What do you think of the site?

John Crowley
By John CrowleyCA Latest Reply 2015-05-06 12:37:11 -0500
Started 2008-03-12 05:34:31 -0500

As a parent of a type 1 diabetic, I know how important it is to have the right information, support, and treatments. That's why we want to build the best site for diabetics anywhere on the web.

So please tell us:

- What do you like about the site?
- What DON'T you like about the site?
- What features would you like to see added?
- What features do you like the best?
- Any other feedback you feel would be helpful.

Thanks so much for helping us make this site the best it can be.


226 replies

Yerachmiel
Yerachmiel 2013-12-15 13:14:38 -0600 Report

I ha e made a number of posts that answer questions which have been posted numerous times. The most useful would depend on someone's current status, but I've posted a list of companies and organizations that will aid someone without financial means, the European and ADA list of glucose meters and how well they comply and the FDA site for reporting of problems with equipment and/or medication.

yet there is no one to speak to about creating a "home page" sort of setup where someone(s) can decide on "most important tpes of posts that are always (or at least very lomng term) relavent, there is no where to find out how to create a suvery or a list of criteria someone could tie into their ID (would't it be nice if I could search for other type I diabetics who have had over 30 years and have certain long term compolications so one could ask how they are dealing with them??

Yerachmiel
Yerachmiel 2013-12-15 13:16:23 -0600 Report

On the other hand, the site DOES have a number of people who are posting, has a lot of information and help and is not (at least visibly) biased or driven by financial interest (if anything the site will lead to some financial worries over fewer doctor visits and much less need of hospital visits or medicationfor complications)…

bjswarden
bjswarden 2013-07-11 08:11:06 -0500 Report

I LOVE THIS SITE. This is a place where everyone can talk to each other and give much needed support and a shoulder to cry on. after being here I feel if though I have friends here being that I am new I dont have many yet but I know after my comments I will have a few. love the site good work.

jaf76
jaf76 2012-12-21 07:55:30 -0600 Report

I like this site a lot. It is very helpful. I do like the alarm reminder that you can set on the mobile app. I also like the discussion page and that you can interact with the other members. It's nice to see articles that are important to diabetes such as new meters, pumps (though I don't use one yet), and new medications. I have find a lot of helpful tips from the links that members post as well. Not really sure what could be done to make DC better, but I am still fairly new and there is so much to discover here.

Diaschm
Diaschm 2012-02-19 20:34:22 -0600 Report

I enjoy the discussions and the articles. I have tried many of the recipes snd they have on a whole been very good. I stayed away from the site for awhile because some people on the site wanted to share scripture with personal discussions. so I simply deleted the names and stayed off the site for a couple of months. I did not want to be in the position of sharing scripture or interupting my religious believes. I am Catholic but I do not feel that I can be quoting the bible on line.

robertoj
robertoj 2011-08-19 04:14:08 -0500 Report

I think this is a great site. A lot of good and supportive members. I like to be as well informed as possible and I have already gotten several good tips. I also try to pass on what I have learned. I hope to encourage others to maintain a positive attitude and enjoy their lives.

SongDude
SongDude 2011-06-03 15:33:18 -0500 Report

Thanks to people like yourself, John, and many others, I have been able to navigate through my diabetes in a correct fashion, and ask the right questions of my physician. This site is a wonderful resource. There are a few glitches from time to time, such as incorrect dates, posts that seem to be out of time sync with others, and items that become tracked incorrectly - however, I've learned how to click where it is appropriate, and still find what I need. I access the site directly through the main page, via a saved address location within my Safari browser. I enjoy reading the posts of others, and, I love posting here, as well. I actually enjoy this site better than Facebook!

debc1121
debc1121 2011-06-03 13:30:12 -0500 Report

I think this is a wonderful site full of information I am new to this site it has already helped me alot… I just want to say thank you I know I have somewhere to go and get answers.

mariafl
mariafl 2011-05-30 16:56:46 -0500 Report

So far I like the site. I'm new to it so I don't have much to say about it . However I like it and I'm just happy to know that there is more info out there other than Mayo Clinic and web MD. My mom has DIabetes and therefore I'm trying to inform myself on the disease.

charlieais3
charlieais3 2011-05-28 17:22:32 -0500 Report

I like this site because I can view and share how others cope with diabetes. I also enjoy news articles and product reviews so that I can make a decision on what is best for me. The recipes are fantastic because I can make my meals more enjoyable. Currently I find no fault or any dislikes with this site. I hope this site keeps going, thanks!

