Diabetes Diagnosed Later In Life

Sue Turner
By Sue Turner Latest Reply 2009-12-15 11:20:09 -0600
Started 2009-10-11 09:50:59 -0500

I am still looking for others who were diagnosed with Type 1 Diabetes later in life. As I have said before, I was diagnosed at the age of 61, and it seemed to have happened over night. The only thing my Endocrinologist will tell me is that it happens. I know that Type 1's are born with it, but it can also be triggered by a virus or a chemical of some kind. She says that I just had a "Honeymoon" period for 60 years. I am just really confused and concerned. I have lots of questions, and would really like to find others who were diagnosed later in life. I would really like to hear how they became diabetic at that time in their lives; what was told to them about it happening at that time.

54 replies

PatsyH 2009-11-30 22:59:59 -0600 Report

I was diagnosed with Type 1 Diabetes at age 35. There is no history of Diabetes in my family. My doctor initially said I had Type 2 and put me on medication. It did not work at all so I went to an Endocrinologist and he immediately put me on insulin. I started pump therapy in 1989 and it has been a life saver. I keep my A1C around 6 and have no complications after 26 years.

Sue Turner
Sue Turner 2009-12-01 09:10:48 -0600 Report

Hi Patsy,

That is wonderful news to know that you have been diabetic for so many years without any complications. Glad that the pump has helped you so much. Hope things continue to go well for you. Your A1C level is great. Do you do any kind of exercise, or anything special to help with your A1C, with regard to diet? etc., Since I was diagnosed so late in life, I am hoping to have a long one with no complications. Keeping my fingers crossed…I would like to stick around and enjoy my grandchildren, and who knows maybe even my great grand children. That would be nice. LOL…Sue T.

Sue Turner
Sue Turner 2009-12-01 09:14:51 -0600 Report

Just looked at your profile, and you live close to me. You are in Nashville, and I am in Chattanooga…LOL

Pam S
Pam S 2009-12-12 13:23:17 -0600 Report

i like to hear good stories like that…i need to get moving on my pump:(

Sue Turner
Sue Turner 2009-12-12 18:21:53 -0600 Report


Have you been following up with your insurance company regarding your pump? You should know something by now. It didn't take anytime at all it seems for my Endocrinologis to get a response from my insurance company after they applied for my pump. Did I tell you that at my last apt. November 24th, when my blood work came back, my A1C level was 6.5. That is the lowest it has been since dx with diabetes. Everything was within normal range. I was so happy and excited. I know that the pump has made the difference. When I go high, all I have to do is hit the adjustment button, and it gives me the amount of insuline I need to get it down within the normal range. So, you stay on top of them, girlfriend. Sue T.

Pam S
Pam S 2009-12-15 04:24:37 -0600 Report

actually I have talked to them several times now…i'm waiting for the new year to start…the expense if sort of high for me right now. I know my health is important but i still have my insulin pens so I'm not missing out of anything. Hopefully next month I'll be on the pump:)

Sue Turner
Sue Turner 2009-12-15 11:15:05 -0600 Report

Talking about expense, I know that my pump was around $8.000.00, and there is another part that goes with it that my isnurance doesn't cover. I shutter to think of what it cost. That would have to come out of my pocket. I can live without it, it's not something that I have to have, but it would be nice. Then I wouldn't have to do anything. The pump would just automaticall take care of everything. If the BS goes to high, or too low, it would automatically adjust it to get it down, or shut off if too low, intil BS level was back to normal. It would be a great device to have, but like I said it isn't something that I have to have. They are coming up with new things all the time. They just want more, and more money. If they can come up with something new, that's just more money for them. But, I think I would like to have the one that you are getting it ipod. That way you can choose your wardrobe better. Like, I love to wear dresses, especially in the summer. I like to wear cute little sundresses, well with my pump, I either have to wear pants, or two piece outfits. But, that's ok. I always have to keep the insuline pens on hand, because you never know when something might go wrong with the pump. You can't really put all your faith in them either. Can't fully trust a machine to do what it is suppose to do all the time. Huh!!!!

Sue Turner
Sue Turner 2009-12-15 11:20:09 -0600 Report

Pam, did you say that you have only been diabetic for about 2 years? Did I read that in one of your posts, or someone elses. I don't know for sure, I get soooooo confused sometimes!!! :0) I try to attribute that aspect of my life to old age!!LOL. What am I saying, I'm not old!!!!!!

