ease neuropathy? #2

By cc9 Latest Reply 2010-09-16 10:22:50 -0500
Started 2010-02-13 20:40:20 -0600

hey guys, i am having a go at starting no#2

87 replies

Pamiekae 2010-09-16 10:22:50 -0500 Report

Sorry but couldn't find #1 but I have had bilateral lower neuropathy for 10 years. Since I wasn't sure what you'd posted just thought I'd check and see if the doctor had tried to put you on Zanflex or Klonipin? Small dosage can go a long way with helping with pain and helping get sleep at night. As long as you get at least 8 hours of sleep, it doesn't leave you to groggy and once you get up and move about a bit that goes away. Again, sorry if you've already talked about these meds before.

Anonymous 2010-02-14 20:36:51 -0600 Report

ever wonder what all the pain killers and other chemicals are actually doing to you ?

Danni-the-diabetic 2010-02-14 21:00:25 -0600 Report

I understand where you are coming with that question. All I take is celexa, and that has helped me become less depressed, I am no longer a recluse. Besides that I will take something for pain if I really need it.

cc9 2010-02-15 01:37:45 -0600 Report

i think that only docs and the drug companies know. and they dont want to let you know too much in case they get sued. i have a very good pharmacist who answers my questions and will give me info about any new drug i take. he teaches pharmacy at uni.

cc9 2010-02-15 01:37:46 -0600 Report

i think that only docs and the drug companies know. and they dont want to let you know too much in case they get sued. i have a very good pharmacist who answers my questions and will give me info about any new drug i take. he teaches pharmacy at uni.

imsuzie2 2010-02-15 01:48:28 -0600 Report

I always read the paper that comes with my meds to see what it says about side effects and interactions. There is also a web site, www.iGuard.org that you can list you meds and they will alert you if there is an interaction or recall of a drug.

cc9 2010-02-15 07:01:45 -0600 Report

hey thats great info. and yeah i do read the leaflet that comes with the drugs, except when one is on so many its difficult to figure out what the combined reaction may be. eg i am on caduet which is a combiined hypertensive and cholesterol pill ( on it to protect heart and kidneys) and i was informed by my pharmacist not to take grapefruit when i am on the drug. and i love grapefruit juice. lucky he told me or else my blood pressure cd have been significantly lowered.

CarrieVW 2010-02-15 13:23:22 -0600 Report

I have neuropathy too, just taking cymbalta helps with depression & the pain. Was out of it for a week & found out how much it really helps, but I think I am getting to the point where I need more pain management, the cymbalta really helps with alot of things but for pain not sure what else I need.

MsShine 2010-02-15 21:08:39 -0600 Report

That is not a stupid question. If you have a good pain management doctor it is a combination of both. Talking to your doctor is the best way to find out exactly the treatment you need. For me i needed both neurotin and medicine to protect my kidneys and heart and nervepills to protect me.lol all joking aside pain management can be medicinal and physical . try what works.

MAYS 2010-02-15 22:23:56 -0600 Report

Welcome to Diabetic Connect !
Your statement is true because for some types of pain, management through drug free therapy is more effective or necessary in some cases, in all cases all options should be weighed (pros and cons) if possible before deciding which route to take.

" Mays "

mockingbird1945 2010-02-14 20:31:50 -0600 Report

I take Nortriptyline for both the neuropathy and as a supplement for my antidepressant Celexa. I wasn't sure how much it helped until my Dr. changed my antidepressant and took me off the Nortriptyline as well. When the depression became worse and the pain in my feet and legs became so bad I was having difficulty sleeping, he put me back on the original but increased the Nortriptyline to 50 mg. Man, could I tell a difference!

The other thing I would suggest is to try one of those water-filled foot massage pans. I've used a bathtub whirlpool once, and it seemed to help a lot; unfortunately it was in my son's house, not mine!

Danni-the-diabetic 2010-02-14 20:57:36 -0600 Report

Thanks for the suggestion, I'll also write that down to ask her about. I take Celexa too, I've been taking it since about last July and I can feel the difference for the positive and I don't want to loose what I have with it.
I have soaked my feet, but the same with that too, I have heard different stories - to do or not to do, that is the question…

Anonymous 2010-02-14 18:25:44 -0600 Report

if neuropathy cause pain at first then it hurts when you are touched by loved ones then when real bad and no feeling remain you can't feel kiss and touches from loved one - catch 22. :-)

imsuzie2 2010-02-14 19:45:57 -0600 Report

What a sad thought!