Nonna2Three
Nonna2Three 2011-05-17 09:36:34 -0500 Report

Would it be possible to add another filter option on our profile that will allow us to see only items people post to our profile? I get e-mail notification that someone posted a hug or comment or whatever, but when I click the link I get my profile with everything any friends have posted - I search through and click :Show older activity" a few times and sometimes the site has been so busy I never find the post. It almost makes a body think they have added too many friends, but really(?) how can you have too many friends. No, a filter would be better than removing friends. Thanks!

And, I DO love this site even if you can't add another filter option!

jacqueline hargraves
jacqueline hargraves 2011-03-31 16:54:27 -0500 Report

i was just told i had diabetes in the last 3 or 4 weeks. i remained calm, i used towork as a medical assistant but i have discovered there were things i wasn't aware of. with my PC and help i received from you guys i sincerely feel i will handle my border line issues. presently i'm on the pill but again thanks for sharing your input.

ladialexander
ladialexander 2011-03-15 12:28:46 -0500 Report

I love this site!, Im type 2 diabetic and get all my recipes off this site so not only do I eat right my whole family can benefit from the meals as well. Its a ball of information thats very helpful, Im very happy..thanks so much!

Flustrated
Flustrated 2011-03-15 12:25:05 -0500 Report

I am surprised how this site connects with so many people and I am not alone. This site brings up the issue of taking care of your feet. I have been doing this and find out Medicare is clamping done on benefits for shoes. Diabetic shoes are very costly. I've learned that no matter what I have read, I still have to make my own decision but knowing what other people went through helps me. I am fairly new and have alot to learn. You are giving me the tools. Thank you.

SHRIYA
SHRIYA 2011-03-10 09:53:39 -0600 Report

I am new to the site, but thank you all very much for includeing me, i have learn so much from this site keep up the good work. Just have 1 problem no matter what diet i put myself on or what i do just can't seem to keep my sugar level from jumping all over the place an my doctor keep on add on more med. what can i do to keep it 1 level SUMINTRA.

misspat2u
misspat2u 2011-02-24 10:53:19 -0600 Report

I am new to the site and very pleased that I am a part of this educational community program. So far I am liking everything I click on to view and or participate in, so there is not anything that I do not like about the site at this time. I am still learning how to navigate and I am still in the learning stages for utilizing this site…I am not very savvy when it comes to computer functions/features so it's all good to me, but I enjoy making new friends, seeing how the relationships formed here are very caring and genuine, the sharing and discussions are excellent. I know that there is always room for improvement, so If it gets better than this, I can't wait to receive it. Keep up the good work!
-Ms. Pat

Anonymous
Anonymous 2011-02-17 17:08:20 -0600 Report

I am new at the site and am not familiarized with all its features yet. Having one place to go for a specific ailment is a sound idea, plus the personal experience of other patients and medical expertise give it more weight.
The Lilly offer for the Humalog pen is too short, I suggest a longer time frame so that people can check with their doctors and then make use of the offer with time to spare, medical clinics being very busy most of the time.
Keep up the good work and thank you for your time

brenda02
brenda02 2011-02-17 10:04:19 -0600 Report

i am brendab and i am homeless and can;t take my medicine ,all the time because of this ,now i;ve open too of my insuline and have them in the little boxes they came into and hve paper towles coveing them , i do not have them in a icebox is trhis ok, what can i do for now .

Jesusa1
Jesusa1 2011-02-17 09:42:32 -0600 Report

I just started this sight and have tried some of the recipes. They are very tasty. I like that I can find answers to questions I have. I have been i diabetic going on 2 years and I am the youngest of a family who has had diabetes.

John R. Whittaker
John R. Whittaker 2011-02-16 11:43:28 -0600 Report

I am not diabetic. My grandfather was. I love someone who is diabetic & want to be more empathetic than sympathetic. I want to be able to understand the demands of the disease & how to make it known that I genuinely care. I want them to know how valued they are in spite of diabetes.

