Pump?

AmyESmith
By AmyESmith Latest Reply 2009-10-03 09:13:01 -0500
Started 2009-09-13 19:24:18 -0500

I hope I'm not driving everyone crazy with all my discussion posts. I have never before been part of such a responsive group of fellow diabetics/diabetic caregivers. You all have helped me so much, so I just wanted to say 'thank you!'

Ok, onto my questions. I'm currently in the process of preparing to go on the pump. I know so little about it. My Dr. gave me a bunch of material to read, but I want to talk to people who actually use it. What has been your experience with the pump, positive or negative? I am a very clumsy person and I have nightmares about bumping into the pump//stylus and knocking it out of my body. How securely do you feel the pump stays in place? Is it painful at all? Has your control gotten tighter since going on it? Any insight would be greatly appreciated!


46 replies

Sue Turner
Sue Turner 2009-10-02 14:48:08 -0500 Report

Amy, I have been on the pump for little over a year now. I was diagnosed with Type 1 Diabetes in April of last year; went on the pump the following Sept., It is wonderful. The pump does not go into your body; it is attached to an infusion line that goes into your body. It is like giving yourself an injection when you insert the infusion set, but it is not painful, and you change the infusion set out every two to three days. It's not like giving yourself an injection two to three, or four times a day. The pump fits into a holster that either fits over a belt or the waistband of your clothing. However, there are different types of pumps, and I think that there is one that attaches to your body. That is the kind that is used mostly with babies and very young children. But you don't have to worry about knocking it out of your body. It is definately something to consider. They are very expensive, but if you have insurance, the insurance will usually pay for it. Mine did. Are you a Type 1 or Type II Diabetic?

2catty
2catty 2009-10-02 20:11:48 -0500 Report

Insurance will pay even if you are T2. I am and I have the new ping. I have been diabetic since I was 18. But you know it is funny that you mention that the pump does not go in your body. I have had people surprised when they seen my pump. They was like what is it out for? I am like what. It does not go in my body. It clips on my clothes, and has a infusion line. Little bits going in every hour 24/7. I have had that happen a lot lately. Weird huh? Never dawned on me that people thought that a pump was implanted in my body.

Sheri S
Sheri S 2009-10-03 09:11:01 -0500 Report

I think there are implantable pumps available …not sure if they are approved by FDA for use in the US??…MiniMed has some info on their website about this type of pump…

Sheri S
Sheri S 2009-10-03 09:13:01 -0500 Report

I am T1 and have an Animas Ping that my insurance paid for…I agree that they are expensive but I would not go back to injections unless I absolutely had to!

tladybug77
tladybug77 2009-09-27 18:33:43 -0500 Report

I have the Medtronic 722 and wonder why I didn't go on it sooner. I have better control of my sugar and it is easy to use. There is a pump school on the Medtronic.com website, it is in the right hand upper corner. I do get tired of being hooked up to something all the time but it beats the other way. I have been Type 1 for 45 years and just last March of 2008 went on the pump. You do have to change injection site every 3 days and test 8-10 times but it is wonderful. You do get sore sometimes if you put it in or close to the spot it was a week ago but you learn to adapt. Best thing I ever did.

Robin1963
Robin1963 2009-09-27 18:21:33 -0500 Report

Hi Amy,
I have been a pumper for the last 3 years. I have an Animas 1250. I do love my pump, and have found freedoms that I didn't have before. While there are many different pumps, I do have to say that the Animas company has been wonderful to work with. I have pulled my site out accidentally, and if you swim, the site can come off if you are in the water for a long time, but those are all things that you can adjust to, and find solutions to. Good luck!!