Sweet Mo
Sweet Mo 2010-02-14 20:32:02 -0600 Report

Yo Danni, had the same thing going on in my thigh and it would spread across my groin. Doc gave me some lyrica which works pretty good. Ask the doc for some Zannis on the sleeping end. One other thing you may want to try is take a hot shower or bath and soak that sucker, seemed to work pretty good for me as far as slowing it down. Did I mention the Zannis, heheh.

Danni-the-diabetic 2010-02-14 21:03:00 -0600 Report

Thanks for that! You just made me feel a whole lot better, appreciate it! LOL Reality is a pain in the ass, sometimes literally. But when I am lying awake in bed tonight from this excruciating pain, I am sure that thought will be running through my head and I will sleep alot better…

Sweet Mo
Sweet Mo 2010-02-18 15:37:48 -0600 Report

Hey Danni, one more thing I forgot. My whole life, anytime, I had pain, headache, toothache, whatever, I would always pop a few Advils. For me they worked great, even better than Percs. Before the Good Doc hooked me up with the Lyrica and Xannis, I tried the Advils and to my surprise they didn't do Sh*t. Not knowing what I had, I figured it might have been some kind of circulation problem so I tried some regular aspirin, thinking it may thin out the blood a bit and ease my pain. Well, they actually helped out pretty good. I also, even now sleep with an extra pillow between my knees to keep the thigh from touching the other and now that's a must, seen somebody here talk about a body pillow. I'm a smoker and figured out, the more I smoke in a day, the more the pain acts up.

Danni-the-diabetic 2010-02-18 15:46:18 -0600 Report

Thanks for sharing that. I sleep all wierd with my legs lol but it works, I do need to try the pillow though. Maybe I will try aspirin, anything will do right now, I just get worried with aspirin because I have a bad history with ulcers and some were bleeding, so I am afraid of that coming back, but right now II think I will try it. Thanks for the info.

imsuzie2 2010-02-19 02:36:24 -0600 Report

I sleep with a body pillow. If we travel, I make sure we get extra pillow if flying for between my legs and up to my chin to keep me from sleeping on my stomach (kills my back). If we drive, I take both of our body pillow, my neck pillow, my bean pillow for my hands and my pillow for under the neck pillow (dog bone shaped for more support)…then I add the hotel pillows…I sleep with about 6 pillows of various sizes.

Danni-the-diabetic 2010-02-19 12:59:16 -0600 Report

You're set with pillows then :) I have seven pillows but I only use the average two or three during the night, occasionaly I will put one under my feet or between my legs. I use to have to hug a pillow but I have a stuffed monkey for that now lol (that's a secret don't tell anyone).

imsuzie2 2010-02-20 02:44:16 -0600 Report

Sad, but true.

When my late sister got married, she left her pillow, which I grabbed. After we were married a number of years, Mike stole it from me. Then, on one of his trips to LA after we moved to Vegas, he left it at the hotel by accident. We called and housekeeping said they had it. Our son went there a few days later and it had disappeared. We never found another as good. It was one of the feather pillows…I inherited it in '65 and he lost in sometime after '96.

Danni-the-diabetic 2010-02-20 21:21:51 -0600 Report

Oh yeah, I use to have a feathered pillow from when I was around 8 and I eventually threw it out when I was 18. Than I had another one a couple of years ago but my 5 year old niece took it and i haven't the heart to ask for it back. They are so comfortable though.

giojuju 2010-02-14 17:51:14 -0600 Report

a couple of days ago my husband gave me a very nice gift, it was a hand held back massager, but he said it was for my legs maybe it would ease the pain, it has not completely but it has helpd alot. i thank the person who gave him that idea because hes the type of guy that never gives me anything and especially come up with things like that. lol but its a good idea and it never hurts to try it out u never know

giojuju 2010-02-14 17:50:28 -0600 Report

i think i shouldve lookd at the new discussions before postn my reply in the other first but oh well i'll post it again.

