Polycyctic and Cushing's discussion

By DanaLynn Latest Reply 2010-05-03 00:36:58 -0500
Started 2009-10-06 07:44:50 -0500

Got my meter yesterday! I feel so much better having it handy. Still haven't been to the doctor's visit yet for Diabetes.

Drs are running tests for Polycystic Ovarian Syndrome and Cushing's Syndrome. Anyone else out there with these? No diagnosis yet…but lots and lots of tests going on. They say diabetes is a symptom of both of these. Any thoughts, information, discussion???

18 replies

missladia 2010-05-02 09:36:13 -0500 Report

I found out in 2006 that I had PCOS, I also have endometriosis which was diagnosed in 2003. I had surgery for the endometriosis (laproscopic laser), when my doctor went in he discovered my cysts were completely covering my ovaries and I wasn't releasing eggs. I had the surgery in February 2008 for both problems again but then got injured at work. Since then I have discovered that I have lupus and I am still fighting for treatment for my injury. My doctor LOVES children and thinks that everyone should have a house full of them lol He had been telling me to try to get pregnant ever since I graduated from high school in 2004 but I've had no luck. I am now in a horrible situation and I'm afraid that I won't be able to have children. What's worse is the guy that I planned on marrying died in 2007 from meningitis.

imsuzie2 2010-05-03 00:36:58 -0500 Report

Oh, Miss Ladia, I am so sorry to hear your news. First, I am sorry for your loss of the love of your life, and I hope in this time, you have healed, and maybe found a new love. Next, I am sorry to hear of your medical concerns. I worry about a doctor who encourages one so young to get pregnant…most 18 yr old's are not ready for the commitment yet alone need to be ready for the commitment when you have your education and life ahead of you. Let me leave you with some hope. One of my sis-in-laws could not get pregnant (not sure why), and after years, they decided to adopt. They got Hannah. 6 months later, there was a chance for Gabrielle, and after much discussion, decided to go for her too. About the time the adoption went thru on their second child, they got pregnant with Zach. 3 kids, 6 mos between #1 and #2, and #2 and #3…a year between #1 and #3. You never know what life has in store for you…Hugs

imsuzie2 2009-11-08 21:37:54 -0600 Report

I have a friend with diabetes that later developed Cushings (I think it is Cushings) and I am telling her about this. If that is what she has, I add her comments if I can't convince her to join the community. Thanks for the info and questions.

London 2009-11-07 20:24:31 -0600 Report

I was actually diagnosed with PCOS months ago, and just found out I have diabetes.

DanaLynn 2009-11-08 17:19:53 -0600 Report

Have they put you on Metformin yet? How are you doing with the news? We're here for you!

London 2009-11-08 18:18:10 -0600 Report

I actually am not taking anything yet. I go back in 3 months. My sugars never run high but when I was diagnosed it was 282 and my A1C was 6.7 Every time I check it's normal. I felt ikky for the longest time and blamed it on my thyroid.

DanaLynn 2009-11-08 19:31:48 -0600 Report

I went in too asking the doc to check my thyroid. I didn't even know what PCOS was. They put me on Metformin right away for the PCOS and double blessing…it's for diabetes too. My testing sugar was 350 something. It is never that high in real life.

Good thing…I was never able to lose weight and actually picked up 30 lbs in a year from the PCOS. Been on Metformin for about two months and I've lost 15 lbs without trying. My fasting blood sugar is now around 115…was around 150. Now I'm waiting to see how it works with helping me have a baby!

dr.deb 2009-10-21 22:54:00 -0500 Report

I would also like to hear from anyone who has had any experience with the connection between diabetes and Cushings Syndrome. I have been on almost a year long journey trying get a diagnosis on Cushings (set backs b/c of steriod injections for arthritis)In the meantime I have been diagnosed with diabetes which we are trying to control with diet and exercise. Any information would be greatly appreciated.

Blue Moon
Blue Moon 2009-10-10 15:48:07 -0500 Report

I'm having PCOS tests done now, doesn't look good at the moment for me.

DanaLynn 2009-10-19 16:37:44 -0500 Report

Just go t my results back. No cushings. Thank goodness. But I do have PolyC. Put me on Metforman. Bonus…it is for diabetes too. Let me know how your tests go.

Blue Moon
Blue Moon 2009-10-24 17:47:13 -0500 Report

Thanks for the support Dana. I have a false positive on the Cushings. So far they haven't found the tumor, and more tests are being done. I started taking Metformin again as of October 1st. Hope that your doing well with the medication. Take Care. :o)

DanaLynn 2009-10-24 22:07:34 -0500 Report

Have they checked you for Polycystic Ovarian Syndrome? The symptoms are so close to Cushings.

How is the Metformin working for you?

Blue Moon
Blue Moon 2009-10-25 22:02:50 -0500 Report

The metformin is working fine except it makes me sleepy if I don't eat enough carbs. I take one 500 mg 24 hour dose during dinner. If I take it by itself it gives me stomach craps and major gas. They did find a small pebble size mass on my thyroid and my OBGYN wants to discuss the cycial Cushings in better detail. It is their opinion that I don't have PCOS with the testing that was done.

DanaLynn 2009-10-30 07:55:02 -0500 Report

I take 500mg in the morning and 500mg at night. Gee wiz…I wish there were a magic pill to take everything better all at one with no test needed…oh, well.

The docs added endometreosis (spelling?) to my list. I had that once before and had surgery. Now that want to give me shots for 4 months to completely stop my ovaries from working to try to avoid surgery. That means hot flashes, mood swings, etc. I'm not sure I'm ready for that. And, I want to have another baby soon. What to do, what to do???

Blue Moon
Blue Moon 2009-11-02 05:02:57 -0600 Report

That is a tuff and difficult choice. I don't envy the turmoil that your going through. I guess you have to weigh your options and find inner peace with the choice that you make. I wish you the best with this.

Blue Moon
Blue Moon 2009-11-07 15:18:02 -0600 Report

That's good. I'm glad that you're happy it sounded unfriendly. You also have a good support system with your hubby. :o) Mine is uncomfortable and we don't talk about this subject anymore, so I figure things out by asking questions and doing research.

kdroberts 2009-10-06 08:07:10 -0500 Report

PCOS has a large insulin resistance component and is thought to be a cause of diabetes if not correctly managed.

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