Pump!

keek
By keek Latest Reply 2015-02-12 18:54:08 -0600
Started 2009-12-15 17:27:51 -0600

After nearly 15 years with type 1, I have decided to go on the pump. It should arrive tomorrow, and then I have to go to Joslin for my training. I can't wait.
Do any of you current pumpers have advice for me? I am getting the Medtronic MiniMed Paradigm.


40 replies

Sopies Grandma
Sopies Grandma 2015-02-12 18:54:08 -0600 Report

wow that sounds so exciting, I am going on the pump next week, and I am getting the same pump as you are. I'm very excited too! I know you will do just fine on the pump…best wishes

officervanessa
officervanessa 2010-02-20 11:38:20 -0600 Report

hey ;) i have had the pump for a little over 9 years… loved every second of it. i have had a few issues through the past of the site getting kinked- so just make sure you still check your sugar often, and if you are running high and didnt eat anything to make it get that way- take the pump out and put a new one in- just to be safe.

i have had the cgms for the past 2 years, and it has helped soo much. my A1c is finally at a reasonable level, and i feel better overall as well. the great thing about the cgms is that you see what your sugars are doing ALL the time, not just the 4 times a day or so that you check it. it alerts you when you are too high, and tells you when you are too low if you dont already feel it. the only bad thing about it, is that its another needle puncture in your belly every few days, and you have another gadget hanging off your body. but, if your insurance will cover it- try it out!!! ;)

good luck!! hope you like the pump!! ;)

mommy010307
mommy010307 2010-02-16 17:25:42 -0600 Report

im going on a pump with in the next month..and im looking at thae same one..let me know ow you like it..and good luck!
debbie

keek
keek 2010-02-17 18:43:57 -0600 Report

Debbie,
I like it a lot. Of course, being on the pump isn't fool proof. I am still diabetic, but I have found that it is much easier to manage my diabetes. I have had fewer lows (and only one severe low) since I started. I wish you the best of luck, and let us know how it goes for you!

Gerry Robideaux
Gerry Robideaux 2010-01-04 16:31:21 -0600 Report

The Meditronic Paradigm pump in connection with the One Touch Blood Glucose Meter is the very best! I have been wearing one for five years and just last month got a new updated model. I would never go back to injections!

I wore another brand prior to the Meditronic, but would not go back. Meditronic company is so good and easy to work with and supportive.

Richard157
Richard157 2010-01-05 17:45:03 -0600 Report

Gerry, what is the MM model you are using? I am usig the 522. If yours is an update of mine, what new features does it have?

keek
keek 2009-12-29 22:25:21 -0600 Report

I am officially pumping insulin now!!!
I was worried I might not get to start today. I was supposed to skip my Lantus dose last night (and take a small amount of NPH*), but I was baby-sitting my nieces and knew that I would only have a few minutes to eat, so I took the first calm moment that I could to eat. I was on auto-pilot and just went through my standard procedure. I didn’t even realize my error until about 10:30 pm. My only hope was that it would be okay because I split my Lantus between breakfast and dinner. I was seriously hoping that the Lantus would be all used up by the time I went to the doctor at 1 pm (the pump uses fast acting insulin continuously so it would be dangerous to pump insulin AND have Lantus in my system). I spent the better part of the morning calling the doctor’s office and trying to speak with a nurse but to no avail. I left my apartment with my fingers crossed.
When I got to the doctor today she said that she thought I would be okay to start pumping insulin, and when we checked my sugar it was clear that I had no Lantus (200). I know that it while take a while to adjust my basal rate and figure everything out, but so far so good. I am really liking this whole pump thing. (Yes, I know, I have only been wearing a pump for a week and I have only had insulin in it today… but it has been good thus far).
Yaaaaaaaaaaay pump!
*Because I didn’t take the NPH last night, I now have an unopened vial on NPH in my fridge. The doctor’s office cannot take it back (I asked) and I don’t need it. I would hate to throw it away. If you know of someone who could use it, please let me know.

John Crowley
John CrowleyCA 2009-12-30 11:15:40 -0600 Report

So glad that all worked out for you. It can be kind of like walking a tight rope when you're trying to make that transition.

You'll have to keep us posted on your continued experience with the pump.