2catty
2catty 2009-09-28 16:00:26 -0500 Report

Yeah I love that fact that you can swim with the animas. I have the ping and I love it. My site rarely comes off, but like you said if you are in the water to long it might. I just love my remote to it too. All kinds of cool stuff you can buy for it too. Different ways to wear it and conceal it if you want to. I like to show mine, unless I wear a dress. My sugars are better now than they ever have been. Love my ping<3

Anngelia
Anngelia 2009-09-30 17:44:12 -0500 Report

I'm on the Animas 2020. I think its very similar to the Ping but doesnt have the remote. I love the color screen. It makes it much easier to read.

2catty
2catty 2009-10-01 22:45:52 -0500 Report

It does doesn't it? It stands out so much brighter than the gray scale ones. Looks stylish too. Does not look medical.

Sheri S
Sheri S 2009-09-19 23:13:28 -0500 Report

Hi Amy,
I have been a pump user since 2000 and a Type diabetic for 41+ years. I also LOVE having a pump vs injections. I currently have an Animas One Touch "Ping" which alows the meter to act like a remote and talk to the pump with a radio frequency. I got my Ping last October and have been very happy with it.

Initially I was afraid of the insertion of an inset but it didn't take long to get the hang of it. I currently use an inset device that is an inserter and inset all in one piece which I really like. The inset has an adhesive ring that holds the inset in place and I have never had the inset pull out or come out unless I have removed it.

This is my first day on this site and I look forward to sharing information and learning new things that can help me with the challenges Diabetics face every day :o)

chucha
chucha 2009-09-18 22:53:18 -0500 Report

Discussion about the Calorie King books. I have found them to be very useful and my family is starting to read them also. If you can think of any other calorie,carb counting books, please let me know

chucha
chucha 2009-09-18 22:55:21 -0500 Report

Getting the insulin pump beginning of October. Very nervous. Have been trying to keep a food journal with the carbs in it. Any advice regarding the insulin pump?

2catty
2catty 2009-09-19 17:04:19 -0500 Report

Besides the Calorie King I sometimes use the The Complete Book Of Food Counts-By Corinne T. Netzer It is a good one too.

JaneM808
JaneM808 2009-09-18 17:26:59 -0500 Report

I have been diabetic for 35 years this weekend…on the pump for almost 4 years. a1c dropped from 7.1 to 5.8. lost 34 pounds. i have run the gamut of treatments from only one shot per day to the lantus/humilog/novolog regimen. I love my pump, i don't dread the blood tests any more.

2catty
2catty 2009-09-18 21:43:20 -0500 Report

I hear ya. I always dreaded my blood test. Now I am excited. In three months which is when I first started cause I have only been pumping for 4 months has went from 8 to 6.4. At night I always hook mine to my p.j.'s in the front since I am a side sleeper.

kacaloonie
kacaloonie 2009-09-18 16:49:09 -0500 Report

I've only been on the pump since February 2009 but I will never go back to injections. I love it. I love the BS results, the freedom to eat what I want, when I want. The pump itself, is easy to forget that you have on. My pump is also the Paradigm from mini med and they have been tremedously helpful. I had a slight reaction to the teflon cannulas at first but taking a Claritan has stopped the itching and the allergy has weakened. Most of the time I choose to tuck mine into my bra rather than my pocket or on a belt. It's a little more secure and I don't ene know it's there. You may worry about what to do with it in bed. I started out making a belt to wear it on but I have now g one to just laying it in the bed next to me. I seldom have trouble with it. My sugars have gone from averaging 225 to 90. My A1C was 13.3 and is currently a 7. It takes alot to pull it out accidently. I too am clumsy and I carry a tegaderm tape with me incase it loosens but that has only happened once. I don't even remember to disconnect when I shower and it has never had a problem.
I LOVE MY PUMP.