Elrond 2009-11-15 01:51:46 -0600 Report

I suspect my diabetes was caused by chemical exposure. There was no diabetes in my family on either side. I did a 'hitch' in the army in the 70's and even passed a glucose tolerance test done because of some neurological problems. Then, after leaving the army, I began spraying weeds on my civilian job. I was given no proper training and received an excessive amount of exposure. After that, things went downhill. I was diagnosed with type !!, I had a stroke, the stroke forced me to retire and then I had a heart attack. Now my doctor has 'upgraded' me to type I. I'm fighting daily to maintain my body in at least a usable condition. The heart condition doesn't allow much exercise which interferes with diabetic maintenance. Don't suggest I sue the civilian job; it's a municipality and one of the conditions of my easy retirement was a signed agreement that I would never take part in a lawsuit against the city.

Sue Turner
Sue Turner 2009-11-15 07:18:19 -0600 Report

Wow, Elrond,

Sounds like you have been through the ringer. I hope things start to look up for you. Hang in there, and keep fighting the fight. We can't give up. I will keep you in my thoughts and prayers. Keep in touch, and let me know how you are doing. Best wishes, and best of luck to you… Sue T.

Pat Roth
Pat Roth 2009-11-15 20:19:10 -0600 Report

Hi, Elrod!! You are probably right on where your diabetis started from. MY own husband worked on a big farm, they were spraying the weeds with that Orange stuff, like they used in VietNam——he and another man, got really sick—took awhile—days—but he had been very healthy!! But after that, he collapsed and was in the big city hospital, had fluid around his heart, drained it off, his kidneys quit working, had 10cc of output in 24 hours, BP dropped to 50/30, was sent north, by an ambulance!

He was so EXHAUSTED, they checked him for Lupus, etc, etc, nothing really showed up, but our local Dr finally came up with his need of daily Prenisone, without it his organs would quit, couldn't THINK< urine turned brown, exhausted, didn't work for months, but gradually can do more—-but he is still on Prednisone 5 mg every other day, and gets by pretty good now at 79 yrs,. The other man developed heart trouble, think he already had some problems—-but just died a few months ago, and the incident was 22 yrs ago, so, he still led a fairly active life. Mine has to==neither of them developed diabetis, but think that those organs must have been stronger for them and resisted those chemicals—one will never know——-but I will probably hit the dust before he does! haha—-Dont really know, of course, and it really doesn't matter, my family is raised—etc "what will be, will be!"

Hang in there and so hope that visiting on this site will help YOU in your own situation! Pat Roth

Pam S
Pam S 2009-11-18 19:39:41 -0600 Report

Elrond…I wonder if working in a basement for 13 years can trigger it…?????

Elrond 2009-11-18 20:06:59 -0600 Report

Pam, That certainly sounds unpleasant. Did they call you 'Mushroom'? I'm no expert but I don't see how it could trigger diabetes if you got proper food and exercise away from work.

Pam S
Pam S 2009-11-19 05:22:09 -0600 Report

I figured as much. lol…just reaching for the stars I guess. Hoping to find some other reason to being a type 1 other than being genetically disposed for it..:)

Sue Turner
Sue Turner 2009-11-19 07:38:42 -0600 Report

Hi Pam,

I think we are all looking for answers as to how this could have happened. Diabetes did not run in my family, and mine seem to hit overnight. One day I was find, the next, I was diagnosed with diabetes. We will probably never find the answers we are searching for, but I just keep on looking for those unansered questions. Your friend, Sue T.

Chuck in TX
Chuck in TX 2009-11-14 08:13:57 -0600 Report

Sue: I was diagnosed with Type 1 at 50. 10 years later I feel pretty comfortable with it. My A1c runs about 5.5. No history in my family and I did not take any drugs that might have triggered it. I am pretty active with camping, boating, bicycling and enjoying life in general.

I am so thankful that I got this thing at a time when information was readily available and when the meters and insulin are as good as they are. Learn as much as you can and be conscientious - take control. It gets easier over time. Who says an old dog can't learn new tricks?