My son will be making a decision in the next month or two on a new pump. He's on the Deltec Cosmo which is no longer being made. So we need to find a new one. I'd be interested to know your evaluation of the MiniMed.

packrat2
packrat2 2009-12-30 12:02:04 -0600 Report

John Crowley…go with the medtronic minimed if you can, I think your son will like it…regards packrat2

Richard157
Richard157 2009-12-30 12:24:24 -0600 Report

John, I like the Minimed pump very much and have used it for 30 months. However, I also wanted to use a CGMS. The Minimed CGM "talks" to the Minimed pump and the integrated pair sounds ideal, but it does not have a good reputation with so many people. I tried it for one week (a loaner from my endo's office) and had miserable results. Many others have had the same experience.

I have the Dexcom CGM coming in the mail this week. My insurance has approved it and will pay all expenses. It will not communicate with the Minimed but it is a popular CGM and I have never seen any negative publicity about it. The Dexcom is going to be integrated with the Omnipod in 2010. Animas also have an agreement to integrate with Dexcom in the future but no date has been set. It seems clear to me that Dexcom is the best CGM available. If you think your son may want a CGM in the near future then you may not want to use a Minimed pump. The Omnipod (tubeless) would be a better choice.

Of course you could buy the separate transmitter for the Dexcom and use the Minimed pump and the Dexcom CGM independently. That would involve having to wear both the pump and the CGM transmitter separately, with two things clipped to your belt. I will be doing that until my pump expires and then swtching to the Omnipod or Animas pump.

packrat2
packrat2 2009-12-26 11:15:42 -0600 Report

I used the Medtronic on line pump school, it was a lot of help before I started on the pump…regards packrat2

Richard157
Richard157 2009-12-26 09:07:57 -0600 Report

Hello! I have been using the Minimed 522 pump for 30 months and I love it! I have eliminated most of my lows and highs that I had while injecting. It should also enable you to use less insulin.

I suggest that you study the manual and also go to the minimed website and learn as much as possible about your pump before training. Things will go much more smoothly if you do that. I wore my pump 24/7 for a week before i actually started pumping. That enabled me to adjust to wearing it beforehand and that helped. My wife went with me to every training session. She remembered a few thing that I forgot. That helped too. Be prepared to have to make adjustments during the first few weeks after you have started pumping. It took me 3 months before I was happy with my numbers and things were going the way I wanted. Some people start off great from the start but others have the problems I did. My endo gave me programming to get me started and they did not work well at all. I had to make many changes before I had things going smoothly. I think most endos or trainers do a much better job getting their patients started with a good set of numbers. I just want you to be aware of what could happen.

Good luck with your pumping experience!

Richard

keek
keek 2009-12-25 22:47:56 -0600 Report

Pump Update:
Today is day three of my introduction to the pump. I had to change the infusion set today. It was easy to do in the doctor’s office on Tuesday, but some things have a way of seeming easy when you do them with supervision but seem difficult when you do them on your own. I was worried that changing the infusion set would be scary when I had to do it all by myself. It wasn’t. I know that I am only pumping with saline, but I am really liking being on the pump! It will be really cool when I don’t actually have to take shots in addition to using the pump. I have four more days of pretend pump using before I start on insulin. Yay.
Oh, and Christmas was great!

packrat2
packrat2 2009-12-26 08:33:38 -0600 Report

keek…you are going to like it…I did not use the saline, went to insulin the first day. have been on the pump just over a year now..I keep looking for other people wearing a pump, but only have seen one other…???best regards packrat2

keek
keek 2009-12-22 18:31:42 -0600 Report

Okay,
So after 4 hours and 45 minutes at the Joslin Clinic today, I am armed with my fully loaded insulin pump! Sort of. Currently, I am only pumping saline, and will be for the next week. While I came away from my “Foundations of Pumping” class feeling much better informed, in some ways I am a bit more frightened about the pump than before. The infusion set is NOT the scary part – as I had previously thought. The scary part is what could happen if the pump malfunctions (once I am actually using insulin). However, I am not too too worried about that. I will have back-up insulin and a contingency plan in place.
So, for the next week I get to pretend that the pump has insulin in it. In fact, I just gave myself a bolus dose of ‘insulin’ to correct and cover the carbs in my dinner. We’ll see how the week goes… I felt like a champ when I was doing everything with supervision in the class, but changing the infusion set by myself, at home may prove to be a bit more daunting. I’ll keep you updated on my progress/experiences.

