Monday, Nov 30 - My Participation In The Joslin Medalist Study

Richard157
By Richard157 Latest Reply 2009-11-23 13:53:04 -0600
Started 2009-11-22 11:21:26 -0600

Anita and I will drive to Boston on Sunday, Nov 29, weather permitting. It is only a four hour trip for us. We hope to meet-up with some DD members there that evening and again Monday afternoon or evening. Four members have been in touch with me. It will be nice to meet them.

I am supposed to double my carb intake on Sat and Sun, but only for supper. Then we will be at Joslin at 7:15 AM Mon morning, after fasting over night. I will be given the glass of glucose drink at that point. This is called a "Mixed Meal Tolerance Test", somewhat different from the standard glucose tolerance test. There will be a thorough exam of my eyes, kidneys, heart and nervous system. My C-peptide will be part of the blood testing that will be done that day. I have filled out about 20 pages of forms and my doctor has prepared a list of my A1c's 1980-2009. You may have seen my recent thread showing that list.

All of this is being done at one of the premier diabetes centers in the world and it is all free. The JDRF is funding the study and all my testing, and the Lily company that makes so much of our insulin is paying my travel and lodging expenses.

The ultimate goal of this study is to try and determine why some Type 1 diabetics have lived so long and have no serious complications. All the participants have had Type 1 for 50 years or more. There have been almost 500 participants so far. The study will conclude in 2011 after 750 participants have been examined. Dr King, the head of the project, is hoping to find the cause of our doing so well for so long. If the cause can be found then a treatment may be developed that will enable younger Type 1's to follow the right path and avoid serious complications.

The results of my testing will be mailed to me about a week after we return home.


8 replies

Richard157
Richard157 2009-11-22 15:41:50 -0600 Report

A friend on another diabetes sie reminded me that we are driving into Boston on the Sunday after Thanksgiving and the traffic will be terrible. I just hope that the bulk of the trraffic will be leaving and not approaching Boston. We will be driving in while everyone else is leaving, right? That will leave our lanes free and clear! Lol! I know the traffic will be heavy but the weather predictions look good on our travel days. I am not going to reschedule because of traffic. I have had a lot of patience with my diabetes for 64 years. I will apply that patience and not let the traffic bother me. Lol!

hbkunkel
hbkunkel 2009-11-22 14:30:43 -0600 Report

What a great study you are involved in. Have a great trip and keep us updated as you go through the process. We will all be waiting to hear about your experience. In the mean time - Happy Thanksgiving:).
Betsie

Crashnot
Crashnot 2009-11-22 13:19:23 -0600 Report

Well now I know I'll be checking in here for at least two more years! :-) I'd love to know why I'm still hale and hearty, even with 40 years of erratic sugars, and other diabetics I know are on dialysis, losing eyes, etc. I think this study will find some profound results that can help all of us. At least I hope it will! Thanks for keeping us posted!

Hinboyz3
Hinboyz3 2009-11-22 13:18:02 -0600 Report

The information is very interesting Richard, you have a very safe trip and please keep us all here informed.

keek
keek 2009-11-22 12:21:47 -0600 Report

I am interested in the results of this study. I live in Boston and am followed by an endocrinologist at Joslin, so I will ask her about it.
Thanks for the info!

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