By Goddess Latest Reply 2009-05-08 10:59:11 -0500
Started 2008-07-26 17:17:52 -0500

I would like to know if anyone else has got to the point of not being able to tell lows from highs. Except checking their BS. What else to do about it.

78 replies

Celia - 38478
Celia - 38478 2009-05-08 10:59:11 -0500 Report

I know this is from July, but is still helpful. I am losing feeling in my toes. It is painful. I like living here, because I have a hard time wearing any type of sock and most shoes are heavy. They make the top of my feet hurt. I wear flip flops and slippers. I also am starting to have trouble knowing when I am high or low. I am very glad this discussion is still here.

svengali35 2009-01-03 21:21:10 -0600 Report

I don't feel any different with an elevated glucose reading than I do with a low one. The only way I found out was I had gone to the hospital for unrelated symptoms and my glucose came back at 550. The only time I ever felt any different was the first time my glucose levels hit the low 100s as I imagine my body had no idea what to do with so low a level.. I had the shakes. Now however its pretty much the same and the only way I can tell where it is is by testing.

Anonymous 2009-01-04 11:15:33 -0600 Report

I am like you svengal. the only way I know is to test. But now I pretty much stay well below 200 during the day and mornings are around 90-110. has taken along time to get to these numbers.

Goddess 2009-01-31 15:18:46 -0600 Report

does anyone know what causes this?

Richard157 2009-01-31 18:09:07 -0600 Report

If a diabetic has a roller coaster type of control with many peaks and valleys on the curve then the body becomes accustomed to those lows and highs to such an extent that there is not so much of a shock factor involved. A well controlled diabetic is much more unaccustomed to highs and lows and will feel them and be able to distinguish between them easily. I ran very high for over 40 years before I learned about carb counting and the glucometer came along. I did not feel high at all, that was my every day state of being, but I sure did feel the occasional lows I had. I probably felt low at about 120 or even higher.

Now I am so well controlled and my body has adjusted so well that I feel high at 130 and low at 75. With 40 years of terrible control why didn't I develop complications??? That is MY question.

highlandcitygirl 2009-01-31 19:43:36 -0600 Report

would this apply to a pre-diabetic too? i am still having problem,just when i think i got it right, the numbers start to go high or low. i use to know when that happen, but not so much anymore. i am pre-diabetic and have the complication of polyneuropathy.

Richard157 2009-01-31 20:14:27 -0600 Report

Anyone who has more and more highs and lows and gets very used to them will have trouble feeling them after awhile.

roger 2009-02-07 17:46:23 -0600 Report

when i am high iwant to sleep and get a head ake . when i get low my vision gets brite or white spots i shake .if i think i am low i check hands for shaking and close my eys to check for the light spots. but the first time i ever had insulin . i had gone to the e room becouse my back and belly hurt like i had been stabed .my BG was over 1000. this would have killed most but by body was use to very high for long time .my A1c was 14 i never want to go that high agan !

Richard157 2009-02-26 17:58:39 -0600 Report

Roger, how did you know your BG was over 1000? There is no glucometer I have ever used that would show a BG that high. What did you use? Was it measured at the hospital?

roshy 2009-02-26 19:19:30 -0600 Report

that is me!!! i am so used to functioning with highs!! I feel low when they eventualy go normal again.

I have a question for richard
I have noticed that my vision is going funny lately.Most likely due to the continous highs. But is this perminant damage or if i was to get my sugars stablised will it go right again. i only have diabetes for 5 years!! I know i shloud go to a professional but have you ever had any experiences with this and what was your outcome.

Richard157 2009-02-26 21:33:07 -0600 Report

Roshy, I had little patches of retinopathy in both eyes about 20 years ago. I was having too many highs at that time and had been for a long time. Then newer, better insulins were introduced. They, combined with my finding out about carb counting, helped me get much better control. My retinopathy disappeared. I am now pumping insulin and have the best control ever. My retinopathy and neuropathy have vanished.