Sue Turner
Sue Turner 2009-11-14 11:25:27 -0600 Report

Hello Chuck,

Well, it sounds as though you were doing everything right…

Ok, is it going to take me 10 years to get to where I am really confortable with this terrible disease????? I will be 72 years old. LOL

Your A1C levels are great!!!! Are you on the pump, or do you do the injections? You say you are very active, which is a good thing. I used to be before I broke my knee, now I have to be very careful what I do, and I am limited. So, it is hard for me to be very active. But, I used to go bicycling, camping, boating, same as you, and I miss all of that.

You are right, as far as this disease rearing its ugly head this late in life, I guess is a good thing, if it is going to happen. Things are so much better now than they were years ago. I feel sorry for those poor people who had to deal with it before we got to where we are now with regard to the treatments of it. You are right old dogs learn new tricks every day, huh. I know this old dog does. LOL

You take care Chuck, have a nice day, and keep in touch. Sue T.

Pat Roth
Pat Roth 2009-11-14 12:05:45 -0600 Report

May I add a good note for the betterment of meds—-my grandmother had pernicious anemia in the 1940's and had to eat and drink, RAW LIVER IN TOMATO JUICE, as they didn't know how else to treat it—-( Dr's orders—)Now, to ME, that would be rather CHALLENGING!!
But I still get tired of being told, "Oh, things could be worse—"! maybe so, but give us time to ADJUST and VENt during that time frame!!! Cheezzz—-denied and Buried frustrations can do far more damage than ranting a bit—-Been there and Done that!!

glugggg!! ha—PR

Sue Turner
Sue Turner 2009-11-14 12:55:54 -0600 Report

Hi Pat,

I am with you. I get tired of hearing that things could be worse too. That is why I am always asking for some positive feed back. I don't want to hear about all the terrible things that can happen. I like hearing the stories from these people who have been dealing with this for years, and are doing great and have had no complications. I know that "I" have not adjusted yet. I get on here and VENT all the time. I guess people get tired of hearing, but isn't that what this site is all about, helping people deal with what they are going through?????? All the fears, and frustrations that we have. At least you can get it out of your system, and it helps to get rid of some of the stress that we go through on a daily basis. That is one thing that I liked about Chuck's comments. He has been dealing with this for 10 years, and has done great. As my endocrinologist put it to me, be thankful that it is just now showing up, now that we have better ways to treat it, better than we had years ago. My husband was telling me not too long ago, that there is a new product that is in the works right now that can be amazing for diabetics. I just hope that it gets approved, and gets out on the market soon. I am always excited to hear about newer and better ways of treating a chronic disease…

Pat Roth
Pat Roth 2009-11-15 00:03:31 -0600 Report

Yow—-I got so tired of hearing, "well things could be worse"! and sure enough, kidney cancer was added to the mix, but you know what, cancer TO ME—-was NOTHING, like a gnat on my nose—-as I was so fortunate to be in so much emotional pain, then these burning, stinging nettles in my hands——the cancer was a big surprise, they cut it out shortly—-no time to worry, and now it seems to be "all gone"! How lucky can an old lady be? Before the big C came up, I had finally helped myself adjust to the diabetis by consoling myself that I had managed to eat a lot of good, rich foods in my lifetime, BEFORE it really became a problem, which to me, was a whole sight better than being diagnosed when I was YOUNG and had to worry about if for YEARS!! My years are really numbered now—MAYBE—but still, I have come up and out of that PAINFUL depression, feel like a whole person for the first time in my life, and largely because most of the kind souls here have put up with my venting about all sorts of things, got that buried anger out that was eating me alive——-so now I can say that I can die (whenever——) with Peace in my Soul!! And you can't beat that!! Love to ALL, Pat Roth