Danni-the-diabetic 2010-02-14 17:23:52 -0600 Report

The Dr, as I might have mentioned before, just put me on neurontin last week. I have some worries about it because I have heard from others people that it messes with your moods, for the worse. I already have depression and this and that, I take somethings for it, however I am still afraid to continue taking it. I can't afford to have my moods and emotions messed with.
Has anyone heard or experienced anything like that with the drug??

jayabee52 2010-02-14 17:32:42 -0600 Report

I'm on neurontin too, but only on a low dose (300 mg 1 x/day) and I haven't had any problems. But I don't feel its doing me much good for my pain either. Thinking about asking the Dr to bump up the dose and see if it helps my neuro pain.

I hear of people on 600 to 900 mg of Neurontin. What's your dose Danni?

sweething 2010-02-14 18:22:12 -0600 Report

Neurontin helped my neuropathy for several years, but I was a mess emotionally. I changed neurologists and now take Lyrica and Codeine. Neuropathy can pretty much occur anywhere including your "innards".

Danni-the-diabetic 2010-02-14 20:53:28 -0600 Report

Jayabee, I take 200/x1 but soon x2. And Sweet, were you an emotional mess before you started taking it? I don't mean for that question to be rude…I know everybody reacts differently to medicine, I'm just afraid of getting worse off - But goodness! This pain is kicking my butt!!

MsShine 2010-02-15 20:57:19 -0600 Report

I was diagnosed with diabetic neuropathy first in my legs now it has spread to my arms hands and neck regions. Have been on it(neurotin) since 1997 and i began on 300 mgx2 daily then gradually the dose was increased to 3x daily and 4 yrs ago have been bumped up to 600 mg x 4 daily. Without it i can not walk sit or do anything. The only side effect ive had is a warbly feeling in my head and no mood swings. I am also on several other meds but for me it has been beneficial as i can not take Lyrica or codine. I do know your worries but i suggest discussing any meds thoroughly with your dr and tell him or her of your concerns. I did amd am so glad, just remember once we have been on any meds for a long time we become immune and need an increase or change. God bless you all . Tricia

Jeannie Holmes
Jeannie Holmes 2010-02-15 12:17:39 -0600 Report

They got me on Gabapentin 300 MG for the last 3 months, but I don't think it's working at all. of course I'm in sooo much pain all the time. It might be helping & I don't know it.

fredij 2010-09-16 08:33:08 -0500 Report

Hi Jeannie.. I'm also on Gabapentin… Been on it for the last 2 months. I started out 100mg/3x…it worked in the beginning, I talked to dr and she bumped me to 300mg/3x a day.. It's working ok… At least at night I am falling asleep at a decent time but I truly the dose needs to be increased. Ask your dr to increase your dose. God Bless!

fredij 2010-09-16 09:47:35 -0500 Report

I'll be praying for you Jeannie. No one should have to go thru this pain. It's horrible.

jayabee52 2010-02-15 14:30:43 -0600 Report

that's why I don't stop the Neurontin, even though I don't feel relief, I wonder how much worse it might be without it

Monalisa 2010-02-15 20:44:58 -0600 Report

I take 600mg in am and 800 mg in pm…the other day I didn't take my am and pm doses because I ran out and had to wait for the pharmacy to get it…when I went to bed that night the pain was horrible, my toes and fingers felt like when you pinch a finger or hit it with something very hard, that it throbs and the pain is like pulsating, needless to say I couldn't sleep and could hardly walk or close my fists and I started crying then I could hardly breath either cause of my nose congestion… so I got into the hot shower and that helped me take my mind off the pain for a while (and breath better)…So this is why I don't stop taking my gabapentin because even though it doesn't take away all the pain it doesn't let it get worse…Thanks for listening (reading)…Hugs…LISA

Danni-the-diabetic 2010-02-15 20:53:15 -0600 Report

I'm sorry to hear that Lisa, that has to be the worse feeling with not being able to breathe either. I keep taking the neorontin when I don't have to wake up the next morning, but I didnt last night and yes, I have been in pain all over all day, I feel the difference.

imsuzie2 2010-02-15 21:07:10 -0600 Report

Oh, Lisa, Danni, I am so sorry for the pain you are in. My neuropathy is in the early stages, but I think I need to ask about Lyrica and Cymbalta, both which work on neuropathy.