Debbie Jeanne
Debbie Jeanne 2011-02-10 09:57:35 -0600 Report

My doctor and I had a discussion last month about putting me on insulin. I don't have a problem with being put on insulin. My problem is the expense with no insurance I am having trouble finding help with purchasing my insulin. My doctor want me on Lantus (24 hour insulin) the cost is $691.00 without insurance I can't afford this cost and testing strips also. Can you help me find help?

red flower lady
red flower lady 2012-02-19 20:16:49 -0600 Report

Wow, why is a vile of Lantus that much? It is usually $120 or so, which is still bad. You need to call your health dept and ask them where to go to dr that uses a sliding fee scale which is based on your income. Then call that office and ask them what documents they need, usually a couple of pay stubs, but if you don't work then they need a certain form and will tell you how to get it. This will save you time as they usually only have set times to do this determination at the drs, but it goes fast. Then you will know how much the dr visit will be each time you need to go. The labs are also cheap, $1.00 on up, they will tell you the price of each before doing it and then bill you, it is insane how the fees can be this little and astronomical with insurance.

Once you see the dr, you will get your prescriptions and take them to the health dept and fill them there. In my state, the Lantus was $30.00, but the other insulins were $10.00 and a meter and strips were $10. each based on my income. I was in between insurance and this got me through the waiting period as well as my regular dr got me the insulin for free but it takes some time, so the above was great.. There were people who only paid $3.00 for their supplies. You can get the meds filled anywhere, but cheapest at the health dept.

This can be different in your state but I doubt not too much. Hope this helps:)

SongDude
SongDude 2011-06-03 16:01:39 -0500 Report

If you have low income, it is possible to visit a free clinic close to where you live. If you meet the criteria - for most free clinics, your yearly income cannot exceed 133% of what the current poverty level is nationwide. If your income is higher than the current poverty level, your fees at the clinic are set on what they call a 'sliding scale', so, you can still save a huge amount compared to what you would normally pay. However, if you do qualify, you can receive:
Free medical care
Free basic medical screenings
Free lab work from local participating hospitals
If you have no income, you can even receive free diabetic prescriptions, and if you attend a diabetes class sponsored by the clinic, you can even get a free meter AND testing strips. I wish you all of the best, Debbie Jeanne.

nanaellen
nanaellen 2011-06-03 14:26:26 -0500 Report

Hey Debbie, I just went through the same thing!! If your going on Lantus you can get it free (if you qualify). I believe you can get the application right on line through the manufacturer and you take the application to your Dr. He fills it out and they send the Lantus in 3 month supplies @ a time to your Dr.'s office and you can pick it up at the office!! They give you a years supply but you can apply unlimited times!! It was a real lifesaver for me! As far as testing supplies I can't help but I've heard here on DC that Walmart has the cheapest meter and strips! Hope this helps you! Good luck! Ellen :)

mexish
mexish 2011-02-06 20:50:20 -0600 Report

I was diagnosed in sept of 2010 of being type 2 diabetic. I have tried to find info. on the internet about my condition. I have found a lot of info. but some times it contradict itself from one site to another. I have not had a chance to really study your site but so far I have found it very interesting. I am looking forward to really checking out your site and hope it is every thing you say it is.

Diana55
Diana55 2011-02-01 02:41:51 -0600 Report

Hi; I am new to the site. I think I am going to like it here. People understand what you are going through and offer helpful ideas. I like the recipes section. When you first get diagnosed, you don't know what to eat. I will be coming back on a regular basis. Thanks for building such an informative site.

AnnaBelle02
AnnaBelle02 2011-01-31 18:04:43 -0600 Report

I'm new to this site and already find that it is very informative and easy to use and follow. The interactive support and advice are meaningful and makes lots of sense. Motivational and lots of references to read helps one to pay more attention to one's own problems and yet find others going through the same issues.

morninglory1972@sbcglobal.net
morninglory1972@sbcglobal.net 2011-01-31 09:20:37 -0600 Report

I enjoy seeing what new information is out there. I am a type 2 diabetic who has recently had two babies and am planning a third and possibly a forth. I would love some resources about pregnancy and diabetes.

jayabee52
jayabee52 2011-01-17 11:20:28 -0600 Report

Howdy again John.

