It all begins in August of 2006. Upon transferring from Puerto Rico, my assigned Primary Care Manager (doctor) got very excited (as usual) that I was a type 1 diabetic. Not requesting any tests, she immediately insisted that I go on Lisinopril to “protect my kidneys”. I went on a 10mg dosage. By October of 2006, I was on my first insulin pump and was doing great. It was recommended that I see an Endocrinologist for my pump adjustments and “the best Endrocrinologist on the Cape Cod area” was recommended to me. I have a tremendous fear of any type of doctor and my blood pressure always goes sky high in the office. I told this endocrinologist that and he did not listen and quadrupled my dosage of Lisinopril to 40 mg daily. In addition to this, without knowing my history, he listed that I had kidney disease and wanted to perform all kinds of tests – I was hesitant about this and did not trust him. My blood pressure reading did not improve much but by then we had orders to Virginia.
Once in VA, my Primary Care Manager (doctor), seemed decent until the end of the year where she was excited about some protein in my urine (which every doc knew about). Again we had orders, this time to California. She insisted I need to go to a kidney specialist. I went to the referral and they did thorough research into all my lab tests and came back stating I did not have kidney disease. My function was a bit low and once in CA, I might want to consider seeing someone there but for now everything was fine.
Upon reaching CA, I did more research on the list of doctors I was handed and settled on a female doctor who seemed decent. Our first meeting went well and she truly seemed to listen. By October of 2009 I was denied my insulin pump supplies (you can read the story on the various blogs) due to the fact that it was stated it was a “luxury item”. I went and fought this and managed to get the policy rewritten for all dependent diabetics here on the West Coast under Triwest. By then stress was taking a toll on me. I went in for my blood work at the end of November in 2009, and my doctor was very negative toward me. I was confused but had found out through a nurse that Triwest “had a talk with her” concerning me fighting for my rights for my pump supplies.
My doctor came back to tell me my kidney levels were falling! My A1C was 4.5 so my diabetes was in perfect control. I told her I was on some herbs and she told me to discontinue these. The month of December, 2009, I was in every week for blood work – for my potassium which was high and my BUN and creatine functions which were dropping. The herbs had not caused the problem. Since I was only on insulin and Lisinopril, I insisted the doctor take me off the Lisinopril – she told me she could not and reduced it to 20 mg’s and put me on a beta blocker at my insistence (I had done the research on all statins and beta blockers). I monitored my bp’s at home with results such as 110/73 and was doing great. STILL my functions were falling. By Christmas I was convinced I was heading toward kidney failure. I insisted she take me off the Lisinopril completely and she complied. In two weeks I went in for labs again. My doctor told me she would try and get me in sooner to a kidney specialist – no calls confirming this and I sat on my hands waiting for lab results.
On Dec. 29, 2009 I had another appt to “discuss” my lab results. Guess what?? My potassium level had returned to normal and all my kidney functions were improving. This was DUE TO THE LISINOPRIL WHICH WAS SUPPOSED TO PROTECT MY KIDNEYS. I had been researching the Lisinopril and found blogs by others who had hand tremors which I had gotten and they had gotten off this med. I also found a small print of medical info that stated that Lisinopril could cause 0.02% renal problems in the population – I had to TELL MY DOCTOR THIS SO SHE WOULD TAKE ME OFF OF IT.
I am furious at the Endocrinolist who increased the dosage and for the doctors who did not track this. Further info on Lisinopril states that it can cause kidney problems and that a person with even minor kidney problems should be monitored carefully and yet, NONE OF MY DOCTORS DID THIS.
I would still be on this medication if I had not been proactive on my health and questioned doctors. I would be on possibly dialysis. What is even more shocking is that my doctor said the kidney specialist may put me be on Lisinopril to protect my kidneys!!!! I DO NOT THINK SO - please be careful everyone!!! Doctors DO NOT always have our best interests in mind.
January 6th I went to the kidney doctors office spitting mad as they mailed me lab work to do - ALL repetitive of what I had just done and I told them to pick up the damn phone and call my doctor to get my labs as I was NOT going through all this again and I told them my health insurance company would LOVE to know that they were double testing me. My result?? No extra labs before my appointment. I also got a consultation with the kidney doctor before my appt and I laid out what I wanted the find out, that being "WHAT permanent damage did the Lisinopril do to my kidneys".
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