Conflicting problems and solutions

kgb
By kgb Latest Reply 2009-11-18 10:52:05 -0600
Started 2009-11-17 15:24:31 -0600

I have many medical problems, as I am sure, so many of you do as well. It is very hard sometimes, when you look up treatments for some problems, only to find out that you cannot use it due to the fact you have this "other problem". My list is becoming so long, I finally wrote is up, along with a writeup on all surgeries, all x-rays/mri's etc, and a spreadsheet on all my doctors. The doctors I go to look at these papers and tell me, gee you are really prepared. I know I must look like deer in the headlights as the fibro fog takes over and I just stare at them. If it wasn't for these papers, I would not remember half of what I have been treated for. At times, I feel so burned out as my husband is the picture-well most of the time, of health and really doesn't understand pain 24/7, no refined carbs, no plastic in microwave etc. Every one I listed has to do with a specific problem I have. My job depends on my ability to think, thank God, I learned what I need to do, long enough ago, that the Fibro fog does not seem to touch it yet. At least so far. I am just having trouble sometimes trying to cope…as my laudry list gets longer. I have been sick since July-coughing 24/7, and after finally giving up and taking the cortisone to help heal, my diabetes was so high the meter could not read it. It seems when they try to fix one thing, it is always at the expense of another. Bummer.


6 replies

kgb
kgb 2009-11-18 10:52:05 -0600 Report

Thank you for your prayers and help.
It is hard, my husband is 7 years older and has many problems with senior moments. Although he should be retired, neither of us can ever afford to. The medical bills are too high. I should be on disablity, but we would end up homeless. What they pay on disability is not enough to survive. So we work, which brings on its own issues. Most of the problems I have are inflammatory in nature, so I know they are connected, it is just that science has not caught up to us with answers to our problems. The closest I came was the inflamation diet. At least the information in the book explains a lot about these disorders, but not a lot of how to make them stop :( Your encourgement helps as few others really understand. Sometimes I wish my family can walk just one day in my shoes to have some idea of just how bad it can be.

Karen(Lamb)Garber
Karen(Lamb)Garber 2009-11-18 08:46:09 -0600 Report

I am right there with you! I am also one of those "multiple" disease people. Fibro, Lupus, Diabetes and the list gets longer each year I am still above ground! I rely on my husband at home to help me remember what the word I'm looking for when talking. At work I write things down and make a cazillion lists for myself. We all must find ways to make this life work. Organization, especially for those of us with multiple illnesses is one of the keys to keep us "upright".

My approach is to say to myself each morning…"I may have illnesses…but they don't have ME". I get by most days by thinking of it's me against "them". Flare ups will pass. Ask for help when you need it. I pray you will have a fast bounce back from this latest flare-up!

Hinboyz3
Hinboyz3 2009-11-18 06:42:57 -0600 Report

Sorry your feeling so down, but you got to hold on and continue to look to a better day. But just remember your not alone, we are all in this togther.

GiGiB
GiGiB 2009-11-17 17:36:22 -0600 Report

Hi
I do the same thing you do! Due to so many military tranfers - just about every 9 months for the last 3 year, I have learned to type everything out from my diet to exercise to my vitamins. I go twice a year to the doc and provide her with a new sheet each time with updates and what my concerns are and what referrals and meds needed. It is a lot easier and they dont seem to get as excited. Glad to hear someone else does that :0)
GiGi

ptsparkle
ptsparkle 2009-11-17 17:30:52 -0600 Report

Sorry you are going through all the hard times. You are very wise to organize all your problems and the meds for each one. That in itself helps those who treat us, especially when we see a new Dr. or a visit to the er. Hang in there, we all have our ups and downs. We are all here for you. Best wishes.
Jim

Harlen
Harlen 2009-11-17 16:09:52 -0600 Report

I am so sorry you feeling so down we know what your going thrue I hope you feel better soon Hang in there
As long as you live you can fight so fight !
You are the only you there is
Best wishes
Harlen

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