I have noticed recently when I have to log out of the site for any reason, and want to log on again, I have to wade through numerous opt out style advertisements. I really find that annoying. Formerly all I needed to do to sign on was put my email i& password in the log in screen & I'm in. But now I have to say I'm not interested to 4 or more "offers" I don't think I need.

I realize the need for advertizing to keep the site solvent, but I don't like this new tactic of adverisement. I do love to be on DC, & about the only thing which would drive me away is to charge for using the site.

But I wantrd to register my annoyance at this current tactic of advertising.

John Crowley
John CrowleyCA 2011-01-17 11:46:45 -0600 Report

James,
That most definitely should NOT be happening. I will check into it right away.

Thanks for letting me know.

John

John Crowley
John CrowleyCA 2011-01-17 11:53:24 -0600 Report

James,
Do you use the "Login" link in the upper right corner? Or do you have a login page bookmarked? If you use a bookmark, please let me know what the url is of that login page.

Also, what browser are you using?

That will help us track down the issue.

John

jayabee52
jayabee52 2011-01-22 09:30:04 -0600 Report

Thanks John. I put the link for DC into my favorites page, and when I use that, instead of the search engine I get the login experience I had been used to.

beta burnout
beta burnout 2011-01-16 09:29:03 -0600 Report

Myself I am a type 1 diabetic of 42 years - yes I grew up, through times when very little was known about it. Unfortunately I find that almost every diabetes site is geared toward type 2 diabetics, and most e-mails, sites saying they will give information are sites to sell you something, especially to lose weight, or congratulating me on choosing to go on insulin. I wish they would realize that type 1's do grow up and become adults, and eventhough we are only 10% of the diabetic population I would love to see some kind of diabetes site geared toward type 1 diabetes - not make assumptions that if I'm an adult I must be a type 2 and overweight!

John Crowley
John CrowleyCA 2011-01-17 10:05:05 -0600 Report

Thanks for your input. We try to keep a good balance here. We have both type 1 and type 2 moderators--so that seems to help.

edsus
edsus 2011-01-15 15:35:04 -0600 Report

Thank you for answering our questions he understand his disease alot better. thank for the site great job

Cari Lee
Cari Lee 2011-01-14 18:39:16 -0600 Report

Hi John,
I really love this site. It is very easy to navigate and educational. Wish I would have known about it sooner. Thanks so much,
Cari

re1ndeer
re1ndeer 2011-01-07 19:24:21 -0600 Report

As a newbie to the site, All i can say is WOW ! So informative, so, educational. and so friendly from the entire DC community. Thank you so much.

CaliKo
CaliKo 2011-01-07 17:14:34 -0600 Report

Okay, John, I do have something I don't like about the site. I really don't like the preachy, mean-spirited, derisive comments and soapbox ranting that goes on in the comments section of some of the recipes. I agree that people should be able to make a comment or ask a question, but I do think people should remember their manners and also that diabetics range far and wide with both their approach to diabetic care and what their bodies can and can not tolerate. Of course all recipes are not for everyone. If someone wants to go on and on and on and on about their own personal beliefs maybe they should start their own discussion that others could choose to read or not. Maybe the comment box could have a character count limit? Just saying. Thanks for listening.

m h
m h 2010-12-27 10:19:44 -0600 Report

I am so surprised at how much help this site can be. THANK YOU VERY MUCH
Is just not saying enouph. You guys are great.

Camryn
Camryn 2010-12-20 00:13:45 -0600 Report

I like the site very much. There's so much info! While I'm finding the info very helpful, I feel overwhelmed at the sheer volume of it. Also, I'm having a time navigating around the site, but I'm sure in time that will improve. Overall, I think it will be most helpful to me.

Eric G.
Eric G. 2010-12-19 20:42:30 -0600 Report

I think this site is great. It is helpful to be able to get advice and information from others experienced with similar conditions 24/7. It's like facebook for diabetics.

ROSHC
ROSHC 2010-12-15 10:45:18 -0600 Report

I am new to this site but have had type 1 for 20 years. I feel I could share alot of expeiences & info with others. I am not at ease with the computer so it is difficult for me to find my way around the site. I will keep trying & hope that it gets easier to navigate.

