By Danni-the-diabetic Latest Reply 2013-04-01 04:28:45 -0500
Started 2010-03-02 00:29:19 -0600

People have commented before asking if I should be drinking a caffeine drink and I tell them that it is okay as long as it is diet. I didn't think anything of it. My roommates mom stayed a couple of nights here this weekend, she is type2, so we were talking "diabetic talk" and she mentioned how her Dr. told her that she can't have caffeine - even though she does. Does anybody know what's up with caffeine? Is it bad for diabetics? If so, why? I don't drink coffee, however I love my caffeine!

103 replies

Lentyl 2013-03-31 19:01:53 -0500 Report

I've never heard anything about caffeine being a problem for people with diabetes. My maximum is 3 cups of green tea a day and 1 cup of coffee a couple of times a week.

My question slightly off-topic. Has anyone read or been told that cheese is not good for diabetes?

katcot2152 2013-03-31 17:26:01 -0500 Report

My urologist had told me to stay away from caffeine because it is an irritant. I know it does a number on the bladder, so maybe it also impacts the kidneys…jayabee52, have you come across this in any of your research? Danni -the-diabetic, have you gone to WebMD in search for an answer?

jayabee52 2013-03-31 18:31:57 -0500 Report

Regarding your query of me, I discovered this from an article in Livestrong: "
There is also some evidence that caffeine may increase kidney damage in individuals with kidney disease."
(source here ~ )

I don't know if Danni is still active on DC. Maybe she's back by now, maybe not. Back in mid 2010 she said she was quitting the site. Obviously she hadn't asked to have her profile deleted since her profile is still available. Her last reply to anyone was in Jan 2011 even though people have been sending her gifts.


katcot2152 2013-03-31 19:08:06 -0500 Report

Well, I have noticed some folks have been on DC for some time - but how do we know if they have discontinued?

Also, I have a question that maybe some of you can enlighten me - I know from suffering with fibromyalgia, that humidity does a real number on me and causes some pretty nasty flareups. What effect, if any, does heat and humidity have on those of us who have diabetes?

Graylin Bee
Graylin Bee 2013-03-31 20:48:13 -0500 Report

Heat can cause stress, which can cause BG issues. I know sometimes if I have been out in the heat and sun too long my BG can run a little higher. Since I live in usually low humidity Colorado, I don't know if it has had any affect.

tabby9146 2012-11-08 15:01:33 -0600 Report

I was not told that by my doctor, but when I took diabetes classes, they told us to reduce it. I switched to half caff and it worked well. I do love my chocolate, it has caffeine, so I try to watch that, for other reasons too of course. I love Waffle House decaff coffee! they grind their beans, taste much different , and I usually do not like caffeine free coffee, but this tastes good to me. But like I said, I drink the half caf Folgers, and the Maxwell House Lite, which is 1/2 the caff too.

scribbles 2010-04-07 17:48:00 -0500 Report

My Goodness!! Talk about between a rock and a hard place!! Wow! Caffeine and Blood Sugar.
It depends on the person. You can find any study by any medical group to back up any decision. My (2) doctor(s) want me to "watch" my caffeine. So I have one cup of half-caff a day in the 'winter' ( I live in the deep south) and none in the summer. My favorite drink is Caffeine free Diet Mt Dew. (glorified lemonade).
Honestly, Danni, you need to do what you and your doctor/nutritionist decide works for you. After all, you are the only Danni in my life and I expect you to try to take care of you.
(Dr. 1 is a GP Resident, Dr. 2 is an Endocrinologist. I get a new resident every 3 years. My file makes a dictionary look THIN!)
Luv to all!

Elrond 2010-04-07 03:00:45 -0500 Report

I'm not sure about the effects of caffeine on blood sugar but it doesn't seem to affect my ability to sleep. I've been known to drink a huge mug of coffee then chase it with a few slugs of diet soda containing caffeine then lie down for a nap… No problem.

bld2965 2010-04-07 02:10:27 -0500 Report

i just found out i have diabetes last week and i work at dunkin donuts, this has been one of the worst weeks of my life

Nana_anna 2012-11-08 16:28:07 -0600 Report

Welll, now that you know it will be easier to remember to stay away from that. Its hard, but we have to do it. I wouldn't worry over that. I do that on occassions. You can eat plain donuts. I do all the time.

tabby9146 2012-11-08 14:57:27 -0600 Report

Welcome to DC! It will be okay I was scared at first, thought I had to give up many foods, there are hardly any you have to give up just eat them in moderation. I can still eat very thin crust pizza,I still occasionally have a slice of cake, pie, or a donut, just can't do it days in a row. test , test, test, and make sure you know what foods raise your blood sugar high and which do not .test 2 hours after every meal for a good while and later, you can test maybe twice a day, depends on what your doc says, after you know the results of most of the foods you eat. In the meantime, might be a good idea to stay away from all the white bread, flour, rice, white potatoes, things like that. try to get lots of veggies, protein and fiber in each meal and snack you eat.Try to exercise 30 mins. per day. they told us in class to exercise if possible, an hour or so after a meal, that was the best time. check your blood sugar before and after. Eat before and after. well that is all I can think of for now, I am short on time, but I wish you the best of luck.