kacaloonie
kacaloonie 2009-09-18 16:48:38 -0500 Report

I've only been on the pump since February 2009 but I will never go back to injections. I love it. I love the BS results, the freedom to eat what I want, when I want. The pump itself, is easy to forget that you have on. My pump is also the Paradigm from mini med and they have been tremedously helpful. I had a slight reaction to the teflon cannulas at first but taking a Claritan has stopped the itching and the allergy has weakened. Most of the time I choose to tuck mine into my bra rather than my pocket or on a belt. It's a little more secure and I don't ene know it's there. You may worry about what to do with it in bed. I started out making a belt to wear it on but I have now g one to just laying it in the bed next to me. I seldom have trouble with it. My sugars have gone from averaging 225 to 90. My A1C was 13.3 and is currently a 7. It takes alot to pull it out accidently. I too am clumsy and I carry a tegaderm tape with me incase it loosens but that has only happened once. I don't even remember to disconnect when I shower and it has never had a problem.
I LOVE MY PUMP.

Anngelia
Anngelia 2009-09-20 18:14:29 -0500 Report

I'm with you, I will NEVER go back to MDI. I hardly know that I am wearing a pump but I recently got a demo pump called Solo. It wireless and when I put it on I forgot about it for a day or so, It was so small and without the tubing its easy to forget about it. But if I was wearing it anytime I ate something that would be the only reminder I would need.

2catty
2catty 2009-09-20 20:34:33 -0500 Report

Yeah I should be getting my dummy pump soon from solo. I love my animas and have no plans on changing pumps I just love to be informed to let my friends know what I have learned of them.

BLC
BLC 2009-09-17 19:41:07 -0500 Report

Hey, I am actually a former pumper. I have been off the pump for about 2 months now. This is my experience with the pump:
*my blood sugars were significantly higher than on shots
*I got infections at the infusion site all the time
* the pump was very restricting to my wardrobe (it was hard to find a place to put it if I wanted to wear a dress or pants without pockets.)
*I did not like having something hooked to my body all the time.
*I gained around 30 pounds on the pump
*I got the tubing hung on stuff all the time
*After removing the catheter I would itch forever where I took it off.
*It fell off during exercise.
*All in all I just wasn't happy with it.

I will say this positive aspect about the pump, it is very handy. It is so much easier than packing around insulin and needles all the time. And I also had much much fewer and less severe lows on the pump.
I have been told by doctors and other pumpers that my experience with the pump was very unusual and most people have great control on the pump. However I have talked to other people who have also opted to go back to the shots for the reasons I listed among others.

I hope this helps a little, I know I have given you a lot of negatives here but I really wish someone had gave me the cons of the pump before I started using it. Instead I was told how wonderful it was and how it would change my life for the better. But it didn't.
I have been called crazy for switching back to shots. But to each their own. I think it is personal preference and you may really love it. I think I am the only one on here with any negatives about it. I hope it works out great for you. Good Luck

Anngelia
Anngelia 2009-09-17 21:18:27 -0500 Report

Did you have a CDE or anyone helping to train you and get you through the rough spots. We all have a hitch or two with the pump. It is a new device when you first start using it but if your properly trained most are very happy. But your right it is a personal choice and you are the first I have ever heard of that preferred dealing with all the multiple shots.

BLC
BLC 2009-09-17 22:00:24 -0500 Report

I had pretty good training and I felt very comfortable with operating the pump before I started using is. It wasn't really that I preferred the multiple injections it was more that I did not prefer having something hooked up to me all the time and the pump did not improve my blood sugar levels at all. My A1c went from 8 to 9 during the year I had the pump. I have a friend who was also on the pump for less than a month and she said she just couldn't do it anymore, mostly for the reasons I mentioned above. But it really is about personal choice. Sometimes I feel like I have had to defend myself with my choice not to pump with doctors, nurses and other folks. But that's alright we are all different. Some like it some don't. Variety is the spice of life.

2catty
2catty 2009-09-17 22:18:38 -0500 Report

Nothing wrong with the way you feel. For all of us who love it they are going to be a few that don't. No one is the same, and I hope your MDI works out great for you.