Sue Turner
Sue Turner 2009-11-15 08:37:37 -0600 Report

Good Morning Pat,

Sounds like you have had your share of health issues. I went through the Cancer thing with my husband. That added a lot of stress to my life; that was just shortly after we were married 6 years ago. He is cancer free now, and doing fine. I would go into what we went through a lot further, but that could be a book in itself. He also has a heart condition, and the cancer added a lot of stress to that. I stayed scared to death all the time. That was before I was diagnosed with diabetes. I admire your spirit, and attitude. But, I, like you don't think that anything can compare with the emotional pain that we go through. You, are a very lucky lady. I am so happy for you that the cancer is gone; one less thing to have to worry about huh! As far as your years being numbered at this time in your life, non of us are promised tomorrow, so we have to do the best we can to live for today, and enjoy as much of it as we can. I am so glad that you are at peace now. That is one of the things that I am dealing with right now. I have a lot of anger, resentment, and frustration. It is so good to be able to go somewhere where we can talk to others and vent and get all of that out of our systems. LOL!!! I pray daily for strength, and ask for peace of mind. Like I said eariler, the emotional unrest in our minds is to me the most painful thing of all. If we can be at peace in our soul, that is a wonderful thing, and I think that if we have that, we can deal with most anything, because, we know then, that no matter what happens in our life, we are ok. Love to you Pat…Your friend, Sue T.

Pat Roth
Pat Roth 2009-11-15 20:08:47 -0600 Report

Thanks so much, Sue!! I found that I had to vent the buried anger so that there was room for the love and foregiveness to come back in—-mostly learned better coping skills so the same-oh,same—oh don't drag me back under!! You are always welcome to vent on this site as I am a firm believer that is one of the best tools we have to work with re—Diabetis—-we are OK, but sometimes too much just overwhelms us, and that is not to be ashamed of!! Our organs may get out of whack for a time, but in the long run we can discover others in a similar boat, and not feel alone or that we are being Punished!

Hugs and Peace to YOU TOO!! Pat R

Sue Turner
Sue Turner 2009-11-16 13:39:44 -0600 Report

Oh Pat, the "am I being punished for something?" is something that I really had to work on. With the breaking of my knee, then the diabetes, the breakup of my family, wow, that really started to get me down. But, I am learning that I am not the only person in this world who has had bad things happen to them. And, I have had to convince myself that bad things happen to good people. I know it, but I still have had to tell that to myself over and over to get it through my thick head!!!! I had to convince myself that I "was not" being punished for something. I was raised in a family who taught us that if bad things happened to you, then you were not living the kind of life you should be living. But, when I grew up, I realized that that was a lie. Because some of the best poeple in the world have bad things happen to them, then some of the worst people never have anything bad happen, and they just breeze right through life.
Oh, well, I didn't mean to write another book, as I seem to do when I get started, I just can't seem to stop. I could go on forever, but I want…LOL You have a great day, Pat. Hugs to you, your friend, Sue T.

Pat Roth
Pat Roth 2009-11-16 18:36:52 -0600 Report

Amen to all of the above!! I too, am finding that "old biblical rule of punishment if something goes wrong, seems to be instilled in most of us at an early age, and I, for one, have spent most of my life getting rid of the GUILT—-guilt that it was all my fault, said something innocently at 8 years, when dad left mom and I for another woman, went to WW2, then came back home to US, when I was 14 yrs—-only the addition of GUILT, started by a "core of crap" from an earlier age.

You are RIGHT!! Keep FIGHTING that GUILT business!!! IT does NO GOOD FOR ANYONE!! And is detrimental to ones mental and physical health!! I know—-"bEEN tHERE AND dONE tHAT" even have it on a red car tag on the front of my bumper, with a Rose!! So there!! WORLD!! haha—Hugs, I have written a few "books" too, but feel much better for it!! Pat R

Sue Turner
Sue Turner 2009-11-23 13:45:56 -0600 Report

Hi Pat, I just now saw the above comment. I have delt with this GUILT thing my whole intire life. I was even hospitalized at one time because of it. I felt guilty for everything. My sister said to me one time, "if you were living right, all of these bad things wouldn't happen to you!" Which, I realize now is all a crock of bull!!!! However, I do still, at times, have my moments. Like you said these things are instilled in us at a very early age, and it is really hard to get rid of those old beliefs!!!