GabbyPA 2010-04-07 08:17:01 -0500 Report

Hang in there! Wow, yest that would be a shocker. You will learn great discipline I bet.

katcot2152 2013-03-31 17:36:06 -0500 Report

Years ago, I worked in the YumYum shop. After a very short time, you get so sick of those cakes, cupcakes, donuts, etc. that just working there, the smell gets to you and you won't even want to look at the donuts for a long while! This is a good way to test your "resistance" to having "just one" and a good way to control peer pressure - "oh come on just try one, it won't hurt you…" No, but it may kill you for having given in to friends!

spiritwalker 2010-04-06 13:02:13 -0500 Report

My Dr. told me to stop all caffeine and I would have less neuropathy pain. He said give it 30 days and see what happens. It worked for me. I have less pain. He explained
that caffeine and carbonation can affect nerve endings.
I now drink herbal teas, a lot of water, and some drink

Jeannie Holmes
Jeannie Holmes 2010-04-06 15:40:11 -0500 Report

I quit drinking coffee for a year after I stopped smoking. That was when my neuropathy really got bad. I now drink a pot of coffee a day. LOL! And I'm much happier too!!!!

Danni-the-diabetic 2010-04-06 23:57:12 -0500 Report

I had no idea about the effect it had on neuropathy! I take my neurotin and my sugars have been better but it's still bothering me and I was wondering why - guess I have to ween myself off of that caffeine…next week lol after spring break and the kids go back to school :)

GabbyPA 2010-04-06 07:47:00 -0500 Report

Yep, caffeine is rough on many diabetics. There are always exceptions as in any facet of this wacky disease. I drink decaffeinated Tetley tea and New England's decaf Coffees. Sometimes I treat myself to a flavor coffee that is not decaf, but not often. If you want to wean yourself, there are half decafs that can get you used to it. But to be honest, it is often a mind thing. My step-daughter says she needs her caffeine in the morning...most of the time she doesn't even know she's drinking decaf.
You can also find decaf diet Coke. I am not a fan of soda and don't drink it any more, but there are options out there. Try some B12 for added energy if you need caffeine for that.

arravis 2010-04-07 13:31:33 -0500 Report

Here is question for you Gabby. How do you get use to and pass the flavor of diet colas. I enjoy Cola and it is very hard to find a substitute.Mostly everyone else drinks regular tea or regular coffee.

GabbyPA 2010-04-07 15:15:42 -0500 Report

To be honest, I was brought up on diet sodas. I used to hate the taste of regular soda. Now that I don't drink them, and I try one every now and then....yuck! I can see what all the commotion is about. LOL! I don't like them any more and I usually order an unsweet tea if I am out. At home, I drink water, decaf tea and only in winter do I drink coffee. I make lemonade from time to time, but I use real lemons and stevia to sweeten. My husband still has to add some sugar to his.
Now there is a recipe here for chocolate water. It sounds really cool, but I have not tried it yet. It is an old recipe from the 30's I believe. My mom remembers it as a kid. This has fizz, flavor and fun...maybe try it. I have been searching for it, I cannot find it. I will see if I can dig it up. It was about 1/4 milk, 8 oz, soda water, 2T sugar free chocolate syrup and a straw. You mix the milk and chocolate in the glass, add the soda water and it will form a rich foamy head. Add a drizzle of chocolate on top, and there you have it. The member used walnut or almond milk in his recipe. Oh...I gotta find it.

arravis 2010-04-08 20:56:02 -0500 Report

That sounds good, I hope you can find the recipe it really sounds good. I am going to try the one you have here and thanks for the lemonade idea. I really need to find more things to drink so that I am not wanting the colas. I have almost quit them by drinking water and tea. Thanks for the help

MAYS 2010-04-06 07:29:01 -0500 Report

How Does Caffeine Raise Blood Sugar ?

How caffeine raises blood sugar levels isn’t completely clear. It’s thought that caffeine may cause fluctuations in levels of hormones such as adrenalin or cortisol which could lead to elevations in blood sugar levels. There’s also the possibility that caffeine has a direct effect on the function of the insulin molecule which could cause glucose levels to rise.