Deb-G
Deb-G 2009-12-22 19:33:41 -0600 Report

Excellent!…I miss Joslin!..I am originally from the Boston area and was originally diagnosed and sent to them…They taught me so much and what a great place to be treated…

Best wishes to you with the pump…let us know how it goes…

Good Luck! :)

Anonymous
Anonymous 2009-12-23 17:44:26 -0600 Report

May Santa and all his elves watch over you during your week of faux pumping. We know if you want to, you CAN do this!!!!

PANTOUS
PANTOUS 2010-01-10 15:24:44 -0600 Report

Hello Keek,
I have been on the pump for 2 years now and love it. I went to a pump workshop at a near by hotel. I filled out a form and before I knew it the pump was at my house. A woman came to my house to train me from the Medtronic Company. She helped me a lot. I went to the New England Sinai Hospital in Stoughton. They are really good over there. I wish I didn't have to leave them. My insurance changed and they don't accept the new one. Good luck. It can be scary at first. But it's great. I am not sure what pump you are getting but the one I have you can't get it wet so be careful.

keek
keek 2010-01-10 22:07:57 -0600 Report

Hey Pantous,
I have the Paradigm. I like it so far. I am at Joslin, and between them and the Medtronic folks I feel like I am in pretty good hands. We are still trying to figure out what my basal rates should be at different times, but so far pumping is going well.
Thanks for the advice. My pump also can't get wet.

Hinboyz3
Hinboyz3 2009-12-21 13:01:33 -0600 Report

Congrats Keek, Im so glad for you, its strange the small things that will help us along in life makes us happy. Please let us all know when you get everything in place, give us a update.

keek
keek 2009-12-20 21:14:39 -0600 Report

I have a four hour visit with my doctor on Tuesday, and when I leave I will be set up with saline in the pump. After a week of successfully using the pump with saline I will be upgraded to insulin. I am excited to actually start pumping, although I am a bit nervous about it. I'll try to write on Tuesday night to let you all know how it goes.
In the meantime, I am trying to figure out how to spend my snow day tomorrow! Ahh, the joys of teaching in Boston. :)

Spring969471
Spring969471 2009-12-21 12:51:06 -0600 Report

Keek, I am on the same pump! I love my pump! I have been on it for two years now and wouldn't go back to feeling like a pin cushion for anything in the world! And Medtronics is a great company and they are available 24/7 365 days a year to answer any questions you have! Once you start using it, you will wonder why it took you so long to get on it! Let me know if how it goes for you Tuesday!

mrscrayton
mrscrayton 2009-12-17 11:49:40 -0600 Report

I recently started using the Omnipod system! OMG - it is the best thing that has ever happened to me. I just test, enter in my carbs & go. No more shots - It's wireless, tubeless, its wonderful

John Crowley
John CrowleyCA 2009-12-16 10:01:36 -0600 Report

Good for you, keek!

The best advice I can give is keep testing until you are confident that you have your basal rate right. Once that is at a good level, it makes it so much easier to figure out any other highs and lows.

I hope you love it. We haven't regretted getting our son on the pump.

lmbickle
lmbickle 2009-12-16 13:17:01 -0600 Report

I have had the same pump that you are getting for about 5 years (this is my second one in that time.) The pump gives you so much more flexibility than injections. I have felt better these past 5 years than I have in the 30 years I have had Diabetes. You will wonder how you ever got along without it! Enjoy!

rankearl
rankearl 2009-12-16 09:16:34 -0600 Report

hi congratulations dont be scared it will change your life it is the best thing i have ever done for me i have been diabetic 38 yrs on my pump cosmo for 5 almost 6 yrs now once you get your basal right youll do fine my diabetic bible is the doctors fat and carbohydrate counter it makes carb counting easy im going to keep my cosmo pump untill they quit making the supplies again good luck any question ask ill try to help hugs julie

rankearl
rankearl 2009-12-16 09:28:06 -0600 Report

sorry everyone tried to fix all these extra message but my computor keeps saying error on page i try to fis this soon darn it hugs julie

Jolynn39
Jolynn39 2010-01-13 09:17:53 -0600 Report

Hi rankearl. Are they still making the supplies for the cosmo? I thought they already quit making them…just using up what they already have made. My friend's son had the cosmo and now has a medtronic (I think), which is cool— the blood sugar machine electronically sends the blood sugar result to pump.

