Charcot foot

Jeannie Holmes
By Jeannie Holmes Latest Reply 2010-02-03 17:52:07 -0600
Started 2010-02-02 09:22:48 -0600

Ok, I was just told I have this. Anyone else go thru this? What do I have to look forward to??

26 replies

great dane
great dane 2010-02-03 14:24:12 -0600 Report

I was diagnosed with Charcot's foot 25 or 26 years ago. As it was described to me, the lack of sensitivity due to neuropathy in my foot resulted in the joints becoming inflamed because of lack of support in my shoes. These inflamed joints allowed the bones to move relative to one another and hence the propensity for deformation. The treatment consisted of a rigid orthotic that provided support and immobilized my foot until the inflammation disappeared and then orthotics in my shoes that provided uniform support. I would recommend that you see a podiatrist.

Pat Roth
Pat Roth 2010-02-03 14:29:32 -0600 Report

Hey, Great Dane!! IT sounds like you really KNOW what you are talking about, and express it well! I haven't been so informed, but it makes sense to me in my experiences, even tho they weren't diabetis related at the time. I have been diagnosed only 3 years and foot trouble started 65 years ago! Cheezzz—-am I that old?? Yep!! haha—PR

spiritwalker 2010-02-02 15:33:30 -0600 Report

I have charcot disease in my left foot. It is now stabilized. Its took a long time to get to this point. First none weight bearing
brace and special shoe. Treatments, tight control of bg. I mean
tight. Keeping bg between5.0-6.0 for A1C. special exercise
program done in bed am and pm working up to special therapy
sessions at the hospital and so on. I am sure you Dr. must
have begun some of this with you.
Feel free to contact me if you want more information.

MAYS 2010-02-02 16:11:53 -0600 Report

Spiritwalker, Thank You for commenting, you can be of much more help on this subject than I can, seeing that you have first hand experience, help as much as you can, and once again, Thank You !
" Mays "

Jeannie Holmes
Jeannie Holmes 2010-02-02 17:34:25 -0600 Report

We haven't gotten that far yet. Just found out yesterday and had boot put on. Have to wait to see specialist on the 11th and go from there. So what's it like now. Is your foot all better?

spiritwalker 2010-02-02 17:49:25 -0600 Report

There is no cure for charcot foot, but it can be stabilized to a point . The next step is specially built diabetic shoes. I hope you have good insurance. They take molds of your foot and
build the shoe so you have the most comfort and support.
This keeps you from damaging the foot. Mine look like
short hiker boots. That gives support to foot and ankle.
Keep me posted. Feel free to ask any questions youlike.

Jeannie Holmes
Jeannie Holmes 2010-02-03 13:50:47 -0600 Report

Thank you so much. I love this site. It has been so helpful. I was a little freaked out about this but starting to calm down now. I don't know what I would do without you all !!!!

spiritwalker 2010-02-03 13:52:47 -0600 Report

That is why we are all here. We share from our personal
experiences. We learn from each other. If there is anyway
I can help you let me know. Hugs

MAYS 2010-02-02 10:49:00 -0600 Report

Charcot is sudden softening of the bones and can happen to anyone anywhere on the body but is most common in diabetics due to neuropathy and is more common in the foot than the hands due to the daily pressures of walking.

The damage is severe and in most cases the pain minimal due to neuropathy but it can be cured, this requires completely immobilizing the foot in a cast while going through the healing, reconstructive process.

Here is both the link to a site explaining this condition with photographs and a PDF file to a document.

I hope that this information has and can be helpful to all.

Jeannie Holmes
Jeannie Holmes 2010-02-02 12:05:52 -0600 Report

OMG the pictures are awful!!!!!!! I really hope they are able to get mine under control before it gets that bad!

MAYS 2010-02-02 12:28:51 -0600 Report

I am sure that they will get control in time.
Now that you see the possible results, you can push your doctor for more information, medical attention and on your behalf awareness, do your part and you will avoid the worst !
" Mays "

Pat Roth
Pat Roth 2010-02-03 13:58:46 -0600 Report

Oh, Jeannie, you say that those pics are horrible! Does that mean that Elrond has more possible material for one of his science fiction books?

Seriously, I am reading and learning much from these posts, but best is NOT FEELING ALONE< and WHAT DID I DO WRONG??!!! Pat R

Pat Roth
Pat Roth 2010-02-03 14:16:32 -0600 Report

Hahah—Oh, Jeannie!! One is NEVER too YOUNG for this STUF! It is the STUFF that we all are made up of!! A sense of humor knows no age limits!! Sometimes we may come off being "silly", but it is such a relief to be able to LAUGH with others about diabetic problems, we may even get giddy, but ALWAYS, ALWAYS know that you too are loved and ACCEPTED!! We NEED all ages on here to interact with, the more opinions, the better—we all need differnent ways of LOoking at our problems, it offers HOPE!! Hugs, to you, Jeannie and ALL!!! Pat R

MAYS 2010-02-02 10:09:08 -0600 Report

How severe is your Charcot's Foot, has neuropathy set in completely leaving your foot numb totally ?

AddassaMari 2010-02-02 10:26:25 -0600 Report

I have no neuropathy or other complications associated with diabetes. I am determined to and do practice rigorous blood glucose level control and maintain a low A1C. I know the science behind how blood glucose damages cells and causes complications, so I have determined to do all I can to not develop or delay diabetes related complications.

I like to add to my store of knowledge.

MAYS 2010-02-02 10:52:25 -0600 Report

Being open to knowledge is just as important as acguiring it, don't stop learning or teaching !

Jeannie Holmes
Jeannie Holmes 2010-02-02 11:59:40 -0600 Report

Not totally. Mostly just the front half of my foot is numb. I was having really bad pain in the arch & my ankle. Had a MRI and I'm now in a walking boot until I see the specialist on the 11th.

MAYS 2010-02-02 12:57:17 -0600 Report

Please stay in touch concerning this and do as instructed by your doctor or specialist, also check out the sites that have information on Charcot Foot.
It may seem gross but the best way to be is straight to the point. ( Keep us informed on your progress ).

MAYS 2010-02-02 09:29:38 -0600 Report

For those that do not know what Charcot Foot is here is a brief description, any comments and or info would be beneficial to other diabetics.
Thank You !

(Charcot's Foot)

Charcot's foot is a complication of diabetes that almost always occurs in those with neuropathy (nerve damage). When neuropathy is present, the bones in the foot become weakened and can fracture easily, even without there being any major trauma. As the neuropathy is present, the pain goes unnoticed and the person continues to walk on it. This can lead to severe deformities of the foot. As this can be very disabling, early diagnosis and treatment is vitally important.

AddassaMari 2010-02-02 09:47:13 -0600 Report

My goal is to learn something new everyday. Today I learned two new things here at DC. Thanks, the more we know, the better we are able to cope.

MAYS 2010-02-02 10:04:51 -0600 Report

That is an excellent way to think, helping yourself while helping others, learning something new every day even if it's a word and it's meaning is benefitial to you, don't ever change, pass it on !