i have been noticing that my feet and ankles are swollen and retaining fluid which makes it painful for me to walk around. my endocrinologist checked my feet at the last consult and was happy with the state of my feet. should i be worried? does anyone else experience this? is this the begining of neuropathy?

38 replies

tinkerbell54 2013-04-15 18:31:51 -0500 Report

I to am having swollen feet , hands, knuckles, wrists, legs, ankles. It was caused by my blood pressure pill . My Dr. took me off this & put me on fluid pills. so far I I see is me peeing a lot. the swelling has not gone down & I have pain when I walk. pain in my hands . my Dr . doubled my fluid pills to 40 mg for 3 days I have done that now I am back to 20 mg. I wear compression socks I have been taking fluid pills for 3 weeks. Tinkerbell54.

katcot2152 2013-04-15 18:05:29 -0500 Report

I have a problem with swelling in my legs, ankles, and feet. But I also suspect I have fluid retention in my body. When I start with the fluid retention, I weigh myself and found that I had gained 11 pounds overnight! That is not a good sign for me as it could be an indication of Congestive Heart Failure, so I contact my cardiologist and increase my Lasix for a few days until I get rid of all that fluid. Then I am usually okay for a while and the cycle begins again. I find that if I can elevate my feet for a spell during the day and when I get home from work, it helps somewhat. I also cut back on salt as much as I can (my nutritionist had me taking in only 900 - 1000 mg of sodium and then it is only in foods that already have salt…i never use salt in cooking anymore! And i read the labels and if at all possible I buy no salt added or low sodium in foods.

midgemills 2013-04-15 12:08:03 -0500 Report

I have noticed since the weather has warmed up that my feet and ankles have been swollen more.. Lord knows I drink plenty of water..I just assumed it had something to do with the change of weather.. I have tried propping them up not it doesn't seem to help.. Have you been using more salt? I have cut salt completely out but do to high cholesterol.. Let me know what you find out and I will do the same because it it bothersome to me and yeah it is painful.. I sure don't know how some people get around I see their feet twice the size of mine

jayabee52 2013-04-15 12:27:17 -0500 Report

You may be suffering from lymphedema. You can find ways to combat that in the article from Mayo clinic here ~

Graylin Bee
Graylin Bee 2013-04-15 13:48:04 -0500 Report

Great advice, James.
But, besides reading about what could be causing the swelling, which is a very great start, get in to see a medical professional could be a better option.
There are many different causes of swelling.
I know to many diabetic connect members I sound like a broken record. Hesitating, delaying, and fear, kept me from going to my Doctor. Just about cost me my legs, besides almost killing me.
Way down on this page was a post from me whle I was between surgeries 1 and 2, with a 3rd one scheduled.
My legs had slowly been swelling for quite a while. I read on the internet. Might be edema, from the lymph glands not working correctly, or might be a heart problem. Possibly could be from blood clots. Maybe from some of the reasons others have posted in this and other discussions. Could have been some vague thing my Dad had, something about the leg vein pumps not doing their job right.
Tried the elevating. Cut out salts. Used some natural diuretics. Kept getting worse
Besides just the pain and discomfort of the swelling, there is the high risk of getting an infection. If you are lucky the infection will only be cellulitis. In my case I had cellulitis plus a very nasty bonus infection. MRSA is a very bad thing to fight. I learned that the hard way.

katcot2152 2013-04-15 18:11:09 -0500 Report

That last statement is so telling! I had a friend who had to have her leg amputated from an injury she got in an auto accident (she was hit by a DUI). To make a long story short, she also developed the MRSA and it did finally kill her. So don't be afraid to go to the doctor, cc9 - it could make the difference between life and death!

Scarlet03 2013-04-15 08:54:06 -0500 Report

I get that too after being on my legs way too long…

I have nerve damage not only from the diabetes but also from 3 missing discs and a fractured vetebre…I had surgery 9 years ago to fix it…but after this long, the best thing I do is take a tylenol or advil or a hot bath…if that doesn't work…I go to stronger pain meds..Im hoping I dont need to though

whitetigress 2010-10-23 10:23:17 -0500 Report

I have the same thing. I also do not produce the T4 hormone which is one of the hormones responsible for fluid retention. My body does not know when to stop holding onto water. I have found when it is very warm and my feet, ankles, calves and thighs are swelling, elevating my feet (lazyboy chair) for long periods of time and using cold compresses (ice packs in a small towel) helps to stop and reduce the swelling. Cold showers help too.

Jeannie Holmes
Jeannie Holmes 2010-03-13 11:31:45 -0600 Report

I have the same problem. & when it's hot it gets do bad I think my ankles will explode! Dr. gave me diaretics but they didn't help. I wear conpression socks a lot and put my feet up every chance I get. I don't eat anything salty or add salt to my food. Really haven't found a solution to it all yet.

midgemills 2013-04-15 19:09:40 -0500 Report

I am glad I seen this reply I was thinking I was crazy when I thought my feet swell more in the hot weather then the cold.. I am sorry you are going through this because I know it is painful and makes us miserable

Lin Bigknife
Lin Bigknife 2010-03-08 10:28:57 -0600 Report

Hi! I had these symptoms and my Doc put me on Neurotin - 600 mg 3 x day (originally twice but not enough relieve for over night.) IF your doc finds your pain is from neuropathy, this is a great drug - I have no side effects, there is a generic and it has REALLY helped my feet! Also check with your podiatrist that your shoes are proper - this can make a lot of difference on the progression of neuropathy as some shoes are so bad for the feet. Hope this helps, Lin

cc9 2010-03-08 16:43:51 -0600 Report

thanks. I have appointments to see my doc soon so will talk to them. I had a nerve conduction test done a few years ago and dread having to do one again.