Pat Roth
Pat Roth 2009-11-24 18:42:07 -0600 Report

Bless you!!! Just know that you are NOT ALONE in your struggles of ANY kind!!! As for the ones who will not even consider that maybe we do have a reason to feel this way, they do NOT KNOW—-I am coming on stronger with that line of defense—-when those sweet women from church put me down for not having the spiritual belief to avoid depression———HAHAHAHAHAH___Does anyone else find that HYSTERICAL!! That in itself should tell what kind of Fairly Tale they live in, and NOW I can tell them so, but do try to state it in a manner that they can consider and accept, if their brain relaxes!! CHCCEEEZZZZ____Some People, I am NOW so THANKFUL to NOT BE LIKE THEM! haha

Happy Thanksgiving, everyone, and so glad that I have finally found a wonderful site of caring, sensible folks!! We do have LOTs to be THANKFUL FOR!! AMEN!! Pat Roth

Sue Turner
Sue Turner 2009-11-30 15:02:43 -0600 Report

Hi Pat, I just saw your above post. I had company all last week for Thanksgiving so I wasn't on the computer very much at all, maybe to check my email and clean it up since I get a bizillion junk emails on a daily basis. You are so right some of these people don't have a clue what life really is all about. They do live a Fairy Tale Life. My sister since the time she said those things to me has gone through a lot, and I would "never" not in a million years say anything like that to her, or anyone else for that matter. What happened to love and compassion for others? Do these self rightous people who seem to always want to judge and condemn people ever read their Bibles? If they did, they would know that horrible things happened to some of the "best" people. I'm not saying that I'm "one of those best people" by no means, I have certainly had my moments, but I do have love and compassion for others, and I would never deliberatly hurt "anyone" I have enough sense to know that as long as we live things are going happen, things that we have no control over. Illnesses and diseases no matter what they may be are no respector of anyone. There have been times in my life when bad things have happened, and at that moment, I have said, "why me?" Then, I say, "why not me?"

Pat, you are a sweetheart. I don't know you personally, but I love you dearly. Your friend, Sue T.

Pat Roth
Pat Roth 2009-11-30 16:19:16 -0600 Report

Thanks for the kind comments!! They mean SO MUCH!! As I have been working thru my wn dilema with family——I THINK that I USED to think if we treated everyone kindly, that they would do likewise!! Shock, shock!! Haha—NOT TRUE! I have decided that we try to lump all folks into the same boat, forget their own individual personalitys and therefore, responses to ANYTHING!! We are NOT robots, sometimes I wish we were! haha—-BUT that is NOT how we are made!

As for me, I would gladly share some of my own emotional reponses and reactions, with someone else!! Ha—-but then I wouldn't be ME, Patricia Ann——sigh—-

I THINK that some things cause anger deep inside of us and if we don't have a good friend to "aire it out" and regain your composure, it will just set there and TRY NOT TO THINK ABOUT IT!! It is like saying "don't think of an elephant", then desperately try NOT to THINK of one!! Do you feel your body tensing in order to block out that harmless thought??!

to me, if denied and buried, it grows a nose of its own—-twists and turns down into your soul in desperation to NOT think of such—it then attaches to other thoughts that must not be good too, etc, and so that cance of the mind and spirit, GROWS into a PAINFUL MONSTER, when the actual thing, the elephant—pink or otherwise—-really wasn't the culprit at all!!

Hope this helps, I HAVE to FEEL that I can share some of my own experiences with others to HELP them TOO! No one should be tossed out into the ocean with no preservation skills, no life jacket or such—-Hugs, PAT R

Sue Turner
Sue Turner 2009-11-30 18:07:03 -0600 Report

Once again Pat, you are "right" on. When I start getting these awful thoughts in my head the more I try to ingnore them the more prominent they are. You are right about the pink elephant thing. I told my therapist if someone says don't think of a blue jeraff, or you will be punished, what pops into your head? a "blue Jeraff!" Because you are trying so hard to not think about that blue Jeraff. I told one of my doctors when I was in the hospital when I was first diagnosed that I needed my anxiety medication and he wouldn't give it to me. I went without it for a couple of days, then I started feeling the withdrawal symptoms coming on, and he still wouldn't give it to me. He was/is a doc. and knows that you can't just stop taking that medication without going into withdrawal. When I told him how it help me to cope with anxiety of all the stress and worry that I was going through, all he had to say to me was, "Then don't do it!" What a horrible person he turned out to be! I hope I never run into him ever again. Hugs to you, Your friend, Sue T.