If you have had eye problems for five years and it is diabetes related then you should see an opthamologist as soon as possible. I hope it is not too late. If, however, you have had the eye problem for a shorter period of time then getting good blood sugar control should cause the problem to disappear.

Having your A1c below 6.0 (nondiabetic level) and not having so many highs helps you avoid diabetic complications in you eyes, kidneys , heart, etc.

What are you waiting for? Get yourself together and get that control. It will be a slow process, it does not happen overnight, so start now!

dj7110 2009-02-26 23:59:47 -0600 Report

I agree it is very important to keep up on eye check ups. My father, also was a diabetic and had eye problems. He use to joke around with us kids, that due to his eye problems we had a 1 in 4 chance of haveing the same problems and should be all OK as he only had 3 kids. After various surgerys on my dads eyes, He still became permenatly blind around the age of 60. This is something you don't want to put off. It can be serious or might not be. As I need new glasses per my last eye appointment. I can't afford the new glasses yet. But still keep on regular yearly eye appointments to just make sure it's nothing serious requiring surgery.

2009-01-03 21:14:38 -0600 Report

Mine tends to bottom out often. I get terrible trembles and weak, so weak. I do feel it inside like a panic attack just before the shaking starts. On the rare ocassion mine runs too high, behind my eyes burn like they are literally on fire. I also get super sleepy too. I just want to get on my couch and sleep and pray it goes away. My low has been 22 and in the 20's numerous times, my high is just over 450 and like I said, rare.

highlandcitygirl 2009-01-03 17:45:41 -0600 Report

when i get high , i feel kind of out of it. when i am low i want to kick the cats! don't worry they know it and stay out of my way!

Debe Pendice
Debe Pendice 2009-01-03 19:41:36 -0600 Report

You make me laugh!!! When I first read this I thought wow, she must have smoke a good joint, but as a kept reading I see you are talking about your BG.(LOL) I only joking!!!!…Debe

Godschild - 27083
Godschild - 27083 2008-12-31 22:30:48 -0600 Report

yes, I also have no symptoms to speak of when my blood pressure rises or drops. I have found the only way to keep track is to check BS at least 3 times a day

Meridian - 26751
Meridian - 26751 2008-12-20 07:49:21 -0600 Report

When I get down into the 65 range, I get a sick feeling in the pit of my stomach like I'm all of a sudden very, very hungry. If it drops really fast due to exercise or sweating a bunch at work, I start to feel very hot and tired, as well as shaky, along with the hungry feeling. When I was first diagnosed my bg readings were in the 335 range and I can't remember any bad or funny feelings except occasional blurred vision.

Good topic Goddess. It is topics like these that help me learn more and more about diabetes and how to take care of myself. Thanks!

Sparrow - 16557
Sparrow - 16557 2008-12-11 14:03:00 -0600 Report

As I've mentioned in other discussions, I am "hypoglycemic unaware" (yes, there IS an official term for it, go figure). I can't tell when I'm low anymore. Used to, I would have all the classic symptoms: shakiness in the hands, cold sweats, fatigue, light-headedness. Now I don't feel anything until it's too late (so I carry glucagon injectable with me everywhere I go).

vgarrison 2008-12-11 18:08:35 -0600 Report


I'm sure you have heard this before, but that has got to be the scariest thing in the entire world…I have a 3 year old daughter and my husband works mostly at night, so I am very diligent at night with my sugars…I have had nights where I will check every hour just to make sure…or I'll eat something that has more carbs in it than I should, just to make sure I don't go low while he is gone…It is one of my biggest fears!!! I have gone as low as 50 before, but thank goodness I felt it, but I'm afraid that there will come a time when I don't.


Goddess 2008-12-11 18:17:47 -0600 Report

Mine have been in 20's and I didn't know it til i checked my bs. my doc told me to go to the ER. Iwas admitted and stayed a week.