2catty
2catty 2009-09-17 22:20:36 -0500 Report

Myself my A1C with MDI went from 8 to 6.4 in 3 months. Yay!!! I am doing great on mine. Of course I am insulin resistant and use u500 in mine also.

lv Jesus
lv Jesus 2009-09-21 22:38:39 -0500 Report

As I was registering to this web site I received a package from the lantus Insulin people and I told my son I was thinking of going off the pump and back on the shots.The tubing does get stuck every where. My A1C was a 7.0 before I started using the pump now it's 8.10.I totally agree with you.

John Crowley
John CrowleyCA 2009-09-17 12:48:57 -0500 Report

My teenage son has been on a pump for about 5 years now. He's a very active kid and he's pretty hard on his pump. But the pump has held up well.

As for the convenience of the pump? My son would never go back to injections. He loves the pump.

2catty
2catty 2009-09-17 16:12:11 -0500 Report

Yep John is right. Once you switch from MDI you really find a new freedom and you love it.

HaliRN
HaliRN 2009-09-18 10:38:21 -0500 Report

While the pump isn't for everybody, most can benefit from it. I've been on the pump for 25 years!! I now have the glucose sensor and LOVE it. It does require more finger sticking (ironically), but that just keeps me under tighter control.

2catty
2catty 2009-09-16 14:34:43 -0500 Report

Hi Amy I have the Animas Ping and you can go to www.animascorp.com and they have some really great pump and really got my sugars under control. They also have a remote to where you don't have to pull your pump off all the time to bolus. They also help you calculate to bolus. Plus mine is a really pretty metallic pink. Has a LCD screen too. But best of all my sugars are the best they ever have been. I can swim with mine also. Plus it is under warranty that it is water proof. I have had mine bump into things and fall off and it does not hurt and it is really tough. If it wasn't I would not be able to have it. LOL I have an 4 year old and loves to play. I go hiking and am a outdoors person too. I swim a lot and have my pump right on there with me. Just inspect to make sure the cap is on there good and no cracks. You will love the new freedom of a pump. Their is a new pump coming out in 2010 called the solo you can check it out at www.solo4you.com good luck on the pump.

Piper5
Piper5 2009-09-14 15:59:19 -0500 Report

Hi Amy, I've been on the Medtronic pump since Feb 09. I love it. I was doing up to 8-9 shots a day and now I really feel the freedom. No it doesn't hurt to put in the infusion set. Mine stay in very well. If I do have one that doesn't seem to want to stay put, I just put Tegaderm tape over it and its good to go. My A1c has improved significantly! I wish I would have done the pump sooner. I also started the Continuous Glucose Monitoring system. The sensor monitors every 5 minutes what my BGs are. Its another thing stuck on my abdomin but for me it became necessary. I couldn't tell my lows and after a few at 27 I realized I needed the extra protection. Plus it really puts my family at ease now and they worry less about me being alone. Let me know how it goes for you. H.

Crashnot
Crashnot 2009-09-14 09:33:56 -0500 Report

Amy,
I just went on the pump last February after 41 years of injections. I don't care for it bumping on my belt all the time, but it has certainly improved my sugar levels and control. I have the Medtronics model, and it's okay. I'd love to try the Omnipod with no tubes to get tangled, but we cannot get them yet here in Canada. The one thing that freaked me out initially were the HUGE introducer needles for the infusion set. Turns out I'm sensitive to the teflon they make them with, so I now use the Accucheck Rapid D. Why? Well, it's the same stainless steel needle as in my syringes, and it's a itty-bitty 1/2" thing versus what looks like a 4" introducer needle you then have to pull out. Hate those things :-) That's worked for me, but I guess I could get use to the big needles if I shut my eyes!
The most inconvenient part of the pump is stopping every few days to reload it or change your tubing. But considering I don't have to stop 4x+ a day to do an injection, I guess it's a fair trade. After that, I only think about it when I punch a button to go with the meal I'm eating!