Sue Turner
Sue Turner 2009-11-30 18:11:43 -0600 Report

Sharing your experiences does help others. It lets them know that they/we are not alone,and we all experience the same things in our own way. It is wonderful to be able to have someone to vent to and share your feelings with. Sometimes, I feel that if I don't or can't talk to someone, I will just explode! This is a wonderful site with lots of wonderful understanding people who we can share with. Sue T.

spinsmitty 2009-10-23 03:49:48 -0500 Report

It's easier said than done…but once diagnosed acceptance is the first step to being in control. At least that is what I have learned. I saw my wife (Type 1) go through denial at the age of 45 and 18 months later I am diagnosed with Type 1. So now we have his and her glucometers. We have tried to figure it out. What caused it? Was it environmental, hereditary, viral or what? No answers only frustration. I like to think that we have come to accept it and now spend that wasted energy trying to figure it out towards continuing very active lives. For us we must live responsible lives and live by example because we are the teachers to our 2 children of 11 and 8 who at this time are showing no symptoms. Our fingers are crossed that they will be spared this disease. But if not, hopefully they will of learned a thing or two in watching us and seeing how close to normal lives one can live with this disease. It is what it is and it is not slowing me down…I road my bicycle 170 miles a few Saturdays ago. If I am going to complain about anything I’ll complain about how the weather is getting colder now that winter is approaching and how I am having to cut back on the cycling.

Sue Turner
Sue Turner 2009-11-10 11:40:21 -0600 Report

Hi spinmitty, isn't it rather ironic that your wife developes type I diabetes, then 18 months later, you as well. I know it is very frustrating trying to figure it all out. I was terrified when I was first diagnosed. I am doing lots of research and trying to learn as much as I can so that I can take care of myself the way I should. After all, knowledge is power, and I am trying to get as much education as I can. I am glad that you guys can be very active. I cannot; I fell about 7 yrs., ago, and broke my left knee, have had five surgeries, got staff infection in that knee that took two yrs., to get rid of. I have no knee cap and no tendons, so I have to be very careful when walking. I do as much exercise as I can, I just have to be very careful what exercises I do. I too hope that your two children do not develope this horrible disease. At least we can be thankful that since we have to have a horrible disease, it is one that can be controlled. Best wishes to you, your wife, and family.

Carol11 2009-11-12 10:03:16 -0600 Report

I was 60 when this curse hit. It has destroyed my life. I am the only one in the family with this. And I know no one else with it it. I had pneumonia around the same time and I believe that was the last trigger

Sue Turner
Sue Turner 2009-11-12 10:24:15 -0600 Report

Hi Carol,

I was 60 as well, it was right before my 61st birthday. Diabetes didn't run in my family either. I was in total shock, and still am to a point. I don't know how it happened, but my husband swears that it was the Abilify that triggered it. I have found out that there are several law suits in process right now from people who developed diabetes after taking that particular drug. Who knows? And, the pneumonia could have possibly been what triggered yours. I know how you feel, because I feel the same way. I feel like this disease has destroyed my life. Keep in touch and let me know how things go with you. Good luck and best wishes to you. Sue

80sgirl71 2009-11-12 12:20:17 -0600 Report

I was diagnosed with hypoglycemia when I was 18 years old in 1989. I didn't know at the time that can be considered pre-diabetes. I had my first daughter when I was 16. Had two more children, and never had gestational diabetes. In the Summer of 2004 I had to have emergency surgery to remove my gall bladder, because it was toxic. I was overweight as well. I was diagnosed with type 2 diabetes in 2005. I was told in the diabetes class that I took that what type of diabetes you have doesn't really matter, what matters is that you learn how to take care of yourself. We all have the same problems with health care, high and low bg levels, medication problems, kidney & pancreas disease, and the list goes on. Knowledge is the key. I control my diabetes, it doesn't control me. This site is a wonderful place to meet new people, and to gain an abundance of knowledge. Take care.

Sue Turner
Sue Turner 2009-11-12 14:09:28 -0600 Report

Hi 80sgirl,

I was diagnosed with Hypoglyecemia in my twenties, and I was told at that time that it could go the other way. And, it did! No one really knows what triggers these things. We just have to take what comes to us, and do the best we can with it. I try to gather all the knowledge I can. Like they say, knowledge is power! You are right, this is a great site. I have met so many wonderful people. I am so glad that I found it. You take care as well.

