brainstem glioma

By xena Latest Reply 2010-02-03 09:42:30 -0600
Started 2010-02-02 11:09:48 -0600

i have a brainstem glioma that was foung back in 2005. it is causing me to loose my eyesight and loads of pain and really bad headaches. the doctors up here dont really seem to care and neither does ssi

9 replies

cc9 2010-02-03 09:42:30 -0600 Report

make it difficult for them to ignore your needs. go to the ss office and pester them. do whatever you can but dont give up on yourself. let us know how u are going with your battles.

Danni-the-diabetic 2010-02-03 03:50:37 -0600 Report

I am so sorry to hear that. Dr.'s can be so thoughtless, some shouldn't even do the profession! I will keep you in my thoughts and prayers, hun.

sweething 2010-02-02 14:55:08 -0600 Report

Also, you have to keep fighting SS; they don't want anyone to get a penny. I used a group that has success in the 90% for my SS disability. Took awhile (13 months) but it finally came. If you quit, they win. Keep appealing! If there is someone pushy around you, ask for their help and keep going.

sweething 2010-02-02 14:51:43 -0600 Report

First of all, find a doctor who knows what he is doing. You're the boss, you hire him or her. He or she works for you! These doctors are saying they are ignorant of your problem. Find someone who knows about it.

gregsDAD 2010-02-02 14:14:00 -0600 Report

Harlen is right about that if you want something sometimes you have to truly push the issue. Ring someones bell until they listen. I am sorry for your pains as well and will be praying for you.
best wishes

Harlen 2010-02-02 12:10:43 -0600 Report

I am so sorry for what your going thrue
I have had to fight for every thing I have reseved nothing was given the more you demand to be taken care of the faster they will do what you need to.
No one needs to go thrue life in pain
Best wishes

MAYS 2010-02-02 12:07:49 -0600 Report

My thoughts and prayers go out to and for you.

Do you mind If I inform others as to what Brainstem Glioma is and provide links to sites with information ?

Brain stem glioma begins when normal cells in the brain stem begin to change and grow uncontrollably, forming a mass called a tumor. A tumor can be benign (noncancerous) or malignant (cancerous, meaning it can spread to other parts of the body). A glioma is a tumor that grows from a glial cell, which is a supportive cell in the brain.
A brainstem glioma is a cancerous glioma tumor in the brainstem. They are most often found in children under the age of twenty (75% of the time).
In contrast to childhood brainstem gliomas, adult brainstem gliomas are rare and poorly understood.

The following symptoms and others may be caused by a brain stem glioma. Other conditions may cause the same symptoms. A doctor should be consulted if any of these problems occur:

Loss of balance and trouble walking.
Vision and hearing problems.
Morning headache or headache that goes away after vomiting.
Nausea and vomiting.
Unusual sleepiness or change in energy level.

Here are some links to sites with more information :

xena 2010-02-02 13:38:10 -0600 Report

wow thanks for all the info you gave me. yes and i have all those symptoms, but yet the ssi says i can still work, i cant even stand for 10 minutes to do regular house work and they say i can still work as a cashier. i also believe it caused a tia which i have been told is the same as a mini stroke and the doctors have been of no help

MAYS 2010-02-02 14:11:02 -0600 Report

Thank You.
I help in the best way that I know how, providing information, if I can be of any help, please let me know.
" Mays "