Danni-the-diabetic 2010-02-15 21:27:23 -0600 Report

Yeah Suzie, get that treated before it hits you hard. How do you know you are in the early stages? Like do you have numbing? I had numbing in my toes and my toes would burn so bad when they got too cold, i was wondering if that's early stages, if that's what you are experiencing. I'm sorry to hear that you are getting this too…

imsuzie2 2010-02-16 03:12:50 -0600 Report

I have been getting the cramps in the arch, toes and calves…but in my last podiatry appt, the podiatrist said I had the start. Didn't feel the sharp thing the same in both feet and in the top and bottom. That was my first clue…then I thought about the burning on the bottom of my feet occasional when I exercised, and the "hurt" when I walk or go just in my stocking feet…small things…see my primary PA in April, and we will talk!

Sometimes pain in my wrists and fingers and arms…it moves around, I hear. Thought it might be carpel tunnel again, but after being here, I think not! :) I am SO becoming a "full member" of this family! Ha Ha Ha.

Danni-the-diabetic 2010-02-16 20:48:48 -0600 Report

You have to wait until April!? That blows, you should see if you can get in earlier, like keep calling til they let you come in, because you really don't want to wait until the pain get worse. I have carpal too and I sometimes cant tell what the pain is from. Yea, neoropathy moves around, it sucks! In some ways it's good to be a "member" of this family and in some way, like this, not so cool.

imsuzie2 2010-02-17 05:36:31 -0600 Report

If it gets really troublesome, I will call to go in before April…but this can wait as it is not anywhere what you guys are suffering. Sometimes I think the symptoms are worse because I am reading all of everyone's symptoms! LOL can we say hypochondriac?

MsShine 2010-02-15 21:00:24 -0600 Report

ask your doctor to give you something also for chronic pain and for anxiety iam on both and when i run out it gets me thru also ask about a tens unit. it seems to stimulate the nerves and deadens some of the pain for me.

cc9 2010-02-16 07:55:34 -0600 Report

its an electric gadget that runs on batteries and sends a pulse which works on the nerve. i got one for my whiplash as i was in so much pain. might be worth a look

sweething 2010-02-14 08:29:40 -0600 Report

I don't understand this discussion.

Anonymous 2010-02-14 11:19:18 -0600 Report

at times i don't understand life, when i think that i do i realise that i don't, so i just live happily it works :-)

jayabee52 2010-02-14 13:47:43 -0600 Report

Well Jenny and Annon this discussion is about Easing Neuropathy. It was started by Danni the Diabetic. Here's what Danni wrote to introduce the original discussion:
"I have neuropathy throught my legs and feet. I get quick sharp pains and my feet will also feel like they're burning. Sometimes my skin, especially on upper thigh and shins, is too sensitive to touch. I've had it since last summer, and only on occasion will it act up, but because my blood sugars have been haywire and I can't get a grip on them, the pain is so bad that I have only been getting a couple hours of sleep each night. So, now that I've made a short question long (sorry!), is there anything that will ease the pain? Any home remedies anyone may know about? and one more question - Where besides your legs and feet can you get it? everywhere!?!?"

That's what it is supposed to be about. Hope this clarifies it for you.


Anonymous 2010-02-14 07:22:45 -0600 Report

i am the good anon, the genie not the nasty anons , i come for and to make you laugh not to hurt in words am i welcome here ?

Monalisa 2010-02-14 07:36:57 -0600 Report

Why are you anon? I would like to meet the real you!!!!

Anonymous 2010-02-14 11:14:33 -0600 Report

the anon allows me to be silly, serious, sad and happy like the clown in a circus yet remain in my personal world

cc9 2010-02-15 09:05:44 -0600 Report

its okay you dont need to hide behind anon to be all that. take a risk. you wont be judged.

Anonymous 2010-02-15 11:33:25 -0600 Report

we all are judged somewhat on our actions and our intents but mine are peaceful and joyous i assure you the mask is just to protect my identity similar to bruce wayne wearing a mask as batman except i'm cuter !

cc9 2010-02-15 17:33:47 -0600 Report

wow i can understand bruce wayne hiding behind his mask. so …by that inference of protecting your identity am i then to assume you are someone famous or notorious. i find your comments reveal nothing about you other than the fact that you want to be perceived as a benign joyous person. hmmmmmmm i am wondering why that is more important to you than actually sharing what your true feelings are. thats what i meant when i said to take a risk.