Brenda_B
Brenda_B 2010-12-04 11:48:16 -0600 Report

I'm type 2. I LOVE this site. I have been diabetic for several years… and "pre-diabetic" for years before that. I have just been blindly going along. On this site I learned I'm not the "typical" diabetic. That is why I was getting very little useful information from my doctor. Here I was able to read what other people had posted… ask questions… and actually learn.
* I like the links people post. Sometimes the informaiton is not for me but I read it anyway. I have passed on the site and the links to friends.

Miracles
Miracles 2010-12-04 11:20:47 -0600 Report

I like what I have seen so far. I have picked up several good ideas. I am still learning my way around since i don't stay on my computer a lot. My only frustration is that for example I clicked on give you feedback and the first time I got another add. I had to close that and the next time the correct screen came up. I have not figured out if I am doing something wrong or not. Other than that (a problem I can live with) I am enjoying the site.

Fritzana
Fritzana 2010-12-02 16:14:18 -0600 Report

This is an incredibly safe space to go to considering a day to day balance fluctuates so much, and I don't want to be panicking, but rather calm, proactive, and informed before I go, or do not go to see a physician. BEAUTIFUL! C:

Molly, Gracefavor
Molly, Gracefavor 2010-12-01 20:57:11 -0600 Report

(1) Site is very informative. (2) So far I haven't seen any negative at this time (smile). I would like to see a Doctor to ask questions. I like when the community comes in with different views. Thanks for medical information. Information is POWER. God bless!!!!!!!!!!!!!!! Julie.

CaliKo
CaliKo 2010-11-29 12:53:54 -0600 Report

I love this site!
I like being able to choose to see my friends activity. I friend people when I want to be able to track their discussions.
I would also like a way to select (and deselect) favorite discussions to come back to later when I have more time or whatever. I know you can turn on tracking, and I use that, but if the discussion isn't getting many comments, you have to search through the pages of discussion threads if you don't remember the name.
Thanks for asking!

Eversinging1
Eversinging1 2010-11-28 20:37:01 -0600 Report

I'm relatively new to this site and new to the realization that I really do have this disease and I need to deal with it. I think this site is amazing and so are the people who are members. There is such an air of comraderie here, we are all in the same boat but to varying degrees, but everyone helps and encourages each other. I think I would be lost without you guys! No, I KNOW I would be lost without you guys!

Lisa07
Lisa07 2010-11-28 19:32:29 -0600 Report

I'm so happy with this site. Is nice to know that im not the only one that have problems dealing with diabetes. I found alot of new friends and alot of informations. Thank you so much for your good work:-)

SueSantoFanb
SueSantoFanb 2010-11-28 19:12:31 -0600 Report

This site has been most informative. Thanks to you for all of your most significant efforts. I am a new Type 2 Diabetic and have so very much to learn. Does anyone have or know about lichen planus? I cannot use Sorbitol or other sugar alcohols as a substitute. I would surely like to learn. Many thanks, again.

jayabee52
jayabee52 2010-11-28 22:10:05 -0600 Report

Howdy Sue
That looks like something you could ask as a general discussion question. You'll probably get more people who would see it and potentially comment on it.

Me? I have never heard about lichen planus but plan to go look it up.

Blessings to you and yours Sue

James

nana2005
nana2005 2010-11-25 12:33:06 -0600 Report

I am very happy with this site you get to meet people that understand you and have gone though what you are going thuhg as well . and not only that their feed back on what has or what they are going though is a helping tool for everyone. I realy tike this very much , I am very glad that this is here.

CaliKo
CaliKo 2010-10-28 16:12:56 -0500 Report

I love this site, but would enjoy seeing the nutritional information print with the recipes. Or is it just the platform or browser I'm using. Safari on a mac.