Sparrow - 16557
Sparrow - 16557 2008-12-16 21:54:13 -0600 Report


Yes, it's extremely scary. I have actually been awakened in the morning by paramedics because I had "crashed" while I slept. Thankfully, my wife woke up and saw that I was kind of "thrashing around" which told her something was wrong.

2catty 2008-12-11 18:40:04 -0600 Report

It's because your body has become accustomed to it. Just like when someone has high blood sugar they can't tell after a while because their body has become adjusted to it. My blood sugar is starting to do better when it is 100 now for years if it got that low I would shake all over and break into a horrible sweat. Now when it is that low I feel good. It has dropped to 40 and I was a mess.

Goddess 2008-12-11 18:47:44 -0600 Report

I now have high sugars andcan't tell it either unless i check my bs.

dyanne 2008-12-17 04:45:51 -0600 Report

Iam finding the same thing. I find my self checking because I think its low and its 240. I think I can still tell if it were to get really low llike 30 or 40 I will start to shake feel like my speech is all jittery… I havent had a low in a while its been running high for me about 240 or 250…I need to go to the docter… thanks fo listening,


Debe Pendice
Debe Pendice 2008-12-17 04:56:59 -0600 Report

Dyanne, Please go see your MD. Those BS are to high. Please get them under control now. I hope they do get lower than that during the week. They aren't running study like that, I hope. Maybe the MD needs to increase your medication…Debe

Richard157 2008-12-17 08:53:12 -0600 Report

Dyanne, is your doctor an endocrinologist? I hope so. Some GP's are reasonably good for diabetics but an endo is a diabetes specialist and is a much more appropriate choice. Good luck!


dj7110 2008-12-06 18:24:44 -0600 Report

highs i have the hardest to recognize.. many times seem to have no symptoms at times when it is running in the 400's.. do get shaky & sweaty though when i drop below 70 or so, which is very rarely. My most common high symptom when i relize it, is blurred vision..David

Goddess 2008-12-16 09:13:42 -0600 Report

what is the lowest your bs have been?

dj7110 2008-12-16 11:57:00 -0600 Report

42 is I beleive .. but has been a long time ago.. I generally run high. My average is usually around 180.. It's been a long time since I've been below 100. I have been in the 105 to 120 range a few times when I have good control. but only seems to last for a few weeks before jumping back up to 200's to lower 400's being my average.. than increase in insulin and back to better readings till next time.. never ending cycle.

dj7110 2008-12-19 22:48:26 -0600 Report

for my diabetis I currently take 50 units of lantis at night and humalog with breakfast, lunch, and supper. the humalog varies in amount but usually between 10 and 20 units. as I have to subtract 100 from my current b/s reading before i eat. divide this number by 22. Than add up my carbs I'm eating in my meal and divide that by 10.. than add those 2 numbers together equals my units of humalog. (B/S amount over 100 divided by 22.. +… carbs divided by 10). I also have to make sure my insulin shots are spaced at least 4 hrs apart as I take 4 a day. of course if my reading is under 100 before i eat. I'll come up with a negative number on this part.. that has never happened but a couple times to me since I've been on this kind of formula

kkizzza 2008-12-03 16:27:32 -0600 Report

I always know when I'm low, just because I get really unstable, and I'm shaking and I start not being able to form sentences lol. But it has gotten to the point where when I am high (like even super high like 350 or 400) I feel totally normal, maybe a little hotter then normal, but nothing significant When i first got diagnosed, if i was even at 200 i felt crappy…so that's a change..

vgarrison 2008-11-29 01:29:20 -0600 Report

I know I cannot tell when my readings are high, but my husband can. He says that I turn into a screaming banchee…and I snap at everything. I do not see this, but I do rememeber that right before I went into the hospital and was diagnosed I was always upset with my daughter…she could do nothing right and I was always mad at her for something or another…I also get extremely tired…

When I go low, I start to shake, and I can't think straight.