dietcherry 2010-03-08 17:23:30 -0600 Report

What is that, c? :)

cc9 2010-03-13 03:02:20 -0600 Report

renee, its electric shocks and reaction time i think. they never fully explain what they are doing. but its painful.

jayabee52 2010-03-14 14:28:41 -0500 Report

I had it done a few years ago too during a neuro workup. I didn't think it was terribly painful, I was more annoyed by the twitching whenever they applied the microcurrent. They used really thin needles like accupuncture needles to stick in me. I found it fascinating.

dietcherry 2010-03-07 14:10:03 -0600 Report

Don't forget about new meds or sodium; a side effect can be edema. I started on steroid nose spray for allergies and it makes my ankles swell up sometimes. Good luck! renee :)

cc9 2010-03-08 07:51:56 -0600 Report

thanks renee. i have to check out the leaflet of my meds. have started on herbal diuretics and glucosamine for the joint pains. Plus I found out that menopause can cause odema.

spiritwalker 2010-03-05 12:59:53 -0600 Report

I suggest that you inform your Endo or other Dr. Edema can
be a serious problem. When you can ,sit with feet up. This may give some relief.

cc9 2010-03-05 22:23:44 -0600 Report

yeah i have been trying to do that. but when the pain gets so bad i am popping panadein forte which is destructive to the liver. heck cant win sometimes. but with all the good advice i am getting i know i will get on top of this.

MAYS 2010-03-05 12:49:30 -0600 Report

See your doctor for another examination.
In diabetics, normally when there is swelling in the feet, ankles and legs that can mean a possible problem with the kidneys or your liver, only an examination and test can determine what the problem really is, contact your doctor and make an appointment. (Don't guess) .. !

cc9 2010-03-05 22:21:43 -0600 Report

thanks mays. i guess i posted the question bec i am hoping it will go away on its own.

Pat Roth
Pat Roth 2010-03-13 13:06:47 -0600 Report

Sigh, I too have waited longer than I should have for some things only to have them get to the ER stage too. Varicosities hurt like heck——-poor circulation, the "flippers' I will call them, dont work strongly enough to boost the blood back UP into the higher extremeties, one reason elevating the legs helps circulation—- I automatically elevate mine whenever possible.

I don't have neuropathy, but have had other causes, none of it is fun, so check it out now, and head whatever—-off. Hugs, Pat R

Graylin Bee
Graylin Bee 2010-06-12 23:37:28 -0500 Report

My flippers don't work right either. In my case needed an operation. I had a real bad start to this year…first trip ever to ER…5 -6 wks in hosp. due to cellulites because the flippers let too much blood pool in my lower legs…learned I'm Type 2…learned how to wear thigh high compression stockings…right leg surgery…waiting for surgery on left. Year is only half through and have a different type of surgery planned to start out Aug.
Yeah, none of it's fun and do get it checked out there are several causes for swelling.
Don't wait for the ER experience. It looks like more fun on TV than actual going through it.

Harlen 2010-03-05 12:21:25 -0600 Report

I would call the Doc just to be on the safe side the sooner you get it taken care of the sooner you will get over it
Best wishes

cc9 2010-03-05 22:20:44 -0600 Report

thanks harlan. i hope so because i am looking forward to my trip and walking etc.

jayabee52 2010-03-05 11:15:50 -0600 Report

Howdy Constance, been wondering where you'd been.

How long has it been since your last consult with the Endo. How long since seeing podiatrist?

You certainly should report this to your Endo and/or podiatrist.

All I can say is that I have neuropathy (burning) and edema in the foot and ankle.

I pray that it is not neuropathy, cause it is painful (for me at least) and dangerous.

cc9 2010-03-05 11:21:42 -0600 Report

hi james. saw my endo about 5 weeks ago. podiatrist visit was about a year ago. having pain in knees as well and am walking around like i need a mobility aid.

jayabee52 2010-03-05 11:34:23 -0600 Report

Ouch! I know about pain in knees and hips. I've had osteoarthritis in hips and knees since 21, way before D.

I think it is brought on by stress too. The worst I had that was about 15 yrs ago when I was going through a lot of work related stress.

Continuing to pray for you and your situation!

cc9 2010-03-05 22:18:52 -0600 Report

yes i think that is sooooooooo true james. i have been through a lot of stress lately. lol. my accupucturist is amazed i am still alive and he thinks its because of my 'strong brain' aka willpower. the pains started at the end of last year and just got worse. love and hugs.

Deborah L
Deborah L 2010-03-05 11:08:10 -0600 Report

I started having that about a year ago. It ranges from slightly noticeable to ER time. My doctor orders lab tests for my liver, heart, and kidney regularly because he says that is some of the causes of swelling. The other cause is that the veins start to break down from the inside. A diabetic friend told me that's because the roughness of sugar in our blood damages them. My doctor and I don't want me on diaretics so I use a nonprescription natural water pill herbal supplement as needed that my pharmacist gave me. The brand is Sundown and it relieves the swelling within a day or two. Hope this information helps you.

cc9 2010-03-05 11:10:21 -0600 Report

thanks deborah. um whats ER time?

Deborah L
Deborah L 2010-03-05 11:12:06 -0600 Report

Bad enough for me to have to go to the Emergency Room.

cc9 2010-03-05 11:23:23 -0600 Report

OK. mmmmm i am in fog land this morning. the fact that its 4.23am sat morning must have some bearing. hugs.

rankearl 2010-03-05 13:04:34 -0600 Report

i too use to use that herbal water pill when i use to get bloated from periods it does work use as needed i have heard that too about the veins getting thin my have gotten smaller over the years i hate blood work because of this elavating you leags helps with edma there i have heard ((HUGS)) julie

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