I know that this is a little off topic but I have come to think of ya'll as family and with our recent situation I couldn't help but think of turning to ya'll for support. I just found out that my mother is going to have to go in for a procedure tomorrow. She was recentely diagnosed with Porto Pulmonary Hypertension (proPH). They have to start a central line into her clavical and then attach a med pump that delivers the drug "Remodolin". Without the medication and immediate action the doctor's said that she would be gone from us in as little as 6 months and that it would be "immediate sudden death". We found out about the proPH while she was undergoing tests to see if she is elligible for liver transplant. She has been in stage 4 liver failure for 5 years and they believe that she has actually progressed to end-stage. Without the transplant she only has about another year left. All of this is terrifying to me. With my bit of nursing background…I have some home health aid experience I know the dangers ahead. My family is on pins and needles to see if this new treatment works. If successful after 8-12 weeks on the Remodolin she will then be eligble for transplant and will be considered Status 1…meaning she will be on the top of the list. I am asking for prayers to help us is this upcoming storm. Of course this has got my BG's even more out of whack and I am also asking for any advice to help keep them down in the VERY stressful situation. God Bless to everyone and THANK YOU in advance.
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