The Bottom Line ?

A steaming hot cappuccino may be a temptation that’s difficult to pass up, but consuming caffeine in large quantities can make it more difficult to control blood sugar levels.

The problem doesn’t stop with coffee. Caffeine is found in tea – including black, green, and white varieties, as well as chocolate. It’s also an ingredient in some over-the-counter and prescription medications.

The news is not all bad. Because of the chlorogenic acid and trigonelline found in coffee, decaf may be safe for diabetics and may actually lower blood sugar levels.

The best option ?

Make it decaf.

Read more at Suite101: Does Caffeine Raise Blood Sugar Levels ? : Understanding How Coffee Drinking Affects Diabetes

" Mays "

joni55 2010-04-06 06:56:30 -0500 Report

But, I was reading somewhere that people who do drink coffee and tea have a lower risk of getting diabetes. So, what are the facts on this?

Markus 2010-03-03 08:26:54 -0600 Report

Almost 9:30 and I'm still surviving my first day with no caffeine!

Danni-the-diabetic 2010-03-03 17:33:25 -0600 Report

You can dooo it!!!

Markus 2010-03-04 08:05:41 -0600 Report

I spoke too soon. I went from 3 to 4 cups per day to just 1 cup of 50/50 yesterday. I'm nursing what will be my only cup of coffee today. The decaf isn't too bad, so it's just a matter of my system getting used to less caffeine each day until I stop completely.

Danni-the-diabetic 2010-03-04 16:26:11 -0600 Report

Markus, just like everything else, you can't go cold turkey or else you will have some side effects…well some people can and I admire them.
When I don't take my vitamins and/ or have caffeine, I get splitting headaches, like today.
Going down to one cup of coffee a day is great, and it being 50/50 is even better. You'll get there!

:) Danni

Markus 2010-03-05 08:54:45 -0600 Report

Thanks for your support. Kept down to 1 cup regular today. Now sipping on Decaf. Of course, I've already downed some good old H2O as well. I usually drink 8 cups of water daily, but I get tired of just drinking water. Any ideas for something else besides water and Decaf coffee?


cc9 2010-03-05 10:10:06 -0600 Report

ever tried herbal teas? celestial seasonings have some great teas. or you can grow your own peppermint during summer, pick and dry for peppermint tea. and then you can get creative and make your own combination or fruit and herb teas.

greeneyedghost 2010-04-06 11:26:38 -0500 Report

I DO!!! I and my oldest daughter thought we were the only ones and that we were just crazy… well we are, but hehe.. I have to drink a lot of water due to my heart condition and have for many years…
I actually have "overhydrated" my body with water once, but have learned the right amount to drink tho…however, i do consume more than 8 glasses a day… i do about 12 a day.

After a while, I get seriously sick feeling.. so i switch it up a bit by flavoring the water or every 3-7 days Ill have a diet coke. ( bad bad me!!) but I do good the rest of the time.. glad u brought this up… cuz it has become a real issue for me due to many reasons that I have going on with my body. Hope you are able to take some of the ideas listed here and keep from feeling nauseous.

Oh and howdy everyone hope yall are having a good week and omy this gorgeous weather here… only 12 pm and it's already 81*… woohooo!!! Take care all…


Danni-the-diabetic 2010-04-07 00:07:01 -0500 Report

I know what you mean Joni! Sometimes I can drink it fine and it's the best thing ever and other times I get nauseous, especially if it isn't cold or if I am really hungry. That's why I add crystal light to mine, lately it's the only way I can drink my water.

cc9 2010-03-05 10:07:06 -0600 Report

me too. besides i love the taste of coffee. was spoilt for many years working in little italy in sydney where the coffee is just right. cant do instant stuff. lol.

DeAnnaKennedy 2010-03-05 11:17:06 -0600 Report

I found out 2 years ago that I'm allergic to caffeine and Nutrasweet…
I would lose my voice and struggle to
talk. I've always loved coffee..really good coffee. But I quit!
That also means no chocolate btw. After
I quit I noticed that my blood sugar was more stable. I still miss coffee tho..and especially the smell of it brewing! Love that smell!

theladyiscrazy 2010-03-05 14:38:08 -0600 Report

I LOVE the smell of brewing coffee!

You are the first person I have met that also has a problem with artificial sweeteners. I get severe migraines from all of them. I am starting to work with Stevia but it is much easier just to avoid anything I would put sugar in (like coffee).