Richard157 2008-11-28 18:22:43 -0600 Report

My target is 90. I have programmed that target into my pump. If I am 70 or 110 that is further from my target than I want to be. I don't feel the 110 but I feel somewhat low at 70. If I am 130 or higher I feel a little unpleasant and I have no appetite even if it is mealtime. If I am 70 my vision is sometimes a little blurred and I am hungry. My symptoms for highs and lows are different so I never confuse them. I do have to test to see how high/low I am so I will know how many units of insulin I need, or how many carbs I need to eat. I wish I could have done that from 1945-1985 but I did not know about carb counting then and there was no way I could test my blood either. Times sure have changed.

Debe Pendice
Debe Pendice 2008-11-25 12:15:45 -0600 Report

When my Blood sugar is high, I'm the moodiest and nasty person anyone could meet. I was able to notice when my blood sugar would go low with the shaking etc., but now a days it hits me with no warning. Its scarey when you lose control…Debe

BeckyJ 2008-11-25 07:42:21 -0600 Report

I've gotten to where I can't tell my highs anymore, the only syptom is irritablity and with my Bi-polar disorder I can't tell which it is w/o testing. Also I can only tell lows if they are under 40, then I get tired and just want to sleep. SCARY! This really concerns me since last year I did go into a diabetic coma at home and nobody came to check on me for 2 days. Now I live with my parents so that they can keep an eye out and remind me to test. Since I can no longer feel the syptoms my doctor has me checking 10-12 times daily.

Goddess 2008-11-25 07:50:02 -0600 Report

I also have bi-polar.

BeckyJ 2008-12-01 15:13:33 -0600 Report

New update, I dropped to 27 on Wednesday and didn't even notice it until I fell asleep watching a movie and my nephew shook me awake. I called the doctor and they adjusted my insulin down again…after just adjusting it up for being in the 300's. I just can't tell anymore when my bg's are out of range and it starting to freak me out.

Goddess 2008-12-01 15:29:44 -0600 Report

i know what you mean. evidently mine bottomed out sat. afternoon when i laid down to take a nap. i didn't wake up until mon. morning and i live alone.

BeckyJ 2008-12-01 15:35:23 -0600 Report

This happened to me in May and I have since had to move back home to have someone around to make sure it doesn't happen again. Went to lay down for a nap on a Friday evening and was awakened on Monday night by my father breaking my door in since his key wasn't working. I had to go into the hospital for 3 days to stabalize my medications. Call your Doctor and let him/her know about your long nap…they may need to change meds/levels.

Goddess 2008-12-11 13:56:02 -0600 Report

I have no one I can move in with. I don't know what to do because I never when it is going to happen.

caragypsy 2008-12-11 19:58:55 -0600 Report

Does your state have Adult Family Home's? I have lived in them for 9 year's because I could no longer live be myself. Cara

DiabetesDiva 2008-08-01 08:41:26 -0500 Report

I am just starting to learn about this. Had my first low last week. I know know if my hands start shaking, I get a headache and am very tired, my bgl is probably low. When my bgl is elevated I get the neuropathy systems and feel tired. When I was diagnosed, it was because I felt so tired and thought the neuropathy was just my feet falling asleep.


butterfly_8 2008-08-01 07:12:34 -0500 Report

I do not have this happen on an ongoing basis. but I have felt perfectly normal and tested with an elevated blood sugar. In fact this happened when I was diagnosed. I went for an eye exam for new glasses, and was told I should see a Dr. I would not have known I was diabetic.

2catty 2008-12-03 16:15:11 -0600 Report

This is exactly how I found out I was diabetic. I started having really blurry vision. Consulted an eye Dr. he said I needed to see a Dr. it might be something medical. Sure enough my Dr. called the next day after the lab work and said my blood sugar was in the 500s.

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