Hooper666
Hooper666 2010-10-28 08:41:18 -0500 Report

I was dagnosed with Diabetes in 1984 and have progressed from pills and diet to an Insulin Pump. I love the pump but i would like t pass along some things i have found out. If you have recently been diagnosed it is not the end of the world. Making a committment to staying on top of the disease is the first thing someone needs to do. Diet and most importantly exercise can lowerthe chances of getting complications associated with Diabetes. Had i made this committment early on i would have most likely been able to stay away from insulin. But since i didn't the pump has become ny best friend. It has made taking care of Diabetes sooooo much easier and reliable. I now keep my A1C's in the 6.4-6.8 range regularly and also exercise 3 days a week. My mind is made up to not let Diabetes control my way of life but that i will control it.

shorty1965
shorty1965 2010-10-10 09:55:12 -0500 Report

I'm happy that i found this site. i need to know what i have to eat and how to start trying new things. i have to learn how to make quick meals on the run. and everything i was looking for i have found here.so thank you all for making this site for new people with diebites.
I like a lot of the ideas you'all talk about and you will here a lot from me on different things you talk about.

Mr.Jazz
Mr.Jazz 2010-10-06 12:56:49 -0500 Report

I think the site is very informative. I have been a type-1 diabetic for 40-years and I'm

still learning about my disease. I would how-ever would like to know more about
how diabetes effects the skin. I'm a very activity person and when-ever I get a
cut it turns dark after healing and takes a very long-time to resume it's original color.

mo91108
mo91108 2010-10-01 13:08:28 -0500 Report

I love this site, I like that you can post discussions to get feedback, and recipes to help others fight this disease just as all of us are. This is an amazing site, and I feel blessed that I found this site it has been super helpful!

- Monica

Anonymous
Anonymous 2010-10-01 12:36:27 -0500 Report

I was not aware of the Health Center. What a source of information that will be!!

I like the site. Sometimes I get lost in it. But I keep going in and I am learning.
Thanks
Barb Yeakle

Chrissy6341
Chrissy6341 2010-09-24 18:59:24 -0500 Report

This site is "Awesome. It by far the best site I have come across since being diagnosed last month. Keep up the good work!!!!

boston T
boston T 2010-09-24 17:41:13 -0500 Report

I'm enjoying this site very much. There is so much to learn. I like how so many people share advice with each other. It's amazing to figure out all that I DIDN'T know about diabetes!

CaliKo
CaliKo 2010-09-20 09:25:39 -0500 Report

I've never been one to join in support groups, and am lucky enough to have an excellent team of doctors that take good care of me. When I saw your site, I thought I'd be in the recipe section all the time, because I love to cook and work to make my meals appropriate for all my health conditions. My surprise was that I've quickly become addicted to the discussion boards, and the facebook quality of "friending" and being able to either talk publicly or in private. It's a wonderful site, and I'm just beginning to explore all the benefits. Thanks!

CHOZAWASHER
CHOZAWASHER 2010-09-14 20:30:55 -0500 Report

I WON'T TO JUST THANK YOU VERY MUCH ! FOR SENDING ALL THE INFORMATION YOU HAVE BEEN SENDING ME THE LAST FEW DAY'S ,IT'S NOT EASY TO UNDERSTAND THE MEDICAL SIDE OF MY DIABETES, BUT WITH YOUR HELP IT MAKE'S LIFE A LOT EASIER TO HANDLE . YOU HAVE BEEN A GREAT HELP TO MILLION'S OF PEOPLE AN YOU SHOULD BE CONGRATULATED FOR ALL YOUR EFFORT THAT YOU HAVE PUT IN FOR THIS TO WORK FOR OTHER'S, AGAIN THANK YOU ALL THE BEST TO YOU.

Guardianstone
Guardianstone 2010-08-31 06:38:48 -0500 Report

John;
I don't know how to tell you this but, this site is GRRRRREEEEAAAAATTTTTT!!!!
I have been for about 2 years. In that horrid time most of my questions to doctors, nurses, Family and friends went unanswered. I have found more info in the first few days with DC than the whole time I have been in Az. Thank's for all.
I would like to see the videos. My phone cannot use Java. I am finding it difficult to log in. Same thing for accessing the site. These may be partially the fault of the cell phone.
Closing for now.
Guardian stone

Breezey
Breezey 2010-08-30 00:33:03 -0500 Report

Are you serious? lol! Your site is well put together, informative and a LIFE SAVER for those newly diagnosed like me!! Bless you for starting it! there is so much here to read and learn from its unreal! I like ALL the features!! Well Done John!!!!!!