rain
rain 2009-09-13 23:47:45 -0500 Report

Hi Amy The pump takes a little getting use to. I am a fairly new pump user myself I have only been on it for about 6 months. I have to say my favorite part right off the bat was not having to take a shot everytime I ate (including snacks). I also loved how I didn't have to run to a restroom first when I wanted to eat I can discretly give myself what I neede without anyone noticing. Now you do have to test more often especialy counting carbs, just so you know how much insulin you need to take. I have an Accu-chek Spirit made by disetronic medical systems.I am very happy with my decision. Good luck…RAIN

Harlen
Harlen 2009-09-13 22:22:11 -0500 Report

I love my pump no it isnt painfull and my nubers have never ben better You cat try the Medtronic.com site they have a school there and its quite good and gives you a lot of info and any info is good good luck and keep in tuch
Harlen

Anngelia
Anngelia 2009-09-16 12:30:31 -0500 Report

I couldn't find what you are talking about on the medtronic site. Can you give any more details on where to find it?

kdroberts
kdroberts 2009-09-16 13:12:07 -0500 Report

If you go to the medtronic site (any pump manufacturer actually) and fill in the form for additional information you will get a package of info and a rep will send you an email with their contact info. You can call or email the rep and set up personal demonstrations and find out where they are doing public ones. A word of warning though, the sales people can be pretty pushy so be prepared to fend them off if you meet in person.

Anngelia
Anngelia 2009-09-16 22:26:48 -0500 Report

Well I was hoping to find some online classes or maybe some in person classes. I have taken a couple thru animas but I probably could use another one or two. What I really need to find is some carb counting classes. No matter how hard I try I just cant really seem to get that one down. I probably just need to order some books and start studying up on it.

2catty
2catty 2009-09-17 16:10:01 -0500 Report

If you get a book my favorite is Calorie King. I find it is very easy to use and covers most things. I take it out with me when I go out to eat.

2catty
2catty 2009-09-17 22:14:54 -0500 Report

I use the book, it what my pump trainer recommended. I find it to be very accurate. Other wise I would be in trouble using my pump. When you go to training on your pump they will teach you more about counting carbs and will give you a more simple book too. I double checked all things in my book with labels and they check out. But your pump trainer will teach you about carbs too. So I would not stress to much.

2catty
2catty 2009-09-20 00:14:12 -0500 Report

Yeah I guess I like using the book though because when I am fixing to eat and bolus I can look it up bolus and be done. I think I have most things memorized now. LOL I have been pumping now for 4 months and you learn quick.

Anngelia
Anngelia 2009-09-13 21:19:45 -0500 Report

Amy, I have been on a pump for the last 10 years. My first pump was a disetronic. Then my insurance changed and I switched to an Animas. I LOVE my pump and get much better control than I got with MDI. My last A1c was 6.2 and that is the best I have ever seen. I test about 8 - 10 times a day but with the Freestyle Lite meter it only takes a spec of blood so thats no big deal. I would love to have a CGMS but I dont think my current insurance will cover it. But these days there are so many new technological devices that a diabetic can use our lives are sooooooo much better. I've been a diabetic for almost 39 years and I wish pumps had been available when I first dx'd. I think it would have made a dramatic difference.

Christine10
Christine10 2009-09-13 19:44:32 -0500 Report

Hello Amy. I happen to love being on the pump and wish my dr had put me on it sooner. It took me years of having such high blood sugars and lots of damage to my body. Now I live with the damage but my control is so much better. It doesn't hurt at all. It clips on to most items I wear. There are times when it is a little bulky but I wouldn't trade that for the freedom it gives me. In my opinion, more younger people should go on the pump prior to the damage diabetes causes the body. I have been on the pump now for about 11 years. I just got my new one, and 3rd one, in July. It's the paradigm from minimed and I love it! Good luck and if you have any other questions, I'd be happy to give you my opinion.

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