Roy531 2010-03-05 14:52:58 -0600 Report

With some people I have met, they would have an easier time giving up coffee but a hard time giving up chocolate.

joni55 2010-04-06 06:59:16 -0500 Report

Instant coffee would have been the equivalent of serving Chef Boyardee to my Italian husband. It just is not done!

joni55 2010-04-06 06:57:56 -0500 Report

I tried to go cold turkey on caffeine a few years ago and had some nasty withdrawel from it — headaches, etc. Anyone else experience this?

Danni-the-diabetic 2010-04-07 00:04:03 -0500 Report

I don't get headaches if i don't get my caffeine, for I don't take that much daily. I do take vitamins daily and I have been doing this for a few months now and if I forget to take them I get headaches. I have heard of several other people getting headaches from being deprived of their coffee :)

Hinboyz3 2010-03-03 08:01:27 -0600 Report

Cant give it up need it dialy, sometimes more than others

BLC 2010-03-02 20:07:58 -0600 Report

AHHHHHHH!!! I can't give up my Diet Dr. Pepper! Its all I have!! LOL

Danni-the-diabetic 2010-03-02 20:53:38 -0600 Report

That's what I say! Gotta had the Dr.!!! :)

Roy531 2010-03-02 21:14:17 -0600 Report

WOW! Didn't know so many people was like me about DDP

Roy531 2010-03-02 22:28:05 -0600 Report

See how you are, offer you a sip and you drank it all. Oh well still have a case in the fridge.

Danni-the-diabetic 2010-03-02 22:42:53 -0600 Report

I was thirsty and deprived of the stuff. And you don't have the case anymore, I took that too. I saved you one though, you know, to replace the one I just drank :)

rankearl 2010-03-05 15:05:03 -0600 Report

i suppouse i dont get any the pot still on come and get it i guess caffenine is bad too much but i dont smoke dont drink i think there was a song like that lol ((HUGS)) julie

Harlen 2010-03-02 13:42:13 -0600 Report

It dosent make my BS go up and I drink pepsi and tea Diet and with no sugar
Best wishes

theladyiscrazy 2010-03-02 13:33:09 -0600 Report

Well, upon my dx I gave up Pepsi and coffee. I can't drink diet (allergic to artificial sweeteners) and I put cream and sugar in my coffee. It was just easier to give it up. Now, my nutritionist was fine with me drinking a cup or two. so, I think it all depends on the person. If your numbers are good, then I would think it would be okay.

I do drink tea still though! (no sugar added)

Danni-the-diabetic 2010-03-02 19:47:19 -0600 Report

That's the thing, I couldn't go without my diet Dr.Pepper, however I don't drink too much of it. And my sugars are never stable; my sugars are like a roller-coaster and I can't seem to get off.

Jeannie Holmes
Jeannie Holmes 2010-03-02 10:41:04 -0600 Report

I'm not giving up my coffee!!!!!!!!!!!!!!!!!!!!!

Roy531 2010-03-02 10:45:03 -0600 Report

By looking at your eyes in this picture I would say you are drinking too much

Jeannie Holmes
Jeannie Holmes 2010-03-02 10:45:55 -0600 Report

Yeah!!! and I like it really strong too!!!

Danni-the-diabetic 2010-03-02 19:49:20 -0600 Report

I can't drink coffee unless it is one of those frozen sugar free ones flavored with vanilla/caramel…but can't drink those cause my sugars fly through the roof.
How much coffee do you drink Jeannie?

Jeannie Holmes
Jeannie Holmes 2010-03-03 10:04:14 -0600 Report

WOW where did you get it. I have to refill mine 3 times to get the whole pot!! I'm really picky about my coffee too. I love Starbuck coffee. Really strong and black. Don't like any kind of other flavors in it.

Roy531 2010-03-03 10:08:59 -0600 Report

Wal-Mart use to carry the big cup, but this one got at the Fin and Feather Resort at Lake Tenkiller

Sue Turner
Sue Turner 2010-03-02 20:03:07 -0600 Report

Jeannie, that's exactly the way I like my coffee!!!! My husband serves me coffee in bed every morning…He is so precious…This morning was nice, it was snowing, my husband brought in my coffee, opened the blinds, and I sat there in bed sipping my coffee watching the snow fall…It was really nice and cozy! LOL :D

Jeannie Holmes
Jeannie Holmes 2010-03-03 09:53:55 -0600 Report

I remember when my husband and I were 1st married, he would bring me coffee in bed. Of course now I'm up and dressed and waiting for him every morning. We work together and have to leave the house by 4:30 am. So I have the car all warmed up for him! LOL

Next Discussion: Think or Thought ? »