Gwynvir 2009-10-12 13:13:22 -0500 Report

I was diagnosed at 33, about 2 years ago. No one in my family has had any sort of hormonal or autoimmune problems. (We're more of a high-blood pressure/heart attack kind o' family. ;) )

The only thing I can think that I was doing just before I got diagnosed was that I was working with a Personal Trainer as I was about 15 pounds overweight, and that maybe some of the supplements caused some sort of reaction… but I don't have any idea how to bear that out.

My doctor said it could be brought on by a virus, or even by a spiderbite. It's really frustrating to think that you could be a perfectly healthy person and have this just be randomly introduced with no warning.

I feel your pain - I had established habits and routines (that I know aren't necessarily healthy, but hey) and this has really caused some frustration. I try to keep an optimistic attitude about the more positive changes I've had to make, but since I don't feel like I did anything to cause this, I feel some resentment towards my poor, dead (or dying) pancreas.

Sue Turner
Sue Turner 2009-10-13 08:03:04 -0500 Report

Hi Gwyn, I feel your pain. I know when I was first diagnosed, I went through all of these feelings, of anger, frustration, resentment, etc., the whole nine yards. There was no family history, everyone in my family was very healthy. Although I have a daughter with a Thyroid condition, which is also an autoimmune disorder, and I worry about her, but then, since I have developed diabetes, I worry about my whole family. I am constantly telling them to keep a close watch on their glucose levels, and always, always, when they see their doctors for blood work to be tested. Just being a concerned mom, sister, etc., Thank you for your reply. I appreciate any information and input that I can get. Good luck, and I sincerely hope that you do well. I am on the pump and I am still having a lot of problems keeping my bs levels under control. However, I don't know of anyone who can do that all the time. It does get very frustrating. This morning I am in the 200s and am trying to get it down; it is just test, test, test, and do the adjustments until I can get it to a fairly normal level. Again, Thank you for your reply. Keep in touch and let me know how you are doing.


Momma Shirley
Momma Shirley 2009-10-11 13:39:01 -0500 Report

I also was diagonosed later in life.
My doctor said I inheirted it from my mother. I have been diabetic for almost 10 years now. Started out on the pills but now take insulin 4 times a day.

Insulin is so much easier to manage but you have to follow doctors orders as with any medications. I will try to answer any questions I can to help you.

Sue Turner
Sue Turner 2009-10-11 14:14:03 -0500 Report

Thank you Momma Shirley. You must be a Type II. There was no history of diabetes in my family, that is why I was so shocked when I was diagnosed. I am on the pump. It makes life a little easier, although I feel like I am married to the thing. I started out with injections, and had a lot of highs and lows, so my endocrinologist thought I would do better on the pump,so here I am. Have you had any complications at all? I certainly hope not. I like hearing the stories about people who live their entire lives with this disease,(if we have to have it) and live to be in their 80's or longer, rather than the horror stories we hear. People need more positive feed-back, because it can become very depressing at times. If, you hear anything about diabetes associated with the drug Abilify, please let me know.

Sue Turner
Sue Turner 2009-10-17 10:37:11 -0500 Report

Hi Momma Shirley. Were you diagnosed as a Type II, and how old were you when you were diagnosed? As you know from reading my query that I was diagnosed as a Type 1. I started out on insulin, then five months after I was diagnosed, I was put on the pump. I am still, even with the pump, having problems with lots of highs and lows. This a.m. when I tested, my bs it was 43. It has been being high in the mornings. I don't know why this morning it was so low. My husband and I were out of town all last week on a business trip. This was the first time traveling for me since I was diagnosed, and it was a little bit scary, since I have been afraid to take that first step, but it is something that I have got to get use to because with our business we will be doing a lot of traveling, and my husband is afraid to leave me at home alone. He says that he can't concentrate on work for worring about me being at home without him around incase something happened. I did learn that I am going to have to start packing lots of snacks, since it was hard at times to find places to stop for our meals. And, I have got to learn how to eat when we go on these trips. When I got home, I just crashed. I felt like I had been run over by a truck. I know that I didn't eat like I should have. It's hard when you are working around someone else's schedule. Sometimes I get so discouraged, and think, I am just going to die from this disease. I try to keep a positive attitude, but it gets very hard at times. I get so depressed and down and out at times, and I realize that I am not the only one. I would just like to get rid of all the fears, get some positive feed back from others, and feel good. I hope that I didn't bring you down with my complaints. I guess I just needed to vent a little this morning. As we all do at times. But, I was just curious as to your age when you were diagnosed, and if you were diagnosed as a Type 1 or Type II. Oh, before I close this, I had another question, I think you said that you have been diabetic for 10 yrs., Have you had any complications during this time?