rankearl
rankearl 2009-12-16 09:16:33 -0600 Report

hi congratulations dont be scared it will change your life it is the best thing i have ever done for me i have been diabetic 38 yrs on my pump cosmo for 5 almost 6 yrs now once you get your basal right youll do fine my diabetic bible is the doctors fat and carbohydrate counter it makes carb counting easy im going to keep my cosmo pump untill they quit making the supplies again good luck any question ask ill try to help hugs julie

rankearl
rankearl 2009-12-16 09:16:22 -0600 Report

hi congratulations dont be scared it will change your life it is the best thing i have ever done for me i have been diabetic 38 yrs on my pump cosmo for 5 almost 6 yrs now once you get your basal right youll do fine my diabetic bible is the doctors fat and carbohydrate counter it makes carb counting easy im going to keep my cosmo pump untill they quit making the supplies again good luck any question ask ill try to help hugs julie

rankearl
rankearl 2009-12-16 08:28:29 -0600 Report

hi congratulations dont be scared it will change your life it is the best thing i have ever done for me i have been diabetic 38 yrs on my pump cosmo for 5 almost 6 yrs now once you get your basal right youll do fine my diabetic bible is the doctors fat and carbohydrate counter it makes carb counting easy im going to keep my cosmo pump untill they quit making the supplies again good luck any question ask ill try to help hugs julie

Anonymous
Anonymous 2009-12-15 21:45:45 -0600 Report

Keep us all posted Keek!! I am interested in how you do and if the pump meets your needs in the long run. No magic cures out there but I hope this works for you. Merry Christmas!!

longhornmom2002
longhornmom2002 2009-12-15 21:29:29 -0600 Report

how does that pump work excatly? is it alot eaiser to use? my doc said something that I may have to do that, Iam bad because Iam supose to do insulin 4 times a day and have the time I forget to do it and have to remind myself, but the times are way off because my eating times vary and so does bed time, so that may be better for me? I will have to ask.

keek
keek 2009-12-15 21:38:51 -0600 Report

Hi Longhorn,
I haven't started yet, but the basic idea is that the pump gives you continuous fast acting insulin (like humalog) instead of taking injections of a long acting and correcting/ covering with a fast acting insulin. You still have to bolus to cover the carbs you eat, but it doesn't require an injection. I am particularly excited about not having to take upwards of 4 injections a day. I just have to change the infusion site every three days!
I'll keep you posted on my pump journey — if you are interested.

espirene
espirene 2010-04-05 20:00:52 -0500 Report

Hi keek,

Wow, good luck on your first few months on the pump. I started Minimed paradigm pump about 5 months ago and am still tweaking my rates. My Aic is good (between 6.5-6.8) It will take while. I have made every mistake in the book but keep going. Life is good. It takes effort, but it has gradually gotten easier.

espirene
espirene 2010-04-05 20:01:44 -0500 Report

Hi keek,

Wow, good luck on your first few months on the pump. I started Minimed paradigm pump about 5 months ago and am still tweaking my rates. My Aic is good (between 6.5-6.8) It will take while. I have made every mistake in the book but keep going. Life is good. It takes effort, but it has gradually gotten easier.

Spring969471
Spring969471 2009-12-21 13:01:40 -0600 Report

Longhorn, sounds like the pump would be ideal for you! I would test all the time and be like, well my insulin is in the bathroom, I will get it in a few. Then, I would forget and the next thing I know my bs would be crazy high! Plus, I think in some other discussions you have said that your job is in jeopoardy b/c of being on shots, well, (1) that really is discrimination and they really can't be doing that, and (2) if you are on the pump, you should be able to return to work b/c you won't have to be stopping to go give yourself a shot, it is right there on you side, all you have to do is punch in some numbers! You might want to talk to your doctors more about this option. Also, hope you are seeing an endo and not just a general physician! Good Luck!

Harlen
Harlen 2009-12-15 17:35:39 -0600 Report

Hi
I love my pump
the big thing till you get it all down is too test test test
you will use less insulin then you do now
Make small changes when you need too very small
best wishes
Harlen
PS
when your on it you can ask anything you like I have been on the pump for only 3/4 of a year but I have picked up a lot of tricks lol