Harlen 2009-10-11 11:02:41 -0500 Report

You are the first I have met that is T1 at 60 in all the sites I go to.
I have asked at them too and I havent goten any responce. I wish you well
And I wish I was able to help

Sue Turner
Sue Turner 2009-10-11 11:19:36 -0500 Report

Hi Harlen. Thank you for you quick reply. I am assuming that you are Type 1! Do you mind if I ask your age, and when were you diagnosed with diabetes? I was suffering with some depression and my doc put me on Abilify, after taking one months Rx, I started feeling really badly. Ended up in the Hospital Emergency Room with my bs over 600 don't know what it really was because it was off the meter, 600 was far as the meter read, and it said that it was over that. I was in full blown Ketoacidosis, and could have gone into a coma or died. I don't know if the Abilify had anything to do with it or not, but I do know that I wasn't having any symptoms until after I took it.

dj7110 2009-10-11 11:51:54 -0500 Report

it very well could be the abilfy medication that brought the diabetis about. apears theres a law suit in regards to this. here is a web site i found concerning this. http://www.yourlawyer.com/topics/overview/abi...

Sue Turner
Sue Turner 2009-10-11 12:13:33 -0500 Report

Thank you so much. My husband and I have been discussing this possibility since I was diagnosed. It seemed to just happen over night; one day I was fine, the next, I was nearly dead. Every time I brought it up to any of my doctors, they would just say that that was impossible, but of course, that is just what I expected them to say. No one is going to admit that the Abilify could have contributed to this. I will certainly contact this web-site. Again, Thank you.

GabbyPA 2009-10-11 12:16:37 -0500 Report

Sue, please let us know how that goes. There are so many meds that make other things happen. That is why it bugs me so much when doctors are so quick to push thru things that have not been tested enough, and the FDA approves too many things that are killing us. I am very interested in hearing how this works out.

Sue Turner
Sue Turner 2009-10-11 12:23:17 -0500 Report

Hi Gabby, I certainly will let you know how things go with this. I am going to keep persuing it until I get some answers. I will keep everyone informed with my results.

Pat Roth
Pat Roth 2009-11-12 10:53:52 -0600 Report

I would like to KNOW TOO! In my case, it wasn't that extreme, BUT after being border line for over 50 years, I had my last knee replaced and it was discovered then—at 171 so not nearly as dramatic as yours, BUT I had a malignant kidney removed Sept 15th, and when I mentioned that I was on Metformin—-strange looks came across several different Drs faces—they stopped it immediately, stating that, metformin is hard on the kidneys, as are some other BS meds—???!!!! I was fortunate in accidentally finding the mass during a cat scan of my left lung——

No one is really talking, but as I visit with a few others, one woman said that Metformin too was being considered to be taken off of the market because of kidney complications!! Oh??? My mind picked up—-OH???!!!

I will continue to follow your own experiences as real patients are the best clue as to what works and what doesn't—we can have our own experimental group—-which really needs a professional monitor to watch the REAL facts and not just various suppositions, BUT___—educate oneself shouldn't be too harmful and feels empowering! PR

Pat Roth
Pat Roth 2009-11-12 10:57:03 -0600 Report

I THINK that I am Type 2—-no one has ever really said—-my parents did not have diabetis or kidney problems—-(dad did die of lung cancer and a massive heart attack—-)and as an only child, I have little to compare too, one reason I so like this site, it gives me others' stories so I have something to compare to—-that helps so much in itself!!! PR

woodrat1 2009-11-12 12:26:48 -0600 Report

I was 40 when misdiagnosed as type II. Later after a visit with an endrocronologist, type I. I remember an episode when i was 16 with hypoglycemia, but nothing really happened for years, although looking back many syptoms make sense.

Sue Turner
Sue Turner 2009-11-30 17:52:26 -0600 Report

I was Hypoglycemic for years as well, and I was told at that time that it could go the other way, and guess what? It did!!!

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